show episodes
 
Donor Diaries is a podcast about the beauty and messiness of living organ donation. Get ready for some amazing stories about what happens when people decide to share their organs with other people, when people chose to share life. The sharing of kidneys and other organs is an incredibly fascinating topic that teaches a lot about kindness, love, and life! There are over 100,000 people on the kidney transplant waitlist today, and sadly about 13 people die each day waiting for a kidney that the ...
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The Journey Continues

National Kidney Foundation of Illinois

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The Journey Continues is a podcast committed to promoting kidney health and organ donation through powerful stories. Host Monica Fox is a kidney transplant recipient and Director of Outreach and Government Relations for the National Kidney Foundation of Illinois. This series will feature the journeys of kidney patients, living donors, transplant recipients, donor families and industry experts who continue to educate the community through their own experiences and stories.
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Conversations with Living Organ Donors

Washington D.C. Living Organ Donor Fund

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This series of podcasts will educate the general public and those considering organ donation through living organ donor stories. Listen to the journeys that brought these amazing people to save another human being's life and how they are doing now.
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Kidney Transplant Conversations features diverse voices and experiences of donating, receiving, and caring for this gift of life. Over the coming months each new episode will feature interviews with patients, caregivers, advocates, donors, healthcare providers, and community leaders. At its highest level, our podcast series focuses on quality healthcare delivery, highlighting the innovative approaches kidney transplant recipients and providers are applying to improve care. Along the way, we’ ...
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The Liver Lounge

The Liver Foundation

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A podcast initiative by The Liver Foundation where we discuss the latest updates in hepatology with the world’s leading experts. In each episode, we bring you the latest updates, breakthroughs, and insights on a myriad of topics, from the intricacies of steatotic liver disease to the complexities of residency matching. Whether you’re a medical professional, researcher, or simply intrigued by the liver’s vital role in our health, this podcast is your go-to source for staying informed and enga ...
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For Our Special Kids is simply that...For Our Special Kids. When you realize you have a magic child on your hands, you do everything you can for them. So...I started a podcast to honor and highlight the magic and the mess of raising a child with special needs. What I have learned over the past 6 years is profound. 1. My child is WAY smarter than me. 2. She has opened me up to the incredible world of intuition, psychic abilities, mediumship, healing, telepathy, galactic travel, the angel real ...
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show series
 
Today’s episode with April is the personification of the belief that things happen for a reason in perfect time. She is the next in our series Meet Amazing. April shares her story and I know you will be inspired. We all can do hard things and April shows us today. We love to hear from you. Send emails to ForOurSpecialKids@gmail.com if you have ques…
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Registered Nurse Von Alcedo is passionate about caring for dialysis patients. He uses his almost 40 years of expertise to coach them through their options, boost their spirits, help them take charge of their health even during the low times, and live their best lives while undergoing treatment. Thank you to Fresenius Kidney Care for sponsoring this…
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Jen had a very busy week and didn't get a podcast recorded. So, we are playing revisiting and episode from 2023 with Eli Harwood, The Attachment Nerd. Thanks for understanding. We love to hear from you. Send emails to ForOurSpecialKids@gmail.com if you have questions, topics, or an amazing person we should highlight. And, please tell a friend or ca…
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On Sept 4th, 2022, Kaydee introduced us to human design. And today, she provides a lot of details as to how the body graph from human design can give us insight on how to handle strong emotions like frustration or how to speak with our children in a way that meets their needs. Kaydee gives a ton of examples for Teal but I’m hoping you can pull some…
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When nurse and mom Linda Miller learned her PKD had advanced to kidney failure, her daughter's high school best friend Joel Shoemaker didn't hesitate to be her donor. The two have always shared a special bond and their friendship and love for one another is infectious! Visit Joel's website at itsjoelshoemaker.com or follow him on social media: Inst…
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Imagine opening your heart to a complete stranger in one of the most profound ways possible. That's exactly what our guests, Josiah Wolfson and Kat Gordon, did when they each made the life-affirming decision to donate a kidney to someone they'd never met. Their compelling stories of self-discovery and transformation are sure to resonate deeply, as …
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Have you been feeling a little anxious lately, heavier than normal, not sleeping well, or experiencing intense dreams? Well, you are not alone, and today’s episode is a quick reminder that many of those things might be happening to your little ones as well. Today, my friend Kate Trotter joins me for an impromptu chat about what behaviors we might b…
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Welcome to our latest episode featuring Professor Emmanouil Tsochatzis, a distinguished Professor of Hepatology and Honorary Consultant at the UCL Institute for Liver and Digestive Health in the Royal Free Hospital. Today, we embark on an exploration of the profound impact of Metabolic-Associated Steatohepatitis (MASH) on individuals grappling with…
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Chef Chloe Gould’s journey is filled with learning, discovery and painful loss. Whether she’s showing love to her clients, her family, her mentors, or her students - food has been there, for the hurting and the healing. Follow Chef Chloe on social media at @DixiePura or visit her website at https://www.dixiepura.com/…
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We talk all things music in today's episode with Jim Gaven of Key of Awesome Music! In our discussion, Jim references a book by Oliver Sacks called Musicophilia, I've attached a link to this book if you are interested in learning more about how music can effect the brain. Musicophilia: Tales of Music and the Brain, Revised and Expanded Edition: Sac…
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The episode today is a follow up to last week's emotional "dump" from me. I had a wonderful chat with Etienne Jambou and Tania Ginsberg-Jambou…who are wonderful friends of mine. Tania has joined us in the past (April 13th of 2023 and June 26, 2022) and today her husband has joined us for a lovely conversation to pull through some new concepts like …
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Discover the latest insights in viral hepatitis control in Africa with Dr. Yusuke Shimakawa, a senior epidemiologist at the Institut Pasteur, Paris. In this episode, gain privileged access to Dr. Shimakawa's expertise as he navigates the complexities of hepatitis B and discusses tailored care strategies specifically for Africa. Tune in to deepen yo…
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In this extremely raw episode, Jen opens up about how her positive vibrational energy and hope has shifted since Teal's diagnosis; something she is very much ashamed to admit. Jen openly shares the raw truths about feelings no one likes to discuss and looks at the heaviness of guilt. However, in the end, she shares two profound truths and provides …
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In today's episode, Tapley Holland joins the show, for a 2nd time, to talk about the 4 main ways this unique, dose- and condition-specific PRP IV therapy works and the many conditions it can positively impact. They look at autism, mild and severe CP, Grand mal seizures, learning disabilities, type 1 diabetes, down syndrome, fentanyl overdoses, Lyme…
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We are thrilled to have the privilege of hosting Prof. Juan Pablo Arab, a distinguished expert in alcohol-associated liver disease from the Schulich School of Medicine at Western University, Canada. In this enlightening episode, Prof. Arab unveils groundbreaking insights from his recent publication in Hepatology, shedding light on the intricate mol…
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LJ Dong, also known as LJ the Medium, embodies resilience and determination in her journey with Nutcracker Syndrome. Despite facing significant health challenges, LJ's refusal to discard her kidney led her on a remarkable path toward organ donation advocacy. As the American Miss National Mrs. for 2024, LJ leverages her platform to raise awareness a…
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Shira Averbuch joins Jen today to talk about how our gut health, energetic body frequencies, supplements, and diet can help our kids with their disabilities. We love to hear from you. Send emails to ForOurSpecialKids@gmail.com if you have questions, topics, or an amazing person we should highlight. And, please tell a friend or caregiver about us! F…
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In this highly anticipated episode, we extend a warm welcome to Prof Rashid Lui, a distinguished gastrointestinal oncologist hailing from The Chinese University of Hong Kong. Join us as he delves into his comprehensive review on the pivotal role of the gut microbiome and fecal microbiota transplantation in addressing liver cancer and associated com…
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Prepare for an enlightening journey as we dive into a riveting discussion with Prof Loretta Jophlin, an esteemed transplant hepatologist from the Trager Transplant Center, Jewish Hospital and the University of Louisville, Kentucky. Join us as she unveils invaluable insights into the latest ACG Clinical Guideline for Alcohol-Associated Liver Disease…
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Jen jumps on today to share some thoughts on her recent 2-days-away and why she wasn't quite sure she was deserving of the time. Then, she shares some inspired words on love. Enjoy! We love to hear from you. Send emails to ForOurSpecialKids@gmail.com if you have questions, topics, or an amazing person we should highlight. And, please tell a friend …
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We are truly honored to welcome a luminary in the field of hepatology, none other than Prof Kris Kowdley. With a career spanning decades, Prof Kowdley stands as a trailblazer in advancing our understanding of liver health. As the Director of Liver Institute Northwest and a distinguished Professor at Elson S Floyd College of Medicine at Washington S…
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Andrea Pollacks’s main focus is on helping parents better parent their autistic child. But, the information she provided Jen on this week's episode had nothing to do with any diagnosis. Her insights on self-worth, measuring effort, self-regulation, and support vs. discipline were extremely valuable, easy to implement and tangible. We're excited for…
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We are delighted to host Prof Ana Lleo, a distinguished expert in autoimmune liver disease from Humanitas University. Join us for an enlightening discussion as we delve into her recent study published in the Journal of Hepatology. In this episode, we explore the intricacies surrounding the incidence and predictors of hepatocellular carcinoma in pat…
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In today’s episode, Jen and Kelley talk about topics we’ve never covered here at For Our Special Kids Kelley Coleman gets Jen to talk about some not-always talked about concepts and issues. Using the words special needs vs. disabled is just one example. They talk about ableism and why there is a negative stigma around this entire community. They ge…
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Join us for an exciting episode with Dr. Ciro Celsa from the Università degli Studi di Palermo as he unveils his latest research published in the Journal of Hepatology. Delve into the distinct characteristics and outcomes of immunotherapy-related liver injury in patients with hepatocellular carcinoma compared to other advanced solid tumors. Don't m…
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This week’s episode is honest, vulnerable, raw, tearful, extremely challenging, brave, heart breaking, and also hopeful. This is Lee Tonk’s 1st time telling his story. He is a private person and for most of Remy’s life he traveled this journey of parenting a child with a disability in silence and alone. And, it is emotional. We both cry. We laugh a…
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In her role at Blue Cross Blue Shield of Illinois, as well as in her own personal health journey, Shelley Turk has learned the importance of the saying, “an ounce of prevention is worth a pound of cure.” Her commitment to whole person and whole community health is shifting the focus from treatment to prevention with increased education, access, and…
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Dive into the realm of transplant psychiatry with Dr. Zimbrean, Director of Transplant Psychiatry at Yale New Haven Hospital. With a focus on the mental health of organ transplant candidates, recipients, and donors, she shares insights from her latest study, 'Psychosocial Evaluation of Living Liver Donors: Current Practices in the U.S.' Join us for…
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In today's episode, Jen shares more of her story as Teal's mama. Noelle Deane starts the interview and then as things would go...Teal jumps in and begins asking questions herself. Mind you...the questions she asked were harder than the questions Noelle probably would have asked! We hope you enjoy this episode. And, as always, let us know what you t…
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We love to hear from you. Send emails to ForOurSpecialKids@gmail.com if you have questions, topics, or an amazing person we should highlight. And, please tell a friend or caregiver about us! Follow Us on Instagram & FaceBook, @ForOurSpecialKids or go to https://www.ForOurSpecialKids.com https://uppbeat.io/t/lane-king/journey License code: E3DYP1B4L…
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Step into this episode with Dr. Pavel Strnad from the University Hospital Aachen, Germany. Leading a pioneering initiative on alpha-1 antitrypsin deficiency-associated liver disease, Dr. Strnad invites you to tune in and gain valuable insights into this crucial area of study. Don't miss the opportunity to delve into the world of alpha-1 antitrypsin…
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Happy New Year!! This quick episode is posted to remind you that you are surrounded by a family that far surpasses your physical world! You are loved beyond anything you can imagine. You are held in the highest regard with the highest energies! Ask them in. Ask them to help guide you. They have so much more than love for you! Enjoy. And let us know…
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John Czechowicz is a self-described professional dialysis patient. He and his wife Sara are an unstoppable team, loving and supporting one another through 27 years of marriage, parenting their son, and finding the right dialysis treatment to fit their lifestyle. This episode is sponsored by Fresenius Kidney Care. Learn more at https://www.fresenius…
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In today’s episode, we are excited to welcome Dr Paul Brennan from University of Dundee. Join us as he unveils insights into his latest publication in Gut on the evolution of gastroenterology and hepatology in challenging the obesity and steatotic liver disease paradigm. Catch this exciting interview as he shares more about public health-directed p…
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Getting listed for a transplant isn't as simple as making a phone call to add your name. The process and be long and confusing. Transplant Manager Amanda Michaud helps her patients navigate the journey, every step of the way. This episode is sponsored by NANI - Nephrology Associates of Northern Illinois and Indiana. Learn more at nephdocs.com…
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The holidays can be a very difficult time to see magic when you've been living with so much tragedy. Today, Noelle and Jen go through a few tips and processes that might help you see the world through a different lens. Wishing you all the best this holiday!! We love to hear from you. Send emails to ForOurSpecialKids@gmail.com if you have questions,…
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Carrie Cariello joins the podcast today. Her 19-year-old son, Jack, has autism. Carrie shares their journey as a family from Jack’s diagnosis process, to bringing home another baby, how Carrie and her husband had to find balance in their relationship and their individual relationships with Jack, when online dating goes very wrong and how important …
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Step into an exclusive episode exploring blood-based biomarkers for hepatocellular carcinoma surveillance with the distinguished Professor Amit Singal from UT Southwestern Medical Center. As a leading authority in this field, Professor Singal boasts an impressive portfolio of over 200 publications in esteemed journals such as JAMA, Gastroenterology…
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When someone loses their Medicaid coverage, they must apply for “redetermination.” Nancy Wohlhart from Blue Cross Blue Shield of Illinois explains how to regain coverage to ensure everyone receives the quality medical care they deserve. Learn more about Medicaid access at Medicaid.gov This episode is sponsored by Blue Cross Blue Shield of Illinois.…
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