By Ovid Therapeutics

Amanda Moore joins us to talk about her new role as CEO of the Angelman Syndrome Foundation and her leadership within the rare disease community. Amanda and her family live in Indianapolis, Indiana. In 2015 Amanda and her husband, Adam, adopted twin boys, Jackson and Braden. Jackson was diagnosed with Angelman Syndrome in January of 2017 and since …

Karen Utley, President and co-Founder of the International Foundation for CDKL5 Research speaks with Amit about what it's like to be a leader in the rare epilepsy community, and what matters most to families affected by CDKL5 Deficiency Disorder. What makes me hopeful are the advances in science. They are exciting. There are so many things that hav…

As we enter the season of high school prom and joining community and friends to celebrate, Autism advocate and nonprofit founder Stephanie Mishler joins our podcast and talks about applying her love of hair and makeup to peers with special needs. College student and special needs advocate Stephanie Mishler combines her passion for the beauty indust…

We're back, and there's no better time to kick off the 2019 season of BoldMedicine. February 28th is Rare Disease Day! Throughout the month of February hundreds of patient organizations from countries all over the world will hold awareness-raising activities celebrating the rare community of patients, caregivers and advocates. We're excited to have…

Terry Jo Vetters Bichell has been the Director/Scientific Officer of the Angelman Biomarkers and Outcome Measures Alliance (A-BOM) since its inception in 2016. Dr. Bichell earned a PhD in neuroscience from Vanderbilt University in 2016, studying gene-environment interactions in Huntington’s disease rodent models, but she has been involved in Angelm…

Becky Burdine impacts the rare disease community, the Angelman syndrome community and the scientific community in every way possible. Her approach is science driven and starts with the families in her community. Dr. Burdine is parent to a child with Angelman Syndrome, and was a founding member and Chief Scientific Officer for the Foundation for Ang…

Amit speaks with Kendall James-Davis, Senior Manager of Strategic Alliances at Global Genes, about the impact of patient involvement in discovery. Kendall talks about the remarkable team of advocates at Global Genes dedicated to supporting families affected by rare, genetic disorders. www.globalgenes.org…

Amit is joined by Sam and Alexis Maydew, parents of a child with Angelman Syndrome. The Maydew's talk about their journey as parents, advocates and leaders in the Angelman Syndrome community.By Ovid Therapeutics

Amit talks with Hillary Savoie, Founder of The Cute Syndrome Foundation. Hillary shares her journey as a parent and rare epilepsy community leader.By Ovid Therapeutics

In the first episode we introduce our host, Dr. Amit Rakhit, MD, MBA. Amit talks about the core philosophy that makes Ovid Therapeutics different in our approach. Amit also shares a remarkable story that inspires him to come to work every single day -- and it starts with the pictures hanging on the office walls at Ovid.…

Amit introduces Chief Scientific Officer and Founder, Matthew During, M.D., D.Sc., and core members of the Ovid Research team. Matt, Melanie, Toshiya, and Amit talk about the diverse science-driven Ovid family, and the patients who inspire them every single day.By Ovid Therapeutics

Founder of the Lennox-Gastaut Syndrome Foundation, Christina Sanlnocecio, talks about innovative programs available for LGS patients and families. This incredible foundation is driving science and supporting every patient and family affected by Lennox-Gastaut Syndrome.By Ovid Therapeutics

Chelsea Leyland shares her story of growing up with Juvenile Myclonic Epilepsy. Chelsea talks about her battle with rare epilepsy and the need to remove stigmas attached to the disease. In this episode we talk about what it's like to watch a loved one have a seizure, and how important early diagnosis is.…

A hot topic at this year's National Organization for Rare Disorders (NORD) Summit was patient access to medication. In our patient-centric quick fire challenge, Amit tells us about the perfect patient partner.By Ovid Therapeutics