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Like a pink laser beam of insanity beaming straight into your brain hole, authors and longtime D**kHeads David Agranoff and D. Harlan Wilson break down each of Philip K. D**k's novels in order of publication with very little help from their engineer Langhorne J Tweed. Plus: Interviews. Story Vs. Film episodes. And other bits of PKD history. Support this podcast: https://anchor.fm/dickheadspodcast/support
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SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase deficiency (PK Deficiency) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PKD. Each episode, Just Listen: Voices of PK Deficiency strives to provide listeners with critical education, the latest scientific updates, and voices from the PKD community. Learn more about PKD by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency’s on Fac ...
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Losing weight is challenging and knowing how to keep it off is confusing. Everyone starts their “diet” on Monday and often break by Thursday because “stress” or health issues get in the way. If that sounds like you then meet Karina Rabin. She was born with a genetic kidney disease, ( PKD ), had 2 c-sections & shares with you how she got fit & healthy by eating real foods we all love. This podcast includes nutrition, meal prep, fitness, health, how to overcome the fear of carbs and how to hav ...
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Having overcome a near-death experience, I decided to close my life coaching practice (accessible previously on this page) and place my health at the forefront of my journey. My focus has pivoted towards advocating not only for myself but also for others. While life coaching tips will still find their place in my content, my main emphasis is now on patient advocacy through sharing my story. Six months ago, I dove into a career in the AI field, aiming to improve my financial stability in the ...
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show series
 
The 'Not a Book Club Book Club' podcast on PKD, his books, and influence.We recently went live from the Philip K. Dick Festival in Fort Morgan, CO, along with fellow DickHeads Jonathan Lethem & Stephen Graham Jones. I was at home but had fun in the chat and even managed to get some technical difficulties under control once I realized I could. Enjoy…
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On this episode, Dr. Rachael Grace talks with the King family. Jennifer and Jerry King have been raising William and Lily. Both have pyruvate kinase deficiency and we discuss how they’ve managed the disease with their two children.. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended f…
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Hello PKD fans. We're back with the next straight novel, Puttering About in a Small Land, written early in PKD's career but published after his death. This is an interesting take on an extramarital affair. We are joined by PKD collector and scholar Frank Hollander to discuss this odd semi-autobiographical effort. Plus: Relatively long. Paul Giamatt…
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The Two Davids (Agranoff & Wilson) sit down with author Barry Malzberg to discuss his books, legacy, and what it was like ascending the ranks amongst the new wave.Our Patreon ►► http://www.patreon.com/LanghorneJTweedElectric Larryland Discord ►► https://discord.com/channels/557458722268643329David's YouTube Channel ►► https://www.youtube.com/user/V…
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On this episode, Dr. Rachael Grace talks with Jessica Kellar and her teenage son Travis. They discuss Travis’ diagnosis, actively involving him in his own care and how to navigate life as a teenager with pyruvate kinase deficiency. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended fo…
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Here is the intro slash bio slash interview with PKD collector and scholar Frank Hollander from our discussion of Puttering About in a Small Land. He asked if we wanted the long version and I'm glad we said we did. Enjoy.•Our Patreon ►► http://www.patreon.com/LanghorneJTweed•Electric Larryland Discord ►► https://discord.com/channels/557458722268643…
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800 Words: The Transmigration of Philip K. Dick is a play about the last few days of Philip K. Dick's life and supposes the internal worlds he might have lived in since the VALIS incident or maybe even his whole life. All three DickHeads Podcast hosts made it to this interview with the playwright, Victoria Stewart, and Reggie Herbert, the co-direct…
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This week's guest on Spitefully Yours with Andrea Welker, is the one and only Jack Maxwell! Jack is beloved the world over for his globe-trotting adventures as the Travel Channel's one and only Booze Traveler, and he's the host of #AmericanHomecoming. As an actor, he has had guest roles on House, Beverly Hills 90210, Lost, 24, Without a Trace, The …
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This week's guest on Spitefully Yours with Andrea Welker, is the one and only Jack Maxwell! Jack is beloved the world over for his globe-trotting adventures as the Travel Channel's one and only Booze Traveler, and he's the host of #AmericanHomecoming. As an actor, he has had guest roles on House, Beverly Hills 90210, Lost, 24, Without a Trace TV, T…
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Welcome to Spitefully Yours, your go-to podcast for candid conversations, heartfelt anecdotes, and now cutting-edge health tech reviews! 🎙️ In this episode, we're diving deep into the wellness world with a review that'll leave you breathless! 💨 Get ready to embark on a journey of discovery as we explore the incredible features of the Wellue O2 Ring…
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On next week's episode of Spitefully Yours, we're diving into the world of why a good night's sleep is so important to our health, and I'll tell you about the year I stopped sleeping. We'll discuss a review for a product I've been dying to get my hands on. Literally.😂 🚀 I'm putting the spotlight on the Wellue O2Ring Wearable Pulse Oximeter. 🌟 With …
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As promised, in this episode - Join me as we explore why I'm a devoted fan of #AryaStark from #GameofThrones, and how a famous line from the series became one of my mantras. Can you guess which one? But that's not all! Imagine this: a brush with destiny during the pandemic, yet the threat wasn't Covid! 😱 Join me as I unravel the threads of this mys…
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🎙️ Spitefully Yours Podcast Trailer with Andrea Welker! 🌪️ Embark on an extraordinary health journey with Andrea Welker, host of Spitefully Yours. 🚀 In this gripping trailer, Andrea shares the shocking twists and turns of the year that forever altered her life. From unexpected masses to surgeons backing out, it's a roller coaster of survival. 👁️‍🗨️…
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Survival isn't just a statistic; it's finding laughter in the shadows, savoring unexpected joys. So, let's dive into 'The Road So Far.' Subscribe to Spitefully Yours—where every twist, turn, and tale is more than a story. It's a celebration of resilience, spiced with a touch of spite. In this episode, I discuss my surgery, what got me there, and ho…
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Hello PKD fans. A land deal goes south, and someone has to take the fall. Revenge is the name of the game in this cat-and-cat thriller set in a small coastal town in Northern California. Who will win the neighborhood, their pride, and possibly even the water company in this battle of wits—even more importantly—what do three DickHeads think of all t…
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What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a…
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Back in September of last year there was a single weekend run of VALIS: An Opera at the MIT Theater Arts Performance Space in Cambridge, MA. While the Dickheads weren't lucky enough to bag tickets, one of the OG Dickheads was. And in this interview, Bill Sarill discusses said opera, his thoughts on the production, and some aspects of his longtime f…
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On this episode, Dr. Rachael Grace is in conversation with Carl Lander, Chair of the Steering Committee for the Peak Registry and International Collaboration Director of Thrive with Pyruvate Kinase Deficiency. Here they discuss the latest with the Peak Registry. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinas…
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Hello PKD fans. Published the month after his death Philip K. Dick's, The Transmigration of Timothy Archer distinguishes itself in several ways. It is a straight novel, a semi-biography of Bishop James Pike, as well as being the final book in his VALIS trilogy. See what the two David's and a Langhorne think of this departure from Dick's usual writi…
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On this episode, Dr. Rachael Grace is in conversation with Claire Egan, Senior Genetic Counselor with InformedDNA, to talk all about genetics. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted b…
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Dr. Rachael Grace returns with patient advocate (and PK Deficiency TikTok influencer) Karla Chichester. On this episode, Dr. Grace and Karla dispel some of the biggest myths surrounding Pyruvate Kinase Deficiency. Originally aired on September 29, 2022. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kinase Deficie…
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Ganymedean slime mold, festival organizer, chronicler, and ultimate PKD fan Lord Running Clam, stopped by to chat with our two Davids about his history, where PKD fandom is now, and where it might lead as we look into the future.Our Patreon ►► http://www.patreon.com/LanghorneJTweedElectric Larryland Discord ►► https://discord.com/channels/557458722…
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On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You’ll learn about iron overload and why it occurs in pyruvate kinase deficiency, explain the potential complications as well as the importance of managing and monitoring iron overload. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast a…
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The two Davids chat with the exceedingly busy and prolific Keith Giles about the many projects he has going on right now, including his new book, Sola Deus: What If God Is All of Us?, his introduction to and publishing of a series of Philip K. Dick short story collections, Sci-Fi Lullabies Volumes 1-3, and his upcoming 28-lesson class on PKD's phil…
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Editor's Note: We recommend you check out our interview with Judaic scholar, Aharon Varady, before listening to this episode.•Interview #28 - Aharon Varady - PKD & Judaism ►► https://soundcloud.com/dickheadspodcast/interview-28-ahjaron-varady-pkd-judaismHello PKD fans. Welcome to a brand new episode with a brand new cohost. The book: The Divine Inv…
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With The Divine Invasion lurking in the shadows of our near future, David figured it might benefit all who are interested in a deeper understanding of the novel to speak to a religious scholar. Aharon Varady is just that person. Recommended by friend of the podcast David Gill, Aharon is not only well-versed in the Jewish faith's writing, history, a…
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Our guest today is Dolores Dumas. Dolores is a 73-year-old living with PK deficiency, and was diagnosed as a teen with nonspherocytic hemolytic anemia. During a visit with a new hematologist, she received a definitive diagnosis of PK deficiency. Dolores feels grateful that she finally has a name for her condition. SHOW DESCRIPTION Just Listen: Voic…
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Hello Zelaznuts and DickHeads alike. Here at last, after three and a half years of gathering dust on the shelf, is the final episode in David's Hugo Winners of the 1960s series. Frequent guest Mark Conlan joins him to discuss the pluses and minuses of Roger Zelazny's This Immortal (Hugo Award for Best Novel 1966)and Lord of Light (Hugo Award for Be…
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What does it mean when a parent has pyruvate kinase deficiency? On today’s episode we welcome back Nathan Thompson, a father with PK Deficiency. He has two daughters. He’s joined today by his daughter Zoe. Here, we learn about parenting with PKD and all of the challenges associated with it. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a…
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On today’s episode, we travel to New Orleans for a discussion about aging with pyruvate kinase deficiency (PKD) with returning guests Jill Welle and Tamara Schryver. Janie Davis, Associate Director Patient Advocacy at Agios Pharmaceuticals, leads the conversation. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about Pyruvate Kin…
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On this episode, we interview Alejandra Watson and Laura Miller D'Angelo of Pyruvate Kinase Deficiency Foundation. We learn more about the organization as well as Alejandra’s experience as a caregiver for a child with PKD as well as Laura’s experience living with PKD. SHOW DESCRIPTION Just Listen: Voices of PK Deficiency is a podcast about pyruvate…
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On today’s episode, your host, Dr. Rachael Grace is in conversation with Dr. Matthew Heeney. Dr. Heeney's research is focused on the management of patients with sickle cell disease and rare iron disorders. Today's podcast is focused on understanding clinical trials, particularly for rare disorders. SHOW DESCRIPTION Just Listen: Voices of PK Deficie…
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Editor's Note: We recommend you check out our VALIS Incident episode to get more insight into the subject matter before you dive into this one.We have dedicated this episode to the memory of Phil's good friend and fellow writer, Radell Faraday Nelson, 1931-2022. R.I.P.Greetings, PKD fans. David Gill joins the usual DickHeads to discuss PKD's religi…
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We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire…
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David chats with Walter Nelson on the legacy of his recently passed father, Ray Nelson, and how growing up the son of a famous author in the Berkeley scene was different than the typical American upbringing. Including what it was like having PKD as a babysitter. Unfortunately, this interview is a bittersweet one, as Ray Nelson recently passed away …
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Dr. Rachael Grace welcomes back Alejandra Watson of the Pyruvate Kinase Deficiency Foundation as well as her son Jonathan to discuss transitioning from childhood to adulthood. We’ll learn about how Jonathan took over some responsibility of his care as he grew older and went off to college. Learn more about the Pyruvate Kinase Deficiency Foundation …
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