Best Rare Mama Bears Podcasts (2024)

1
Rocking for Research: The Inspiration and Impact of Joey’s Song 37:33

8d ago37:33

37:33

Joey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival.”By CURE Epilepsy

1
One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising 31:02

2M ago31:02

31:02

In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor.By CURE Epilepsy

1
Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy 29:45

3M ago29:45

29:45

This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an e…

1
Post-Traumatic Epilepsy: What We Know and Where the Research is Going 28:31

4M ago28:31

28:31

This month on Seizing Life® we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent International Conference on PTE co-hosted by CURE Epilepsy.By CURE Epilepsy

1
The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy 34:10

5M ago34:10

34:10

After losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little information and more questions, she founded the NORSE Institute to raise awareness and fund research into this sudden and devastating form of epilepsy.…

1
The Sudden and Life-Altering Impact of Adult-Onset Epilepsy 34:43

6M ago34:43

34:43

This month on Seizing Life® Jon Tuteur shares his journey with adult-onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures in pursuit of controlling his epilepsy. H…

1
Older Adults and Epilepsy: the Causes, the Signs, and the Treatments 28:27

7M ago28:27

28:27

This week on Seizing Life® Dr. Laura O’Dwyer joins us to talk about the fastest growing segment of people living with epilepsy in the United States – older adults. Dr. O’Dwyer explains why adults are more likely to develop epilepsy later in life, outlines the challenges of recognizing, diagnosing, and treating epilepsy in older adults, and provides…

1
One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery 36:57

8M ago36:57

36:57

This month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy, from diagnosis at age 6, through college, parenting, fighting discrimination in the workplace, and ultimately seizing control of her epilepsy via life-changing surgery.By CURE Epilepsy

1
A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery 34:21

9M ago34:21

34:21

This month on Seizing Life® a nurse and mother shares her young son’s journey from the onset of focal seizures to a devastating diagnosis of Rasmussen’s Encephalitis to a life-changing brain surgery.By CURE Epilepsy

1
Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosis and Treatment 37:28

10M ago37:28

37:28

This month on Seizing Life® we explore artificial intelligence as it relates to epilepsy care, how it’s impacting epilepsy diagnosis and treatment today, and what it promises for the future.By CURE Epilepsy

1
The Best of Seizing Life 2020 28:30

10M ago28:30

28:30

This week on Seizing Life we revisit just a few of the incredible guests and conversations from 2020. In a challenging year, we, like so many across the country, had to adjust to working remotely. And although we had to sit in the kitchen alone, we were fortunate to be joined by many inspiring and insightful guests from across the country.…

1
Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom 26:16

12M ago26:16

26:16

This week on Seizing Life® Annette Adkins, who has lived with intractable epilepsy since 2014, discusses the impacts of epilepsy on her professional and personal life, and how it led her to participate in a clinical trial for a new procedure that has brought her seizure freedom.By CURE Epilepsy

1
Rare Epilepsy Organizations: Fostering Community and Advancing Research 20:20

1y ago20:20

20:20

This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, in an episode recorded at Epilepsy Awareness Day at Disneyland this past November.By CURE Epilepsy

1
Infantile Spasms: The Facts, The Research, and The Hope for the Future 30:51

1y ago30:51

30:51

This week on Seizing Life®, in recognition of Infantile Spasms Awareness Week (December 1st – 7th), we speak with epilepsy researcher Dr. Chris Dulla about infantile spasms – what we know, what recent research has revealed, and how current research may lead to better detection and treatments.By CURE Epilepsy

1
Epilepsy in Women: Challenges, Concerns, and Considerations 40:15

1y ago40:15

40:15

This week on Seizing Life® we speak with Dr. Elizabeth Gerard about impacts, challenges, and concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, Dr. Gerard provides information and insights on managing epilepsy as a woman through all stages of life.…

1
NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research 30:31

1y ago30:31

30:31

This week on Seizing Life® we speak with Peter Burpee who experienced absence epilepsy in childhood and tonic clonic seizures in his teen years, but has gained seizure control and will be running in the upcoming NYC Marathon to raise money for epilepsy research.By CURE Epilepsy

1
Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child 39:08

1y ago39:08

39:08

This week on Seizing Life® in observance of SUDEP Action Day on October 18th, we speak with Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, about the program he directs conducting research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents.…

1
Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book 28:50

1y ago28:50

28:50

This week on Seizing Life® Kate Kostolansky shares her daughter Charlotte’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book designed to help newly-diagnosed families and those around them better understand infantile spasms.By CURE Epilepsy

1
An Extraordinary Life of Autism, Epilepsy, and Advocacy 34:35

1y ago34:35

34:35

This week on Seizing Life® we speak with Barbara D’Amora about the life of her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal. Barbara recalls the early days of Nick’s life and how a program “unlocked” Nick, allowing him to communicate with the worl…

1
A Young Woman’s Journey with Jeavons Syndrome 26:39

1y ago26:39

26:39

This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.By CURE Epilepsy

1
Pursuing Effective Epilepsy Treatment and Running for Research 33:05

1+ y ago33:05

33:05

This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.By CURE Epilepsy

1
From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey 26:16

1+ y ago26:16

26:16

This week on Seizing Life® Mariah Mayhugh discusses her epilepsy journey, from hiding childhood absence seizures to becoming an active and creative advocate for epilepsy awareness, education, and representation.By CURE Epilepsy

1
A Teen Uncovers the Emotional Impacts of Childhood Seizures 20:49

1+ y ago20:49

20:49

This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.By CURE Epilepsy

1
Comprehensive Epilepsy Centers: An Insider’s Guide 33:53

1+ y ago33:53

33:53

This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these centers.By CURE Epilepsy

1
Love, Marriage, and Epilepsy 32:09

1+ y ago32:09

32:09

This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage.By CURE Epilepsy

1
No Jabs Allowed | Shelby Thomson x Patriot Barbie 32:38

1+ y ago32:38

32:38

⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…

1
Murder in Healthcare | Mell Berks x Patriot Barbie 28:31

1+ y ago28:31

28:31

⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…

1
The Caregiver Journey: A Father’s Story 37:21

1+ y ago37:21

37:21

This week on Seizing Life®, father and therapist Bud Hager discusses being the caregiver to a young daughter with a rare and complex medical condition. Bud discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease, and how it has transformed his life in both tangible and philosophical ways.…

1
Giving Men our Precious Medals | Riley Gaines x Patriot Barbie 34:00

1+ y ago34:00

34:00

⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…

1
A Rare Courage | Jodi O'Malley x Patriot Barbie 49:08

1+ y ago49:08

49:08

⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…

1
Epilepsy Researcher Compounds Lab Work with Fundraising 33:22

1+ y ago33:22

33:22

This week on Seizing Life® Dr. Patrice Jackson-Ayotunde, an organic chemist and Associate Professor of Pharmaceutical Sciences at the University of Maryland Eastern Shore (UMES), discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.By CURE Epilepsy

1
Breaking Chains in the School System | Jessica Tapia x Patriot Barbie 43:47

1+ y ago43:47

43:47

⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…

1
The War on Family with Angelike Norrie 44:03

1+ y ago44:03

44:03

⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…

1
A Daughter’s Diagnosis Inspires Concerts for Epilepsy 32:37

1+ y ago32:37

32:37

This week on Seizing Life® we speak with Matt Perrone about his epilepsy onset and treatment journey, the impacts of seizures and medication on his mental health, and how his daughter’s diagnosis at the age of four spurred him to create EpiPalooza, a multi-band concert aimed at raising awareness and funds for epilepsy research.…

1
Courageous Parenting with Tracy Martin 58:30

1+ y ago58:30

58:30

The Patriot Barbie is joined by Life Coach, author, and brain health trainer Tracy Martin ⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie mer…

1
Immediately, Yes with Conservative Ant 49:04

1+ y ago49:04

49:04

-WATCH full episode at www.patriotbarbie.com -SUBSCRIBE on Apple www.patriotbarbie.com/podcast -FOLLOW Lindsey www.instagram.com/the.patriot.barbie -GRAB MERCH at www.shoppatriotbarbie.com -JOIN my email list! http://eepurl.com/hPNzyv THANK YOU to my generous sponsors! -RAC Financial. Conservative, freedom loving, family owned payment processing fo…

1
The Crucial Role of Nurses in Epilepsy Care 29:08

1+ y ago29:08

29:08

This week on Seizing Life® we welcome Lucretia Long to the podcast to discuss the present and future of epilepsy care and treatment. Lucretia is an Advanced Practice Registered Nurse (APRN) and a Certified Nurse Practitioner (CNP) at The Ohio State University Wexner Medical Center who has been working with epilepsy patients for over 30 years. She s…

1
Teen Tennis Player Remains on Court Despite Seizures and Stigma 29:40

1+ y ago29:40

29:40

This week on Seizing Life® we speak with Reid Rainwater and his father Ryan about the sudden onset of epilepsy that Reid experienced as a freshman in high school, his journey to controlling tonic-clonic seizures, and how epilepsy and stigma have impacted his education and tennis career as one of the top young players in Oklahoma.…

1
The War for our Wellness with Dr. Christina Rahm 48:58

1+ y ago48:58

48:58

World-renowned Dr. Christina Rahm, the chairman of the Science Nutrition Society and author of Cure the Causes, shares her expertise on preventing and reversing the damage our bodies take from the natural and man-made environmental hazards we're constantly exposed to. -ROOT Wellness Natural Healthcare Products http://www.therootbrands.com/patriotba…

1
MOURNING MURDERED BABIES: The Fight Against Abortion 55:49

1+ y ago55:49

55:49

Savannah Craven, from Students for Life, Blexit America & TurningPointUSA, comes onto the Patriot Barbie Podcast to discuss what is going wrong with our society concerning abortion and how it is actually "anti-woman." Tune in to hear this message as well as learn more about how you can get involved. WATCH the full episode at www.patriotbarbie.com…

1
From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey 28:04

1+ y ago28:04

28:04

This week on Seizing Life® mother and epilepsy advocate Collen Jendreas joins us to share her young son Owen’s epilepsy journey from initial onset to a diagnosis of Lenox Gastaut Syndrome (LGS), and discuss how two particular interventions have made a significant impact on Owen’s quality of life.By CURE Epilepsy

1
Conservative Firebrand Exposes Shocking Secrets Within The Deep State 27:56

1+ y ago27:56

27:56

Founder of the Reawaken America Tour, Clay Clark, comes onto the Patriot Podcast to discuss where America needs to wake up. Tune in to learn on how the Rewaken America Tour started and how you can learn more on what's truly going on in America. WATCH the full episode: PatriotBarbie.comBy Spreely Media Podcasting

1
Spike Proteins in Medications: How Big Pharma is KILLING You 59:24

1+ y ago59:24

59:24

On this episode, I interview Dr. Jen VanDeWater and discuss spike proteins, vaccines, and why big pharma is overmedicating for profit. Tune in so you can learn how much you should be relying on medication. Watch the full episode: PatriotBarbie.comBy Spreely Media Podcasting

1
2A WINS!: How He STOPPED a Mass Shooter After Being Shot in the Head, and Saved His Family! 50:54

1+ y ago50:54

50:54

Watch the full episode on PatriotBarbie.comBy Spreely Media Podcasting

1
The Fight for Life with Kristan Hawkins 59:51

1+ y ago59:51

59:51

Kristan Hawkins, President of Students for Life of America and Students for Life Action, comes onto the podcast to discuss everything wrong with abortion and how the opposition themselves know how wrong it is. Tune in to hear Kristan's war stories from arguing with students on campuses and how we can play a part in the fight! WATCH the full episode…

1
From Desperation to Hope: The Founding and Future of CURE Epilepsy 40:35

1+ y ago40:35

40:35

This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research.By CURE Epilepsy

1
The Roots of our Health with Clayton Thomas 49:58

1+ y ago49:58

49:58

Clayton Thomas, Founder of Root Brands Wellness Co, comes onto the podcast to shed light on many subjects that are of BIG CONCERN. We discuss the influence of money in the medical world and how the powerful are trying to control the rest of the population. You won't believe some of these truths! WATCH the full episode at www.patriotbarbie.com…

1
I love White Russians with Torry Hermann 52:58

1+ y ago52:58

52:58

Torry Hermann, TikTok comedian, comes onto the show to discuss all things social media and the dangers of making content that disagrees with other people's views. We through shadow banning, government agendas, and Torry's Russian influence in her beliefs. You don't want to miss out on this hilarious episode! WATCH the full episode at www.patriotbar…

1
Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research 31:34

1+ y ago31:34

31:34

This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.By CURE Epilepsy

1
We the People Means you! with Shaun Frederickson 48:12

2y ago48:12

48:12

Shaun Frederickson, Founder of Freedom Revival Events, comes onto he podcast to discuss what we are truly fighting against, communism. We discuss why the left wants to remove our identity and how we as individuals need to step up to aid in the cause of defending our country! WATCH the full episode at www.patriotbarbie.com…

Podcasts Worth a Listen

Rare Mama Bears Podcasts

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