Two Rare Mama Bears, a Cure CMD Podcast - where we discuss all things Congenital Muscular Dystrophy and Rare Disease...All subtypes, ages, abilities and topics with the intent to connect the CMD community. This podcast is about bringing together affected individuals, their family, researchers, clinicians, industry, and policy-makers to have conversations with the goal of moving the needle on the mission of Cure CMD. Hosts: Megan Meyer and Matty Manley.
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Seizing Life, a CURE Epilepsy podcast hosted by Kelly Cervantes, aims to inspire empathy & give hope as we search for a cure for epilepsy. Together, we can find a cure. We can seize life.
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Welcome to The Patriot Barbie Podcast, the compelling conservative answer to the leftist woke mob. Lindsey Graham is the nationally recognized salon owner from Oregon who refused to comply with tyranny during lockdowns and has won the nation over with her authentic and unapologetic voice for American liberties. She empowers listeners with faith-infused, freedom-steeped content, sparking unbridled enthusiasm for God and America. Lindsey is the unwavering voice of truth-seeking, liberty-loving ...
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Post-Traumatic Epilepsy: What We Know and Where the Research is Going
28:31
28:31
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Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy discusses the current state of research into Post-Traumatic Epilepsy (PTE). The post Post-Traumatic Epilepsy: What We Know and Where the Research is Going appeared first on CURE Epilepsy.By CURE Epilepsy
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The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy
34:10
34:10
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After losing her son to a sudden and devastating form of epilepsy, Nora Wong founded the NORSE Institute to raise awareness and fund research. The post The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy appeared first on CURE Epilepsy.By CURE Epilepsy
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The Sudden and Life-Altering Impact of Adult-Onset Epilepsy
34:43
34:43
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Jon Tuteur shares his journey with adult onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures The post The Sudden and Life-Altering Impact of Adult-Onset Epilepsy …
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Older Adults and Epilepsy: the Causes, the Signs, and the Treatments
28:27
28:27
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Dr. Laura O’Dwyer discusses the fastest growing segment of people living with epilepsy, adults over 65 years old. Dr. O’Dwyer provides an overview of the causes of epilepsy in older adults, the subtle signs to look for, and the importance The post Older Adults and Epilepsy: the Causes, the Signs, and the Treatments appeared first on CURE Epilepsy.…
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One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery
36:57
36:57
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This month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy chronicled in her recent memoir Seizing Control. The post One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery appeared first on CURE Epilepsy.By CURE Epilepsy
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A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery
34:21
34:21
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A mother uses her nursing knowledge to advocate for her son’s epilepsy care and surgery. The post A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery appeared first on CURE Epilepsy.By CURE Epilepsy
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Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosis and Treatment
37:28
37:28
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Dr. Daniel Goldenholz of Beth Israel Deaconess Medical Center discusses the current and potential impacts of artificial intelligence on epilepsy care. The post Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosis and Treatment appeared first on CURE Epilepsy.By CURE Epilepsy
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This week on Seizing Life®, we revisit several compelling conversations from the past year in our Best of Seizing Life 2023 compilation episode. The post Best of Seizing Life 2023 appeared first on CURE Epilepsy.By CURE Epilepsy
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Rare Epilepsy Organizations: Fostering Community and Advancing Research
20:20
20:20
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This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, about community, awareness, and advancing research. The post Rare Epilepsy Organizations: Fostering Community and Advancing Research appeared first on CURE Epilepsy.…
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Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom
26:16
26:16
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This week on Seizing Life® Annette Adkins discusses the impacts of intractable epilepsy on her life, and how it led her to a regenerative brain cell clinical trial that has brought her a year of seizure freedom. The post Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom appeared first on CURE Epilepsy.…
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Infantile Spasms: The Facts, The Research, and The Hope for the Future
30:51
30:51
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This week on Seizing Life® epilepsy researcher Dr. Chris Dulla provides information about infantile spasms, from detection and diagnosis to current research and future improvements in treatment. The post Infantile Spasms: The Facts, The Research, and The Hope for the Future appeared first on CURE Epilepsy.…
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This week on Seizing Life® Dr. Elizabeth Gerard discusses concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, we explore managing epilepsy through all stages of a woman’s life. The post Epilepsy in Women: Challenges, Concerns, and Considerations appeared first on CURE Epilepsy.…
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NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research
30:31
30:31
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This week on Seizing Life® Peter Burpee shares his experiences with absence and tonic clonic seizures and explains why he’s running for Team CURE Epilepsy in the upcoming NYC Marathon. The post NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research appeared first on CURE Epilepsy.By CURE Epilepsy
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This week on Seizing Life® Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, discusses his research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents. The post Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child appeared firs…
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Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book
28:50
28:50
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This week on Seizing Life® Kate Kostolansky shares her daughter’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book to help newly-diagnosed families. The post Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book appeared first on CURE Epilepsy.…
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An Extraordinary Life of Autism, Epilepsy, and Advocacy
34:35
34:35
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This week on Seizing Life® Barbara D’Amora tells us about her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal. The post An Extraordinary Life of Autism, Epilepsy, and Advocacy appeared first on CURE Epilepsy.…
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A Young Woman’s Journey with Jeavons Syndrome
26:39
26:39
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This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy. The post A Young Woman’s Journey with Jeavons Syndrome appeared first on CURE Epilepsy.…
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Pursuing Effective Epilepsy Treatment and Running for Research
33:05
33:05
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This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant. The post Pursuing Effective Epilepsy Treatment and Running for Research appeared first on CURE Epilepsy.By CURE Epilepsy
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From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey
26:16
26:16
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This week on Seizing Life® Mariah Mayhugh recounts her epilepsy journey, from hiding her diagnosis to becoming a passionate advocate for epilepsy awareness. The post From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey appeared first on CURE Epilepsy.By CURE Epilepsy
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A Teen Uncovers the Emotional Impacts of Childhood Seizures
20:49
20:49
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This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside. The post A Teen Uncovers the Emotional Impacts of Childhood Seizures appeared first on CURE Epilepsy.By CURE Epilepsy
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Comprehensive Epilepsy Centers: An Insider’s Guide
33:53
33:53
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This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these care options. The post Comprehensive Epilepsy Centers: An Insider’s Guide appeared first on CURE Epilepsy.…
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This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage and professional lives. The post Love, Marriage, and Epilepsy appeared first on CURE Epilepsy.By CURE Epilepsy
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No Jabs Allowed | Shelby Thomson x Patriot Barbie
32:38
32:38
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⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…
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Murder in Healthcare | Mell Berks x Patriot Barbie
28:31
28:31
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⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…
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This week on Seizing Life®, father and therapist Bud Hager discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease. The post The Caregiver Journey: A Father’s Story appeared first on CURE Epilepsy.By CURE Epilepsy
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Giving Men our Precious Medals | Riley Gaines x Patriot Barbie
34:00
34:00
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⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…
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A Rare Courage | Jodi O'Malley x Patriot Barbie
49:08
49:08
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⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…
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Epilepsy Researcher Compounds Lab Work with Fundraising
33:22
33:22
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This week on Seizing Life® Dr. Patrice Jackson-Ayotunde discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts. The post Epilepsy Researcher Compounds Lab Work with Fundraising appeared first on CURE Epilepsy.By CURE Epilepsy
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Breaking Chains in the School System | Jessica Tapia x Patriot Barbie
43:47
43:47
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⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…
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⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie merch, wine, beauty, coffee and more www.patriotbarbie.com/shop 💥THANK YOU💥 To my sponsors an…
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A Daughter’s Diagnosis Inspires Concerts for Epilepsy
32:37
32:37
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This week on Seizing Life® Matt Perrone shares his epilepsy journey, discusses the impacts of epilepsy on his mental health, and explains how his daughter’s diagnosis spurred him to create EpiPalooza. The post A Daughter’s Diagnosis Inspires Concerts for Epilepsy appeared first on CURE Epilepsy.By CURE Epilepsy
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The Patriot Barbie is joined by Life Coach, author, and brain health trainer Tracy Martin ⭐️️️️WATCH full episode on Spreely TV at www.patriotbarbie.com ⭐️️️️LISTEN on Apple www.patriotbarbie.com/podcast ⭐️️️️FOLLOW Lindsey at www.Instagram.com/the.patriot.barbie ⭐️️️️SUBSCRIBE to my email list! http://eepurl.com/hPNzyv ⭐️️️️SHOP Patriot Barbie mer…
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-WATCH full episode at www.patriotbarbie.com -SUBSCRIBE on Apple www.patriotbarbie.com/podcast -FOLLOW Lindsey www.instagram.com/the.patriot.barbie -GRAB MERCH at www.shoppatriotbarbie.com -JOIN my email list! http://eepurl.com/hPNzyv THANK YOU to my generous sponsors! -RAC Financial. Conservative, freedom loving, family owned payment processing fo…
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Teen Tennis Player Remains on Court Despite Seizures and Stigma
29:40
29:40
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This week on Seizing Life® Reid Rainwater and his father Ryan share Reid’s epilepsy treatment journey and the impacts of epilepsy and stigma on his education and tennis career as one of the top young players in Oklahoma. The post Teen Tennis Player Remains on Court Despite Seizures and Stigma appeared first on CURE Epilepsy.…
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The War for our Wellness with Dr. Christina Rahm
48:58
48:58
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World-renowned Dr. Christina Rahm, the chairman of the Science Nutrition Society and author of Cure the Causes, shares her expertise on preventing and reversing the damage our bodies take from the natural and man-made environmental hazards we're constantly exposed to. -ROOT Wellness Natural Healthcare Products http://www.therootbrands.com/patriotba…
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MOURNING MURDERED BABIES: The Fight Against Abortion
55:49
55:49
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Savannah Craven, from Students for Life, Blexit America & TurningPointUSA, comes onto the Patriot Barbie Podcast to discuss what is going wrong with our society concerning abortion and how it is actually "anti-woman." Tune in to hear this message as well as learn more about how you can get involved. WATCH the full episode at www.patriotbarbie.com…
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From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey
28:04
28:04
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This week on Seizing Life® Colleen Jendreas shares her son Owen’s epilepsy journey and discusses the two interventions that have significantly improved his quality of life. The post From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey appeared first on CURE Epilepsy.By CURE Epilepsy
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Conservative Firebrand Exposes Shocking Secrets Within The Deep State
27:56
27:56
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Founder of the Reawaken America Tour, Clay Clark, comes onto the Patriot Podcast to discuss where America needs to wake up. Tune in to learn on how the Rewaken America Tour started and how you can learn more on what's truly going on in America. WATCH the full episode: PatriotBarbie.comBy Spreely Media Podcasting
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Spike Proteins in Medications: How Big Pharma is KILLING You
59:24
59:24
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On this episode, I interview Dr. Jen VanDeWater and discuss spike proteins, vaccines, and why big pharma is overmedicating for profit. Tune in so you can learn how much you should be relying on medication. Watch the full episode: PatriotBarbie.comBy Spreely Media Podcasting
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The Crucial Role of Nurses in Epilepsy Care
29:08
29:08
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This week on Seizing Life® Advanced Practice Provider Lucretia Long shares her 30 years of experience in the epilepsy field and discusses the crucial role nurses and other non-physician providers play in epilepsy care. The post The Crucial Role of Nurses in Epilepsy Care appeared first on CURE Epilepsy.…
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2A WINS!: How He STOPPED a Mass Shooter After Being Shot in the Head, and Saved His Family!
50:54
50:54
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Watch the full episode on PatriotBarbie.comBy Spreely Media Podcasting
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Kristan Hawkins, President of Students for Life of America and Students for Life Action, comes onto the podcast to discuss everything wrong with abortion and how the opposition themselves know how wrong it is. Tune in to hear Kristan's war stories from arguing with students on campuses and how we can play a part in the fight! WATCH the full episode…
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From Desperation to Hope: The Founding and Future of CURE Epilepsy
40:35
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This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research. The post From Desperation to Hope: The Founding and Future of CURE Epilepsy appeared first on CURE Epilepsy.…
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The Roots of our Health with Clayton Thomas
49:58
49:58
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Clayton Thomas, Founder of Root Brands Wellness Co, comes onto the podcast to shed light on many subjects that are of BIG CONCERN. We discuss the influence of money in the medical world and how the powerful are trying to control the rest of the population. You won't believe some of these truths! WATCH the full episode at www.patriotbarbie.com…
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Torry Hermann, TikTok comedian, comes onto the show to discuss all things social media and the dangers of making content that disagrees with other people's views. We through shadow banning, government agendas, and Torry's Russian influence in her beliefs. You don't want to miss out on this hilarious episode! WATCH the full episode at www.patriotbar…
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Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research
31:34
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This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research. The post Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research appeared first on CURE E…
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We the People Means you! with Shaun Frederickson
48:12
48:12
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Shaun Frederickson, Founder of Freedom Revival Events, comes onto he podcast to discuss what we are truly fighting against, communism. We discuss why the left wants to remove our identity and how we as individuals need to step up to aid in the cause of defending our country! WATCH the full episode at www.patriotbarbie.com…
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In this episode, Vita Galore shares her an unbelievable human trafficking story that will shock you. Tune in so you don't miss how she survived these awful things to now living her light to help others. This is an incredible episode, listen now! WATCH full episode at www.patriotbarbie.comBy Spreely Media Podcasting
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Epilepsy Can’t Stop Young Girl’s Competitive Spirit
37:28
37:28
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This week on Seizing Life®, the Tsane family share daughter Christiane’s epilepsy diagnosis and treatment journey, and explain how they manage her seizures while nurturing her love of competitive running. The post Epilepsy Can’t Stop Young Girl’s Competitive Spirit appeared first on CURE Epilepsy.By CURE Epilepsy
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The Mom Army fights against the over-sexualization, grooming, and indoctrination of our young children. Tune in to learn more from the leaders of this organization and how you can get involved in saving our children and robbing them of their innocence. WATCH full episode at patriotbarbie.comBy Spreely Media Podcasting
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