Bringing families and friends together from the Rett syndrome community to discuss life, research, and just have fun. New episodes are released every other Monday morning!
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Humorpodd om ukas nyheter. Rett og slett ukas nyheter, ikke helt som de var. Bare Moro Impro består av Olav Svarstad Haugland, Emil Lystvedt Berntsen, Leo Magnus de la Nuez og Christian Fredrik Mikkelsen. Annonsering: stian@badeog.no
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Jared and Colleen will be sharing stories from their unusual life as expats that are also sorting through grief after the passing of their daughter Claire, who live with Rett Syndrome for 15 years.
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Have you ever heard of Rett Syndrome? Well if you haven’t you should stick around and learn a thing or two.
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Welcome to the Reverse Rett Podcast, sharing the stories of families living with Rett Syndrome and picking the brains of doctors and researchers working in the field. To find out more about Rett Syndrome visit: https://www.reverserett.org.uk
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Aksjon Rett Linje er en politisk uavhengig aksjonsgruppe, som arbeider for en fremtidsrettet og godt fundert InterCity-utbygging i Østfold. På denne kanalen kan du lytte til våre podcaster som handler om jernbane, historie og fremtidens Østfold. God fornøyelse!
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A podcast exploring trending spirituality, mindfulness, health topics, and authenticity. Sometimes controversial, always insightful! Discover yourself through the Soul Mirror Method. Come to one of our events in Utah! www.SoulMirror.Health
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Inspirationen und Anregungen, um vom Alltag aus die Welt zu retten.
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A podcast about the families all over the world who love someone with Rett Syndrome. "One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide" Rett Syndrome is a rare genetic disorder with no current cure. As a parent of a daughter with Rett Syndrome, I wanted to talk to other parents to hear their stories and also give the newly diagnosed a positive and encouraging place to find comfort. Check back towar ...
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A podcast exploring the history, culture and beliefs of different denominations in eastern Idaho
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Tre ungdommer snakker om viktige, uviktige og engasjerende temaer som handler om ungdomstiden eller rett og slett bare om livet!
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Learn about the causes, symptoms, treatment, and diagnosis of autism spectrum disorder (ASD) from University of California and other experts.
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Learn about the causes, symptoms, treatment, and diagnosis of autism spectrum disorder (ASD) from University of California and other experts.
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Get the latest from the labs, doctors and medical centers at the University of California so you can make the best health care decisions. Visit uctv.tv/health
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Get the latest from the labs, doctors and medical centers at the University of California so you can make the best health care decisions. Visit uctv.tv/health
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Taylor and Rett set out to find the skills to create and program their own video games all while trying to embody the phrase, “if we can do it, you can too”
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i3 Health's mission is to enhance the proficiency of the multidisciplinary health care team by providing evidence-based, fair-balanced CME/NCPD/CPE activities that address identified professional practice gaps and unmet educational needs.
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Programs from the University of California, San Francisco.
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Walk and Roll Live is a podcast dedicated to giving a voice to the disabled community. Walk and Roll Live envisions a vibrant online platform that serves as a beacon of unity within the disabled community. Through shared narratives and insightful conversations, we aspire to foster deep healing and camaraderie among individuals while also being a trusted source for valuable information from disabled service providers, promoting empowerment, awareness, and inclusivity. Life, Limitless. www.wal ...
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MedEdicus is an accredited, independent, leading developer of continuing medical education and disease awareness programs. We providee quality continuing education to health care providers and other members of the patient care team around the globe. Each of our learning opportunities offers a case-based approach to make the experience clinically relevant.MedEdicus is accredited by the Accreditation Council of Continuing Medical Education (ACCME) to provide continuing medical education for ph ...
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All Things Newnan
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Nick Garcia and Martin Bingisser of HMMR Media discuss the top topics in strength and conditioning and the world of elite sports training.
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Updates on new data and best practices in patient care across a wide variety of psychiatric and neurological illnesses from Clinical Care Options. Gain a deeper understanding and practical clinical insights on topics ranging from bipolar depression to Parkinson’s disease psychosis. Select episodes available for CME/CE credit.
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A podcast by a keyboardist...for not only keyboardists, but all musicians -and- music lovers ...a space where you're invited to conversations with your favorite established artists who come and talk about things like groove, pocket, and life.
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The Guided Retirement Show is here to be your guide as you travel to and through a successful retirement. When you go on a vacation, you may think it’s something you can do on your own and that may be true. If the destination is the Grand Canyon and your only goal is to stand on the south rim of the Grand Canyon to see it, then it’s probably easy enough without a guide. But what if you're taking a trip to the Amazon and you've never been there before? You know the rivers can be dangerous, th ...
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That's right, ladies and gentlemen - we are back at it and excited to begin connecting with others again! Acadia working to see Rett therapy Daybue approved in Japan, Europe What great news for individuals with Rett syndrome across the world! We are hopeful that by making this drug more widely available to those that need, improvements will be ab…
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1
Walk and Roll Live - Disability Stories: Adventures with Rett Syndrome
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In this enlightening episode of Walk and Roll Live - Disability Stories, we delve into the incredible journey of 13-year-old Magnolia ("Maggie"), who lives with Rett syndrome. Despite the challenges, Maggie and her family embark on exciting adventures across the United States, joining others who share their experiences with Rett syndrome. Our speci…
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1
Additional Advances in Rett Syndrome Research and Clinical Trials With Timothy John Feyma, MD
5:00
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Dr. Timothy John Feyma, Pediatric Neurologist at Gillette Children’s Hospital, is currently serving as chair of i3 Health’s CME/NCPD activity, Exploring Novel Treatments for Rett Syndrome. With new developments in the field occurring over recent months, Dr. Feyma sat down with us again to share new updates in treatment and management of Rett syndro…
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1
High School stress and accordions with Chloe
47:37
47:37
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47:37
Special guest Chloe wanted to come on and talk about how stressful school has been and how this is impacted by being an immigrant with a dead sister but nobody notices that. We also talk about how a love for accordions is getting her through and why Colleen irrationally went to great lengths to purchase a 90 year old German accordion.…
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1
“Parafencing for All: A New Chapter with San Francisco Fencing Academy”
1:08:26
1:08:26
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In this episode of “Walk and Roll Live,” hosts Doug and guest co-host Forrest Kelly welcome Brandon Smith and Stacey Breidenstein from the San Francisco Fencing Academy. Join us as we dive into the world of Parafencing and explore the Academy’s mission to bring the joy and challenge of fencing to people of all ages and abilities. Brandon and Stacey…
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Schwing!
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1
Western Lifestyle Harms Your Gut: Tips to Improve
8:38
8:38
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Rob Knight, Ph.D., delves into the incredible world of our gut microbiome. Knight underlines the crucial link between our diet, our gut, and our overall health. For parents, caregivers, and anyone interested in improving their health, this lecture provides valuable insights into how the foods we eat can be harnessed to nurture a healthier gut and, …
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1
Western Lifestyle Harms Your Gut: Tips to Improve
8:38
8:38
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8:38
Rob Knight, Ph.D., delves into the incredible world of our gut microbiome. Knight underlines the crucial link between our diet, our gut, and our overall health. For parents, caregivers, and anyone interested in improving their health, this lecture provides valuable insights into how the foods we eat can be harnessed to nurture a healthier gut and, …
…
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1
Western Lifestyle Harms Your Gut: Tips to Improve
8:38
8:38
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8:38
Rob Knight, Ph.D., delves into the incredible world of our gut microbiome. Knight underlines the crucial link between our diet, our gut, and our overall health. For parents, caregivers, and anyone interested in improving their health, this lecture provides valuable insights into how the foods we eat can be harnessed to nurture a healthier gut and, …
…
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1
Western Lifestyle Harms Your Gut: Tips to Improve
8:38
8:38
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8:38
Rob Knight, Ph.D., delves into the incredible world of our gut microbiome. Knight underlines the crucial link between our diet, our gut, and our overall health. For parents, caregivers, and anyone interested in improving their health, this lecture provides valuable insights into how the foods we eat can be harnessed to nurture a healthier gut and, …
…
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1
Championing Disability Rights: An Interview with Ruthee Goldkorn
1:13:07
1:13:07
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Join us for an inspiring episode of "Walk and Roll Live - Disability Stories" as we sit down with Ruthee Goldkorn, a steadfast disability advocate and ambassador for the Abilities Expo. Hosted by Doug Vincent, a seasoned broadcaster and polio survivor, this episode delves into Ruthee's remarkable journey in disability advocacy.With over four decade…
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1
Modeling Kidney Disease and Regeneration with Organoids Derived from Human Pluripotent Stem Cells
56:20
56:20
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56:20
Benjamin Freedman, Ph.D., delves into the creation and functionality of kidney organoids. He discusses their focus on filtration over hormone functions, and answer intriguing questions about urine characterization and the necessity of organoid structures. Freedman explores the use of scaffolds for implants and ponder the philosophical implications …
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1
Modeling Kidney Disease and Regeneration with Organoids Derived from Human Pluripotent Stem Cells
56:20
56:20
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56:20
Benjamin Freedman, Ph.D., delves into the creation and functionality of kidney organoids. He discusses their focus on filtration over hormone functions, and answer intriguing questions about urine characterization and the necessity of organoid structures. Freedman explores the use of scaffolds for implants and ponder the philosophical implications …
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After an eventful trip back to California, we are settled back into winter to talk about how the trip home was in reality after we discussed what we expected in the previous episode. Spoiler, we had a great trip. We also talk about how happy we are to be sad.By Colleen and Jared English
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Det er sommer, sol og spessial! Men det må IKKE forveksles med best of, for det er det ikke, det er en rykende fersk episode, bare bittelitt kortere enn vanlig. Sommertid, vettu.
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"Crafting Independence: Tom Finch's Journey from Racer to Adaptive Innovator"
50:26
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Join us on this week's episode of "Walk and Roll Live - Disability Stories" as we chat with Tom Finch, the visionary founder and owner of Finch Adaptive Fabrication. Tom's journey is as diverse as it is inspiring—from a thrilling career in off-road racing to working as a skilled welder and fabricator on movie sets and military aircraft. A life-alte…
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Anthony Lim, M.D., J.D. shares the keys to vibrant health through diet. Learn how food choices can transform your well-being. Series: "Stein Institute for Research on Aging" [Health and Medicine] [Show ID: 40040]By UCTV: UC San Diego
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Anthony Lim, M.D., J.D. shares the keys to vibrant health through diet. Learn how food choices can transform your well-being. Series: "Stein Institute for Research on Aging" [Health and Medicine] [Show ID: 40040]By UCTV: UC San Diego
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Det er sommer, sol og spessial! Men det må IKKE forveksles med best of, for det er det ikke, det er en rykende fersk episode, bare bittelitt kortere enn vanlig. Sommertid, vettu.
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I know we said we were taking a break but surprise! We decided that we wanted to share something that was a little more raw while we are in the space to talk about it. In this episode we talk about some of the reasons that made the last place we lived with Claire really hard. In our typical lighthearted way, we discuss some very heavy topics closel…
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1
Walking Through Challenges: Luis Outomuro's Story
1:23:47
1:23:47
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This week's episode of "Walk and Roll Live: Disability Stories" features Luis Outomuro, a survivor of a devastating oil rig accident over 40 years ago. Despite his injuries, Luis continues to walk as a paraplegic, using a wheelchair as an aid. As an ambassador for the Triumph Foundation, he tirelessly advocates for the disabled community, sharing h…
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1
Diabetes and Cardiovascular Disparities Among Black White and Filipino Women: What's Fat Got to Do with It?
52:59
52:59
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Maria Rosario (Happy) G. Araneta, Ph.D., M.P.H., highlights the significant impact of prenatal and childhood malnutrition on later health outcomes, including coronary heart disease and diabetes. She emphasizes the importance of physical activity, strength training, and the need for inclusive research to address health disparities. Future research d…
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1
Diabetes and Cardiovascular Disparities Among Black White and Filipino Women: What's Fat Got to Do with It?
52:59
52:59
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52:59
Maria Rosario (Happy) G. Araneta, Ph.D., M.P.H., highlights the significant impact of prenatal and childhood malnutrition on later health outcomes, including coronary heart disease and diabetes. She emphasizes the importance of physical activity, strength training, and the need for inclusive research to address health disparities. Future research d…
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1
(CE/CME Podcast) Improving Outcomes in Patients With Geographic Atrophy: Epidemiology, Pathophysiology, and Imaging
25:25
25:25
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Activity Description and Purpose This educational activity delves into the latest clinical practices for managing geographic atrophy (GA), a severe form of dry age-related macular degeneration. Learners will gain an in-depth understanding of epidemiologic indicators, diagnostic imaging, and the pathophysiology of GA related to the complement cascad…
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1
(CE/CME Podcast) Improving Outcomes in Patients With Geographic Atrophy: Treatment and Referral
22:15
22:15
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Activity Description and Purpose This educational activity explores the advancements in geographic atrophy (GA) treatment options, focusing on clinical science data and real-world clinical presentations. Participants will gain insights into the latest US Food and Drug Administration–approved treatments, their mechanisms of action, clinical trial re…
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1
A Closer Look at...Stem Cells and Human Longevity
58:02
58:02
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Can we not only live longer but better, healthier lives? Robert A.J. Signer and Shiri Gur-Cohen describe how stem cell research may hold the key to longevity. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39869]By UCTV: UC San Diego
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1
A Closer Look at...Stem Cells and Human Longevity
58:02
58:02
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Can we not only live longer but better, healthier lives? Robert A.J. Signer and Shiri Gur-Cohen describe how stem cell research may hold the key to longevity. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39869]By UCTV: UC San Diego
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In this episode of Walk and Roll Live - Disability Stories, we feature the inspiring journey of Eddie Ramirez. Once an active teenager passionate about sports and off-road vehicle riding, Eddie's life took a dramatic turn after a tragic accident left him a paraplegic. Join us as Eddie shares his story, starting with his vibrant life before the inju…
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1
Capturing Late-Onset Neurodegeneration in Patient-Derived Neurons via Direct Reprogramming - Breaking News in Stem Cells
59:16
59:16
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Andrew Yoo, Ph.D., provides insight into the ongoing research on neurodegeneration and neuronal reprogramming, highlighting the complexities and challenges in modeling and understanding these processes. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39454]By UCTV: UC San Diego
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1
Capturing Late-Onset Neurodegeneration in Patient-Derived Neurons via Direct Reprogramming - Breaking News in Stem Cells
59:16
59:16
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59:16
Andrew Yoo, Ph.D., provides insight into the ongoing research on neurodegeneration and neuronal reprogramming, highlighting the complexities and challenges in modeling and understanding these processes. Series: "Stem Cell Channel" [Health and Medicine] [Science] [Show ID: 39454]By UCTV: UC San Diego
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Det er sommer, sol og spessial! Men det må IKKE forveksles med best of, for det er det ikke, det er en rykende fersk episode, bare bittelitt kortere enn vanlig. Sommertid, vettu.
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1
Developing the COVID-19 Vaccines with 2023 Nierenberg Prize Winner Katalin Karikó
39:17
39:17
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Nobel Laureate and biochemist Katalin Karikó's groundbreaking work on COVID-19 vaccines earned her the Nobel Prize in Physiology or Medicine in 2023, alongside co-collaborator Drew Weissman. She's also the Scripps Institution of Oceanography's 2023 recipient of the Nierenberg Prize for Science in the Public Interest. Karikó, an adjunct professor of…
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1
Developing the COVID-19 Vaccines with 2023 Nierenberg Prize Winner Katalin Karikó
39:17
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Nobel Laureate and biochemist Katalin Karikó's groundbreaking work on COVID-19 vaccines earned her the Nobel Prize in Physiology or Medicine in 2023, alongside co-collaborator Drew Weissman. She's also the Scripps Institution of Oceanography's 2023 recipient of the Nierenberg Prize for Science in the Public Interest. Karikó, an adjunct professor of…
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1
"Unleashing Potential: Mike Rosenkrantz and SoCal Adaptive Sports"
53:16
53:16
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Join us on this week's episode of Walk and Roll Live as we welcome Mike Rosenkrantz, co-founder of SoCal Adaptive Sports. Discover the inspiring journey behind SoCal Adaptive Sports, an organization dedicated to identifying and nurturing potential athletes with disabilities. Mike shares how they engage with athletes and their families, meeting them…
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1
Systemic Therapy Approaches for Advanced Prostate Cancer
21:49
21:49
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As part of the 2024 Prostate Cancer Patient Conference, Dr. Eric Small discusses systemic therapy treatment in advanced prostate cancer, including AR-targeted therapy. The presentation includes definitions of disease states, categories of treatment types, and standards in treatment selection. Series: "Prostate Cancer Patient Conference" [Health and…
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1
Systemic Therapy Approaches for Advanced Prostate Cancer
21:49
21:49
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As part of the 2024 Prostate Cancer Patient Conference, Dr. Eric Small discusses systemic therapy treatment in advanced prostate cancer, including AR-targeted therapy. The presentation includes definitions of disease states, categories of treatment types, and standards in treatment selection. Series: "Prostate Cancer Patient Conference" [Health and…
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1
Systemic Therapy Approaches for Advanced Prostate Cancer
21:49
21:49
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21:49
As part of the 2024 Prostate Cancer Patient Conference, Dr. Eric Small discusses systemic therapy treatment in advanced prostate cancer, including AR-targeted therapy. The presentation includes definitions of disease states, categories of treatment types, and standards in treatment selection. Series: "Prostate Cancer Patient Conference" [Health and…
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1
"Safe and Sound: 4th of July Safety Special"
44:03
44:03
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In this special episode of Walk and Roll Live, we focus on 4th of July safety. Joining us are special guests from Safety Powers to discuss crucial safety measures for the holiday. Additionally, our resident expert in disaster preparedness, Eric Aguilar, shares invaluable tips to ensure everyone enjoys the celebrations safely. With a dedicated focus…
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1
Triumph Over Tragedy: Tom Conoway's Journey to Independence
1:25:35
1:25:35
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Join us on this week's episode of Walk and Roll Live - Disability Stories when we have a conversation with Tom Conoway, an inspiring SCI survivor who faced life-changing challenges at the tender age of 4 after a devastating automobile accident. Tom shares the unwavering support of his family and how, during his teenage years, he discovered a burnin…
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1
114: 10 Questions to Ask Before You Retire with Chris Rett
27:20
27:20
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It’s our Season 10 finale of The Guided Retirement Show, which means it’s time for Chris Rett, CFP®, AIF® to join Dean Barber as the featured guest. Chris and Dean are going to review 10 questions that everyone should ask themselves before retirement. If you’re planning to retire around three to five years from now, make sure to take some notes and…
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Emil, Christian og Olav er tippelaget som går bak kulissene for å finne ut hva som egentlig foregår i England-troppen.
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1
Practice-Changing Advances in the Management of Hemophilia
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In this podcast, hear expert perspectives on practice-changing advances in the treatment and personalized management of patients with hemophilia from Dr. Guy Young, Director of the Hemostasis and Thrombosis Program, Attending Physician in Hematology/Oncology, and Professor of Pediatrics at Keck School of Medicine of USC; and Dr. Jennifer Davila, Co…
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"From Combat to Comfort: Leonard Ortega's Journey"
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48:35
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Join us this week on Walk and Roll Live as we sit down with Leonard Ortega, an Army veteran, assistive technology (AT) specialist, husband, father of two, and proud grandparent. Leonard shares his inspiring story of survival after a spinal cord injury (SCI) and how he has adapted to life's challenges. Tune in to hear about his remarkable journey fr…
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As part of the 2024 Developmental Disabilities Conference, Dr. Jennifer Martelle Tu is a neurologist with a special interest in movement disorders. She provides a comprehensive update on the care of children and youth with Rett Syndrome, a rare progressive neurological disease. She emphasizes the importance of dedicated multidisciplinary clinics an…
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As part of the 2024 Developmental Disabilities Conference, Dr. Jennifer Martelle Tu is a neurologist with a special interest in movement disorders. She provides a comprehensive update on the care of children and youth with Rett Syndrome, a rare progressive neurological disease. She emphasizes the importance of dedicated multidisciplinary clinics an…
…
continue reading
As part of the 2024 Developmental Disabilities Conference, Dr. Jennifer Martelle Tu is a neurologist with a special interest in movement disorders. She provides a comprehensive update on the care of children and youth with Rett Syndrome, a rare progressive neurological disease. She emphasizes the importance of dedicated multidisciplinary clinics an…
…
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1
318: Throwing insights (with Don Babbitt)
45:48
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It's been a hell of a year so far in the world of throwing: a world recrod, historic marks, and much more just in the spring. Coach Don Babbitt joins us on this week's podcast as we look ahead to the US Olympic Trials and then the Paris Olympics. We take a look at insights that can be gained from the biomechanics of Mykolos Alekna, the development …
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Det har skjedd mye morsomt med Olav, det er EM og det er en ny episode av Ukentlig.
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1
Immunotherapy and Advanced Prostate Cancer
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As part of the 2024 Prostate Cancer Patient Conference, Dr. David Oh presents on the use of immunotherapy as a treatment in advanced prostate cancer, including describing how immunotherapy works, possible side effects, and options available currently. Series: "Prostate Cancer Patient Conference" [Health and Medicine] [Show ID: 39770]…
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