Shannon Traphagen (S.M. Traphagen public
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The Game On Glio Podcast

Shannon Traphagen (S.M. Traphagen)

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Now in its fourth season, with 38 episodes aired, Game On Glio was the first of its kind to create a media platform for telling the stories and journeys of those diagnosed with brain cancers such as Glioblastoma. Expanding on its original platform, this show shines a light on grief and loss, brain cancer education and stories, and provides inspiration, hope, and second chances! Guests include caregivers, scientists, therapists, patients, widows(ers), non-profits, relationship experts, well k ...
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For all of Scott Hamilton's successes, there has also been sacrifice, fear, and loss. He has battled health issues that truly put death in front of him and has made him confront very hard truths. And, it was through his wife that he learned and felt the power of faith in God's word. Scott doesn't see his life as lucky-he sees his life as a road map…
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Robert and Melanie Ham were young, with two young children when Melanie was diagnosed with an incurable rare form of Sarcoma in 2020. Robert, an award winning film maker and military veteran, decided he wanted to document her journey, their love, to help others. The documentary aired in 2022 after Melanie's death and has been viewed more than 1 mil…
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Having glioblastoma doesn't mean life is over. In fact, it can be viewed as an opportunity! Tara McCaughan from Northern Ireland has been living with gbm for nearly five years. Her story shows us how human resilience and internal cognitive reshuffling can be our biggest weapon in battling such a formidable disease. But she doesn't do it alone, her …
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There are so many facets of the grief and loss journey. One that many don't think of is financial understanding. Whether it's starting a non-profit organization after a loss or trying to navigate investing from money left to you after a death, it's vital to know how to advocate for your own best interests. Self advocating is important in in all are…
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Grief is something that crashes into us. It takes a toll on us emotionally and physically. But when it does, it also teaches us. We grow from our journeys in life--the good and the bad. Emily Peterson, CEO of Saranoni Luxury Blankets, knows this journey all to well. Emily's husband Nathan was diagnosed with glioblastoma brain cancer just 3 months a…
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Love is infinite. You don't run out of love. You don't stop loving your late spouse just because a "new and different love" introduces itself. Your heart grows around what was to make room for what is. Annie and Matt teach us just that. In this episode, we sit down with the two to talk about finding love again after loss, and what it truly looks li…
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Big Tree Memorial Fund, a 501c3 was started in honor of Erik Knapp who died from glioblastoma in his early 30's. The fund is unique in that it doesn't just focus on brain cancer, but any family suffering from hardship due to a cancer diagnosis. The fund helps supports families and caregivers through resource and financial assistance. Erik was Laure…
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There are people you meet in life, whether through words, groups, from a community or work that redefine how you interact with and see life. For me, it started with words; a little book I found one rainy Sunday morning at the bookstore-- Be Like Water. I flipped through this tiny paperback, it's first sentence reading, "More than 70% of the Earth's…
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How can you comprehend become a widower at 35 years old after 16 years with the one you love? How do you make sense of losing that spouse (only 33) 11 months after giving birth to your first child? This is exactly what Alan Johnstone faced when his young 33 year-old healthy wife Anneka was diagnosed with glioblastoma five months after giving birth …
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To kick off brain cancer awareness month 2024, I sit down with Roon app creators Rohan Ramakrishna & Vikram Bhaskaran in episode 1 of Season 4 of The Game On Glio Podcast. We dive into the importance of real time information and the need for advocacy when it comes to serious diseases like Glioblastoma. My guests also explain why they felt the need …
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When Eric Wood sat in a delivery room supporting his wife as she gave birth to their child, he didn't expect to find out that his NFL career was over. It was 2018 and the middle of the football season; Wood had played his entire career for the Buffalo Bills football team, but his path there was narrow and included a bit of destiny. Wood knew full w…
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In this episode, Kate sits down with me to discuss the power of hope, faith, family, and never giving up--even when you think all hope is lost. Her foundation, Hope Rises, shares hope-filled news every single day, as well as hosting powerful giveback projects. To date, they have raised over $300,000+ and change countless lives through charitable ef…
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When Amber Jackson met her husband Tim, she describes it, "He came across my sky and lit it up, and now he's gone just as quickly." Amber and Tim were both nurses at the same hospital, and very quickly realized they were soulmates and meant to be together. Within five years they got married and had two beautiful kids. Then it all came crashing down…
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At the time of his diagnosis, Chris Baccash had a full time analytics job and spent his weekends racing and training with the Doylestown Bike Works elite cycling team. His accomplishments included the hardest event of the season — the 50-mile Bucks County Classic, in his hometown of Doylestown, PA, with a personal-best time. Of cycling at the time,…
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It's hard enough to imagine a young adult getting glioblastoma. But to hear of a baby having it truly tugs at the heart strings. Kelly Barnhart shares her incredible story with us of her 5 year old son Carson's GBM story. A mother of three, a wife, and an educator in the Buffalo school system as well as through Buffalo Hearing and Speech, Kelly has…
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It's an old phrase, one that has actually been around since the 11th century when Saint George slayed his first "dragon." The more recent old English proverb is "Some days you get the bear, some days the bear gets you." Basically we win some, we lose some--BUT we always keep going, and we slay one dragon at a time. That is life; life throws us curv…
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StacheStrong is a 501(c)3 non-profit devoted to raising funds and awareness for brain cancer research in memory of the late GJ Gerner--Co Founder Colin Gerner's brother. The organization has become a beacon of hope for countless individuals and families afflicted by brain cancer. In this episode, Colin recalls, “It all started with a seizure. My 29…
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Mike was diagnosed with glioblastoma in April of 2022. 13 months in, he is doing well and stronger than ever--but it comes at a price. “I know the statistics,” he said. “The statistics for glioblastoma are a median survival of 14 months; half the people are dead by 14 months. The five-year survival is four or five percent.” Mike found the tumor aft…
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In this episode, we talk to Wade Lewis who was diagnosed with glioblastoma at the age of 43. Faith, fortitude, and fight all describe what this episode is about. Wade shares his brain cancer journey, the intriguing friendship he developed with Dr. Fonkem and how it led to their work in Africa together, and how ministry and his belief in God has giv…
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Lance Kawaguchi's motto is "working with heart" and it shows in all he does for the brain cancer community. The CEO of Cure Brain Cancer Foundation, a nonprofit organization in Australia, Lance is also an internationally recognized executive leader with over 25 years of global finance and banking experience, and currently serves as the Chairman of …
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"It's hard when someone puts an expiration date on you," said Nick Adamski, glioblastoma thriver and one of our guests for episode 2 of Season 3. Nick, with the support of his wife Diane (ABC7 Chicago News Journalist), has been beating the odds against glioblastoma since December 2020. Walking through this rare cancer is not pretty, nor is it for t…
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In this first episode of Season 3, we sit down with Dr.'s Elad Levy and Ken Snyder of UB Neurosurgery/Buffalo General Hospital and Gates Vascular Institute/Jacobs School of Medicine. They give us rare insight into the work they do, the cutting edge technology being used (including GammaTile Therapy now being offered) and even the emotional toll thi…
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Our guest today, Marie Alessi, is a celebrated author of the book "Loving Life After Loss" and podcast host of Upspiral Grief. Marie unexpectedly lost her husband and father to their two boys in 2018 to a sudden brain aneurysm. Using her own tools and strong intuition, she created a path back happiness and now shares that with others across the glo…
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"I (insert name here) take you (insert name here) to be my lawfully wedded husband/wife. To have and to hold from this day forward. For better, for worse, for richer, for poorer, in sickness and in health, to love and to cherish until death parts us." Sound familiar? When we say those vows, we say them theoretically. As if we know that this is what…
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It's hard enough being a parent (at least from everything I witness and see). So, what do you do when you suddenly become a widow, grieving the loss of your spouse while also trying to help your grieving child? Whether the loss is a caregiver, a parent, or even a sibling, a child that experiences loss is going to experience grief differently than w…
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The themes around Episode 9 will have us all reflecting a bit more this holiday season. You wouldn’t know it from the title, but we talk a lot about the act of forgiveness–what it takes to forgive. Not just in forgiving others, but forgiving ourselves. The title, “Cancer isn’t a sniper shot, it’s a grenade,” is a loaded title. In my conversation wi…
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When you're mindful, you observe your thoughts and feelings from a distance, without judging them good or bad. Instead of letting life pass you by, mindfulness means living in the moment and awakening to experience. Trying to be mindful while in the midst of grief can be challenging. However, learning to lean into it while also leaning into love, l…
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I've been thinking a lot lately about my path, specifically, how I got here. All the pieces on the chess board had to move just so in order for me to arrive to exactly where I am today. The Universe has a funny and ironically dark way of pushing us in a direction; priming us for a duty, action, or journey that will require certain skills. Before Mi…
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In episode 6 we sit down with Dr. John Ruge, a pediatric neurooncologist in Chicago, IL. His passion for finding better treatment options has led to his developing the app Medeligo Oncology. Dr. Ruge has worked with both adult and pediatric brain cancer patients and families. His philosophy these days is-- "When I walk in the hospital to meet with …
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I think it's interesting that a protein in our bodies, that we develop when we are young and shuts off as we get older, that's labeled "Survivin" can actually be used to fight Glioblastoma and potentially other rare cancers. A protein called Survivin has the word "survive" in it. Isn't that thought provoking! It's like the Universe is giving us wha…
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When we think of loss--of the grief we suffer from it, we don't typically see grief as a strength. Grief can either consume us or be used to shatter our fears and sadness and teach us a strength we never knew we had in us. In this episode we talk about the obstacles of moving through grief- the understanding and patience that is needed. Seeing the …
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Being a front-line worker at the start of the Coronavirus pandemic is hard enough. What happens when you go from front-line work to patient? Episode 3 hears the story of Ian Youngblood, a 29 year-old nurse sent to NYC as COVID-19 started to ravage our country. He quickly went from treating others to being treated, but not for COVID, for a grade 3 A…
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We're taking a trip back to high school chemistry in this episode! The chemical compound H2S, better known as the gaseous chemical Hydrogen Sulfide--the one that puts off a "rotten eggs" smell, is found in many natural environment settings. However, did you know that Hydrogen Sulfide is produced in small amounts in our bodies? This over-looked comp…
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Harry Lorusso was diagnosed with GBM at just 33 years old. He said of his diagnosis, "No one changes when things are easy. The type of people my wife and I are today, we wouldn't have become without GBM." A week after his diagnosis, he and his fiancé got married. A year later they had a son. And now they've started the Outlier Fund. Three years in …
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It's hard to imagine that children can get the same cancers adults get. It's hard to imagine children get cancer at all. The unfortunate truth is, children do get brain cancer; between 200-500 children are diagnosed each year in the U.S. So, what is being done to help these beautiful little beings? A lot! Dr. Lindsey Hoffman, with Phoenix Children'…
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Author Kristine Carlson is truly living her motto, "Don't Sweat the Small Stuff." After the death of her famous husband Dr. Richard Carlson, co-author of the series Don't Sweat the Small Stuff, Kristine plunged into finding a way to walk through grief. In doing so, she broke open her heart, allowing the grief to work it's way through and eventually…
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It's not every day you get a chance to speak to a neurologist who has some sliver of an idea of what we as caregivers/patients walk through. Indiana Jones once said, "If You Want To Be A Good Archeologist, You Gotta Get Out Of The Library!” My guest Dr. Sanai shares a similar view! A rare and unique experience led him down the path of neuro-oncolog…
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Dr. Sanai is the Chief of Neurosurgical Oncology, and the Director of the Ivy Brain Tumor Center which offers Phase 0 trials for those in the fight against brain cancer. Find more about Dr. Sanai's work at: IvyBrainTumorCenter.org TheGameOnGlioPodcast.com The full episode will be available anywhere you find podcasts on January 27th 2022.…
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We all want to believe in magic this time of year; hope, inspiration, the possibility that something good can happen. In this episode, we get all that and more as guest Greg Link shares his GBM journey and why we should never give up! With a New Year upon us, this episode will infuse you with hope, love, and strength. Visit TheGameOnGlioPodcast.com…
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Being diagnosed with brain cancer is scary. It's overwhelming. It's diving into a future of unknowns. However, there are many in the scientific and neuroscience community that are working to help patients beat the odds, and to break that "blood brain barrier" for treatment success. One of those in our communities is GT Medical Technologies (GT Med …
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As someone who loves the Marvel movies, hated the character Thanos--like most I assume, and rooted for the good guys to triumph, it never occurred to me the meaning behind Thanos; who he was, what he represented. It makes sense that since he’s obsessed with Death (the literal embodiment of death, not just the concept) he calls himself Thanos, since…
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We all know the difficult trials that come with being diagnosed with brain cancer. But imagine starting the journey with one parent battling the same disease and the other passing away suddenly.... After 13 years living with brain cancer, Jenny Williams is a beacon of hope for others and has a brave message she shares with all who will listen. *bac…
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Matt Anthony is Head For The Cure Founder and Board President. His journey with the foundation started when his brother Chris was diagnosed with GBM 19 years ago. Upon his passing, he and Matt made a promise to each other--"To keep the fight going." Matt kept that promise and then some. For more information please visit: TheGameOnGlioPodcast.com He…
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