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Champions for HD is a nonprofit that fights to aid families and cure Huntington's Disease one family and one voice at a time. Our vision is to fight HD by contributing funds to local research while aiding HD families in need. This podcast will bring you stories from champions within the HD community as well as updates from the professionals in the field. This is a safe place to share freely and support one another. No one fights Huntington's Disease alone.
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Another podcast about life, music, God (sometimes), and raising awareness of what is important in the world. Also, dumb talk about music like we know what's up. Want to be a guest or have other feedback? Email mixtapetales45806@gmail.com (NOTE: most episodes are NOT explicit but sometimes words slip out so it's better to be safe than sorry)
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. Follow Champions/External links: linktr.ee/championsforhd Website Follow Shelby: https://www.shelbylentz.com/ linktr.ee/shelby_lentz In their discussi…
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution if these affect you. In this conversation, Jenna Woodard shares her experience with Huntington's disease (HD) in her family. She discusses her first memory of HD and how s…
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*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. If you are interested in participating or would like to know more about this study, click here: https://www.championsforhd.org/research to schedule a time with Paige or e…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Amy Abbott. Amy lost her husband, Jody, to Huntington's Disease. Jody was a musician and had a true love for music. Amy shares the dark moments her and…
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Concert of Hope headliner and founder of Champions for HD joins the show to talk about what's happened since 2019 when we last did a show together, her music, and why she founded Champions to begin with. See Shelby along with Adam Baker, Fields and Fortresses and David Elise at Trubble Brewing on 10/29! Paul's audio isn't great but I think you get …
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down Kevin Bailey. Kevin is living with Huntington's Disease and lost his mother to it in a tragic way. Kevin was one of our first donations in 2018 when we…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Sarah and Brandon, a couple who are battling HD. Brandon was diagnosed with HD a few years back. They talk about the highs, the lows, and the impo…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 ho…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Samantha Peterson joins me to share living her life gene positive with Huntington's Disease: the highs and the lows. She shares how she fights everyday not only for her…
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Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Brave Breanna Dutch: https://www.huntington.nl/webwinkel/voor-kinderen.html Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.face…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Jessica who shares her tramautic childhood living with her mother, who suffered from HD, and how it effects her currently. She also shares her life…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Domonique who shares her HD testimony. Her mother battled HD and su*cidal ideations. Domonique has tested positive for the disease and shares her l…
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Order Brave Breanna: https://www.amazon.com/Brave-Breanna-Through-Juvenile-Huntingtons/dp/B099BYQ2FK/ref=sr_1_1?dchild=1&keywords=brave+breanna&qid=1631066574&sr=8-1 Follow Champions: https://www.championsforhd.org/ https://www.instagram.com/championsforhd/ https://www.facebook.com/championsforhd/ Follow Shelby: https://www.instagram.com/shelby_len…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Kya Rowlins. She shares her journey with HD in her childhood through her mother's battle with the disease, and her life being at-risk. Listen to Ky…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I sit down with Londen and her daughter Autumn to talk about Autumn's life since her diagnosis with Juvenile Huntington's Disease. Before editing, this was a 3 ho…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke for the second time. She was our first podcast guest, a Champ…
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This special edition of the Mixtape Tales podcast is a discussion of Huntington's Disease with my cousin, Amanda. She talks about the testing process, why advocacy is crucial, and shares her -- OUR -- family story. I am titling these episodes "Talking Chorea Blues" in honor of an unrecorded Woody Guthrie song related to his illness. In case you wer…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today we are deep diving into potential benefits of getting tested for Huntington's Disease. This question was left as a comment on our social media post today and it g…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by Evonne. She is 32 years old and living with Huntington’s. She works as the Director of Youth and Childhood Ministries at a Catholic school in India…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Welcome back to the show. I first want to apologize for the delay in episodes. I ended up coming down with COVID a few weeks ago and I had it pretty badly. Thankfully I…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Megan returns to share her PREGNANCY from IVF! This means her baby will be HD FREE! What a blessing!! Follow Champions: https://www.championsforhd.org/ https://www.inst…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Loren joins me to share her father's journey of life before HD, after his initial diagnosis, and current life with him being in a nursing home. Despite the hardship, sh…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Heather is one of our Champions for HD donation recipients. She joins us to share her story with her diagnosis of Huntington's Disease, and how she continues to keep fi…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. My sister would've been 15 years old this month. Last Wednesday, February 17th was her birthday and the first one our family has spent without her. It's been nearly a y…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. I am joined by my sister, Delaney, to talk about Huntington's Disease in our family from her perspective. She is a sophomore in college and living at-risk for the disea…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Megan joins me to share her experience with IVF. She was one of the first to receive a grant from the nonprofit, Help Cure HD. Help Cure HD specifically focuses on HD f…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Our first episode of 2021! Brittany Johnson joins us to talk about her family overcoming her mother's diagnosis of Huntington's Disease in 2018 and how they are living …
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Ashley joins me to be completely raw in her experience with Huntington's Disease. After a toxic relationship with her mother, who has the disease, receiving a negative …
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Lagrange County IN Treasurer Jamesi Lemon joins the show to talk about a wide variety of things! This was a fun one to record, and thank you for all coming to my therapy session. As always, my audio sounds like two tin cans strung together, so if you are patient and bare with it, I think you will enjoy this one... "All Democrats are evil" -- Jamesi…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I talk with Heather and Nathan Thurgood and discuss their advocacy In the Huntington's Disease community. Nathan Is living with HD and Heather Is his biggest supp…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Matt joins me for an in-depth conversation about life with Huntington's Disease and overcoming the lingering fear that comes with It. After being diagnosed recently him…
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This week's episode features Amanda Rinehart, who has some opinions! This is an ep I have wanted to do for a long time, as we discuss a wide range of topics. I think it was informative and a lot of fun, and I hope you do, too.Note: this ep was recorded after RBG passed but before Trump nominated ACB to fill her seat on the court, and before everyon…
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Multi-talented artist and musician Koli Meadows joins the show this week to talk about growing up as an "other" in Northwest Ohio, her faith, and what drives her in 2020. Koli and her band's latest release, 2017's "I've Met You Before", is available on all major streaming platforms, and is definitely a challenging and provocative listen. You really…
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Tom Rossmanith joins the show to talk about a lot of topics that other podcasts are afraid to talk about! We talk about race, politics and religion-- and that's just the first half hour! If you want to learn more about Tom, he can be found at @tomrossmanith on Facebook and Twitter and Murray Hill's twitter is @mhtrocks. Tom is legit one of the bigg…
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Concert of Hope alum Addison Agen joins the podcast to talk about what has been going on in her life after she was the runner up on Season 13 of NBC's The Voice. We also talk about her family connection to Huntington's Disease, what the future holds...and when we will be getting new music from this multi-talented artist. This episode also features …
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today, Jessica Robbins and I discuss both of our journeys of testing for Huntington's Disease. We each received a positive diagnosis that changed our lives forever. Jes…
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This episode features Huntington's Disease foundation co-founder Doug Michael. Doug has been active in fundraising and bringing awareness to the cause of those with HD for several years. Before that, he worked in the music industry and he tells some of his best stories about some of the people he met while working in the industry, and the importanc…
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**Trigger warning** This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution. Today I am joined by one of my dear friends, and fellow Huntington's Disease Advocates, Kyra Ashley Clarke. We discuss mental health with HD as a caregiver, setting bou…
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Welcome to our official Champions for HD Podcast. We are a nonprofit organization fighting to aid families and cure Huntington's Disease one family and one voice at a time. My name Is Shelby Lentz and I began Champions for HD In 2018 to help other families, like mine, who have battled this disease head on. When I was diagnosed In 2017, I made It my…
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For episode 20, I talk with author Jim Boeglin about his newest book, American Values in the Trump Era. Jim believes that the Current President has bungled his way through 4 years of elected office and has the data to back it up. This is a fascinating conversation that I hope you enjoy. Even if you are to the right on some of the issues discussed, …
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Paul sits down virtually and 6 feet apart with comedian Joe Deez. We talk about his now rescheduled (for August 21st) Arcade Comedy show that was to take place in May, music and Joe even asks a couple of questions of Paul. This turns into a pretty entertaining episode, so enjoy! People name-checked in this episode: Dean McCombs and Shawn Browning. …
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Kevin Jess, VP of wehaveaface.org Canada joins the show to talk with Paul about Huntington's Disease, advocacy, and resources for people who are interested in being a part of making our generation the last one affected by HD. I also mention in the episode several organizations doing great work for the HD community, learn more by clicking any of the…
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This is episode 16. That's 15 more episodes than I thought we would do. Holy cow, you guys are amazing. And I'm Harry Carey. Anyway, today's guest is Pop's Garage drummer (and YES FM alum) Ashley Spitler, who talks about showing grace to people you may not agree with, her musical ambitions, and her unhealthy love for a Jonas Brother. You'll have to…
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Alex Scheer joins the podcast to talk about following dreams, being grateful for what you have, seeing Avengers: Endgame 13 times in the theater and a ton more. It's a great conversation that I really got a lot out of, and I think you will, too. Find out more about Alex's (far superior) podcast at https://www.atbsports.net/ or wherever you are list…
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