Best The Brain Tumour Charity Podcasts (2024)

1
Episode 55 - Spotlight on Research into Glioblastomas 16:52

10d ago16:52

16:52

In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneously targeting both cancer cells and their supporting immune microenvironment in the hope of finding more …

1
Episode 54 - Living with a rare brain tumour and Everest in the Alps 50:35

5M ago50:35

50:35

In this episode, we talk to Alex, Katie and Martin. At 20 Alex was diagnosed with a rare paediatric brain tumour DLGNT with limited treatment options his mum Katie did her own research into how best to help Alex, finding help and support internationally. In February 2024 Martin, along with 3 of his friends are taking on the Everest in the Alps chal…

1
Episode 53 -Using exercise as a form of therapy 56:24

5M ago56:24

56:24

In this episode, we talk to Liam Young about his recovery from his brain tumour. Liam tried the traditional route of counselling but found this wasn't for him but he found his perfect form of therapy through a personal trainer. Liam talks about how at 25 he had never prioritised his health, but after his diagnosis he realised how important health a…

1
Episode 52 - Ravi's Dream 54:44

5M ago54:44

54:44

In this episode we talk to Bethan and Gbenga Adelekan who's son Ravi was diagnosed with a brain tumour when he was just 6 years old. Despite this Ravi, now 8 has not let this stop him from using his experience to help others and also to continue to follow his own dreams! After his diagnosis and surgery, Ravi decided that he want to do something tha…

1
Episode 51 - Spotlight on the Ways Ahead Research Project 23:34

6M ago23:34

23:34

In this episode Anna and Chandos talk to Ben Rimmer, a research assistant at Newcastle University and the work they are doing on the quality of life of people diagnosed with low grade glioma's. The Ways Ahead research project aims to understand more about the lived experience of people with low grade gliomas and how to improve their quality of life…

1
Episode 50 - Life after losing a parent - Growing and Thriving 42:02

6M ago42:02

42:02

In this episode Will Garrett talks about the death of his dad when he was just 11 and how this has shaped his life. Will is now a Neuro Oncology Clinical Nurse Specialist, a career that was shaped by his experieces as a child where he now works with other families who are impacted by brain tumours. Will shares what it was like for him as an 11 year…

1
Episode 49 - Spotlight on the Children & Families Service 14:28

9M ago14:28

14:28

In this episode Chandos talk with two of our Children and Families and Young Adults Workers Amy Watts and Jessie Poole about the support that is available to families who have children under 18. Some of the things mentioned in this episode include: Family Days Brainy Bags Online support group for parents Talking to children about brain tumours Tali…

1
Episode 48 - (TW) Coming to terms with change 30:21

9M ago30:21

30:21

(Trigger Warning) In this episode - Benj talks about the impact of his daughter Ivy's diagnosis and coming to terms with the changes this has brought to both Ivy and their lives as a family. He talks about the impact on mental health and the impact of trauma that parents and loved ones experiene as a result of a brain tumour diagnosis. This episode…

1
Episode 47 - Spotlight on Young Adults Masquerade Ball 16:25

9M ago16:25

16:25

In May this year, we hosted not only our first in-person Young Adult event since Covid but our first ever Masquerade Ball. Anna and Chandos, explain why events like this are so crucial to young people whose lives have been affected by a brain tumour diagnosis. We also hear from other young adults about the impact these events have on people like th…

1
Episode 46 - (TW) 'Your child has a brain tumour' 56:11

10M ago56:11

56:11

(Trigger Warning) In this episode - Benj talks us through every parent's worst nightmare, from the moment he and his wife Sarah were told their 4 year old daughter Ivy had a mass in her brain to where they are now as a family 18 months later. This episode contains conversations that some people may find distressing such as the effects of the tumour…

1
Episode 45 - Mummy has a lump 34:35

10M ago34:35

34:35

If you are a parent who has recieved a brain tumour diagnosis, telling your children can be one of the hardest things to do. In this episidode we talk to Simone Baldwin, the author of the book 'Mummy has a lump' which she wrote after recieving her own brain tumour diagnosis and struggled to find any resources for parents to help her explain to her …

1
Episode 44 - Spotlight on Ahead of the Game Foundation 19:10

11M ago19:10

19:10

In this episode Anna talks to Dave Bolton, founder of Ahead of the Game Foundation which aims to provide much needed rehabilitation services to cancer patients. Dave talks about what led him to creating Ahead of the Game and what services they provide. You can find out more about Ahead of the Game here You can read more about Dave Bolton here You c…

1
Episode 7: Jean 43:45

11M ago43:45

43:45

Megan’s mother disappears, Jamie tries to track her down. Evidence published reveals a shocking conclusion. Finally, Jamie can give everyone involved some answers.By BBC Sounds

1
Episode 6: One Direction 29:11

11M ago29:11

29:11

Why did Megan and her mother set up Believe in Magic? Jamie investigates their link to pop megastars One Direction. He discovers crucial evidence is about to be published.By BBC Sounds

1
Episode 5: Sisters 27:10

11M ago27:10

27:10

Revelations about Megan’s childhood provide vital clues. An expert tells Jamie about a little - understood yet disturbing medical phenomenon.By BBC Sounds

1
Episode 4: Doctors 27:24

11M ago27:24

27:24

The news creates shock waves. Could the sleuths have got it wrong? Jamie gains rare access to doctors’ reports, which could reveal what happened to Megan.By BBC Sounds

1
Episode 3: Proof 27:33

11M ago27:33

27:33

The sleuths reveal their findings. Believe in Magic’s supporters defend Megan. Some terrible news breaks, that forces the sleuths to reconsider everything they’ve discovered.By BBC Sounds

1
Episode 2: Sleuths 23:48

11M ago23:48

23:48

Megan fundraises for treatment abroad. Her condition deteriorates while in hospital in America. When anonymous sleuths discover she’s not where she claims, who will believe them?By BBC Sounds

1
Episode 43 - Headaches and Brain Tumours 47:27

12M ago47:27

47:27

In this episode, we talk to Imelda and Rebecca who both experienced headaches caused by their brain tumours. They share how these were often dismissed by GPs and not taken seriously despite also having a range of other symptoms which were all indications that something wasn't right and needed looking into. They explain what the headaches were like …

1
Episode 1: Megan 22:01

12M ago22:01

22:01

A teenage girl with a brain tumour starts a charity for sick children. It captures the support of pop megastars, One Direction. But questions arise - is Megan really ill?By BBC Sounds

1
Introducing Believe In Magic 2:47

12M ago2:47

2:47

Charity, celebrity, illness and control. The extraordinary story of a teenage girl and her charity Believe in Magic, which ends up challenging the very nature of sickness itself.By BBC Sounds

1
Episode 42 - Spotlight on Family Led Partnerships 15:57

12M ago15:57

15:57

In this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity. She explains what family led partnerships are, the different types and why they are so important to the charity. Family led partnerships are so much more than just rasing money for the charity as Phoebe explains in this episode. If you have any questions you ca…

1
Episode 41 - PCV Chemotherapy 47:49

1y ago47:49

47:49

In this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV. They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and more. You can find out more about chemotherapy here and if you would like to speak to our support team you can emai…

1
Episode 40 - Spotlight on TIME, using art to tell stories of brain tumours 16:31

1y ago16:31

16:31

In this episode, we talk to Hannah Waldron about the TIME Art Exhibition . The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a brain tumour, as well as artwork from upcoming and renowned artists from around the globe. The aim of the exhibi…

1
Episode 39 - Caring beyond a brain tumour 46:26

1y ago46:26

46:26

In this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day' about their experiences of caring for their partners who both live with the impacts of brain injury. Elizabeth's husband Paull had a stroke when he was just 38 and Julia's husband Hector had a subarachnoid brain haemorrhage when he was also 38. Whilst not caused…

1
Episode 38 - Spotlight on getting benefits and money advice (UK) 10:36

1y ago10:36

10:36

In this episode, Chandos talks to Denise one of our benefits advisers. Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with Citizens Advice to provide support and information around not just benefits but a wide range financial issues. …

1
Episode 37 - Brain Tumours and Seizures 37:17

1y ago37:17

37:17

In this episode we talk to e people, Jess, Reece and Kate about the impact seizures have on their lives, from being the first sign there was something wrong to the day to day challenges of managing their seizures. We talk about the different types of seizures and how medication can help to get these under control. You can find out more about brain …

1
Episode 36 - Spotlight on Involvement Champions 25:32

1+ y ago25:32

25:32

In this episode, Neil Munn and Donald Innes talk about their time as Involvement Champions for the charity. They share what being an Involvement Champion means, not just in terms of their role and what they have done as Involvement Champions but also what it has meant to them personally and the feeling that they have had a real say in the direction…

1
Episode 35 - Christmas - Caring for or coping with the loss of a loved one 23:14

1+ y ago23:14

23:14

We know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this may be a time of remembering a loved one you have lost. In this episode, we talk about some of the challe…

1
Episode 34 - Living with a Brain Tumour At Christmas 27:27

1+ y ago27:27

27:27

In this episode, we talk about some of the challenges of having a brain tumour over the festive season. For some of you, this might be your first Christmas since receiving your diagnosis and have mixed feelings about the impending festivities. The team share some personal experiences of how having a diagnosis has changed the way they celebrate the …

1
Episode 33 - Spotlight On Our Young Ambassadors - Making Positive Changes 27:04

1+ y ago27:04

27:04

In this episode, Anna talks to fellow young ambassadors Rhudi and Victoria about the Young Ambassador Program which is a 2-year program tum by the charity for young people aged 18 - 25. They talk about what made them want to become ambassadors for the charity and some of the great things they have done during their first year in the program. The Yo…

1
Episode 32 - How to prepare for the death of a loved one 46:46

1+ y ago46:46

46:46

In this episode, we're joined again by Sacha Langton-Gilks to talk about how to prepare for the death of a loved one and explore what it means to give someone a good death and help them die well. Trigger warning: In this episode, we do talk about the final stages of death and some of the physical processes that take place at the end of life. If you…

1
Episode 31 - Spotlight on Community Fundraising - How our community helps fund research 11:57

1+ y ago11:57

11:57

In this episode, Chandos talks to Community Fundraiser Firzana Khan about how our community works with the charity to raise money for vital research into better treatments and cures for brain tumours. They talk about the different ways people can raise money from cycle rides and runs to charity balls. Firzana explains the vital role our community f…

1
Episode 30 - The importance of an Advance Care Plan 47:10

1+ y ago47:10

47:10

In this episode we talk about the importance of having an Advance Care Plan in place, what it is, how you go about doing one an why it is so important. Sacha Langton- Gilks son DD died when he was 16 from his brain tumour. Sacha like most people felt ill prepared and ill-informed about how to prepare for the death of a loved one. The experience ins…

1
Episode 29 - Spotlight Revisited - National Eye Health Week 14:10

1+ y ago14:10

14:10

This episode was recorded in September 2021 but as this week is National Eye Health week we thought we'd revisit this episode where Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses. Lorcan talks you…

1
Episode 28 - What exactly is Gamma Knife? 34:55

1+ y ago34:55

34:55

In this episode, myself and Andy talk to Katie about Gamma Knife Radiotherapy also known as Stereotactic Radiotherapy. Both Andy and Katie had this treatment when they had a recurrence of their brain tumours, they explain what the treatment entails and what it was like to undergo. You can find out more about Gamma Knife Radiotherapy here If you wou…

1
Episode 27 - Spotlight on the Charity Lottery 7:45

1+ y ago7:45

7:45

In this episode Chandos talks to Tamsin Tyson our Individual Giving Officer about the recently launched charity lottery. Tamsin explains what the lottery is and why we have decided to create a lottery as a way to continue to be able to raise money for vital research into brain tumours at a time when the cost of living rises have hit charities fundr…

1
Episode 26 - What's it like to have a craniotomy? 46:35

1+ y ago46:35

46:35

In this episode, we talk to Rob, diagnosed with a grade 2 glioma, and Carly, with a grade 2 oligodendroglioma, about what it's like to have a craniotomy. Both Rob and Carly had an awake craniotomy while Andy who has a grade 2 meningioma had a craniotomy under a general anaesthetic They share their experiences and things they found helpful. You can …

1
Episode 25 - Spotlight on Signs and Symptoms - How we created a campaign 23:59

1+ y ago23:59

23:59

In this episode we talk to Ali Lopez, the charity's Campaigns and Communications Manager about how the charity created the new Signs And Symptoms campaign that the charity recently launched to raise awareness of the signs and symptoms of brain tumours. Ali talks through the process of creating a campaign like this and how involvement from the commu…

1
Episode 24 - Scanxiety 52:49

2y ago52:49

52:49

In this episode, we talk to Betty and Sarah about their experience of having scans and the very real anxiety that often goes with this. They share some of the things they have found helpful in reducing the level of anxiety they feel in the run-up to their scan and things they do during the scan to help them get through the experience. If you'd like…

1
Episode 23 - Spotlight on Improving Brain Tumour Care 16:34

2y ago16:34

16:34

In this episode, senior involvement and impact manager Shannon Winslade joins Chandos to talk about how you can help us to improve the treatment and care of people diagnosed with a brain tumour. Shannon spoke about the importance of getting our community to share their experiences both good and bad so we can find out where the gaps in care are, wha…

1
Episode 22 - Sibling Grief 42:57

2y ago42:57

42:57

In this episode I talk to Kaz and Lauren about what it's like to loose a sibling to a brain tumour. For those of us that having siblings we know that the relationship we have with our siblings is different from any other relatonship we have. Kaz and Lauren share what it's been like for them when they found out their siblings had a brain tumour. The…

1
Episode 21 - Spotlight on Strategy Update - Beyond Brain Tumours 23:54

2y ago23:54

23:54

In this episode, Chandos talks to Andy about his involvement with the new strategy the charity is co-creating with the community. Andy is a volunteer that not only works on the podcast but is also part of the Steering group made up of members of the community, The Brain Tumour Charity and other organisations that are working to improve the treatmen…

1
Episode 20 - Dating and relationships after a diagnosis 34:11

2y ago34:11

34:11

In this episode, Chandos and our guest Laura talk candidly about the reality of dating after a brain tumour diagnosis and the difficulties of online dating and telling a prospective partner. They share their personal experiences and how they approach the world of dating and relationships whether online or in person. If you would like support around…

1
Episode 19 - Spotlight with Alex Lochrane (CEO) 37:39

2y ago37:39

37:39

In this episode, we meet our newest co-host Anna Blyszko as she and Chandos talk to our new CEO, Alex Lochrane. Alex joined the charity about 3 months ago and shares with Anna and Chandos some of his background, why he joined the charity and where he sees the charity going under his guidance. Alex also shares how our new strategy is being co-create…

1
Episode 18 - Life after active treatment 28:43

2y ago28:43

28:43

In this episode, we talk to Lucy and Lauren who share what it means to be successfully treated following a brain tumour diagnosis. They share the ongoing impacts caused by both the brain tumour itself and the treatments used to treat their tumours and how this affects all aspects of their lives. They also discuss what being 'cured' actually means f…

1
Episode 17 - Spotlight on 'How I use BRIAN' 16:52

2y ago16:52

16:52

In this episode Chandos talks to Nicola about how she uses the BRIAN app to help her manage some of the side effects of her diagnosis, including using it to track side effects, to remember when she has a seizure and to keep a record so she can show her husband, family members and also her medical team. You can find out more about BRIAN here You can…

1
Episode 16 - A Parent's Experience part 2 - Moving forward and looking to the future 38:03

2y ago38:03

38:03

In the second part of our interview with Kerry, she talks about life after treatment and moving forward to a new future. Thinking about the services and support that have helped her and how having a brain tumour diagnosis can sometimes mean you are not always signposted to the right support. You can find more information about our Children and Fami…

1
Episode 15 - Part 1 - A Parent's Experience - Surviving Brain Surgery Day 35:08

2y ago35:08

35:08

In this, the first of two episodes, myself and Sara Challice talk to Kerry, whose son Rowan was diagnosed with a brain tumour shortly after he was born. Kerry share's what it's like from a parent's perspective seeing your child in distress when other people can't see anything wrong and the journey a parent goes on once a diagnosis is made. If you a…

1
Episode 14 - Spotlight on Coping At Christmas 17:49

2+ y ago17:49

17:49

We know that whilst Christmas can and often is a great time of year, it can also bring with it some challenges if you are living with a brain tumour or caring for someone who has a tumour. In this episode, Cam, Chandos and Sara share some of the things they have found have helped them cope during the Christmas break. Kate Skinner our Support and In…

Podcasts Worth a Listen

The Brain Tumour Charity Podcasts

Podcasts Worth a Listen

Quick Reference Guide