Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.
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Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders
Susan Newman Manfull, PhD
Hello and welcome to Untangling PANDAS & PANS, a podcast about two relatively unknown medical disorders characterized by the sudden and dramatic onset of obsessions and compulsions, vocal or motor tics, or restricted eating behavior -- and a whole host of other symptoms -- following strep or other bacterial or viral infection. Sometimes overnight. I have the privilege of interviewing some of the top researchers and clinicians in the rapidly growing field of Infection-Associated, Immune-Media ...
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Small Business Startup School – Learn The Psychology Of Retail And Financial Awareness - For The Reasonable Optimist
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Are you starting a small business or buying an existing business? Do you know that personal circumstances may differ, but broad business patterns are same as ever? Then, what better way to begin than by leveraging knowledge from people who have navigated the road ahead of you? This podcast - ’The Small Business Startup School’ shares perspectives using the psychology of retail and financial awareness – all with a reasonable dose of optimism. This show promises to give startup entrepreneurs i ...
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The Public Relations Expert: Engage Smaller Trade Associations For Visibility | E40
1:06:23
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"Engage smaller trade associations for visibility!" says Public Relations (PR) expert Mickey Kennedy, founder of eReleases.com. With over 25 years of experience, Mickey shares valuable insights on how startups and small businesses can leverage PR to build credibility and visibility. In this episode, you'll learn about the significance of press rele…
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Ep 37.5 - It's a Convention Podlet with the Gang!
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The time has come! Preparations for the 2024 WSA National Convention in Phoenix are in the final stretch. The gang has just a few minutes to get together, do some last minute chatting, and get ready for the Live Podcast show on Wednesday, July 10th at 4PM! If you come up to any of us and say "Croutons & Hearts," we'll give you an official Starry-Ey…
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S1 E4: Beth Latimer, MD Discusses How the Understanding of PANDAS has Progressed: It is Not Solely a Pediatric Disorder
1:06:31
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M. Elizabeth “Beth” Latimer, MD is a pioneer in the field of autoimmune encephalitis and is known across the country and in Europe for her expertise in treating PANDAS and PANS. She received her medical degree from Tufts University School of Medicine in Boston, Massachusetts. She completed her residencies in Pediatrics and Neurology at Walter Reed …
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The SharePoint Helpdesk Founder: Stop Inputting Data Into Spreadsheets | E39
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Join Ola Williams in this insightful episode of the Small Business Startup School as she sits down with Therman Trotman, Founder of the SharePoint Helpdesk, to explore the transformative power of SharePoint for small businesses. Discover how SharePoint can eliminate human error, enhance collaboration, and provide clean, scalable data solutions, mak…
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Ep 37 - Weekend for Williams Live with Barb Nelson and Tayden Larsen
1:06:22
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Recorded Live on June 1st, Jen and Brendan and joined by Producer Joel and WSA Vice President of Programming Sarah Giddings during their marathon Weekend for Williams fundraiser. The podcast was also part of a POWER HOUR where all donations were doubled thanks to Barb Nelson, the owner of Brinkley's Boutique. Barb joined the gang to talk about all …
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Ep 36 - Defiantly Choosing Joy with Jess Holsapple and Tabitha Toney
1:09:33
1:09:33
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During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies. Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to shar…
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S1 E3 Part 3: What Do Tick-Borne Diseases Have to Do with PANS?
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In Part 3, the discussion with Dr. Shannon Delaney continues on her soon-to-be-released study in Frontiers in Psychiatry Journal about the prevalence of Bartonella in patients diagnosed with Bartonella. Recorded May 13, 2024 Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the vie…
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S1 E3 Part 2: What Do Tick-Borne Diseases Have to Do with PANS?
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In Part 2, the discussion with Dr. Shannon Delaney continues with a focus on the diagnosis and treatment of Lyme and other tick-borne diseases. Recorded May 13, 2024 Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent. Credits: Mu…
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S1 E3 Part 1: What Do Tick-Borne Diseases Have to Do with PANS?
56:36
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Dr. Shannon Delaney, a psychiatrist with expertise in PANDAS/PANS, Lyme, and other vector-borne diseases, talks with Susan Manfull about how these complex disorders present in children and adults. Much of what she came to learn about Lyme came from her work with Dr. Brian Fallon at Columbia University. After her residency at Harvard Longwood Psychi…
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Certified Project Management Professional: Boost Revenue Using Six Sigma | E38
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This week's episode is titled ‘Certified Project Management Professional Lean Six Sigma Certification Green Belt: Boost Revenue Using Six Sigma’. In this podcast titled Boost Revenue Using Six Sigma, I'm joined by Leslie-Ann George, a Lean Six Sigma Certification Greenbelt. Leslie-Ann is a Certified Project Management Professional, and we discussed…
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Ep 35 - Awarenessing with Clare Neal and Micah Wilgus
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We're well into Williams Syndrome Awareness Month, and Jen and Brendan are joined by Clare Neal, whose niece spearheaded a fundraising effort with her dance troupe. After that, they're joined by Micah Wilgus, who is celebrating his 10th year of work at @McDonalds and is a tremendous advocate for Williams syndrome. Producer Joel also gives an update…
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Motivation, Mindset & Manifesting Coach: Unmasking Imposter Syndrome | E37
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This week's episode is titled 'Motivation, Mindset & Manifesting Coach: Unmasking Imposter Syndrome'. Mindset advocate, Alicia Berberich, delves into the complex issue of imposter syndrome plaguing many entrepreneurs. The discussion focuses on the difference between your intuition voice and the imposter syndrome voice and offers practical solutions…
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Ep 34 - Kicking off Awareness Month with Sofia Napoli and Denise Callen
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It's May, which means it's Awareness Month! Kicking the bleep out of the start of Awareness Month is Sofia Napoli. She joins Brendan and Producer Joel (filling in for Jen) to talk about the importance of advocating for yourself and to pump everyone up for this month's activities. Then Jen and Brendan are joined by Denise Callen, Director of Walks f…
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S1 E2: The Intersection of Strep, Intractable OCD, Psoriasis, and IL-17: A Conversation with Kyle Williams, MD, PhD and Andrew
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In episode two, Susan Manfull interviews Dr. Kyle Williams, Director of the Pediatric Neuropsychiatry and Immunology Program at Massachusetts General Hospital, and Andrew about the potential link between strep, psoriasis, psoriatic arthritis, and obsessive-compulsive disorder (OCD). Andrew shares his personal experience of how his psoriasis and OCD…
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S1 E2 Bonus: The Intersection of Strep, Intractable OCD, Psoriasis, and IL-17: Continued conversation with Kyle Williams, MD, PhD and Andrew
15:54
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It seemed our conversation from Episode 2 was left dangling so we continued talking. If you would like to hear a wee bit more, listen to this bonus content which captures most of that conversation, mostly musings about navigating the medical system and whether the division between psychiatry and neurology is artificial (another dangling conversatio…
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Ep 33 - Turning Back the Years with Jen Sellars and Mike Hladish
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In this episode, Jen and Brendan are joined by Jen and Mike...wait, that sounds confusing. Our hosts are joined by Jen Sellars (teacher and mom to a daughter with WS) and her friend Mike Hladish. They share their amazing story of growing up and reconnecting in a different part of the country that should warm your heart! We would like to acknowledge…
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S1 E1:The Immunological Basis of Eating Disorders and PANDAS/PANS
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Lauren Breithaupt, PhD, Assistant Professor of Psychiatry, based in the Eating Disorders Clinical and Research Program at Massachusetts General Hospital, will discuss her cutting-edge research about the immunological basis of eating disorders and PANDAS and PANS. After briefly describing her work on eating disorders, she talks about her new researc…
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S1 E1 Bonus: PANDAS/PANS Advocacy Day on Capitol Hill - Join us on April 12, 2024
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In this bonus episode, I will be talking about our second annual PANS/PANDAS Advocacy Day on Capitol Hill, a joint event planned by the National Alliance of PANS/PANDAS Action (NAPPA) and The Alex Manfull Fund (TAMF) to be held on Friday, April 12th in Washington, DC. My guests -- Amanda Peel Crowley, co-founder of NAPPA, and Paul J. Murphy, Treasu…
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Ep 32 - Living, Loving, & Guardianship with Stella Beard and Clayton Carroll
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In this episode, Jen and Brendan hear the fantastic and fascinating story of Stella Beard and Clayton Carroll. The mother and son duo discuss the tricky navigation of post-high school life and their journey from total guardianship to supported decision-making. Learn more about Clayton Carroll by searching "Clayton Carroll Speaks" on Facebook and se…
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Ep 31 - Leadership and Whispering Trails with Joshua Dean and Emma Thomas
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57:26
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Producer Joel joins Brendan as they interview Joshua Dean, an adventurous camper, hard worker, and fantastic leader fresh off his latest week in Georgia at Camp Blue Skies. Then, Jen and Brendan talk to Emma Thomas, Camp Director of Whispering Trails Therapy Camp and Teen Camp. Registration for the 2024 camp in July opens soon, and Emma tells us wh…
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The episode features a compelling conversation with our special guest, Dalene Allen, the Executive Director of BNI in Nova Scotia, New Brunswick, and PEI. Dalene shares her personal journey using affirmation cards and provides an insight into the power of recognizing personal pains, standing against limiting beliefs, and stepping out of comfort zon…
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Ep 30 - Joyeux Anniveraire! with Steph Caron and Cyndra Cole
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It's our 1-year extravaganza! Thanks so much to all of you for tuning in and supporting our show. To celebrate, we are joined by OG co-host Stephanie Caron to update us on how she's doing and reflect on what starting the podcast has meant to her. Then Cyndra Cole, former WSA Board President and Episode 2 guest, turns the tables and asks us question…
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EP. 35 – Leveraging Voice and Media To Drive Customer Engagement
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Join the Small Business Startup School podcast as host Ola Williams engages with Colin Alexander, founder of Conduit Voice Media, in this insightful episode titled " Leveraging Voice and Media To Drive Customer Engagement". In this digital era of accelerated content consumption, the episode brings to the forefront the importance of maintaining auth…
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Ep 29 - Prepping for College with Pascale and Gerald Momplaisir
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It's the last show of Year 1 of The Starry-Eyed Pod! Jen and Brendan are joined by Gerald and Pascale Momplaisir from Baltimore, MD. This Dad and Daughter Duo shares the excitement and opportunities of preparing for life after high school and getting ready for college. Pascale also gives us some insight into the particular challenges of being a you…
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EP. 34 – Pitch Deck Presentation Tips For Startups
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Welcome to another enlightening episode of Small Business Startup School. In this episode, our guest speaker, Samuel Adeniyi - Founder, Kierep and Winner of the December 2023 Volta Pitch Competition - strips back the details of establishing 'Kierep', a startup fuelled by its purpose to combat the shortage of caregivers in Canada. He elucidates the …
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Ep 28 - Heart Health Month with Jess Stranz and Benjamin Jacob
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Hey, look! We're so fresh and so clean! There is a new logo and new visuals, but it's the same awesome show! First up is Jessica Stranz, an adult with WS from Michigan, sharing with Jen and Brendan her love of bowling, antiquing, and planes! Her journey with Williams syndrome is really wonderful! Then, for Heart Health Awareness month, we're joined…
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EP.33 – How to Read and Interpret a Balance Sheet - Part 8
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Whether you're launching a startup or taking over an existing business, understanding balance sheets is critical to your success. This concluding part of the series spotlights an often-overlooked aspect of business finance – receivables. Perspectives were shared on the importance of regularly reviewing accounts owed to you and scrutinizing long-unp…
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EP.32 – How to Read and Interpret a Balance Sheet - Part 7
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Welcome to another exciting episode of Startup Your Small Business and Learn. Hosted by Ola Williams, this podcast aims to enable budding entrepreneurs with the psychology of retail and enhance financial awareness, all while staying positively optimistic. In this episode, we continue to delve into the world of balance sheets, explaining how you can…
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EP.31 – How to Read and Interpret a Balance Sheet - Part 6
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This episode features an answer to one of the questions I received on the series. I concluded the answer to practical tips for improving balance sheet without getting into complex financial jargon. This episode is part of an ‘8-series’ show on ‘how to read and interpret a balance sheet’. This is part 6. Do you have questions or comments? Your feedb…
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Episode 30 - How to Read and Interpret a Balance Sheet – Part 5
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This episode features an answer to one of the questions I received on the series. I shared practical tips for improving balance sheet without getting into complex financial jargon. This episode is part of an ‘8-series’ show on ‘how to read and interpret a balance sheet’. This is part 5. Do you have questions or comments? Your feedback ensures that …
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Ep 27 - The Tale of Alex and Alexandra
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Hark! Come gather ye round to hear the tale of Alex and Alexandra, who live lives touched by Williams syndrome! The show is joined today by Alexandra Reneer, an adult with WS living in Utah. She shares with us how being a dancer has allowed her to stay physically healthy and gives her the confidence to teach dance to others with developmental disab…
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Episode 28 - How to Read and Interpret a Balance Sheet – Part 4
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In the balance sheet, equity is usually presented in the form of the owner’s money brought into the business and any profits or losses the business has accumulated over time. Listen in for details of how you can interpret it and what it may mean for a business. This episode is part of an ‘8-series’ show on how to interpret balance sheets. This is p…
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Episode 27 - How to Read and Interpret a Balance Sheet – Part 3
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You see when you want to buy a business, you want to take a quick snapshot of the balance sheet. This is so that - at least, when your professional advisers such as accountants are discussing with you, you can follow reasonably. Even when you already have your business, it doesn’t hurt to from time to time review your business balance sheet. So far…
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Episode 26 - How to Read and Interpret a Balance Sheet – Part 2
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Do you find accounting intimidating? Or even boring? But then, hardly can we do any business without accounting. And of course, you can hire the right staff to do the technical bit for you. But, you may still find it beneficial to at least understand how to interpret some accounting/financial reports. And, believe it or not, it’s far more approacha…
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Ep 26 - Phreezing in Phoenix with Nick, Lindsey, and J Chap!
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The WSA team is in Phoenix, AZ, doing more prep work for the upcoming WSA Convention, July 9-13, 2024, at the Downtown Hyatt Regency Hotel. Since the room block will be available for reservations starting Wednesday, January 10, we thought it would be a good time for more convention talk! Nick and Lindsey are back to talk about how preparations are …
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Episode 25 - How To Read And Interpret A Balance Sheet - Part 1
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Do you find accounting intimidating? Or even boring? But then, hardly can we do any business without accounting. And of course, you can hire the right staff to do the technical bit for you. But, you may still find it beneficial to at least understand how to interpret some accounting reports or shall we say financial reports. And, believe it or not,…
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Episode 24 - Saving Time Using Personal Finance Apps – 2
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Imagine a car with no gas gauge- this means you buy gas and use it with no tracking of usage. What do you think will happen if you miscalculate and your car stops due to zero gas while on your way to an important appointment? Yes! You guessed right! That’s not a situation we all want to be in. Same principle applies to the opportunity to track your…
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Ep 25: Sharing Journeys with Anne Lemieux-Pocock, Tobi Akbas, and Hayley Cuccinello
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Happy Holidays from all of us at The Starry-Eyed Effect! It's a very special episode as we're joined by Anne Lemieux-Pocock, who, in addition to being Brendan's mom, is an accomplished writer. She's sharing her journey of being a mom to an individual with WS in beautiful chapters called "Being & Becoming: A Williams Syndrome ‘Mom-oir'” available at…
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Episode 23 - Saving Time Using Personal Finance Apps – 1
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For over 5 years now, I’ve been researching how to save time by tracking personal finances. And my thought process is this: if we can track gas in our cars, which saves us time by letting us know how much gas we have in tank before embarking on a trip, then why shouldn’t we track personal finances? And I’m particularly interested in personal financ…
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Episode 22 - How To Use ChatGPT In Your Business As A Beginner
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In the ever-dynamic world of entrepreneurship, staying ahead means being in the know. Are you looking for some chatbot discussions, artificial intelligence podcasts, or simply a GPT podcast? Well, you’re in the right place! Listen in as we dive into some exciting AI conversational talks - with Jesse Boudreau - about how to use ChatGPT in your busin…
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Ep 24: Ottenheimer to the Rescue! with Scott Ottenheimer
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Look...did I have a whole other episode planned and then couldn't get it scheduled and was bailed out by awesome Board member Scott Ottenheimer? Maybe, but we were always going to have Scott as a guest! As his time on the WSA Board of Trustees comes to a close, Scott talks to Brendan and Jen about his time serving the WSA and how it has set the org…
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Episode 21 - Networking Tips For An Introvert
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“People go - I have 1,000 followers - and you want to go -That's wonderful! Are you talking to them?” --- Dalene Allen Have you ever been to an event, and there's this period of small talk where you find yourself alone? You look around the room and everybody's talking to everybody. You seem to be the only one alone and it's an awkward situation for…
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Episode 20 - Why Solopreneurs Should Use Manifestation Cards
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If you believe that one of the primary reasons we are here is to connect, then you would also know that listening to insights from others is wisdom. Especially insights that resonate with you. Manifestation cards are a great way to gently nudge ourselves to those things we may know already but need reminders on. Or they may nudge us to fresh insigh…
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Ep 23: Caregiving the Caregivers with Sarah Giddings
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In this episode, Jen, Brendan, and Producer Joel delve into the crisis in this country surrounding parents and caregivers of individuals with developmental disabilities - specifically Williams syndrome. After watching the documentary "UNSEEN: How We're Failing Parent Caregivers & Why It Matters" (which you can watch at www.caregiverdoc.com), they s…
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Episode 19 - How to Balance Liquidity and Profit For a Small Business
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Do you, your friend or your family member know a store that seemed to be doing well but suddenly closed shop? Did you wonder why they closed up as you had noticed they were busy? Did you wish they hadn’t closed up as they were your go-to place for certain needs? Imagine if you could help that your favourite store supposing things were in your contr…
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Episode 18 - Practical Tips For Starting Or Buying A Small Business
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These days, one of the questions I get asked more and more is about starting or buying a small business. My DM is full of them. Also, when I’m at events, that’s what people pull me out to ask. I also get a lot of calls just on this. So, because I find myself repeating the same conversation over and over again, which is unproductive, I thought it wo…
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Brendan joins from Austin, TX, where he just wrapped a weekend of working with the WSA Board of Trustees. What is that like? Well, he tells us. Then Jen and Brendan talk to Lindsey and Nick about planning the 2024 WSA Convention in Phoenix, AZ! Look out for Haboobs!!By Williams Syndrome Association
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Episode 17 - How An Entrepreneur Can Communicate Offerings Effectively
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As an entrepreneur, you wear all the hats of your business - sales, marketing, admin, bookkeeping etc. You may come to a point where you have some help with these, but ultimately, the ownership and the success of the business is on you. If you're not going to be marketing your own services, your own products, who will do it for you? On this episode…
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In this new episode I introduce the concept of kindness and Niceness from the lens of being fair using a story someone told me. The story is about a lady named Pat who wanted to be served to her liking, without consideration for how that may or may not be helpful to others. Could it be that we sometimes consider kindness to be a sign of weakness an…
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Ep 21: The Spooky Oooky Effect with Megan, Julie, Marty McFly, a Cloud, and Professor Dilo Ph’Saurus from the Planet Spielberg
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Make sure the little ones are off to dreamland because this week, Jen and Brendan have terrifying tales of horrors, hayrides, and haunted houses! Joining the show is Megan McNeil and Julie Polansky to share everything they love about this ghoulish holiday. Then the gang gets together to bust some myths about Halloween and about Williams syndrome! A…
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