Best Amanda Arnold Podcasts (2024)

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25: Arnold Archambeau and Ruby Bruguier 33:15

12d ago33:15

33:15

Jerry & Amanda discuss a case in South Dakota that has been featured on Unsolved Mystery twice.By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

1
Kei Koizumi Advises the President 35:00

2h ago35:00

35:00

In this installment of Science Policy IRL, Kei Koizumi takes us inside the White House’s Office of Science and Technology Policy, or OSTP. As the principal deputy director for policy at OSTP, Koizumi occupies an unusual position at the very heart of science policy in the United States. OSTP provides science and technology advice to the president an…

1
161: Having a Nondisabled Child After Your Disabled Child + Conflicting Feelings That Brings w/ Brianna Alcox 1:09:41

6h ago1:09:41

1:09:41

When you have a medically complex child, you probably have some realization that the experience you have with your child isn’t “typical.” But sometimes, it’s hard to understand just how different from the “norm” it was, until another child comes along – particularly one without disabilities or medical complexities. In this episode, Brianna, a mom o…

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160: Ashley Smith’s Story | Sibling Dynamics, Nontraditional Gender Roles, + Not Knowing What to Grieve 1:03:04

8d ago1:03:04

1:03:04

After Ashley Smith’s son Deacon was admitted to the NICU, and one thing after another cascaded out of control with his care, she found herself literally screaming in the nursery “THIS IS NOT MY PLAN!” While not all of us have screamed this out loud, so many of us have had a similar breaking point, where the weight of fear and grief and lost expecta…

1
26: Ryan Stallings 23:16

1h ago23:16

23:16

Jerry & Amanda discuss an absolutely crazy case from St. Louis. This one has a twist!By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

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To Fix Health Misinformation, Think Beyond Fact Checking 32:31

11m ago32:31

32:31

When tackling the problem of misinformation, people often think first of content and its accuracy. But countering misinformation by fact-checking every erroneous or misleading claim traps organizations in an endless game of whack-a-mole. A more effective approach may be to start by considering connections and communities. That is particularly impor…

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159: Sharing the Mental Load with Your Partner in Disability Parenting w/ Amanda Griffith-Atkins + Will Atkins 52:10

18d ago52:10

52:10

Nothing breeds resentment faster than one member of a romantic partnership feeling like they're pulling all the weight in one area of life. And when it comes to the parents of medically complex kids, that resentment can compound even faster, especially as the mental load of navigating medical care often falls onto one partner. (Let’s be real: it’s …

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158: Serena’s Story | Disability Advocate Turned Disability Parent, a Degenerative Diagnosis, + the Power of Now 54:07

21d ago54:07

54:07

Before she had her son, Serena was already a pediatric SLP, business owner, and disability advocate who spent her time empowering families to understand and become more comfortable with their children’s disabilities. So, she was prepared for anything, or so she thought. But as it turns out, no amount of education or experience can prepare you for t…

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Hamilton Morris & Dr. Tarik Peterson on The Alchemist 1:55:26

1M ago1:55:26

1:55:26

In this episode I speak with a chemist named Tarik Peterson who authored an unusually sophisticated clandestine chemistry manual in 1970 and conducted self-experiments with a variety of different psychedelics he synthesized including DMT, DET, pyr-T, aMT, 5-MeO-DMT, mescaline, MDA, PMA, TMA, TMA-2, and TMA-6 ----------------- A big thank you for su…

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157: Friendships with People Who Don’t Have Disabled Kids w/ Jillian Arnold 1:12:34

18d ago1:12:34

1:12:34

Friendship, especially with those who don’t have disabled children, gets more complicated once you’ve had your own child with disabilities. It’s not necessarily fair, but it doesn’t change the fact that we often end up interacting differently with friends we had before our children were born. In this episode of The Rare Life, I’m joined by Jillian …

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Episode 187: Deep Work Therapy & Disordered Eating Recovery with Rachelle Heinemann 45:07

1M ago45:07

45:07

Dear Listener, On this month’s episode of the pod I’m joined by special guest Rachelle Heinemann! Rachelle is a licensed mental health counselor who specializes in working with individuals with disordered eating, eating disorders,depression, anxiety, and relationship issues. In addition to her practice, she’s an educator, speaker, and has taught co…

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Amanda Arnold Sees the Innovation Ecosystem from a Unique Perch 29:11

20d ago29:11

29:11

In this installment of Science Policy IRL, we explore another sector of science policy: private industry. Amanda Arnold is the vice president of governmental affairs and policy at Valneva, a private vaccine development company, where she works on policy for creating, manufacturing, and distributing vaccines that address unmet medical needs, such as…

1
156: Should I Get a Divorce? Insight + Solidarity from Divorced Medically Complex Parents w/ Amanda Griffith-Atkins 1:09:32

1M ago1:09:32

1:09:32

Making the decision to leave your partner is no small thing, but sometimes, the rifts that come from the stresses of life as medically complex parents can erode our relationships. So how do you know if divorce is an option, and where do you start if you’re exploring that possibility? In this episode, Amanda Griffith-Atkins joins me to share advice …

1
24: Typhoid Mary 42:52

26d ago42:52

42:52

Jerry & Amanda discuss a case from the early 1900's that involves an Irish immigrant who became a typhoid super spreader.By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

1
Allen Arnold, Risk The Real Part 2 30:33

1M ago30:33

30:33

We continue our discussion with Allen, touching on themes around his latest book "Risk the Real", a wake up call to defy the artificial and embrace your actual authentic life as it is offered by your actual Creator. He's also giving away a copy of Risk the Real" to one of you lucky Misfits out there. Allz you gotta do is leave a comment on the show…

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Norman Ohler discusses Nazi use of methamphetamine and LSD for Alzheimer's 1:26:42

2M ago1:26:42

1:26:42

In this episode I talk with historian and drug researcher Norman Ohler about his past research on Nazi use of methamphetamine and his new book about his mother's use of LSD to help alleviate symptoms of Alzheimer's disease. https://www.normanohler.de/ (The Kykeon Analytics - https://www.kykeonanalytics.com/ - ad had a mistake in which I said that r…

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155: Aneesa’s Story | A Terminal Diagnosis + Dark Clouds and Silver Linings 46:01

1M ago46:01

46:01

When her son Jeremiah was first born, Aneesa had no medical training or experience. But as it became clear that something was out of the ordinary with Jeremiah’s health, she did what so many of us do when our kids need support: she started advocating and asking questions. Eventually through her research and advocacy, her son was diagnosed with a ra…

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This Eclipse Could Make You Cry–And Make New Scientists 37:02

1M ago37:02

37:02

Douglas Duncan is an astronomer who worked on the Hubble Space Telescope. He is also an eclipse fanatic. Since 1970, he has been to 11 total solar eclipses. When April 8, 2024, comes around, he’ll experience his twelfth with his 600 best friends as he leads a three-day eclipse viewing extravaganza in Texas. “It looks like the end of the world,” he …

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Allen Arnold Is Risking The Real, Part I 30:58

1M ago30:58

30:58

It's all about taking risks and getting real on this first of a two part series with Allen Arnold, author, speaker and Wild at Heart Ministries. He's back on the Isle, not just for the Stupid Game (albeit a classic, and dare I say Shatnerrific), but to talk about some themes around his latest book "Risk the Real". He's also giving away a copy of Ri…

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154: Deaths in the Community | How it Affects Us + Our Relationship with the Parents w/ Rose Watson 49:59

2M ago49:59

49:59

As heart-breaking as it is, if you’ve been in the rare disease community for long enough, you probably know someone, maybe even someone close to you, who has lost a child. And because that potential reality looms large for so many of us, this loss can affect us as well. In this episode, Rose Watson, whose daughter Lavender has Trisomy 18, joins me …

1
23: Ivan Lester McGuire 38:27

1M ago38:27

38:27

Jerry & Amanda discuss a story from 1988 in north Carolina. If your job is filming sky diving instructors, you really should be focused on the job at hand.By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

1
153: Hurtful Things Loved Ones Say and Do | How it Affects Us + What to Do About It w/ Amanda Griffith-Atkins 1:15:57

2M ago1:15:57

1:15:57

Have you ever been in a conversation with someone close to you only to be cut to your core by their offhand commentary about your disabled child, their medical issues, or the life you and your child have? Friend, you are not alone. In Ep 153 of The Rare Life, Amanda Griffith-Atkins, whose sone has Prader-Willis syndrome, joins us to address some of…

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Karen Vance On Taking That Next Step 32:49

2M ago32:49

32:49

What is it that you are feeling called to in this season of your life? What would it take to actually do it? It's one thing to say yes. It's quite another to take those first steps. This week we invite Karen Vance, Friend of the Misfits and all around Encourager, to talk about what it looks like to respond to the Invitation to take the next step...…

1
152: Stephanie’s Story | A Stroke in Utero, Recurring Medical Trauma + No Space To Process It 38:40

2M ago38:40

38:40

Finding out your baby had a life-altering stroke in utero brings shock, heartache, and a whole lot of guilt. But when the medical trauma keeps coming after that initial diagnosis, year after year, hospital visit after hospital visit, there’s rarely time to work through all of those complicated feelings. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ In Ep 152 of The Rare Life, Stephan…

1
22: Samson 37:10

2M ago37:10

37:10

Jerry & Amanda discuss a survival story from 1950 with a surprise ending.By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

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Science Policy IRL: Walter Valdivia Researches for the White House 30:32

2M ago30:32

30:32

The Science Policy IRL series pulls back the curtain on who does what in science policy and how they shaped their career path. In previous episodes we’ve looked at the cosmology of science policy through the eyes of people who work at federal agencies and the National Academies, but this time we are exploring think tanks. Walter Valdivia describes …

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151: Fostering Friendships with Other Disability Parents w/ Kate Livingstone and Kari Harbath 52:47

2M ago52:47

52:47

We all need friends... but not just any friends. We need friends who just get it and don’t need us to explain every little aspect of our life to understand. In short, we need friends who are also parents to disabled and medically complex children. But how do we find and make those friends? ⠀⠀⠀⠀⠀⠀⠀⠀⠀ In Ep 151 of The Rare Life, I sit down with Kari …

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150: Siblings | Listening + Learning from Glass Children w/ Megan Schneider 1:03:46

2M ago1:03:46

1:03:46

We talk all the time about our disabled children in this space... But what about their non-disabled siblings? In today's episode of The Rare Life, we're going to hear from them directly: about the good, the hard, the unexpected, and about just how much they love their disabled brothers and sisters. We heard from nearly thirty siblings, from toddler…

1
21: Carlos Camejo 26:30

3M ago26:30

26:30

This story is the stuff that nightmares are made of.By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

1
Building Community in the Bayou 28:25

2M ago28:25

28:25

At the age of 19, Monique Verdin picked up a camera and began documenting the lives of her relatives in the Mississippi Delta. Little did she know that she would spend the next two decades investigating and capturing the profound ways that climate, the fossil fuel industry, and the shifting waters of the Gulf of Mexico would transform the landscape…

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Mini Episode: A Sprint to the Finish for Our Family and Friends Fundraiser! 10:32

2M ago10:32

10:32

Only two days left in the Family and Friends fundraiser, and while we’re overjoyed and awed at how successful this fundraiser has been, we’re still 10% away from our goal! If you haven’t joined in on this fundraiser yet, it’s not too late. You’d be amazed at what you can accomplish in 48 hours, so will you join us for this final sprint to the finis…

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149: Annie’s Story | Physician Mom, Infertility, + Comparison Between Twins 52:58

3M ago52:58

52:58

Imagine spending years trying to get pregnant, following every protocol, and struggling through the heartache of not being able to build your family. Then, finally, after all the difficulty, you get to have two beautiful twin girls, and you think maybe, “This is it! The struggle is over!” But, because life isn’t always fair, you find out soon after…

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Episode 186: Breaking Down Body Image (& Body Grief) with Amanda Mittman 52:21

3M ago52:21

52:21

Dear Listener, In this month’s episode, I’m joined by fellow RD and Certified Intuitive Eating Counselor, Amanda Mittman. Amanda owns a group private practice of Registered Dietitians who support people with disordered eating and eating disorders. She also teaches other providers how to incorporate body image counseling skills into their practice. …

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Mini Episode: An Exciting Update for Our Family and Friends Fundraiser! 12:37

3M ago12:37

12:37

Less than a week into our Family and Friends fundraiser, and we have some super exciting news to share! If you haven’t joined in on this fundraiser yet, we’ve got a list of ways you can get involved, plus some helpful tips to make it all a little easier! Get more info at https://therarelife.org/fundraiser. Thank you so much, friends! Links: Join us…

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Jeane Burgess Waking Up And Abounding In Hope 48:50

3M ago48:50

48:50

Publicist, podcaster and all around ENCOURAGER Jeane Burgess is back on the Isle to share about her journey of healing and abounding in HOPE.We cover a LOT, from waking up to decluttering and getting things in order, to looking back to move forward and what it actually looks like to to ABOUND IN HOPE.This conversation is one you'll want to listen t…

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148: The Family + Friends Perspective | What it’s Like to Watch us Navigate Life with Our Medically-Complex Children w/ Kassie Harbath 1:27:31

3M ago1:27:31

1:27:31

Our kids touch the lives of everyone around us, but especially our close family and friends. But we don’t always get to hear that perspective from the outside. So on this episode of The Rare Life, we’ll finally get to hear from those close to us about what it was like to watch us endure trauma, explore parenthood with a medically complex child, and…

1
20: Great Molasses Disaster 29:06

3M ago29:06

29:06

This is a crazy story from the Boston area in the early part of the twentieth century.By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

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Arlene Pelicane & Love Beyond Words 21:14

3M ago21:14

21:14

It's all about love here on the Isle today. Yes sir. Cause not only is it St. Valentine's Day (yep, better get to Walgreen's pretty quick, it's sure to be slim pickins by now), it's also National Marriage Week! Yes, indeed it is. And we've got Arlene Pellicane here to celebrate it with us. Yes, we sure do! If you're married, this is for you. If you…

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Alta Charo Considers Ethics for Stem Cells and CRISPR 33:32

3M ago33:32

33:32

A lawyer and bioethicist by training, Alta Charo has decades of experience in helping to formulate and inform science policy on new and emerging technologies, including stem cells, cloning, CRISPR, and chimeras. The Warren P. Knowles Professor Emerita of Law and Bioethics at the University of Wisconsin at Madison, she served on President Clinton’s …

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Jordan Rubin on the bizarre history of the Federal Analog Act 1:52:45

3M ago1:52:45

1:52:45

In this interview I talk with lawyer Jordan S. Rubin about his new book Bizarro, which chronicles the work of two synthetic cannabinoid entrepreneurs who found themselves ensnared in a law so confusing the DEA's own experts can't agree on how it should be interpreted. KA! Empathogenics Use the promo code "Hamilton" to get 10% off your next order of…

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147: Sex + Disability Parenting | All the Ways It Takes a Hit + Ways to Reclaim It w/ Amanda Griffith-Atkins 55:46

3M ago55:46

55:46

If you feel like you’re missing out on sexual intimacy in your life since entering your medically complex or disability parenting journey, you are not alone! We took a poll on Instagram and 90% of respondents said that their sex life had been impacted by medically complex life. The reasons for this impact are endless: no time, no energy, no space, …

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146: The Dad Perspective w/ Derek Dizney, Zach Schneider, + Juston Cheney 59:42

4M ago59:42

59:42

When it comes to parenting children with rare disease, there’s often a lot of focus on the moms and their experiences around birth, the diagnostic process, and the work of giving care. One group we hear a lot less from? The dads. So in today’s episode, we’re digging in to the Dad side of things. Joined by Derek, whose daughter has intractable epile…

1
19: The Waldman Sisters 25:49

3M ago25:49

25:49

Jerry & Amanda discuss a case from Brookline, MA in 2017 with a surprise ending.By Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

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Zach Pirtle Explores Ethics for Mars Landings 28:27

4M ago28:27

28:27

NASA’s Artemis project aims to establish a long-term human presence on the moon—and then put astronauts on Mars. So in addition to designing rockets and spacesuits, NASA is also exploring the ethical and societal implications of living in space. In the third episode of our Science Policy IRL series, Zach Pirtle, who got his undergraduate degrees in…

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Blaine Eldredge: The Paradise King 59:29

4M ago59:29

59:29

Blaine Eldredge, author, teacher, and builder of platforms to help the church thrive in late modernity (oh yes, and son of John and Stasi Eldredge of Wild at Heart Ministries, in case you were wondering) joins us on the Isle to talk about... well, everything. That is, the spectacular future of everything, as described in his new book "The Paradise …

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145: Ashley’s Story | Childhood Dementia, An Ended Marriage, + Learning to Live in The Present 42:30

3M ago42:30

42:30

When Ashley’s daughter Sadie was born, medical complexity took their family by surprise. A hospitalization post-birth eventually led to a life-limiting diagnosis of childhood dementia, and Ashley’s family was turned completely upside down. In this raw and real episode of The Rare Life, Ashley shares what it was like to receive her daughter’s diagno…

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Episode 185: Navigating Nutrition with ADHD with Ally Chelst 59:17

3M ago59:17

59:17

Dear Listener, I’m so excited to share this month’s episode with you! Navigating nutrition with ADHD is a topic that I’ve gotten a lot of questions about over the years, so I’m hoping this conversation offers a balance of answers and actionable tips. Our special guest, Ally Chelst, is an ADHD Management/Executive Functioning Coach who specializes i…

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144: Season 9 Kickoff | This Season’s Theme, Our Friends + Family fundraiser, & a Sneak Peek of Upcoming Episodes w/ Alyssa Nutile 30:51

4M ago30:51

30:51

It’s wild to think about, but we’re kicking off Season 9 of The Rare Life! And this season, it’s all about relationships. Relationships with your child, your spouse, your peers, your friends, your loved ones, and more! We’re not holding anything back, so some of these topics might get a little spicy! Plus, we’re introducing our 2024 Friends + Famil…

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18: Tilly 30:43

4M ago30:43

30:43

Tilly was an Orca who was partly responsible for the death of 3 people and never stopped performing at theme parksBy Jerry Paulley, Amanda DeGrasse, Comedy, Weird, TrueCrime, Paranormal, Supernatural, UFO, aliens, strange, Ghosts, Bigfoot, Cryptids

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Amanda Barratt: The Warsaw Sisters... & a moment of clarity 46:41

4M ago46:41

46:41

Christie Award-winning author Amanda Barratt graces us once again with a visit to the Isle to talk about her latest book "The Warsaw Sisters", based on true events around the Warsaw Ghetto uprising in World War Two. She is a meticulous researcher and masterful writer... and full of profound insights far beyond her young years. Mostly, she has a way…

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Amanda Arnold Podcasts

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