A podcast from the Association of University Centers on Disabilities (AUCD) that shares real stories from network members who are working to change systems and structures that impact people with disabilities. Each AUCD Network Narratives episode features a conversation about experiences at a LEND, UCEDD or IDDRC, especially highlighting emerging leaders and the voices of BIPOC disabled people and their families. We aim to energize AUCD network members to take action in their own communities. ...
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The daily demands of being a direct support professional (DSP) can often lead to stress and burnout. And when a DSP is stressed, they are likely to make errors that can be costly. Join Mark Olson and Chet Tschetter as they bring you a new podcast that dives into self-care for DSPs. You can download and listen to Wellness Matter for Direct Support wherever you get your podcast. This podcast is produced by the Institute on Community Integration at the University of Minnesota. Wellness Matters ...
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Episode 6: Olivia Kaplan on Trauma-Informed Care
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Olivia Kaplan is a life success coach at Carey Services in Indiana. In this episode of Wellness Matters for Direct Support, she talks about how they implemented trauma-informed care in her organization, what it took to train staff, and how trauma-informed care is used to support both DSPs and the people they're supporting. -- Frontline Initiative I…
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Jenny Breen has been a professional chef and advocate for sustainable food systems and food justice, and has worked directly with farmers and producers in the Twin Cities area, since the mid-1980s. Jenny’s philosophy about food is food does more than provide us with nutrients. It has memories. Cultural ties. We use it to celebrate. She recognizes t…
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Episode 4: Supporting Mental Health with a Wellness Recovery Action Plan (WRAP)
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Susan O’Nell, Aja Owens, and Stan Schmidt talk about mental health and the benefits of having a wellness recovery action plan. Below are links to some helpful resources and sources cited during this podcast. Thank you for listening. Please share on your social media pages. Copeland Center for Wellness and Recovery: The Way WRAP Works Copeland Cente…
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Episode 3: Promoting Resilience in Direct Support
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Samantha Hedden (Sam), MSc Ed discusses how direct support professionals (DSPs) can become more resilient and why this is important. Direct support professionals (DSPs) continue to face increased stress in their roles serving people with intellectual and developmental disabilities (IDD). While DSPs are always committed to helping people, they often…
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Episode 2: Wellness, Flourishing, and the Importance of a Holistic Approach to Self-Care
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Lynda Lahti Anderson, a researcher from the University of Minnesota, talks about wellness and flourishing and the importance of a holistic approach to self-care. Resources Promoting Wellness for Better Behavioral and Physical Health by Mel Kobrin Seven Ways to Have a Healthier Relationship With Stress by Jill Suttie Frontline Initiative – Learn mor…
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Episode 1: Introduction to Wellness Matters for Direct Support
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Work stress and burnout can impact the quality of support that DSPs provide. Hosts Mark Olson and Chet Tschetter talk about their own work experiences as DSPs and how they approach wellness from a personal perspective. They also provide an overview of what the podcast is and what they hope to cover in future episodes of the podcast.…
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Resiliency of Black and African American families of young children during COVID with Yetta Myrick
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Yetta Myrick is a mother of a teenage son on the autism spectrum. She is the founder and president of DC Autism Parents –a non-profit organization. In this episode, Jeiri is joined by Yetta to discuss her role as a mother and advocate, and how she promotes developmental monitoring to get her community the help, they need to access services for thei…
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Ethics, Genetics, and Eugenics with Stephanie Meredith
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Stephanie Meredith is a lend faculty and letter case medical outreach director. Her roles include creating and disseminating information about genetic conditions and building relationships between national leaders in the disability and medical communities. She is the author of the nationally recommended “Understanding a Down Syndrome Diagnosis”, an…
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Advocating for Home and Community Based Services (HCBS) with Blake Perry
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Welcome to another episode of AUCD Network Narratives, the podcast that shares real stories from our members. Home and community-based services(HCBS) are critical for people with disabilities to live the life they choose for themselves. The HCBS Settings Rule ensures that the services people receive in their home are quality and that people with di…
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Being Culturally Aware in Linguistically Responsive Services with Dr. Debra Vigil
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Linguistically responsive services are incredibly important in the development of children. However, cultural awareness is a crucial piece of providing the best and most supportive services for a diverse group of individuals. Dr. Debra Vigil is a professor of speech pathology at the University of Nevada, Reno. She is also a "Learn the Signs. Act Ea…
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A Quality Improvement Network for Interdisciplinary Training in Developmental Disabilities with Jen Smith
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Today, Jeiri is joined by her colleague and LEND director, Jen Smith. Dr. Smith is a clinical psychologist and board-certified behavior analyst, specializing in treating children and adolescents with intellectual and developmental disabilities, including autism spectrum disorder. Dr. Smith oversees the Lend program at Cincinnati Children’s Medical …
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Health Advocacy and Supporting Black Families with Ida Winters
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Being an advocate in any field comes with a set of challenges. No one knows that better than Ida Winters. Ida Winters is a Black mother of three young men with special healthcare needs, one of whom has autism. She’s also a healthcare advocate who facilitates a support group for the autism society of Southern Wisconsin. Ida joins Jeiri for a convers…
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Paving the Way for Diversity, Equity, and Inclusion with Sabrina Smith
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In today’s episode, Jeiri is joined by her colleauge, Sabrina Smith. Sabrina Smith is a senior health project coordinator for the Strong Center for Developmental Disabilities. Together, Jeiri and Sabrina co-lead a diversity, equity, and inclusion forum for the developmental-behavioral pediatrics division. During their conversation, Jeiri and Sabrin…
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From Trainee to Network Leader with Shayla Collins and Maureen Johnson
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In today’s episode, Jeiri is joined by Shayla Collins and Maureen Johnson. Shayla Collins is a staff member at AUCD and a wife and mother of two. Maureen Johnson is a program specialist at AUCD and provides technical support to university based interdisciplinary training and research programs. Furthermore, Maureen works on leadership and profession…
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Serving the Whole Person: Lessons Learned About Health Equity from the Pandemic with Dr. Carol Salas
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In this episode, we’re joined by none other than Dr. Carol Salas. Dr. Carol Salas is the president of the board of AUCD Puerto Rico. She’s also a doctor in clinical psychology and a graduate of the National Disability Leadership Institute. Currently, she’s a faculty of the Graduate School of Public Health at the University of Puerto Rico. Today, sh…
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Disability in Research with Beth Grosso and Micah Peace
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Micah Peace and Beth Grosso are co-researchers at the Center for Start Services at the University of New Hampshire. Micah is also an autistic multiply disabled advocate and community organizer from Louisville Kentucy, and Beth has a background in leadership, training development, qualitative research, and clinical supervision. In today’s episode, M…
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Equity, Employment, and the Fight for Economic Justice with Chisa O’Quinn
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What do equity and employment mean in the realms of economic justice? This is the question that Jeiri seeks to answer in today’s episode. Guiding this conversation is Chisa O’Quinn from Wise, a supported employment training and technical assistance center in Washington state. With over 18 years of experience working with people from diverse communi…
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Meet Your Host: Introducing Season 2 of AUCD Network Narratives
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Welcome to season 2 of AUCD Network Narratives - a show that aims to cover a lot of national disability issues while handing the mic over to people to share their stories. Your host, Jeiri Flores, is here to kick off the second season by introducing herself, sharing what her vision for the show is, and sharing her passion for advocacy. In this shor…
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Join Jeiri, as she thanks you for tuning in to Season 1 of the AUCD Network Narratives podcast. Jeiri reflects on what the 1st season has had in stores and what's to come in season 2. AUCD Network has had the pleasure of hearing amazing stories from members and insights on ways we to work together to help advocate and educate the community at large…
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Understanding the Experiences of Black Mothers in the Disability Community
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Representation is essential in advocacy work and the push for legislation. When it comes to autism and disability advocacy, listening, engaging, and understanding the experiences of people of color is crucial to changing the narrative. Elizabeth Morgan joins the show to help us understand the importance of connecting with stories of people of color…
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What is Cultural Brokerage and How it Engages Communities
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If you’re anything like Jeiri, you might not be familiar with the term “cultural broker”. That is why Jeiri is joined by Angela West. Angela is a multicultural specialist who serves families and professionals by educating them of the cultural impact on disability and connecting them to resources. Today, Angela is introducing you to what being a cul…
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Creating Space for Diversity, Inclusivity, and Community-Based Conversations
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George Gotto has experienced the network from many phases and positions. Today, he is the UCEDD Director of the University of Missouri Kansas City's Institute for Human Development in Kansas City, Missouri. He is trained as a medical anthropologist with an emphasis on community-based research and cross-cultural perspectives on health and discipline…
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When it comes to creating a self-advocacy curriculum, teamwork really does make the dream work. It takes a deep and patient understanding of the history and culture of the many walks of life. Jairo Arana joins the AUCD Network Narratives podcast today to share his advice on how we can improve self-advocacy curriculums within our programs. Jairo’s j…
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Inclusivity and the Legacy of Disability Advocacy in Indigenous Cultures
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Did you know that there isn’t a word for “disability” across indigenous languages? Instead, there are different terminologies used amongst indigenous communities. If you’re wondering what inclusivity and advocacy for disabilities in Indigenous cultures look like, this episode is for you. Today, Jeiri sits down with Jim Warne, who is the Director of…
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Adapting to a New World of Service and the Language that Comes With It
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When it comes to creating change within our network and communities, it is important to make sure that our resources are culturally and linguistically appropriate. Maribel Hernandez does just that in her important role at the Mind Institute. She was born in Mexico and moved to the United States 26 years ago. Today, she’s a proud mother of 2 sons ag…
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Using Storytelling to Connect Research and Lived Experience
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One of the most important tools to add to your toolbelt as an advocate or a researcher is the power of storytelling. Sharing stories of lived experiences is a powerful tool that can evoke empathy, compassion, and an understanding of different walks of life. Today, Jeiri is joined by Morénike Giwa Onaiwu, an educator, writer, public speaker, parent,…
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Leading Change in a Multicultural Environment
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Being in charge of a huge network with a large reach is a daunting task. You have to be extremely mindful of the different cultural ties of each individual and their communities, and you need to make sure that you’re serving while being respectful of different cultural rules and traditions. Kiriko Takahashi is the Interim Director of the Center on …
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Paving the Way for Equity, Inclusion, and Diversity in Curriculums
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Big changes don’t happen overnight. Instead, it takes little day-to-day actions to bring forth change in massive ways. Dr. Gail Chodron is on a mission to bring forth change by improving access to integrated systems for children with an autism spectrum disorder. She is the training director for the Wisconsin LEND and the coordinator of community tr…
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The Road to Equity, Diversity, and Inclusion in the AUCD Network
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Being truly inclusive of ALL, including people living at the intersections of marginalized racial, ethnic, and other social identities and cultural factors is important to the AUCD Network. But it’s one thing to talk the talk, and another thing entirely to walk it. Jeiri is joined by Jacy Farkas and Timotheus Gordon for a conversation all about fin…
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Introducing the AUCD Network Narratives Podcast
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Stories are powerful. Especially the stories from leaders at the forefront of advocacy, impact, and change. This is why we invite you to tune in to our brand new show, AUCD Network Narratives. Hosted by Jeiri Flores, an advocacy specialist at the Strong Center for Developmental Disabilities and the co-chair for the Council on Leadership and Advocac…
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