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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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show series
 
Send us a Text Message. Returning to the show, all the way back from Episode 94 Comedian Eric Rocha. Since his last appearance Eric has become a door guy at the world famous Comedy Store. He has been on the road touring with former guest Jeff Dye and regularly making people laugh all around LA. Eric is one of the kindest funniest people I know and …
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Send us a Text Message. The very funny Rob Smallwood joins us this week and right away we get into what we would do if the power went out in LA and we were stuck in a buddy cop apocalypse movie. Also on the table this week, we discuss, Inflation, simulation manipulation, what he would buy with 1Mil cash right now, and retiring from comedy to become…
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In this episode, Claire Parker, a pediatric nurse practitioner, discusses the results of a study that examined the prevalence of anxiety and depression among adolescents with pediatric pulmonary hypertension. The project aimed to incorporate mental health screening into the standard care for PH patients, similar to what is done for cystic fibrosis …
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Send us a Text Message. Kevin joins us this week to discuss growing up Christian and working with Eddie Pepitone on their podcast Apocalypse Soon ( @eddiepeppodcast ) You may remember Kevin from the Brain Jail podcast with Ben Avery and Jace Avery. I really enjoyed this chat and I'm looking forward to having Kevin back many times in the future. You…
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Tina Proulx was diagnosed with pulmonary hypertension at the age of 19. She experienced difficulty breathing and chest pain, leading to a diagnosis of chronic thromboembolic pulmonary hypertension (CTEPH), a condition caused by blood clots in the lungs. Tina eventually underwent transplant and celebrated eight years post-transplant, surpassing the …
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Send us a Text Message. Former cohost of the Misty and Ike show, tour manager to the biggest music acts in the world, author, thanksgiving chef, kind soul and best friend, MISTY ROBERTS returns for a little chat about whats been going on in her world lately. Check us out on Youtube: https://www.youtube.com/TheIsaacAbramsshow Follow Isaac on Instagr…
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Marilyn Hanft, a CTEPH patient, shares her experience with the condition. In 2011, she initially mistook her symptoms for asthma but later discovered she had clots in her lungs. Despite her health challenges, she remains determined to live life to the fullest. Hanft discusses her love for sailing and her current plan for writing a book about her sa…
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Scott Fleetwood, a former pulmonary hypertension patient from Buffalo, New York, shares his journey with rare diseases. He initially experienced shortness of breath while playing hockey and was later diagnosed with pulmonary hypertension and scleroderma. Scott received a double lung transplant in 2017. He discusses the initial fear he felt upon lea…
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In this episode, Dr. Robert Frantz, a cardiologist at the Mayo Clinic, discusses current and upcoming clinical research in pulmonary arterial hypertension (PAH). He emphasizes the low participation rate of PAH patients in clinical trials and encourages patients to consider participating, as it not only benefits themselves but also helps advance med…
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Amy Gietzen, a patient diagnosed with systemic scleroderma, shares her journey and experiences living with the disease. She discusses her initial symptoms, the shock of the diagnosis, and the lack of information and resources available at the time. Despite facing numerous challenges, including pulmonary fibrosis and pulmonary arterial hypertension,…
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Send us a Text Message. Whats the worst age to be? How did they come up with the batman costume? Where did the word SHART come from? How proud are you to be an american? The answers to these questions and more revealed here on episode 149 of the Isaac Abrams show. Thanks for watching and as always, "LOOK OUT FOR SNAKES" Check us out on Youtube: htt…
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Alvin Rocha is a nurse care manager and pulmonary hypertension coordinator at Children's Hospital Los Angeles. He manages PH patients from birth to early adulthood. His main goal is to prepare these patients for the transition into the adult world. He is excited about the advancements in therapies and clinical trials and looks forward to attending …
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Send us a Text Message. The very funny Kristy Quinn, joins me in studio this week to cover world changing topics like her most embarrassing middle school experience, her favorite sandwich order, best halloween costume, whether she would live in a house where someone died, the best compliment she ever received, and the same ending question we all th…
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Send us a Text Message. Comedian Rocky Roberts joins me this week to discuss his comedy career, his former life in the Navy, his biggest fear, his biggest comedy BOMB and how going on rollercoasters is different as an adult than it was as a kid. He shares a few paranormal experiences at the end (one happened at the hollywood improv) and you'll neve…
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In this episode, Dr. Dunbar Ivy, a pediatric cardiologist at the University of Colorado, discusses the upcoming World Symposium on Pulmonary Hypertension, where experts from around the world will gather to discuss the progress made and future directions. Dr. Ivy highlights the work of the pediatric pulmonary hypertension task force, which aims to d…
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Send us a Text Message. Margaux and I work together at the Hollywood Improv but we go all the way back to an open mic (berts back room for any local LA comedy heads) Originally from the Northeast, Margaux comes from a musical theater background. She is very funny and we had the best time hanging out, she will def be a recurring guest many times in …
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Nola Martin shares her experience with pulmonary arterial hypertension (PAH). Nola describes the physical and mental challenges she faced, including fatigue, weight gain, and the need to ask for help. Nola emphasizes the importance of self-advocacy and fighting for one's own health. She recounts a situation where she had to push her doctor to liste…
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Send us a Text Message. Comedian Sterling Scott | Canada's Got Talent Ep 145 I met Sterling during the Netflix is a Joke Festival at the hollywood improv. He was performing, I was taking photos for the club. We clicked instantly, his energy was infectious, and I threw it out to him to come on the show and he accepted without hesitation. He has such…
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In this episode, Dr. Eric Austin, a pediatric pulmonologist and pulmonary hypertension doctor, discusses the upcoming World Symposium on Pulmonary Hypertension, which will focus on various aspects of pulmonary hypertension research and clinical care. Dr. Austin is part of the task force on genetics and genomics, which aims to explore the genetic la…
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Victoria McKinnon shares her personal experience with pulmonary hypertension, specifically her son Owen’s eight week battle with the condition. Owen was diagnosed with alveolar capillary dysplasia (ACD), a genetic disease that causes pulmonary hypertension. Despite initial improvements, they ran out of treatment options and ultimately had to make t…
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Send us a Text Message. Julia is one of the first people I met in the LA comedy scene, she was also one of the first people to be a guest on my podcast and for some reason (probly technical) her episode never came out. Here it is 4 years later and we finally got around to getting her back on the show. We had a great chat about relationships and dat…
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Haley (aka @Wolf Haley), who was diagnosed with pulmonary hypertension (PH) at 18 years old, shares her journey with the disease and how she has found healing and purpose through art and advocacy. Haley discovered her passion for art as a form of therapy, using watercolor to express her thoughts and emotions about living with PH. Haley also works a…
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Send us a Text Message. Nick and Al join me again for another round of seriously silly chats about everything from our first cell phones to our first cars. We play ice breaker, at the supposed highest level but the questions turned out to be slightly vanilla. If you dont know anything about Nick and Al, Nick is my biz partner at the podcast studio …
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Dr. Jason Weatherald, a pulmonologist at the University of Alberta, discusses a study on the socioeconomic burden of pulmonary arterial hypertension (PAH) in Canada. The study, conducted through PHA Canada, surveyed PAH patients and their caregivers to understand how the disease affects their ability to work and perform daily activities. The result…
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Send us a Text Message. Justin Foster and I have been road roomates for the last year. We filmed his comedy special last year and it just came out last week. He is one if the funniest guys i know, and we chat about being on the road, my first time doing stand up, and making his special (i directed it) - we do a few would you rathers at the end and …
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Karen Martinez, a mother from Eastvale, California, shares her experience with Camp del Corazon, a camp for children with congenital heart defects and lung disease. Her daughter attended camp for the first time at the age of seven and has been going every summer since. The camp offers events throughout the year and fosters lifelong connections amon…
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Send us a Text Message. Comedian JF Harris | The Isaac Abrams Show 141 Widely known as one of hardest working comics in the business, J.F. Harris first came up in the downtown New York City comedy scene in the late 2000's. Developing a rapid fire, shockingly funny and personal storytelling style, that quickly made him a staple in both the most esta…
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In this episode, Joellen Brown shares her experience with pulmonary hypertension (PH) on the 15th anniversary of her diagnosis. Joellen was born with a hole in her heart and had her first open heart surgery at the age of two and a half. She believes she may have had PH since birth, but was not aware of it due to limited research in the 1950s. Joell…
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In this episode, Chelsea Price shares her experience living with pulmonary arterial hypertension (PAH). She emphasizes the importance of having a good support system, including her church community and connecting with other friends with PAH. Chelsea is grateful for the good days she has and strives to be an active mom for her children. Discover eve…
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In this episode, Dr. Rajan Saggar, a pulmonologist at the University of California in Los Angeles, discusses the complications of pulmonary hypertension in various lung diseases. He explains that pulmonary hypertension can either be its own disease or can complicate other conditions such as heart disease or lung tissue diseases like emphysema or fi…
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In this episode, Dr. Sandeep Sahay, a pulmonologist at Houston Methodist Hospital, discusses the concept of disease modification in the treatment of pulmonary hypertension (PH). He explains how traditional PH therapies focus on vasodilation, reducing pressure in the pulmonary artery by dilating blood vessels. However, newer therapies, such as sotat…
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Send us a Text Message. Some people let you get silly make you giggle and give you permission to be yourself. For me that's MAV, she makes me feel like the funniest person in the room all while being very funny the whole time. We both grew up southern and going to church. We make fun of everything we grew up thinking was "important" and we do it in…
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Send us a Text Message. Comedian Anthony Davis returns for the 3rd time to try to get my canceled. We had a blast and let our southern accents run wild. If any of this episode offends you, just remember we're comedians and we're probably joking. If you enjoy this episode make sure you check out Anthony's other two episodes. Follow Anthony on social…
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Dr. Lewis Romer discusses his work on the PPHNet's Kids MoD PAH Trial: Mono- vs. Duo-Therapy for Pediatric PAH patients. The Kids Mod PAH study is a research project funded by the NIH that aims to determine the best initial therapy for children with newly diagnosed pulmonary hypertension. The study compares the effectiveness of one medication (sild…
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Send us a Text Message. @ArmanZaidi Joins me this week to talk shop about podcasting and how he's currently BLOWING UP on youtube. We met at an open mic about 5 years ago and I was super impressed at his knowledge level of podcast whil he was still in high school. He has since gone on to get a full time job in a successful podcast studio here in Lo…
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In this episode, Dr. Morris Salem, a pediatric cardiologist, discusses his involvement with Camp del Corazon, a camp for children with congenital heart disease. Dr. Salem emphasizes the importance of addressing the emotional well-being of these patients, in addition to their physical health. He believes that the camp helps boost their self-confiden…
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Send us a Text Message. Actor, Writer, Comedian and all around good guy Don Dipetta joins me this week in the studio to talk about his new movie "A place in the field" - You can find Don in other movies like "Greenbook" or out on tour doing comedy with Chris Distefano. I really enjoyed talking hollywood shop with Don and I hope you enjoy the episod…
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In this episode, Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Learn more about pulmonary…
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In this episode, stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with d…
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Harm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the use of magnetic resonance imaging (MRI) in monitoring pulmonary hypertension patients. Dr. Bogaard explains that MRI is a valuable tool for assessing the function and structure of the right heart, which is crucial in determining the prognosis an…
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Send us a Text Message. Comedian LUCAS HIRL | The Isaac Abrams Show 136 The very funny Lucas Hirl joins me this week to chat about comedy, bartending at the world famous Comedy Store, and we bust out a couple "would you Rathers" at the end. Lucas and I met a few weeks ago in the belly room of the comedy store while I was working on "stand up on the…
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Pulmonary hypertension patient, Dawn Clarke, a resident of the Mississaugas of the Credit First Nation in Southern Ontario. Despite her rare disease diagnosis, Dawn decided to focus on her mental health and explore her creative passions. She emphasizes the importance of looking after all aspects of one's well-being, including physical, mental, emot…
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Send us a Text Message. Vinny Fasline | The Isaac Abrams Show 135 Comedian Vinny Fasline joins me this week in stufio to riff on all kinds of silly subjects. We do a little "would you Rather" and end like we always do, with "whats the best meal you've ever had' - this answer may suprise you. Vinny and I have been on the road touring with headliner …
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New Jersey patient, Linda Wimmer, shares her experience with idiopathic pulmonary arterial hypertension. Linda discusses the various medications and lifestyle changes she has had to make to manage her condition. She also mentions dealing with depression and anxiety, as well as the challenges of accepting help from others. Learn more about pulmonary…
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Send us a Text Message. The Guys battle argue about a bunch of "Would You Rather" questions like: Would you rather fight a Bear or a Lion? Would you rather cure cancer or discover Aliens? Would you rather be serious about funny stuff or Funny about Serious stuff? Would you rather stop time or fly? Would you rather have the bottom bunk or the top bu…
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In this episode, Drs. Patricia George and Harrison "Hap" Farber from Team PHenomenal Hope discuss takeaways and learning from PHenomenal Hope 2023. This symposium offered a combination of oral presentations, expert panel discussions, and poster sessions in an environment that encourages collaboration and a deeper exploration of patient-centered res…
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Send us a Text Message. Laura Rishell Returns | The Isaac Abrams Show 133 🎙️ Join us for an exciting second encounter with the amazing Laura Joy Rishell, comedic actor and fiduciary, on The Isaac Abrams Show! 🌟 In this episode, Laura shares fresh insights into her latest artistic projects and responsibilities as a fiduciary. Host Isaac Abrams guide…
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Send us a Text Message. Are You Serious about Air Travel | The Isaac Abrams Show 132 This week, the guys and I discuss the door falling off that random plane a few weeks ago and what happens now. Are you an isle person? What would you do if it ripped off? So many questions to answer. Thanks for tuning in to our silly show, please consider subscribi…
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Lia Barros, a nurse practitioner at the University of Washington, discusses the role of nurse practitioners in caring for patients with pulmonary hypertension. She emphasizes the importance of nurse practitioners in meeting the unique needs of patients with pulmonary hypertension and suggests that adopting collaborative care models can improve pati…
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Send us a Text Message. Kelly Blackheart Returns | The Isaac Abrams Show 131 Here is a bs description written by AI for the algo: Get ready for a hilarious episode on the Isaac Abrams Show featuring the one and only Kelly Blackheart! Join us for a laughter-packed conversation with Kelly, a comedic genius known for her wit and humor. Isaac Abrams di…
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