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Episode 474 - Amy Gietzen

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Manage episode 425393455 series 1547852
Content provided by phaware global association and Phaware global association. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by phaware global association and Phaware global association or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Amy Gietzen, a patient diagnosed with systemic scleroderma, shares her journey and experiences living with the disease. She discusses her initial symptoms, the shock of the diagnosis, and the lack of information and resources available at the time. Despite facing numerous challenges, including pulmonary fibrosis and pulmonary arterial hypertension, Amy maintains a positive outlook and a determination to be an exception to the prognosis. She emphasizes the importance of education, self-advocacy, and being proactive in managing one's health.

Learn even more about Nola and PAH at www.OutnumberPAH.com. #WorldSclerodermaDay #SclerodermaAwarenessMonth #SayScleroderma @srfcure @scleroderma

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com

  continue reading

485 episodes

Artwork
iconShare
 
Manage episode 425393455 series 1547852
Content provided by phaware global association and Phaware global association. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by phaware global association and Phaware global association or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Amy Gietzen, a patient diagnosed with systemic scleroderma, shares her journey and experiences living with the disease. She discusses her initial symptoms, the shock of the diagnosis, and the lack of information and resources available at the time. Despite facing numerous challenges, including pulmonary fibrosis and pulmonary arterial hypertension, Amy maintains a positive outlook and a determination to be an exception to the prognosis. She emphasizes the importance of education, self-advocacy, and being proactive in managing one's health.

Learn even more about Nola and PAH at www.OutnumberPAH.com. #WorldSclerodermaDay #SclerodermaAwarenessMonth #SayScleroderma @srfcure @scleroderma

Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com

  continue reading

485 episodes

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