Best Nele Handwerker Podcasts (2024)

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#086: Navigating Menopause with MS – Key insights on symptom progression, aging, and personalized care (ECTRIMS Special) 22:42

6h ago22:42

22:42

Find out how the menopause affects MS. What new research reveals about progression, symptom management, biological aging and quality of life. You can read the full article here: https://ms-perspektive.com/86-ectrims-menopause If you’re living with MS and approaching menopause, you might wonder how this life stage could impact your MS journey. Menop…

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#085: ECTRIMS Special on innovative MS rehabilitation for better quality of life 17:58

7h ago17:58

17:58

New approaches to MS Rehabilitation: From Telerehab to Ocean Sailing and individualized trainings plans for improved wellness. You can read the complete article here: https://ms-perspektive.com/085-ectrims-rehab Rehabilitation for multiple sclerosis (MS) is rapidly evolving, with exciting new approaches tailored to the unique needs of people with p…

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084: Vascular dysfunction and Multiple Sclerosis. How Your vessels Could Shape Your MS Journey with Dr. Jonathan Pansieri 48:01

7d ago48:01

48:01

Dr. Jonathan Pansieri explains how vascular dysfunction could worsen multiple sclerosis and become a target for future treatment approaches. You can read all questions and answers here: https://ms-perspektive.com/84-Vascular-dysfunction When it comes to multiple sclerosis (MS), you probably know that the immune system plays a role in attacking the …

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#083: ECTRIMS Special on De-escalation and discontinuation of therapies for MS – What does it mean and how can it work? 33:08

14d ago33:08

33:08

When can we consider de-escalation or even discontinuation of a high-efficient immunotherapy for MS without risking a disease worsening? You can read the full article on my blog: https://ms-perspektive.com/83-deescalation Hello and welcome to another summary of ECTRIMS 2024, this time on the topic of de-escalation and discontinuation of therapy. Th…

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#082: Living with neuromyelitis optica (NMO) in Denmark with Leda Bresnov 39:30

28d ago39:30

39:30

Leda Bresnov shares her diagnosis, coping strategies, and insights on living with neuromyelitis optica (NMO) in Denmark. You can read all questions and answers on my blog: https://ms-perspektive.com/82-leda Meet NMO patient Leda Bresnov, a strong and inspiring woman who is originally from Brazil and has been living in Denmark since 1991. Leda, a wi…

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#081: Navigating Treatment and Support for MS, NMOSD, and MOGAD in Montenegro with Dr. Sanja Gluscevic 45:29

30d ago45:29

45:29

Dr. Sanja V. Gluscevic, a neurologist from Montenegro, specializes in MS, NMOSD and MOGAD, and is dedicated to patient care and advocacy. You can read all questions and answers on my blog: https://ms-perspektive.com/81-sanja-gluscevic Today I would like to introduce you to Dr. Sanja V. Gluscevic, a renowned neurologist who specializes in multiple s…

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#080: B-Cell Depletion – Ocrelizumab (Ocrevus), Ofatumumab (Kesimpta, Bonspri), Rituximab (Mabthera, Rituxan), Ublituximab (Briumvi) for active RRMS and SPMS, and early PPMS 30:40

1M ago30:40

30:40

Learn more about b-cell depletion, including Ocrevus, Kesimpta, Bonspri, Mabthera, Rituxan, and Briumvi, used for active RRMS, SPMS, and PPMS. You can read the full article on my blog: https://ms-perspektive.com/080-b-cell-depletion B-cell depletion therapies such as ocrelizumab (Ocrevus), ofatumumab (Kesimpta, Bonspri), rituximab (Mabthera, Rituxa…

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Special: ECTRIMS 2024 - Personalized MS treatments, genetic risk factors and the benefits of early, effective therapies for women and children 19:51

2M ago19:51

19:51

Personalized treatments, genetic risk factors, gender differences and the advantages of early, highly effective therapies. You can read the full article here: https://ms-perspektive.com/ectrims-2024-ww1 This year, ECTRIMS 2024 in Copenhagen, Denmark, will once again bring together leading experts in multiple sclerosis (MS) from around the world. Th…

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#079: How your gut microbiome could influence Multiple Sclerosis with Prof. Dr. Natalia Szejko 44:52

2M ago44:52

44:52

Dr. Natalia Szejko reveals latest research on gut microbiome for MS, MOGAD, and NMOSD, offering new hope for managing these conditions. You can read all the questions and answers in the corresponding blog article: https://ms-perspektive.com/079-natalia-szejko Welcome to today’s episode. Whether you have MS, MOGAD (myelin oligodendrocyte glycoprotei…

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#078: Cladribine (Mavenclad, Leustat, Litak) for highly active MS 24:37

2M ago24:37

24:37

Cladribine (Mavenclad, Leustat, Litak) is an induction therapy the supresses the immun system and is used for highly active MS. You can read the complete article at: https://ms-perspektive.com/078-cladribine Cladribine (Mavenclad, Leustat, Litak) is an immunotherapy from the field of immunosuppressants that is used to treat highly active multiple s…

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#077: Tailoring MS Treatment. The Impact of Mood Disorders on Patient Care with Dr. Emine Rabia Koç 37:47

2M ago37:47

37:47

Explore Dr. Emine Rabia Koç's insights on blending emotional and physical health for a holistic approach to MS treatment. You can find the written version as blog article here: https://ms-perspektive.com/77-emine-rabia-koc Today I speak with Dr. Emine Rabia Koç about the important intersection between mood disorders and patient care in multiple scl…

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#076: Alemtuzumab (Lemtrada, Campath) for highly active relapsing MS 27:06

2M ago27:06

27:06

Alemtuzumab (Lemtrada, Campath) is a DMT to treat highly active MS and has long-lasting effects and potential severe side effects. You can read the full article on my blog: https://ms-perspektive.com/076-alemtuzumab This time the focus is on alemtuzumab (Lemtrada, Campath). It is one of the highly effective immunotherapies and, in a subgroup of pat…

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#075: Decoding the EDSS Score. How It's Measured and What It Means 7:41

3M ago7:41

7:41

The EDSS score helps neurologists to measure the progression of MS as it measures limitations in functional systems. You can find the full article at: https://ms-perspektive.com/75-edss The Expanded Disability Status Scale (EDSS) is a key tool used by neurologists to measure how Multiple Sclerosis (MS) affects your body. Understanding the EDSS can …

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#074: S1P Modulators - Fingolimod (Gilenya), Ozanimod (Zeposia), Ponesimod (Ponvory), Siponimod (Mayzent) for active RRMS & SPMS 31:10

3M ago31:10

31:10

Learn more about the S1P Modulators, known by the brand names Gilenya, Zeposia, Ponvory, Mayzent and their usage against active RRMS & SPMS. You can find the complete text to read on my blog: https://ms-perspektive.com/074-s1p-modulators Today it’s all about the group of S1P modulators, which includes fingolimod (Gilenya), ozanimod (Zeposia), pones…

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#073: “Haciendo Lo Invisible, Visible”. Crys's Journey of Invisible Battles and Visible Triumphs as Latina with MS in the US 52:57

3M ago52:57

52:57

Crys was diagnosed with MS at the age of 11. She talks about her experiences as a first-generation Latina and her mission on social media. You can find all questions and answers on my blog: https://ms-perspektive.com/073-crys Today I’m talking to Crys about her life with multiple sclerosis as a first generation Latina. Crys was diagnosed at age ele…

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#072: Natalizumab (Tysabri, Tyruko) for active relapsing remitting MS 22:13

3M ago22:13

22:13

Natalizumab (Tysabri, Tyruko) is approved as disease-modifying therapy (DMT) for active RRMS with a rapidly evolving severe MS. You can read the complete article on my blog: https://ms-perspektive.com/072-natalizumab Today we are talking about natalizumab, which is known under the trade names Tysabri and Tyruko. The immunotherapy is used for active…

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#071: Insights into MS treatment in Colombia with neurologist Dr. Adriana Casallas Vanegas 41:39

4M ago41:39

41:39

Dr. Adriana Casallas V. provides insights into the treatment and care of MS patients in Colombia including improvements and challenges. You can find all questions and answers to read through on my blog: https://ms-perspektive.com/71-adriana-casallas MS has long been known as an orphan disease in Colombia, but the increasing number of newly diagnose…

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#070: Teriflunomide (Aubagio) for relapsing remitting MS 19:06

4M ago19:06

19:06

Teriflunomide (Aubagio) is approved as disease-modifying therapy for mild to moderate RRMS from 10 years of age. You can find the full article to read on my blog: https://ms-perspektive.com/70-teriflunomide This time it’s about teriflunomide, which is known under the trade name Aubagio. The immunotherapy is used for mild to moderate courses of rela…

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#069: Beyond Boundaries. Advocacy, Research, and Recognition in MS with Rachel Horne 1:00:18

4M ago1:00:18

1:00:18

MS patient and advocate Rachel Horne sponsors a prize for women in MS research and campaigns for more diversity in clinical trials. You can read all questions and answers on my blog: https://ms-perspektive.com/69-rachel-horne Rachel Horne was diagnosed with multiple sclerosis at the age of 43, when she felt fit and healthy. She established the Rach…

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#068: Interferon-beta (Avonex, Betaferon, Extavia, Plegridy, Rebif, …) for CIS, RRMS & SPMS 21:52

4M ago21:52

21:52

Interferon-beta (Avonex, Betaferon, Extavia, Plegrid,y Rebif) is used as a disease-modifying therapy for mild to moderate RRMS, CIS & SPMS. You can find the full article to read on my blog: https://ms-perspektive.com/068-interferons In today’s article, I present interferon-beta, which include several active substances and are known as Avonex, Betaf…

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#067: MS Speech Therapy Insights. Enhancing Communication and Swallowing 16:19

4M ago16:19

16:19

Discover how speech therapists can address often overlooked MS-related swallowing and communication disorders for timely intervention. You can find the written version to read on my blog: https://ms-perspektive.com/67-speech-therapy Swallowing and speech disorders usually play a subordinate role in the perception of patients. However, problems with…

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#066: Pioneering Paths. Empowering Young Minds in MS & NMO Research with Dr. Sara Samadzadeh 49:08

5M ago49:08

49:08

Dr. Sara Samadzadeh contributes to research in the field of NMOSD and MS by creating networks between young researchers worldwide. You can find all questions and answers as well as all links on the blog article: https://ms-perspektive.com/066-sara-samadzadeh Multiple sclerosis and NMOSD have made tremendous advances in treatment due to research con…

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#065: Glatiramer Acetate (Copaxone, Brabio) for relapsing remitting multiple sclerosis 18:31

5M ago18:31

18:31

Glatiramer Acetate, brand names Copaxone and Brabio, belongs to the oldest immunotherapies for relapsing remitting multiple sclerosis. You can find the written version of this episode on my blog: https://ms-perspektive.com/065-glatiramer-acetate This time I am presenting glatiramer acetate, which is known as Copaxone, Brabio or other tradenames and…

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#064: Navigating MS Treatment in Turkey with Neurologist and Associate Professor Meral Seferoglu 28:55

5M ago28:55

28:55

Dr. Meral Seferoglu gives an insight into the treatment of MS in Turkey and how she uses her expertise to support patients. You can read all questions and answers on my blog: https://ms-perspektive.com/64-meral-seferoglu This time I have Dr. Meral Seferoglu as an interview guest on the show and we talk about MS treatment in Turkey. It’s always inte…

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#063: Finding Joy Again. Navigating MS-Related Sexual Dysfunction 17:11

5M ago17:11

17:11

Sexual dysfunction is common in multiple sclerosis. However, there are many ways to overcome them and enjoy intimacy again. You can find the written version of the episode on my blog: https://ms-perspektive.com/63-sexual-dysfunction Sex can be one of the best things in life and sexual dysfunction can therefore cause a lot of frustration. In this ar…

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#062: Dimethyl fumarate (Tecfidera) and Diroximel fumarate (Vumerity) for relapsing remitting multiple sclerosis 19:55

6M ago19:55

19:55

Tecfidera and Vumerity, the fumarates kick-off the informative series about immunotherapy for multiple sclerosis. You can find the full article to read on my blog: https://ms-perspektive.com/62-fumarates Tecfidera and Vumerity, the fumarates, kick off the series on the approved disease-modifying therapies for MS. I am trying to give a good overview…

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#061: How to recognize bladder disorders in MS with the help of a simple questionnaire 8:58

6M ago8:58

8:58

Bladder disorders in MS are common and remain untreated in half of those affected. Nine simple questions are designed to help treat this symptom earlier. You can find the full article to read on my blog: https://ms-perspektive.com/61-bladder-check Today I would like to introduce the „MS Bladder Check Tool“, which was developed by a team of neurolog…

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#060: Overcoming MS Sleep Challenges for Restful Nights and Brighter Days. 10:53

6M ago10:53

10:53

Sleep disorders in multiple sclerosis can have a negative impact on many symptoms, which is why they should definitely be treated. You can find the transcript of the interview on my blog: https://ms-perspektive.com/60-sleep-challenges This episode is about sleep disorders caused by multiple sclerosis and how they can be treated. Almost three quarte…

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#059: Scoring for Science: The Dunk MS Fundraiser with Blake Arnet 26:01

6M ago26:01

26:01

Blake Arnet talks about his motivation for the Dunk MS fundraiser event that takes place each spring in Los Angeles. You can read the full interview on my blog: https://ms-perspektive.com/59-blake-arnet Welcome to today’s episode where I talk with Blake Arnet, a former UCLA basketball player, about his fundraising event, Dunk MS. Blake’s mother was…

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#058: Immunotherapy for MS. A guide to efficacy and choice with Prof. Tjalf Ziemssen 58:37

7M ago58:37

58:37

Choosing the right immunotherapy for each individual patient is a complex process. Prof. Ziemssen explains what needs to be considered. You can read the full transcript of the interview here: https://ms-perspektive.com/58-immunotherapy Today’s interview on immunotherapy for MS marks the start of the series on disease-modifying therapies. It is also…

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#057: Depression and MS. How to find your way back to emotional balance 17:34

7M ago17:34

17:34

Depression can bring your everyday life to a complete standstill. Find out when you need help and what services are available. You can read the full article on my blog: https://ms-perspektive.com/57-depression Depression and mood disorders can bring your entire everyday life to a standstill. That’s why I’m dedicating this article to negative change…

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#056: Insights into the activities of the European Charcot Foundation with Prof. Giancarlo Comi 1:01:21

7M ago1:01:21

1:01:21

Prof. Giancarlo Comi presents the extensive work of the European Charcot Foundation to help improve the lives of people with MS worldwide. You can find the complete transcript of the interview on my blog: https://ms-perspektive.com/56-prof-comi This time I welcome Prof. Giancarlo Comi, President of the European Charcot Foundation (ECF), for an inte…

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#055: Therapeutic decisions regarding pregnancy and lactation. Interview with Prof. Celia Oreja-Guevara 51:14

7M ago51:14

51:14

For women with MS desiring motherhood, controlled MS and informed choices in pregnancy and lactation ensure a fulfilling journey, with modern therapies supporting both mother and child's health. You can find the questions and asnwers to read on my blog: https://ms-perspektive.com/55-celia-oreja-guevara Prof. Celia Oreja-Guevara advises women with m…

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#054: Living Fully with MS. Managing Bladder and Bowel Disorders 17:18

7M ago17:18

17:18

Learn more about strategies, tools and medications to manage bladder and bowel symptoms associated with MS to regain your quality of life. You can find the full article to read on my blog: https://ms-perspektive.com/54-bladder-bowel This time it’s about bladder and bowel disorders caused by multiple sclerosis. Around two thirds of all people with M…

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#053: EBV Insights. Shedding Light on Its Impact on MS with Prof. Dr. Christian Münz 32:55

8M ago32:55

32:55

Discover Prof. Christian Münz's research on the connection between EBV and MS, including theories, mechanisms, and potential treatments. You can find the transcript of the interview on my blog: https://ms-perspektive.com/52-christian-muenz EBV, the Epstein-Barr virus, and its influence and impact on multiple sclerosis has long been a subject of int…

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#052: Sequencing and Escalation in MS. Navigating Treatment & Progression with Prof. Tomas Kalincik 1:16:26

8M ago1:16:26

1:16:26

Prof. Kalincik gives insights into the statistical results of treatment regimens and why most PwMS benefit from highly effective therapies. You can find the transcript of the interview to read through on my blog: https://ms-perspektive.com/52-tomas-kalincik Tomas Kalincik is Professor of Neurology and Applied Statistics at the University of Melbour…

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#051: MS Symptom Pain. How to regain your quality of life 15:02

8M ago15:02

15:02

Pain can be caused directly or indirectly by multiple sclerosis. Find out what you can do to improve your quality of life. You can find the full article to read on my blog: https://ms-perspektive.com/51-pain This time it’s about nerve pain caused directly by multiple sclerosis and indirect pain caused by irritated pain receptors. Find out more abou…

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#050: Future Treatment of MS. Interview with Prof. Tjalf Ziemssen 1:06:48

8M ago1:06:48

1:06:48

Prof. Tjalf Ziemssen talks about the future treatment for MS-patients from precision medicine to neuroprotection and patient-centered care. You can read the full transcript of the interview on my blog: https://ms-perspektive.com/50-tjalf-ziemssen To mark the 50th episode of the international MS Perspective podcast, I have invited my neurologist Pro…

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#049: CogeX Study Insights for Progressive MS on Cognitive Rehabilitation with Prof. Dr. Anthony Feinstein 38:04

9M ago38:04

38:04

The CogeX study investigated the effect of aerobic training and cognitive training on the processing speed of progressive MS patients. You can find the transcript of the full interview on my blog: https://ms-perspektive.com/049-cogex-anthony-feinstein Today, I’m talking to Prof. Dr. Anthony Feinstein about the results of the CogeX study, that focus…

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#048: Living with progressive MS in Canada. Interview with patient advocate Ardra Shephard 54:51

9M ago54:51

54:51

Ardra Shephard deals with the everyday struggles of progressive MS in Canada and talks about it on her blog and podcast and our interview. You can find the written questions and answer to on my blog: https://ms-perspektive.com/048-ardra-shephard Ardra Shephard has been writing about her life with multiple sclerosis on TrippingOnAir.com for many yea…

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#047: Spasticity in MS – far more than normal muscle cramps 10:29

9M ago10:29

10:29

Spasticity caused by MS can lead to cramping, shortened, stiffened or even paralyzed muscles, but is well treatable. Learn more about it. You can find the written version of the episode on my blog: https://ms-perspektive.com/047-spasticity Episode 47 is about the symptom of spasticity. A good two thirds of all people with multiple sclerosis have to…

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#046: MS and Adventure: 10 Essential Traveling Tips You Can’t Miss 18:17

9M ago18:17

18:17

Traveling with multiple sclerosis should be prepared well in order to enjoy the trip fully and come home with lots of great memories that stay with you forever. You can read to the complete blog article here: https://ms-perspektive.com/046-10-travel-tips Traveling with multiple sclerosis is not a problem as long as you pay attention to a few things…

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#045: NoStressMS – Entertaining education about MS. Interview with Damian Washington 1:22:46

10M ago1:22:46

1:22:46

Damian Washington is a patient advocate of the black community in the US and provides his content in a very entertaining and authentic way. You can read my questions and Damians answers on my blog: https://ms-perspektive.com/045-damian-washington Damian Washington is my interview guest today, and we talk about his important role as a black patient …

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#044: Shared Decision Making (SDM) for Treatment Success in MS. Interview with Prof. Christoph Heesen 46:29

10M ago46:29

46:29

Prof. C. Heesen explains what it needs to have shared decision making in MS and where there are the pros and cons, options and limitations. You can find the transcript of the interview on my blog to read it: https://ms-perspektive.com/044-shared-decision-making Today’s interview is about the topic of shared decision making in the treatment of MS. W…

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#043: Mind Matters. Navigating Neuropsychological Testing with MS 18:07

10M ago18:07

18:07

Neuropsychological testing is very important in MS, as the disease can progress in secret and should be tackled at an early stage. You can read the full article at my blog: https://ms-perspektive.com/043-neuropsychological-testing Multiple sclerosis can affect walking ability and movement, but invisible symptoms such as cognition play at least as b…

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#042: Movement restrictions in MS – how to maintain your strength, balance and mobility in the best possible way 18:55

10M ago18:55

18:55

Movement restrictions in MS affect 90% of all patients. Find out how to maintain your strength, balance & mobility in the best possible way. You can find the full article to read on my blog: https://ms-perspektive.com/42-movement-restrictions Episode 42 is dedicated to movement restrictions caused by MS. Multiple sclerosis manifests itself in a wid…

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#041: Review of 2023 and outlook for 2024 18:19

11M ago18:19

18:19

My review of 2023 is about the podcast and my personal goals. And I'll give you an outlook on what I have planned for 2024. You can read the full article on my blog: https://ms-perspektive.com/41-review-2023 Welcome to episode 41, the last of 2023, in which I look back and review the year with you. Then there’s a look ahead to 2024, well aware that…

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#040: Autologous stem cell therapy (aHSCT) in MS. Facts and experiences with Dr. Roland Martin 49:12

11M ago49:12

49:12

Dr. Roland Martin is one of the leading experts in autologous stem cell therapy (aHSCT) for MS. He shares facts and his experience. You can find the written version of the interview on my blog: https://ms-perspektive.com/40-ahsct-roland-martin This time I talk to Prof. Dr. Roland Martin about the findings to date on autologous stem cell therapy (aH…

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#039: Interview with Dr. Barry Singer on precision medicine for MS 38:48

11M ago38:48

38:48

Dr. Barry Singer explains how to make the most of precision medicine for MS patients. He shares his Insights and perspectives. You can read the full transcript on my blog: https://ms-perspektive.com/39-barry-singer Dr. Barry Singer provides insights and perspectives into the precision medicine of today for people with multiple sclerosis. He also pr…

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#038: Brain health. Time matters in multiple sclerosis – Summary of the report 22:25

11M ago22:25

22:25

Facts in a nutshell! The MS Brain Health Organization's report on a healthy brain explains why time is important in multiple sclerosis. You can find the full text together with explaining graphics on my blog: https://ms-perspektive.com/38-time-matters-in-ms Today I am providing a summary of the Brain Health Report – Time matters in multiple scleros…

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