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This podcast is for people with Charles Bonnet Syndrome (CBS), their caregivers, and allies. It's a space to offer awareness, information, support and hope. CBS is a condition that causes visual hallucinations in people who are blind or visually impaired. Host Shaimond Foye and occasional co-hosts interview people with CBS, their caregivers, ambassadors, PhDs, and medical professionals. Hosts and guests share their insights and research as we all work together to make a positive difference i ...
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In this episode, Shaimond welcomes Nina Chesworth, a volunteer with Esme's Umbrella, to share her personal journey and insights into living with Charles Bonnet Syndrome (CBS). Nina discusses the complexities of her vision loss stemming from a viral infection and subsequent accidents, leading to her current state of blindness. She candidly describes…
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Episode 24: Coping Mechanisms, General Tips, Natural Remedies and More
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In this episode, Shaimond shares a comprehensive guide to coping with Charles Bonnet Syndrome (CBS). He covers general tips, coping mechanisms, natural remedies, and innovative treatments gathered from people with CBS and experts in the medical and research field. Key topics include recognizing hallucinations, stress management, utilizing support g…
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Episode 23: Lucia Ricardo from the CNIB
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1:13:49
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In this episode, Shaimond and Antoinette interview Lucia Ricardo, a program lead at the Canadian National Institute for the Blind (CNIB). They explore the condition's history, personal experiences, the importance of awareness among medical professionals, and the impact of peer support. Lucia shares insights into the CNIB's efforts in supporting ind…
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Episode 22: Vicky Hamilton’s Story and Research
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In this episode, Shaimond interviews Vicky Hamilton, a PhD candidate performing research on Charles Bonnet Syndrome (CBS) at Griffith University, Queensland College of Art and Design in Brisbane, Australia. Hamilton shares her journey with CBS. Utilizing art and digital technology, Hamilton's research focuses on recreating the visions experienced b…
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Episode 21: Low Vision Occupational Therapist Meagan Chapman
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In this episode, Shaimond interviews Megan Chapman, an occupational therapist specializing in low vision, from Low Vision Works in Sarasota, Florida. They discuss the role of occupational therapy in helping individuals with low vision, including those suffering from Charles Bonnet Syndrome (CBS). Chapman explains the broad scope of occupational the…
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Episode 20: Graphic Novelist Gareth Brookes
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In this episode, Shaimond and guest co-host Dr. Gary Cusick interview graphic novelist and researcher Gareth Brookes. Brookes discusses his graphic novel, “A Thousand Coloured Castles” which features a main character with Charles Bonnet syndrome (CBS). Inspired by his grandmother's experiences with the condition, Brookes aims to raise awareness and…
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In this episode, Shaimond interviews Dr. Jasleen Jolly, Associate Professor in Vision and Eye Research at Anglia Ruskin University in Cambridge, England and Director of Jolly Vision Science. Dr. Jolly discusses her extensive work and research on Charles Bonnet Syndrome. She explains the misconceptions about the syndrome, its prevalence and highligh…
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Episode 18: Scot Muirden from the Charles Bonnet Syndrome Foundation
1:26:35
1:26:35
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In this episode, Shaimond interviews Scot Muirden, Director at Charles Bonnet Syndrome Foundation AU. He explains the mission of the Foundation, which includes providing direct services to those affected by CBS and raising awareness within the medical and healthcare sectors. The conversation covers the importance of a multidisciplinary approach to …
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In this episode, Shaimond interviews Robin Davies who is totally blind and shares his journey with Best disease and Charles Bonnet Syndrome. The episode emphasizes resilience, the value of community and support, and how remaining engaged with life and passions can help navigate the challenges of visual impairment and Charles Bonnet syndrome. Contac…
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In this episode, Shaimond interviews Chris Wilsdon a representative from the Kent Association for the Blind, to discuss Charles Bonnet Syndrome (CBS) and how his organization supports the visually impaired in Kent and parts of London, UK. Wilsdon shares his personal journey from experiencing vision problems to dedicating over 15 years to aiding tho…
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In this episode, Shaimond interviews Tanya Straker, who shares her journey as a caregiver and discusses her book “6 Life Hacks For Family Caregivers,” her weekly caregiver support group, Coffee with Caregivers, and shares tips to help caregivers manage, among other things she does to support people on their journey to being their best self. For mor…
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In this episode, Shaimond and Eva interview Susan Michel who shares her journey with Retinitis Pigmentosa, Macular Degeneration and Charles Bonnet Syndrome. For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregi…
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Episode 13: Leonid Skorin Jr., DO, OD, MS
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In this episode, Shaimond and Eva interview Dr. Leonid Skorin, an ophthalmologist at the Mayo Clinic. He gives an ophthalmic view of Charles Bonnet Syndrome. Contact Dr. Skorin at Skorin.Leonid@mayo.edu For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-bas…
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In this episode, Shaimond and Eva interview Irvine Harris who shares his journey with Macular Degeneration and Charles Bonnet Syndrome. Contact Irvine at harrisfl@gmail.com Irvine’s website https://savinghumanity.net/ For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cu…
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Episode 11: Judith Potts from Esme's Umbrella
1:11:09
1:11:09
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In this episode, Shaimond interviews Esme’s Umbrella founder, Judith Potts. She shared how she first became aware of Charles Bonnet Syndrome (CBS) when it affected her mother and how she founded Esme's Umbrella, her Charity that focuses on raising awareness, offering support and sourcing funding for research for CBS. Contact Judith Potts at judith@…
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In this episode, Shaimond and Eva interview Dave Hommel who shares his story as a caregiver for his mother who has journey Charles Bonnet Syndrome. Contact Dave at williamdhommel@gmail.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virt…
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In this episode, Shaimond discusses who Charles Bonnet was. For help with Charles Bonnet Syndrome call 704-389-0160 Contact me at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers support group email Dr. Cusick at garymcusick@icloud.com For the link to attend Pocklington …
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In this episode, Shaimond and Eva interview Theo Blue who shares his journey with Glaucoma and Charles Bonnet Syndrome. Contact Theo at theomblue@gmail.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregiv…
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In this episode, Shaimond and Eva interview Janet Duke, who shares her story as a family member and caregiver for her mother who has Charles Bonnet Syndrome. Contact Janet at jlduke88@gmail.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly…
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Dr. Gary Cusick shares how he has helped the blind and visually impaired community for decades and why he has chosen to help people with Charles Bonnet Syndrome (CBS) as his life’s passion. As of the release of this episode, he is the leading authority on CBS education, research and support in the U.S. Contact Dr. Gary Cusick at 502-439-0398 or gar…
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In this episode, Shaimond and Eva interview Jonathan Ward who shares his journey helping the blind and visually impaired community for nearly 40 years. He also discusses his visual impairment and first-hand experiences with Charles Bonnet Syndrome. Contact Jonathan at Jonathan.Ward@pocklington.org.uk For help with Charles Bonnet Syndrome call 704-3…
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In this episode, Shaimond and Eva interview Carole Hommel who shares her journey with Macular Degeneration and Charles Bonnet Syndrome. For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers support group em…
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In this episode, Shaimond and Eva interview Ken Ellis, who shares his story as a caregiver for his wife, Antoinette, who has Charles Bonnet Syndrome. Contact Ken at keproductiondesign@yahoo.com For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly…
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In this episode, Shaimond and Eva interview Antoinette McDonald-Ellis who shares her journey with Glaucoma and Charles Bonnet Syndrome. Contact Antoinette https://www.facebook.com/antoinette.mcdonald1 For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based…
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Episode 1: What is Charles Bonnet Syndrome
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In this episode, hosts Shaimond Foye and Eva Potts introduce themselves and discuss what Charles Bonnet Syndrome is and why they created this podcast. For help with Charles Bonnet Syndrome call 704-389-0160 Contact us at cbsyndromepodcast@gmail.com For the link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and caregivers s…
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