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#BeyondHAE Digging Deeper Interview Series: My caregiver journey (Eliana)

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Manage episode 362165891 series 2769674
Content provided by US Hereditary Angioedema Association. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by US Hereditary Angioedema Association or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

The #BeyondHAE Digging Deeper Interview series continues this month with our guest, HAEA Youth Caregiver Eliana who has grown up supporting her older sister who has an HAE diagnosis. Eliana talked with Youth Leadership Council member Kobe about the personal challenges that she encountered as her older sister was searching for a diagnosis. It's not easy watching your sibling suffer through mis-understood symptoms but Eliana found a way to comfort her sister during those difficult times. Today, they are closer than ever and Eliana has joined her sister in advocating for a better future for people with HAE. This is Eliana's story.

This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠www.haea.org⁠.

Thank you to our sponsors ⁠BioCryst⁠ and ⁠Takeda⁠.

  continue reading

60 episodes

Artwork
iconShare
 
Manage episode 362165891 series 2769674
Content provided by US Hereditary Angioedema Association. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by US Hereditary Angioedema Association or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

The #BeyondHAE Digging Deeper Interview series continues this month with our guest, HAEA Youth Caregiver Eliana who has grown up supporting her older sister who has an HAE diagnosis. Eliana talked with Youth Leadership Council member Kobe about the personal challenges that she encountered as her older sister was searching for a diagnosis. It's not easy watching your sibling suffer through mis-understood symptoms but Eliana found a way to comfort her sister during those difficult times. Today, they are closer than ever and Eliana has joined her sister in advocating for a better future for people with HAE. This is Eliana's story.

This youth produced podcast is brought to you thanks to the support of the Hereditary Angioedema Association, a patient advocacy organization serving the needs of the HAE patient and caregiver community. To learn more about the HAEA and access our incredible support network, visit, ⁠www.haea.org⁠.

Thank you to our sponsors ⁠BioCryst⁠ and ⁠Takeda⁠.

  continue reading

60 episodes

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