Why We Advocate, September 2020

Childhood Cancer Talk Radio Podcasts

It's Childhood Cancer Awareness Month for all of our guests every day of the year...so it's important to us to share with the world our stories and the truth about childhood cancer. Today we see commercials asserting that 80% of children survive cancer, touting the work of this or that institution; many might thereby deduce that we're doing great with childhood cancer, and in supporting childhood cancer research...that most kids survive, and, we got this. But from the perspectives of our guests today, nothing could be further from the truth. Co-founders of DIPG Advocacy Group Elizabeth Psar from Knoxville, TN, Paul Miller from Littleton, CO and host Janet Demeter from Agua Dulce, CA discuss the reality of advocating for "The Little Bill That Could" aka #Moonshot4Kids for the last 4 1/2 years, bringing stories from around the country to lawmakers offices in Washington, DC, discussing the urgent need for solutions for children with brain cancer. Childhood Brain Cancer is the leading cause of childhood cancer deaths. It is also the most prevalent subtype of cancer in children. Discover the fact that our research investment culture does not prioritize children, or those facing certain death, that we must fight to have this fact recognized. Finally, Dafina Basha joins us from Yonkers, NY. She tragically lost her only child, her beautiful daughter Elita to DIPG, diffuse intrinsic pontine glioma, and tells us how she is turning a death-bed promise that she would fight for other children with DIPG to one day have viable treatments, into meaningful advocacy with impact, today. She and Elita are Childhood Cancer Talk Radio's Heroes of the Week.