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Delivery of a Diagnosis
Manage episode 380909819 series 3484201
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Participants in this episode:
Tony McIntyre – member of the Dementia Research Advisory Team member and member of the Dementia Carers Campaign Network.
Tony lives in Dublin with his wife Mary. Mary was diagnosed with Alzheimer’s Disease in 2015, but Mary felt that she had the disease for at least two years before that.
Tony and Mary are passionate advocates, working to highlight the issues affecting carers and people with dementia. As members of the Dementia Research Advisory Team, Tony and Mary use their lived experience of dementia to contribute to dementia research in a Person Public Involvement (PPI) capacity. Through his considerable PPI work, and supported by The Alzheimer Society of Ireland, Tony has supported a number of research projects, presented at dementia conferences, and contributed to workshops and training.
Tony is also a member of the Dementia Carers Campaign Network, and Mary is a member of the Irish Dementia Working Group, advocacy groups supported by The Alzheimer Society of Ireland (The ASI).
Alison McCarthy – member of the Dementia Research Advisory Team.
Alison is from Limerick and is a family carer to her mother Mary who was diagnosed with Early-Onset Alzheimer’s in November 2014 at the age of 54. Alison currently splits her time between working in the Events sector in Dublin and her home in Limerick where her Mom is still living with her Dad.
Alison began to get more involved with The ASI during the pandemic, joining the Dementia Research Advisory Team where she takes part in a variety of PPI (Person Public Involvement) research activities and consultations.
Alison is a steadfast advocate for the work of The ASI and always loves getting involved in fundraising campaigns, especially the Memory Walk which she and her partner Bibek have taken part in annually since 2019.
Úna Crawford O’Brien, Actress.
Úna joined the cast of Fair City twenty-five years ago as Renee Phelan. During that time, Úna has also toured the country with the plays Love Letters, Best Man, Grumpy Old Women, Menopause the Musical and Halcyon Days.
Earlier this year, Úna took to the stage once more, alongside Bryan Murray in Love Letters. She also acted as Bryan’s Personal Assistant during the run of An Old Song Half Forgotten at the Peacock Theatre.
Matthew Gibb – Director, Dementia Services Information and Development Centre (DSiDC).
Matthew was first appointed to the DSiDC in June 2003 as Medical Social Worker, and he took on the role as Director of the Centre in 2018.
He has a professional background in Social Work practice, and a Masters degree in Social Policy and Social Work Studies from the London School of Economics.
Matthew has a wealth of experience working with older people, carers, and people with sensory and physical disabilities.
The Alzheimer Society of Ireland Helpline: 1800 341 341
The Dementia Research Advisory Team
https://alzheimer.ie/creating-change/research/ppi/
Dementia Adviser Service – The Alzheimer Society of Ireland
https://alzheimer.ie/service/dementia-adviser/
Irish Dementia Working Group
www.alzheimer.ie/creating-change/ways-to-have-your-voice-heard/irish-dementia-working-group-3/
Dementia Services Information and Development Centre, St James’s Hospital
Family Carers Ireland
Model of Care for Dementia in Ireland
https://www.hse.ie/eng/services/publications/olderpeople/model-of-care-for-dementia-in-ireland.pdf
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