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The patient journey | Von Hippel-Lindau syndrome (VHL)

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Manage episode 393512452 series 3484751
Content provided by FIECON. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by FIECON or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Von Hippel-Lindau syndrome (VHL), is an inherited condition that brings about tumors in various organs, particularly hemangioblastomas, which are blood vessel tumors found in the brain, spinal cord, and retina.

Listen to FIECON's latest 'Patient Perspectives' podcast with Lauren Weinberg, Senior Associate at FIECON, talking to Frankie Bryant about her journey living with VHL and the impact it has had.

  continue reading

13 episodes

Artwork
iconShare
 
Manage episode 393512452 series 3484751
Content provided by FIECON. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by FIECON or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Von Hippel-Lindau syndrome (VHL), is an inherited condition that brings about tumors in various organs, particularly hemangioblastomas, which are blood vessel tumors found in the brain, spinal cord, and retina.

Listen to FIECON's latest 'Patient Perspectives' podcast with Lauren Weinberg, Senior Associate at FIECON, talking to Frankie Bryant about her journey living with VHL and the impact it has had.

  continue reading

13 episodes

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