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Jimmy Fund Interview - Lia Paulina Cruz Rivera and her mother, Julibeth

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Manage episode 434200085 series 2445564
Content provided by Audacy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Audacy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Lia Paulina Cruz Rivera, 7, infantile myofibromatosis, Woonsocket, RI, with Julibeth (Julie-Beth, mom), Jose (stepdad), Angelica (sister, 2), and Jose (brother, 5 months)

In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.
Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.
· Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund
Clinic is her special place, around people that love, care and always want what is best for her and her family.
· Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.

  continue reading

613 episodes

Artwork
iconShare
 
Manage episode 434200085 series 2445564
Content provided by Audacy. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Audacy or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Lia Paulina Cruz Rivera, 7, infantile myofibromatosis, Woonsocket, RI, with Julibeth (Julie-Beth, mom), Jose (stepdad), Angelica (sister, 2), and Jose (brother, 5 months)

In January 2018, at 8 months old while living in Puerto Rico, Lia suddenly lost movement and sensation from her hips down. She began treatment in Puerto Rico, but their experience wasn't the best, and one of the doctors told Lia’s mom that her tumor was very rare. Her mom conducted research and learned that Dana-Farber was one of the best places to be treated.
Lia is in a clinical trial for the second time. Oral medication twice a day, the same medicine/treatment she used from 2018 -2020.
· Julibeth has no words that can describe what Lia has been through, but Lia is always excited when she knows she's having an appointment, she feels safe, she feels happy, and for the entire family seeing her like that make them happy. The Jimmy Fund
Clinic is her special place, around people that love, care and always want what is best for her and her family.
· Lia loves to draw, paint, dance, play pretend, Bluey, and unicorns. · Lia will be saying “Play Ball” at tonight’s game.

  continue reading

613 episodes

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