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Cystic Fibrosis & Advocacy with Chelsea Gagnon

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Manage episode 223459462 series 2401203
Content provided by Sophie Babinski. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Sophie Babinski or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Chelsea Gagnon swallows 20 to 30 pills per day or 10,000 pills a year. The 29-year-old has cystic fibrosis (CF): her body produces thick, sticky mucous that clogs her lungs, making it hard to breathe. The disease makes her prone to sinus and lung infections such as bronchitis and pneumonia. Eventually, chronic inflammation triggered by repeated infections will damage her lungs. But, despite her illness, Chelsea is a brave advocate for awareness and for treatment of her disease. Chelsea’s main focus in her advocacy currently is getting Orkambi covered throughout all Canadian provinces. Medications like Orkambi are very costly and, with many people with disabilities are unable work and/or are living below the poverty belt, they aren’t able to access them. “Access to healthcare is a fundamental right [but] bureaucracy currently prevents everyone from accessing it in a fair manner”. Listen to her story! Register for Meet Your Marketing Mentor, Jan. 16 2019 at https://www.eventbrite.com/e/imposter-interrupted-presents-meet-your-marketing-mentor-tickets-53322775858 Register for Side Hustle Huddle: Idea to Execution at https://www.eventbrite.com/e/side-hustle-huddle-idea-to-execution-tickets-52996275286
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16 episodes

Artwork
iconShare
 
Manage episode 223459462 series 2401203
Content provided by Sophie Babinski. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Sophie Babinski or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Chelsea Gagnon swallows 20 to 30 pills per day or 10,000 pills a year. The 29-year-old has cystic fibrosis (CF): her body produces thick, sticky mucous that clogs her lungs, making it hard to breathe. The disease makes her prone to sinus and lung infections such as bronchitis and pneumonia. Eventually, chronic inflammation triggered by repeated infections will damage her lungs. But, despite her illness, Chelsea is a brave advocate for awareness and for treatment of her disease. Chelsea’s main focus in her advocacy currently is getting Orkambi covered throughout all Canadian provinces. Medications like Orkambi are very costly and, with many people with disabilities are unable work and/or are living below the poverty belt, they aren’t able to access them. “Access to healthcare is a fundamental right [but] bureaucracy currently prevents everyone from accessing it in a fair manner”. Listen to her story! Register for Meet Your Marketing Mentor, Jan. 16 2019 at https://www.eventbrite.com/e/imposter-interrupted-presents-meet-your-marketing-mentor-tickets-53322775858 Register for Side Hustle Huddle: Idea to Execution at https://www.eventbrite.com/e/side-hustle-huddle-idea-to-execution-tickets-52996275286
  continue reading

16 episodes

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