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Rare Disease Day Bonus Episode
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Monday February 29th is Rare Disease Day 2016, and we're getting the party started early with a special bonus episode of the podcast, honoring the occasion. This episode is our first clip show! You may or may not have noticed that I’ve secretly been making a rare disease podcast all along, so it was really exciting to put some of it together in this episode. I’ll be talking to many more rare disease patients in episodes to come, but so far I’ve talked to several people with rare and rarely diagnosed diseases and disorders, as well as people with rare manifestations of more common conditions. Today’s episode highlights some of the challenges of living with rare conditions, told as only those who have lived them can. Links Official Rare Disease Day website: http://www.rarediseaseday.org/ NORD: http://rarediseases.org/ Global Genes: https://globalgenes.org/ "Combating Rare Diseases” from the Financial Times: http://www.ft.com/cms/s/0/148284da-2715-11e5-bd83-71cb60e8f08c.html#axzz41LlrxKfr "RARE Diseases: Facts and Statistics" from Global Genes: https://globalgenes.org/rare-diseases-facts-statistics/ Featured Episodes Cathy: 05 - Autoimmunity + Friends Jen: this week’s upcoming episode 22 Kirsten: 10 - Not Standing Still's Disease and 14 - Let's Get Physical Ilana: 02 - Let's Feel Better w/ Ilana Jacqueline Soul: 20 - Lowkey Traumatic Lauren: 01 - Dysauto-whatta? w/ Lauren Stiles Rebecca: 03 and 06 - Accessibility Means More Than Ramps (parts one + two) K: 18 - Well, It's Complicated Abby: 16 - Fun With Endometriosis Cyrena: 13 - Why Stop at One? and 17 - It's 'Just' Stress
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