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This Mom With a Blog | Mia Carella | 12

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Manage episode 240457958 series 2312354
Content provided by Jessica Marquardt. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jessica Marquardt or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart defect.) Mia describes the ups and downs of being a special needs parent and why we should let go of the Super Mom ideal.

Mia and her daughter, Evalyn, who is dressed for a dance recitalIn this episode:

2:05 – Dance programs for kids with special needs

4:45 – Moving from feeling helpless to feeling more empowered as a mom

9:20 – Explaining rare genetic disorders and little-known conditions, like CVI, to doctors #CVIsplaining

11:30 – What CVI means for Evalyn (late Phase II CVI) in her day-to-day life

13:20 – Advocating for CVI needs in an IEP meeting

18:30 – Participating in The Miracle League and making baseball adaptations

23:50 – What our kids teach us about resilience, positive outlooks and perspective

26:19 – How her blog has changed her life

Resources:

thismomwithablog.com

pcvis.vision

The Miracle League

  continue reading

17 episodes

Artwork
iconShare
 
Manage episode 240457958 series 2312354
Content provided by Jessica Marquardt. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Jessica Marquardt or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart defect.) Mia describes the ups and downs of being a special needs parent and why we should let go of the Super Mom ideal.

Mia and her daughter, Evalyn, who is dressed for a dance recitalIn this episode:

2:05 – Dance programs for kids with special needs

4:45 – Moving from feeling helpless to feeling more empowered as a mom

9:20 – Explaining rare genetic disorders and little-known conditions, like CVI, to doctors #CVIsplaining

11:30 – What CVI means for Evalyn (late Phase II CVI) in her day-to-day life

13:20 – Advocating for CVI needs in an IEP meeting

18:30 – Participating in The Miracle League and making baseball adaptations

23:50 – What our kids teach us about resilience, positive outlooks and perspective

26:19 – How her blog has changed her life

Resources:

thismomwithablog.com

pcvis.vision

The Miracle League

  continue reading

17 episodes

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