Personally connecting the dots. All of them. Benjamen Walker’s Theory of Everything is a proud member of Radiotopia, from PRX. Learn more at radiotopia.fm.
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Content provided by Grey Genetics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Grey Genetics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
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Living and Learning with Huntington's
Archived series ("Inactive feed" status)
When?
This feed was archived on October 30, 2020 03:11 (
Why? Inactive feed status. Our servers were unable to retrieve a valid podcast feed for a sustained period.
What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.
Manage episode 232418061 series 2220870
Content provided by Grey Genetics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Grey Genetics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
After years of misdiagnoses, Seth Rotberg’s mother was finally diagnosed with Huntington’s Disease (HD) when he was 15 years old. At the age of 20, Seth had genetic testing and also tested positive for HD. Initially, Seth stayed in the “genetic disease closet,” telling only close friends about his positive test results and waiting 3 years to tell his father and sister. The loss of two close friends at a young age shifted Seth’s perspective, inspiring him to open up about his positive genetic testing results, to strive to live fully in the present while hoping and working toward a brighter future and a cure for HD.
…
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Story Reference Points:
What is Huntington’s Disease (HD)? @ 1:45
Seth’s mother is diagnosed with Huntington’s Disease @ 4:07
Seth has genetic testing done for HD at age 20 @ 14:22
Why Seth wishes he’d had genetic counseling before HD testing @ 18:44
Seth seeks out genetic counseling 6 years after testing @ 23:25
Seth becomes involved with HD support organizations @ 25:04
Seth loses a close friend in an accident @ 27:25
HD and research @ 31:52
The genetic disease closet @ 35:00
HDYO, HDSA, and HD Buzz as resources @ 36:55
Misconceptions surrounding HD @ 39:49
Links and Resources
HD Resources: Huntington’s Disease Youth Organization Huntington’s Disease Society of America HD Buzz
Connect with Seth on Social Media:
Seth on Twitter: @Srotberg15
Seth on Instagram: @Rotberg15
Watch for Seth’s upcoming interview on the DNA Today Podcast
Check out other Patient Stories podcast episodes.
Read other Patient Stories on the Grey Genetics Patient Stories Page
Do you want to support Patient Stories? You can now make a donation online!
Want to support Patient Stories in a non-monetary way? Leave us a review on iTunes, or share your favorite episodes on Social Media.
Patient Stories on Twitter: @GreyGeneticsPod
Patient Stories on Instagram: @patientstoriespodcast
Are you looking for genetic counseling? Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. Choose from our growing Network of Genetic Counselors. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone.
39 episodes
Share
Archived series ("Inactive feed" status)
When?
This feed was archived on October 30, 2020 03:11 (
Why? Inactive feed status. Our servers were unable to retrieve a valid podcast feed for a sustained period.
What now? You might be able to find a more up-to-date version using the search function. This series will no longer be checked for updates. If you believe this to be in error, please check if the publisher's feed link below is valid and contact support to request the feed be restored or if you have any other concerns about this.
Manage episode 232418061 series 2220870
Content provided by Grey Genetics. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Grey Genetics or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
After years of misdiagnoses, Seth Rotberg’s mother was finally diagnosed with Huntington’s Disease (HD) when he was 15 years old. At the age of 20, Seth had genetic testing and also tested positive for HD. Initially, Seth stayed in the “genetic disease closet,” telling only close friends about his positive test results and waiting 3 years to tell his father and sister. The loss of two close friends at a young age shifted Seth’s perspective, inspiring him to open up about his positive genetic testing results, to strive to live fully in the present while hoping and working toward a brighter future and a cure for HD.
…
continue reading
Story Reference Points:
What is Huntington’s Disease (HD)? @ 1:45
Seth’s mother is diagnosed with Huntington’s Disease @ 4:07
Seth has genetic testing done for HD at age 20 @ 14:22
Why Seth wishes he’d had genetic counseling before HD testing @ 18:44
Seth seeks out genetic counseling 6 years after testing @ 23:25
Seth becomes involved with HD support organizations @ 25:04
Seth loses a close friend in an accident @ 27:25
HD and research @ 31:52
The genetic disease closet @ 35:00
HDYO, HDSA, and HD Buzz as resources @ 36:55
Misconceptions surrounding HD @ 39:49
Links and Resources
HD Resources: Huntington’s Disease Youth Organization Huntington’s Disease Society of America HD Buzz
Connect with Seth on Social Media:
Seth on Twitter: @Srotberg15
Seth on Instagram: @Rotberg15
Watch for Seth’s upcoming interview on the DNA Today Podcast
Check out other Patient Stories podcast episodes.
Read other Patient Stories on the Grey Genetics Patient Stories Page
Do you want to support Patient Stories? You can now make a donation online!
Want to support Patient Stories in a non-monetary way? Leave us a review on iTunes, or share your favorite episodes on Social Media.
Patient Stories on Twitter: @GreyGeneticsPod
Patient Stories on Instagram: @patientstoriespodcast
Are you looking for genetic counseling? Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. Choose from our growing Network of Genetic Counselors. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone.
39 episodes
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Similar to Patient Stories with Grey Genetics
Personally connecting the dots. All of them. Benjamen Walker’s Theory of Everything is a proud member of Radiotopia, from PRX. Learn more at radiotopia.fm.
…
continue reading
Have you ever locked eyes with a stranger and wondered, "What’s their story?" Step into someone else’s life and expect the unexpected. Extraordinary stories from around the world.
…
continue reading
Series about pieces of music with a powerful emotional impact
…
continue reading
Subscribe within Apple Podcasts for ad-free listening, bonus episodes, and access to our full archive. For all those perks and more, including a supportive community of Terrible listeners, mail surprises and live sessions with our team, join us on Patreon.com/ttfa! — It's a question we ask (and get asked) all the time: “How are you?” And normally we just respond with “Fine!” even if we’re totally dying inside, so everyone can go about their day. But it’s not always all that fine, is it? “Ter ...
…
continue reading
Rationally Speaking is the bi-weekly podcast of New York City Skeptics. Join host Julia Galef and guests as they explore the borderlands between reason and nonsense, likely from unlikely, and science from pseudoscience. Any topic is fair game as long as we can bring reason to bear upon it, with both a skeptical eye and a good dose of humor! We agree with the Marquis de Condorcet, who said that in an open society we ought to devote ourselves to "the tracking down of prejudices in the hiding p ...
…
continue reading
Love is more than you think. From the creators of Criminal. New episodes twice a month. Part of the Vox Media Podcast Network.
…
continue reading
PT Inquest is an online journal club. Hosted by Jason Tuori, Megan Graham, and Chris Juneau, the show looks at an article every week and discusses how it applies to current physical therapy practice.
…
continue reading
Join Dave Jackson and he shares insights into geeky weight loss gadgets, insightful articles, and success stories on losing weight, feeling better, and living healthier. He's also pretty darn funny.
…
continue reading
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Go offline with the Player FM app!
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