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Advocating for Change: A Conversation with Dorothea Lantz
Manage episode 437091906 series 3594946
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(Please note, this episode was recorded under the name PWS Connect, and we have since changed the name to PWS United.)
In this episode of PWS United, we sit down with Dorothea Lantz, Director of Community Engagement at PWSA | USA, for an insightful discussion about recent and upcoming advocacy efforts. Dorothea offers a recap of the May 2024 D.C. Fly-In and discusses the recent steps taken to advance our congressional requests made during the event. Looking ahead, she outlines exciting initiatives and programs for advocacy in 2025. Dorothea also discusses the crucial steps needed to ensure access to DCCR if it receives FDA approval. The episode concludes with heartwarming reflections on the special mission moments that continue to inspire and drive the community's advocacy work.
Links:
PWSA | USA Advocacy Efforts
PWS Military Family Form
2024 D.C. Fly-In Recap
Latest Update on DCCR
PWSA | USA Advocacy Email: advocacy@pwsausa.org
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