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Research and Orphan Diseases

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Manage episode 292752361 series 2923408
Content provided by Ronda F Jefferson. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Ronda F Jefferson or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

While I did not expect to do a topic related to Covid so quickly, while researching other topics, I did come across interesting articles regarding Orphan Diseases and how Covid has changed the outlook of research into these disorders. There was also an article about the cost of a rare disease in comparison to others.

EveryLife Foundation for Rare Diseases

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, Study Finds (dravetsyndromenews.com)

How Covid-19 is changing rare diseases research - MedCity News

New Study Investigates the Number of Available Orphan Products, Generics and Biosimilars - NORD (National Organization for Rare Disorders) (rarediseases.org)

Definition of Orphan disease (medicinenet.com)

Orphan Drug Act of 1983 - Wikipedia

  continue reading

54 episodes

Artwork
iconShare
 
Manage episode 292752361 series 2923408
Content provided by Ronda F Jefferson. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Ronda F Jefferson or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

While I did not expect to do a topic related to Covid so quickly, while researching other topics, I did come across interesting articles regarding Orphan Diseases and how Covid has changed the outlook of research into these disorders. There was also an article about the cost of a rare disease in comparison to others.

EveryLife Foundation for Rare Diseases

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, Study Finds (dravetsyndromenews.com)

How Covid-19 is changing rare diseases research - MedCity News

New Study Investigates the Number of Available Orphan Products, Generics and Biosimilars - NORD (National Organization for Rare Disorders) (rarediseases.org)

Definition of Orphan disease (medicinenet.com)

Orphan Drug Act of 1983 - Wikipedia

  continue reading

54 episodes

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