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Balancing Caregiving and Independence
Manage episode 365633381 series 3313855
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On this episode of the LEMSaware Podcast, we are joined by Jena, a caregiver to her mother, who was diagnosed with LEMS. Jena's mother now lives with her, and Jena discusses the challenges of being a caregiver to her mother and young daughter. The most challenging part of watching her mother age is when she is having a LEMS-y day. Jena deeply understands the importance of empathy and patience when caring for her mother and approaches everything in the same way that she hopes her daughter can do for her one day. Jena discusses the importance of communication and that the goal for her mother is independence for as long as possible.
LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers dealing with LEMS. Wherever you are on your journey-searching for the right doctor, the proper diagnosis or the right treatment-this site can guide you to that next milestone.
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