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Don't Let Your Diagnosis Define You

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Manage episode 415747536 series 3313855
Content provided by Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

On this episode of the LEMS Aware podcast, we are joined by Karyn. Karyn first started feeling her symptoms of LEMS 24 years ago, but wasn’t diagnosed until 2013. Living with her disease for almost 12 years before receiving her diagnosis helped her adapt to life in new ways, become more comfortable in her condition and gave her time to accept that a new normal is okay. Karyn’s frequent moves throughout her life, as well as her career as a social worker, enabled her to see her abilities and how they have changed as part of her life but not what defined her life.

LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS.  Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone. 

  continue reading

11 episodes

Artwork
iconShare
 
Manage episode 415747536 series 3313855
Content provided by Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Catalyst Pharmaceuticals, Inc. and Catalyst Pharmaceuticals or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

On this episode of the LEMS Aware podcast, we are joined by Karyn. Karyn first started feeling her symptoms of LEMS 24 years ago, but wasn’t diagnosed until 2013. Living with her disease for almost 12 years before receiving her diagnosis helped her adapt to life in new ways, become more comfortable in her condition and gave her time to accept that a new normal is okay. Karyn’s frequent moves throughout her life, as well as her career as a social worker, enabled her to see her abilities and how they have changed as part of her life but not what defined her life.

LEMSaware.com was created to deliver relevant information, resources, and connections to patients and caregivers who may be dealing with LEMS.  Wherever you are on your journey-searching for the right doctor, the right diagnosis, or the right treatment-this site can guide you to that next milestone. 

  continue reading

11 episodes

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