))
S2 E7 – Rare Disease Day 2023 with Lisa Sarfaty
Manage episode 407172579 series 3558520
Content provided by Karger Publishers. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Karger Publishers or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
For this episode of Karger’s The Waiting Room Podcast on Rare Disease Day 2023, which is held on February 28, we spoke with Lisa Sarfaty from the National Organization for Rare Disorders (NORD). Lisa currently serves as the Vice President of Community Engagement, and particularly focuses on advocacy, education, and capacity building.
While addressing the 40th anniversary of the Orphan Drug Act (ODA) and of the foundation of NORD as an organization, we specifically tried to answer the question: “What does equity mean for people living with a rare disease?” We also looked at what should be done to actually achieve this equity in education, the workplace, and everyday life. Last but not least, we had a closer look at NORD’s plans for Rare Disease Day 2023.
For more podcast episodes from Karger visit karger.com/podcasts.
40 episodes
Share
