Episode 22: Avery Joy: The Joy of Her Story: With Abbey Benjamin

Surpassing Labels

In this compelling episode, we sit down with Abbey Benjamin, an inspiring mom to Tommy and Avery Joy. She is a wife to Chris, a nurse, dance teacher, and self-published children's book author. Her daughter, Avery Joy, has been diagnosed with adenylosuccinate lyase deficiency (ADSLD), a rare genetic disorder that impacts metabolic function and development. Abbey shares the emotional journey of receiving such a rare diagnosis and the daily realities of managing Avery's unique needs. She discusses the importance of finding joy, advocacy, and the role of community support. Join us as we explore the life of Avery Joy, and the joy of her story! Through their extraordinary journey we gain valuable insights into living with and supporting a child with ADSL deficiency.

To follow Abbeys Journey onnect with her on Instagram @abbeybenj

To check out her Children's Books

In My Sissy's Wheelchair: Click Here Dance From The Heart: Click Here When You See a Child Who's Different: Click Here

If you'd like to share your story, or feel stuck or defined by your circumstances please reach out!

I'm here to share our voices, and help guide and support any parents struggling in their journey.

You can connect with me on Instagram @felicia.sheline, find me at www.feliciasheline.com

or email at [e-mail]

*Subscribe today, and let's reinforce that every story deserves to be heard and we are here to embrace the extraordinary within the ordinary.

*Intro and Outro Music Composed and Produced by Hudson Sheline