145: A Race Against Blindness. With Stephen Johnston

The Art of Parenting

How far would you go to save your child's vision? Listen in as Stephen Johnston shares his mission to fight blindness for his son and thousands of others. Click here for the show notes and extra resources.

It’s hard to imagine losing one sight, and even more heartbreaking to discover that your child is. My guest today is a father on a mission to find a cure not only for his child but all persons affected by the onset of blindness.

What We Talked About:

• The Precursor of Bardet-Biedl Syndrome

• How Steve's parenting approach changed after his son's diagnosis

• Steve's journey in creating a nonprofit organization, "A Race Against Blindness"

• The importance of mental toughness and perseverance

• How Steve and his family found strength and resilience in the face of adversity

Things to Remember

“Tomorrow is not guaranteed. Anything can happen at any given time.” “Everybody can make a difference. It doesn't matter how many or how few resources anyone has. Everybody can make a difference.”

“Start doing things that might prepare your children for challenges.”

“Make sure you have a support network for you and the kids, and you’ll be able to get through whatever it is.”

“Challenges are coming for all of us at some point or another, and the more we prepare ourselves to face those head-on as they happen, the better off we are.”

-Stephen Johnston

Click here for the show notes and extra resources.