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Endometriosis is a painful chronic disease that is difficult to diagnose, but a new law can help.
Manage episode 391930476 series 3314587
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Endometriosis is a painful chronic disease that affects over 160 million women worldwide, 10 million across the United States and in Connecticut 1 in 10 women have it. The only way to get an accurate diagnosis is with surgery and that can cost somewhere between 20 and 30 thousand dollars or more. The cost of the surgery can be a huge barrier to get treatment for this debilitating condition.
Connecticut is leading the way in research and is the first in the nation to get a law passed, House Bill 6672, "An Act Concerning Endometriosis". In June, the General Assembly passed the legislation creating a first-of-its-kind endometriosis data and biorepository program to bring greater awareness, action and care options to those suffering from endometriosis. The person behind the law is State Representative Jillian Gilchrest who decided something had to be done for the women in the state suffering from this disease. She talks about the Working Group she created to help women with the challenges of living and working with the disease, the importance of having better care from medical professionals, and the need for continued research.
Kailey Mitchell is an advocate, and a support group founder and she talks about her own battle with endometriosis and the challenges she faced in her life and with working. She talks about the troubles with diagnosis, the mental health component of the disease and why she formed her own support group in Connecticut.
Finding time to see your healthcare provider or the maintenance of your condition are some of the many challenges of living with a chronic disease. CT Paid Leave can help with income replacement for this serious health condition. You can get up to twelve weeks of income replacement so you can focus on your health.
For more information or to apply for benefits go to : CT Paid Leave
For Endometriosis support groups go to: (20+) CT Endometriosis Support Group | Facebook
For more information on the Endometriosis Working Group: Endometriosis Working Group | Connecticut House Democrats
Endometriosis Reasearch: Endometriosis Research at JAX
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