Artwork

Content provided by Audioboom and An Ybernia Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Audioboom and An Ybernia Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
Player FM - Podcast App
Go offline with the Player FM app!

S9 Ep23: Learning more about INAD & how you can help

21:55
 
Share
 

Manage episode 349852994 series 2405804
Content provided by Audioboom and An Ybernia Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Audioboom and An Ybernia Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
INAD (Infantile neuroaxonal dystrophy) is a devastating ultra-rare condition that affects children from a very early age.
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/

International donations - “One gene, one dream” campaign (INADCURE US):
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain
  continue reading

191 episodes

Artwork
iconShare
 
Manage episode 349852994 series 2405804
Content provided by Audioboom and An Ybernia Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Audioboom and An Ybernia Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
INAD (Infantile neuroaxonal dystrophy) is a devastating ultra-rare condition that affects children from a very early age.
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/

International donations - “One gene, one dream” campaign (INADCURE US):
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain
  continue reading

191 episodes

All episodes

×
 
Loading …

Welcome to Player FM!

Player FM is scanning the web for high-quality podcasts for you to enjoy right now. It's the best podcast app and works on Android, iPhone, and the web. Signup to sync subscriptions across devices.

 

Quick Reference Guide