Digital Folklore is an immersive audio adventure that takes place inside a fictional universe, but explores the real-world truths behind various expressions of internet culture and how each holds up a mirror to the society from which they emerge. This podcast is great for audio fiction fans who really really want to enjoy interview-based shows, or for listeners who love expert interviews and insights but long for something unique and unexpected. Join Perry Carpenter and Mason Amadeus as they ...
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S9 Ep23: Learning more about INAD & how you can help
MP3•Episode home
Manage episode 349852994 series 2405804
Content provided by Audioboom and An Ybernia Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Audioboom and An Ybernia Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
INAD (Infantile neuroaxonal dystrophy) is a devastating ultra-rare condition that affects children from a very early age.
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/
International donations - “One gene, one dream” campaign (INADCURE US):
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain
191 episodes
MP3•Episode home
Manage episode 349852994 series 2405804
Content provided by Audioboom and An Ybernia Podcast. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Audioboom and An Ybernia Podcast or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
INAD (Infantile neuroaxonal dystrophy) is a devastating ultra-rare condition that affects children from a very early age.
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/
Rebecca Skeates tells us about her family's experience with the condition, search for a cure and her deep involvement in INADCURE Spain.
Their campaign aims to raise 7 million dollars/euros to fund a new gene therapy clinical trial. It seems a lot, but if 1 million people donated 7 dollars/euros they would reach their target. Please consider donating so you can make a difference in a family's life:
Link to the donations page for the “Súmate, Suma 7” campaign in Spain:
https://inadcurespain.org/sumate-suma7/
International donations - “One gene, one dream” campaign (INADCURE US):
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain
https://give.inadcure.org/campaign/one-gene-one-dream/c407538
Music Credit: Dream of Beauty - Free Music Archive
Photo Credit: INADCURE Spain
191 episodes
All episodes
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