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21. Meet a Fighter: Freidreich's Ataxia ft. Hasitha Illa

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Content provided by Shivani Vyas. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Shivani Vyas or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

In this episode, I interview Hasitha Illa, who is a fighter of Freidreich's Ataxia. Hasitha was diagnosed with a super rare disease called Friedreich's Ataxia. This is a genetic, progressive, neurodegenerative movement disorder, characterized by unsteady posture, frequent falling, and progressive difficulty of walking due to impaired ability to coordinate voluntary movements. This traumatic experience has made her into a stronger and a positive person. She loves to write and she is pretty confident on camera. So, she started a blog and a YouTube channel in order to spread awareness on disability related issues and rights! In addition, she has given multiple motivational speeches on stage as well, and hopes to continue to progress and grow in her advocacy journey!

Follow along with her advocacy journey!

Instagram: https://www.instagram.com/lifewithhasi/

--- Support this podcast: https://podcasters.spotify.com/pod/show/theraredisorderpodcast/support
  continue reading

41 episodes

Artwork
iconShare
 
Manage episode 305989069 series 3001364
Content provided by Shivani Vyas. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Shivani Vyas or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.

In this episode, I interview Hasitha Illa, who is a fighter of Freidreich's Ataxia. Hasitha was diagnosed with a super rare disease called Friedreich's Ataxia. This is a genetic, progressive, neurodegenerative movement disorder, characterized by unsteady posture, frequent falling, and progressive difficulty of walking due to impaired ability to coordinate voluntary movements. This traumatic experience has made her into a stronger and a positive person. She loves to write and she is pretty confident on camera. So, she started a blog and a YouTube channel in order to spread awareness on disability related issues and rights! In addition, she has given multiple motivational speeches on stage as well, and hopes to continue to progress and grow in her advocacy journey!

Follow along with her advocacy journey!

Instagram: https://www.instagram.com/lifewithhasi/

--- Support this podcast: https://podcasters.spotify.com/pod/show/theraredisorderpodcast/support
  continue reading

41 episodes

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