))
3. Meet a Fighter: 2q37 Deletion Syndrome ft. Megan Freeman
Manage episode 305989087 series 3001364
Content provided by Shivani Vyas. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Shivani Vyas or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
In this episode, I interview Megan, who is a fighter of 2q37 Deletion Syndrome. Megan Freeman started her rare disease journey when she was diagnosed with one at 16, dealing with all of the emotions that come along with having a rare disease and trying to come to terms with it to the best that she can. A little over two years ago, she got introduced to rare disease advocacy when she met some people near and dear to her in the rare disease world. She has designed blank greeting cards with onions, to raise awareness about her condition, as suggested by one of her friends who is an artist. Since then, she has also been on a few podcasts to raise awareness about her very rare disease and to help break stigmas that are associated with having a rare disease along the way.
Keep up with her advocacy journey!
Instagram: https://www.instagram.com/cardc.urator/
Card Website: https://megancardcurator.squarespace.com/
--- Support this podcast: https://podcasters.spotify.com/pod/show/theraredisorderpodcast/support41 episodes
Share
