))
31. Meet a Fighter: Familial Adenomatous Polyposis & Short Bowel Syndrome ft. Jenny Jones
Manage episode 305989059 series 3001364
Content provided by Shivani Vyas. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by Shivani Vyas or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://player.fm/legal.
In this episode, I interview Jenny Jones, a fighter of Familial Adenomatous Polyposis and Short Bowel Syndrome.
Jenny was diagnosed with the rare, hereditary colon cancer syndrome Familial Adenomatous Polyposis at age 8 and had her first surgery to remove her colon at age 9. After experiencing life-threatening complications, Jenny required 4 more surgeries that year and developed another rare disease - Short Bowel Syndrome as a result. She lived with an ileostomy for 6 years before having it reversed into a Straight Pull Thru and again experienced life-threatening complications. Jenny has been able to surpass all the odds though and went on to earn a Master's Degree and maintains full time employment in addition to her rare disease awareness and advocacy efforts through her blog, Life's a Polyp.
Keep up with her advocacy journey!
Blog: www.LifesaPolyp.com
Youtube: www.Youtube.com/LifesaPolyp
Merch Website: www.CafePress.com/LifesaPolyp
Social Media Handle: LifesaPolyp
--- Support this podcast: https://podcasters.spotify.com/pod/show/theraredisorderpodcast/support41 episodes
Share
