We are proud to present our first podcast series, where we delve into the deeply personal story of one person's battle with cancer, alongside her dedicated caregiver. We'll explore the highs and lows, the triumphs and challenges, as we navigate the various stages of the cancer experience. You'll hear a story that will resonate with your own, as we explore the universal questions, concerns, and experiences that many of us encounter—symptoms, treatment decisions, managing side effects, and fin ...
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CChapter 51 - salivary gland tumours Cover art photo provided by Erol Ahmed on Unsplash: https://unsplash.com/@erol
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Aunty M Brain Tumours Talk Show - A podcast sharing inspiring stories of brain tumour survivors. Join our supportive community for heartfelt interviews, insights from medical experts, and empowering tales of resilience. Tune in, be inspired, and spread awareness on the path of brain tumour recovery.
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Beyond Brain Tumours is a podcast by, for, and about the brain tumour community. Listen in as we talk to brain tumour survivors, patients, and caregivers as they share their stories and perspectives on brain tumour treatments, research, and survivorship. Hosted by Hugh Hill, Services Support Specialist at Brain Tumour Foundation of Canada, learn more about the organization’s resources, programs, and services for people affected by a brain tumour.
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Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours. Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease. Please Note: We recognise that everyone's experience's are completely unique and will be different for everyone. The people who come on the podcast are sharing their own personal experiences, these may differ from yo ...
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Understanding Grief and Finding Meaning | 15
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Send us a Text Message. What happens when the final goodbye is just the beginning of a new chapter of grief? Charlie discuss the emotional journey through grief after the loss of a loved one and also explains it through various models of grief. Renée also speaks in this episode, offering personal insights on honouring memories, finding comfort, and…
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Send us a Text Message. Have you ever wondered how to say goodbye to someone you love? In this tender episode, Renée prepares to say goodbye to her mum, Rosemarie, with love and care. Despite the heartbreak, they celebrate Rosemarie's birthday, mixing tears with moments of joy and treasured memories. Join us as we honour a wonderful life and naviga…
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Send us a Text Message. In this episode, we dive into the day after Rosemarie's passing. From handling legal matters to planning her memorial, we explore the practical and emotional challenges Renée and her family face. Join us as we reflect on the love and strength that guide them through these first moments of loss. Thanks for listening. For more…
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Send us a Text Message. Have you ever faced a moment so heartbreaking that it stays etched in your memory forever? In this intimately moving episode of tumour, tumour, on the wall, we join Renee during one of the most touching nights and days of her life . This episode is a raw portrayal of the universal experience of loss, capturing the quiet, yet…
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Episode 59 - Spotlight on Women in Neuroscience
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In this episode Anna talks to Anna Solth and Victoria Wyes about their experiences of being neurosurgeons and women in the field of neuroscience. They share their passion for neuroscience and the work they are doing now and their plans for the future. Better Safe Than Tumour Money Advice Clinic
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Send us a Text Message. In this episode, Renée navigates Shawn's visit, unexpected hospital visits and academic commitments while preparing for Rosemarie's 70th birthday. Amidst the chaos, Rosemarie shares her wish to wake up from this difficult dream. The act of closing a door becomes a symbol of their journey through these intense days, reflectin…
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In this episode we meet Gavin Burden and Louise Worthington who have both been diagnosed with brain tumours, Gavin has been living with his brain tumour for 28 years after he was diagnosed at 21. Gavin and Louise have been friends for years so when Louise was diagnosed with a brain tumour in 2018 Gavin reached out to her to offer support. In the ep…
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Send us a Text Message. Join us as we follow Rosemarie through the unfolding days of living with metastatic cancer - no real ups or downs. This episode takes you into her daily life, where routines and quiet moments are shared with loved ones who support her every step of the way. While this is Rosemarie’s personal journey, it mirrors the experienc…
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Send us a Text Message. In this episode, we're delving deep into the heart of the human experience: emotions. But not just any emotions – the ones that grip you, shake you to your core, and leave you breathless. Through Rosemarie and Renée's journey, we'll explore the raw, unfiltered rollercoaster of feelings that accompany a battle with cancer. Fr…
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Épisode 9 - Entrevue avec Maria (en français)
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Maria a été la proche aidante de son mari, décédé il y a plus de 6 ans d'un glioblastome. Suivez-nous sur Facebook et sur Instagram. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hill.By Hugh Hill
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Episode 57 - Spolight on Mental Health Support
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In this episode, Chandos talks to Beth Ryall, about the support available at the charity for people who are experiencing difficulties with their mental health following a brain tumour diagnosis. You can find out more about the support available here Better Safe Than Tumour Money Advice Clinic
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Stitch by Stitch: Pain, Nausea, Recovery | 8
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Send us a Text Message. Today, we're talking about a topic many of us are all too familiar with: dealing with pain, post-surgery complications and nausea. The journey of recovery after major surgery is filled with challenges, both physical and emotional. Thrust into a world where managing pain becomes as routine as morning coffee. We take a look at…
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Send us a Text Message. In this episode, we follow an important moment in Rosemarie's journey as she encounters significant health challenges that test her strength . Marking the 9-month anniversary of her diagnosis, Rosemarie faces a serious complication that leads to urgent medical care. With her family by her side, we explore the emotional and p…
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Episode 56 - Rehabilitation for brain tumours
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In this episode, we talk to Anya Jones and Kaz Melvin about their experiences of rehabilitation. Anya was diagnosed with a brain tumour and needed extensive rehabilitation after her diagnosis and treatment whilst Kaz has both personal and professional experience of brain tumours and rehab. She is a physiotherapist but also supported her sister Ria …
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Send us a Text Message. In today's episode, we follow Rosemarie through a pivotal moment in her cancer treatment journey. After 18 weeks of chemotherapy, she undergoes a crucial CT scan to assess the treatment's effectiveness on her metastatic breast cancer that is in her peritoneum and liver. The episode delves into the emotional and physical prep…
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Send us a Text Message. In this episode, we explore the heartwarming bonds formed within the chemotherapy center. As Rosemarie's last chemo session approaches, we're all holding our breath for her CT scan results. But amidst the nerves, we're lifted up by the support and friendship found here. From the friendly smiles of the receptionists to the qu…
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Johnathan's Glioblastoma Multiforme Story
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In this episode of Aunty M Brain Tumours Talk Show, Johnathan shares his brain tumour story. Johnathan experienced a sudden and severe onset of symptoms the day before Thanksgiving, leading to an unexpected diagnosis of glioblastoma multiforme (GBM). Johnathan recalls the ordinary start with what he assumed were hereditary migraines. Still, he deta…
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Episode 55 - Spotlight on Research into Glioblastomas
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In this episode, Chandos talks to one of our Future Leaders Dr Angel Alvarez-Prado. Angel is a highly accomplished researcher at the University of Lausanne in Switzerland where he is currently working on the innovative perspective of simultaneously targeting both cancer cells and their supporting immune microenvironment in the hope of finding more …
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Send us a Text Message. In this episode, listeners will gain valuable insights into the chemotherapy journey of Rosemarie and Renée. By observing their proactive approach to asking questions, listeners can learn the importance of being engaged in their own or their loved ones' healthcare journey. The episode focuses how asking questions can lead to…
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Send us a Text Message. As we walked hand in hand with Rosemarie into the chemotherapy treatment center, I was immediately struck by the strength radiating from Rosemarie and her daughter . Today’s episode takes you through their emotionally charged first day of dealing with metastatic cancer, a day that many of our listeners have faced or will in …
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Welcome to Day 29 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. Today, Pamela shares her poignant journey from diagnosis to recovery and beyond. Pamela introduces us to Brain Tumour Ireland, the sole charity in Ireland dedicated to supporting individuals and families affected by brain tumours. Unfunded by the government, this …
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Welcome to Day 28 of Brain Tumour Awareness Month on Aunty M Brain Tumours Talk Show. In today’s heartfelt episode, we are joined by Laura. Laura shares her intense and emotional journey with a brain tumour, from the first symptoms during pregnancy to her current battles with the disease. Her story is a tale of personal struggle, a beacon of hope, …
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My Granddaughter's Optic Pathway Glioma Story
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Hayley Conroy shares her granddaughter Lily's compelling story in this episode of Aunty M Brain Tumour's Talk Show. Lily's early life hinted at no challenges until her family started noticing unsettling signs a few weeks post-birth. Despite being a happy and active baby, Lily struggled with feeding issues and an unexplainable high-pitched scream, l…
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In this episode of Aunty M Brain Tumour's Talk Show, Brenda shares her journey of being diagnosed with a brain tumour and undergoing surgery and radiation treatment. She talks about the strange symptoms leading up to the diagnosis, including memory lapses and severe headaches. Brenda's resilience shines as she discusses her recovery and a newfound …
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In this podcast episode of Aunty M Brain Tumours Talk Show, we speak to Matthew. Matthew recalls an ordinary Thursday in October 2023, playing football and feeling fit, only to experience what he describes as being struck by lightning 60 minutes into the game. This moment marked the beginning of a completely heart-wrenching journey for him, leading…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Mel Kelly shares her journey from the initial misdiagnoses of persistent headaches and vision loss to her brain tumour diagnosis on December 19, 2022. Despite the shock and challenges, including a crucial surgery just before Christmas and the struggle to regain her driving license, Mel's s…
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Send us a Text Message. In Episode 2 of "tumour, tumour, on the wall," Rosemarie undergoes surgery while her daughter Renee offers support from a distance. The night before the surgery is filled with shadows of uncertainty, a challenging journey many have walked — the path through a possible cancer diagnosis, filled with anticipation mingled with h…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Kimberley talks about her Astrocytoma diagnosis and the support she has found in brain tumour charities. Especially in The Brain Tumour Charity and Brain Tumour Support. Follow Aunty M Brain Tumours on: X Facebook Instagram YouTube…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Stefania shares her meningioma story from the first symptoms to the diagnosis, treatment, and ongoing challenges she faces. She highlights the crucial role of support systems like the charity Brain Tumor Support. Join the urgent SOS Appeal. Follow Aunty M Brain Tumours on: X …
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Peter, a resident of the greater Toronto area, is a 49-year-old survivor of a brain tumour. His journey began in January 2019 when he was diagnosed with a grade 2 astrocytoma following a seizure. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hil…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Yaron shares his extraordinary journey of facing a Glioblastoma Multiforme diagnosis at 29. Yaron's story is not just about survival; it's a testament to the power of medical intervention. Yaron recounts the subtle symptoms that initially appeared in 2003, including frequent headaches and …
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Épisode 7 - Entrevue avec Kathy (en français)
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Kathy est une survivante de tumeur cérébrale résidant à Québec et bénévole à la Fondation canadienne des tumeurs cérébrales pour le programme pédiatrique GOcervo. En 2011, elle a reçu un diagnostic de tumeur cérébrale. Suivez-nous sur Facebook et sur Instagram. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questio…
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In this podcast episode of Aunty M Brain Tumours Talk Show, Paris Dancy shares his battle with a pituitary tumour. Starting in 2013, Paris began experiencing symptoms like weight gain and severe headaches, which he initially attributed to stress from his demanding job as an investigator. He was finally diagnosed with a pituitary tumour. The diagnos…
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John's Glioblastoma Story (Told by his Family)
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In this podcast episode of Aunty M Brain Tumours Talk Show, Charlotte and her mother, Alison, share their deeply personal journey following the loss of John, Charlotte's father and Alison's husband, to a brain tumour. Their story is a tribute to John and an enlightening discussion on the importance of brain tumour awareness. Find John's Crew On Fac…
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In this podcast, Susan Hitchmough discusses her journey of being diagnosed with an Acoustic Neuroma in 2021. She talks about her initial symptoms, diagnosis challenges during COVID-19, treatment, and lingering side effects. Susan shares her recovery story and involvement in The Beyond Recovery Project, a non-profit community supporting brain tumour…
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In today's Aunty M Brain Tumours Talk Show episode, we speak to Brain and his wife, Emma. Brian was diagnosed with Oligodendroglioma in 2017; they talk about the process of surgery, radiotherapy, and chemotherapy and the ensuing challenges, such as memory issues, fatigue, and migraines. They emphasize the couple's engagement with Brain Tumour Resea…
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Send us a Text Message. Welcome to Episode 1. Today, we're diving into Rosemarie's journey, titled "From Camp to Courage." Rosemarie's life began in an internment camp after World War II, where her family faced tough times. They had to start anew after the war, but challenges persisted. This chapter focuses intimately on Rosemarie's first 68 years …
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In this Aunty M Brain Tumour’s Talk Show episode, we have guest Rudy Fischmann. He discusses his brain tumour journey. He was diagnosed with a Grade 2 Diffuse Astrocytoma in 2018, which led to a Grade 3 Astrocytoma. Despite facing numerous challenges, including surgeries, radiotherapy, chemotherapy and insurance hurdles, Rudy maintains a positive o…
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In this inspiring episode of the Aunty M Brain Tumours Talk Show, Grace shares her incredible journey of overcoming a Pilocytic Astrocytoma, shedding light on the importance of Brain Tumour Awareness Month. From unusual symptoms to diagnosis, treatment, and life after recovery, Grace's story is a testament to resilience, self-advocacy's importance,…
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Henna shares her brain tumour story in this impactful episode of the Aunty M Brain Tumours Talk Show. She bravely shares her journey with a brain tumour. As part of Brain Tumour Awareness Month, Henna's story underscores the importance of symptom awareness, the complexities of diagnosis, and the challenges of navigating the healthcare system, espec…
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Today, we have the incredible Natalie Welch sharing her brain tumour story. Natalie was diagnosed with an acoustic neuroma in 2009. She shares her diagnosis, treatment, and recovery journey. Find Aunty M Brain Tumours online: Website Facebook X Instagram…
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In this episode, we listen to Rebecca's amazing journey through health challenges like Lyme disease, chronic fatigue, brain tumours, and recovering from a stroke. Her story starts with an illness in 2013 that led to misdiagnosis and a critical seizure that revealed a brain tumour. Despite severe setbacks, including speech and motor skill difficulti…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Simona Stankovska about her fight against Cavanoma—a brain lesion—misdiagnosed due to seemingly ordinary symptoms. Her journey from misdiagnosis to undergoing critical brain surgery highlights the healthcare challenges and personal upheaval a Cavanoma diagnosis brings, including paralysis…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Molly; she shares her diagnosis, treatment and recovery. Molly was diagnosed with an astrocytoma; her story unfolds from a serendipitous trip to Thorpe Park, where the G-force from roller coasters inadvertently led to the discovery of her tumour to the challenging path of diagnosis, surge…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Ashleigh, about coping with her father's long battle with cancer, which ultimately led to a devastating diagnosis of brain cancer. Ashleigh shares the emotional rollercoaster of her father's initial diagnosis of thyroid cancer, the subsequent spread to his lungs, and the final discovery o…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Lucy, who shares her brain tumour diagnosis, treatment, and recovery. Lucy recounts the moment of having a seizure at home, leading to the discovery of a mass in her brain, and walks us through the subsequent steps of her medical journey, including surgery, radiation, and chemotherapy. De…
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Stephanie's Mother was Diagnosed With A Brain Tumour
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In this episode of the Aunty M Brain Tumours Talk Show, we speak to, Stephanie, who shares the impact of brain tumours by sharing Stephanie's experience with her mother's diagnosis and treatment. The story begins with Stephanie's early realization of her mother's illness, leading to a diagnosis of a brain tumour. This episode explores the emotional…
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Alex is a brain tumour survivor. He moved to Canada from Australia 15 years ago and worked in the mining industry for many years. He was diagnosed with a grade 3 oligodendroglioma five years ago. Follow us on Facebook, Instagram, Twitter, Youtube and Linkedin! If you have any questions about this podcast or our organization, please contact Hugh Hil…
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Kiera's Medulloblastoma and Posterior Fossa Syndrome Story
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In this episode, we hear the inspiring story of Kiera Mitchell, who was diagnosed with Medulloblastoma at 19. Kiera recounts her initial symptoms, the shock of her diagnosis, and the gruelling journey through treatment, including a 15-hour craniotomy and challenging chemotherapy. Despite facing physical and emotional hurdles, including partial para…
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In this Aunty M Brain Tumours Talk Show episode, we speak to Jamie, an Astrocytoma warrior. This episode highlights the challenges faced by those living with Astrocytoma and sheds light on the advancements in medical treatments and the importance of community support.Key Takeaways:- The importance of awareness and research funding for brain tumours…
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