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Patient Advocacy Tools with Tracy Rode
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In this episode, host Shikha Jain, MD, speaks with the Patient Empowerment Network’s Tracy Rode about providing patients with tools for advocacy, developing accessible patient resources and more. • Welcome to another exciting episode of Oncology Overdrive 1:11 • About Rode 1:23 • The interview 2:34 • Can you tell us about your journey and how you ended up in this space as such a strong voice for patient advocates? 2:52 • Tell me more about Patient Empowerment Network (PEN), what it does for patients and what it does for health care workers 9:06 • Jain and Rode on how health care workers can improve ways to communicate information to patients in ways they can absorb 14:03 • How do you suggest patients and physicians use the resources provided by organizations like PEN? What is the best way to incorporate education into a clinical visit? 19:06 • Rode and Jain on examples of how much easier it is today for patients to come across misinformation in media, and how organizations can help patients avoid this misinformation 21:50 • Jain and Rode on patient accessibility and benefits to understanding clinical trials 26:35 • Can you share how your cancer diagnosis impacted the way you transitioned into thinking about patient advocacy issues and your approach to them? 29:13 • If someone could only listen to the last two minutes of this episode, what would you want them to take away? 31:35 • How to contact Rode 34:13 • Thanks for listening 35:20 Tracy Rode is the executive director of the Patient Empowerment Network (PEN). Rode brings over two decades of non-profit leadership experience, including working with diverse patient populations to improve patient outcomes and increase access to care.
We’d love to hear from you! Send your comments/questions to Dr. Jain at oncologyoverdrive@healio.com. Follow Healio on Twitter and LinkedIn: @HemOncToday and https://www.linkedin.com/company/hemonctoday/. Follow Dr. Jain on Twitter: @ShikhaJainMD. Rode and the Patient Empowerment Network can be reached at powerfulpatients.org, or via LinkedIn, Facebook, and Twitter @power4patients. Disclosures: Jain and Rode report no relevant financial disclosures.
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