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Primary Sclerosing Cholangitis,& Trigeminal Neuralgia
Manage episode 414855825 series 3485028
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In this episode I talk with Christina, Who is the host of Speaking in Spoons and a patient with Primary Sclerosing Cholangitis (PSC), Trigeminal Neuralgia and Hemiplegic Migraines.
The aim of this podcast is to connect those with similar conditions, educate medical professionals, and hopefully help find treatments and clinical trials.
A bi-monthly podcast where we share the stories of our Caregivers, patients and...
Listen on: Apple Podcasts Spotify
Chapters
1. Zebras vs horses (00:02:34)
2. the switch from Nutrition Equity to Rare Connection (00:03:18)
3. Primary Sclerosing Cholangitis (PSC) defined (00:04:32)
4. no FDA treatment (00:05:08)
5. The journey to diagnosis of PSC (00:05:24)
6. Symptoms of PSC (00:09:44)
7. emotional aspect how people treat christina (00:12:50)
8. MRI (00:13:03)
9. clinical trial for PSC (00:13:40)
10. [Ad] & so much more (00:14:59)
11. (Cont.) clinical trial for PSC (00:15:00)
12. emotional aspect of PSC and maintaining hope (00:15:00)
13. Speaking in Spoons how PSC receives support within the community (00:19:17)
14. disability becomes chronic (00:19:54)
15. Trigeminal Neuralgia journey to diagnosis (00:22:28)
16. Trigeminal Neuralgia triggers (00:25:56)
17. Treatment for Trigeminal Neuralgia and misdiagnosis (00:27:02)
18. Navigating daily life (00:30:52)
19. support for trigeminal neuralgia (00:32:12)
20. additional treatments and therapies for Trigeminal Neuralgia (00:33:31)
21. Advocating and educating about Trigeminal Neuralgia (00:35:12)
22. Hemiplegic Migraines what it's like (00:39:55)
23. Treatmentfor Hemiplegic Migraines (00:46:10)
24. similar symptoms of conditions (00:46:55)
25. educating and advocating for yourself (00:49:16)
26. differences between a typical migrane and a hemiplegic migraine (00:51:08)
27. social life (00:53:57)
28. Advice to others (00:58:45)
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