Dan Neuffer author of CFS Unravelled and creator of the ANS REWIRE recovery program shares his knowledge on healing and recovery from ME, CFS, Fibromyalgia, POTS & MCS. Episodes include discussions as well as interviews with recovered patients and expert practitioners.
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Welcome to the Hope and Help for Fatigue and Chronic Illness Podcast. It's our mission to help people that have some really complicated illnesses. People that have post viral syndrome like long COVID and ME/CFS or chronic fatigue. Those that have had toxic exposures like gulf war illness, mold exposures, pesticides and heavy metals. These illnesses can present very similarly, they can actually look the same to your clinician. You may have fatigue, post exertional malaise, foggy brain and man ...
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The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer. Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explo ...
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Time to heal with Lindsay (@lions141) and Stu (@gooastu). A recovery podcast for fellow warriors living with Chronic Fatigue Syndrome, ME and fatigue related conditions, and all the lessons we're learning along the way. We’d love to connect with you so please like, subscribe and follow us @postviralpodcast. Artwork: alexpowell.co.uk Music & production: Stuart Bryan
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E20: Snippet - How resilient can recoveries be after ME/CFS, Fibromyalgia, POTS, MCS, PVFS (or long-covid)?
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It’s finally time to share some of my health struggles during the last 6 years. It seems like a good opportunity to speak about how resilient ME/CFS, Fibromyalgia, POTS, MCS PVFS (or long-covid) recoveries can be – after all, when we recover we often can’t help but ask ….”will it last?” SHOWNOTES: https://cfsunravelled.com/episode20…
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EP30: Post-Exertional Malaise: Diagnosis and Treatment
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Donate to BHC. https://bit.ly/3P8URWa In this week's episode, Haylie Pomroy is joined by Dr. Melanie Hoppers, a physician and medical practitioner at the Bateman Horne Center of Excellence. Together, they discuss the challenges surrounding post-exertional malaise (PEM), often misunderstood as mere fatigue. Dr. Hoppers, specializing in post-infectio…
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137 - Lorrie Rivers - What is EFT Tapping and how can it help me?
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EFT tapping MRI amygdala study EFT trauma, PTSD, food cravings study Links to work with Lorrie: To register for the Nervous System Reset for Long Covid and ME/CFS with Tapping course (you’ll get free access to our next LIVE session when you sign up): https://living-from-inspiration.mykajabi.com/tapping-for-long-covid-and-me-cfs-fm Our H*E*A*L* Adva…
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EP29: Integrative Approaches To Brain Health
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Donate to ME/CFS Research: https://givecampus.com/b3yrwb In this week's episode, Haylie Pomroy is joined by Dr. Craig Tanio, Co-Founder of Rezilir Health and an adjunct professor at Nova Southeastern University. Together, they discuss brain health and its importance for those with chronic illnesses. Dr. Tanio shares his expertise in neuroimmunology…
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136 - Dr Meg Anderson - Movement in Long Covid - Part 2 - "how to"
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Episode 136 of the Long Covid Podcast is a continuation of my chat with the fabulous Dr Meg Anderson about movement in Long Covid. In this episode, we talk more about what that movement might actually look like and how to tailor that. The previous episode, where we talk about "getting ready" for movement is definitely worth a listen HERE Links: Meg…
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EP28: The Link Between ME/CFS and Long COVID
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Sign up for the COVID-UPP Study: https://redcap.nova.edu/redcap/surveys/?s=RMEDJ7LKCX&_gl=1*1h830h7*_gcl_au*MTM2NDA0MTQyOS4xNzE1MDA0ODAy In this week’s episode, Haylie Pomroy is joined by Dr. Nancy Klimas, renowned immunologist and expert on ME/CFS, and Dr. Ana Palacio, Professor of Clinical Medicine at the University of Miami and Co-Director of th…
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135 - Dr Meg Anderson - Movement in Long Covid Part 1 - Getting ready
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Episode 135 of the Long Covid Podcast is a chat with the fabulous Dr Meg Anderson about movement in Long Covid. This is part one of our chat where we talk about getting ready for movement, how to know you might be ready and kind of setting the scene. Watch out for part 2 next week, where we talk more about what that movement might actually look lik…
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EP27: Exercise Physiology for Chronic Illness
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Donate to ME/CFS Research: https://givecampus.com/b3yrwb In this episode, Haylie Pomroy is joined by Jeff Cournoyer, a sports physiologist at the Institute for Neuro-Immune Medicine. Together, they explore the world of sports physiology and how it applies not only to athletes but also to those managing chronic illnesses and fatigue. Jeff explains t…
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134 - Vicky van der Togt & Jeremy Rossman - Research-Aid Networks
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Episode 134 of the Long Covid Podcast is a chat with Vicky van der Togh & Dr Jeremy Rossman from Research-Aid Networks. We discuss what the organisation does, what brought Vicky & Jeremy together as well as their recently published hypothesis paper. Research-Aid Networks www.researchaidnetworks.org Pandemic-Aid Networks www.researchaidnetworks.org/…
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EP26: How Post-Viral Illness Causes Post-Exertional Malaise
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Donate to ME/CFS Research: https://givecampus.com/b3yrwb In this episode, Haylie Pomroy is joined by Dr. Leonard Jason, a psychology professor at DePaul University and an expert in community research. They discuss the severe effects of long-lasting post-viral illnesses like Long COVID and post-exertional malaise (PEM). Dr. Jason, who has led resear…
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133 - Anna Davidson - Long Covid Recovery
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Episode 133 of the Long Covid Podcast is a chat with A K Davidson, author & poet, who has now recovered from Long Covid. We chat through her experience, how writing because so important as well as helping with recovery, although not always in the way she expected! As always - recovery stories are one person's experience! They can be useful for idea…
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EP25: Regenerative Medicine for Chronic Illness
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Sign up for the COVID-UPP Study: https://redcap.nova.edu/redcap/surveys/?s=RMEDJ7LKCX&_gl=1*1h830h7*_gcl_au*MTM2NDA0MTQyOS4xNzE1MDA0ODAy Can stem cell therapy help repair a fatigued immune system? Dr. Rafael Gonzalez, an immunology expert and Chief Development and Scientific Officer at TheBioBox & RESTEM, explains how regenerative treatments, such …
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EP24: Gulf War Illness: The Need For More Research
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If you or a loved one is interested in joining a Gulf War Illness (GWI) trial, please complete the Recruitment Registry Form. https://redcap.nova.edu/redcap/surveys/?s=Y9YF8JJWJRK8HEKL%20&_gl=1*1fipp18*_gcl_aw*R0NMLjE3MDc5MTgwMzIuRUFJYUlRb2JDaE1JeWNyUXVfcXFoQU1WU1pCYUJSM3AyQWRBRUFBWUFTQUFFZ0s1NWZEX0J3RQ..*_gcl_au*MTg2NjgwMDQ4Ni4xNzA3MTQwNzgx In cas…
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132 - Rosalba Courtney & Hadas Golan - Dysfunctional Breathing in Long Covid
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Episode 132 of the Long Covid Podcast is a chat with the wonderful Hadas Golan & Rosalba Courtney. Hadas and Rosalba have been collaborating on working with people with Long Covid and have recently published a series of case studies detailing their successes. We take a deep dive into my favourite subject - breathing - discussing some of the underly…
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Sign up for the COVID-UPP Study: https://redcap.nova.edu/redcap/surveys/?s=RMEDJ7LKCX&_gl=1*1h830h7*_gcl_au*MTM2NDA0MTQyOS4xNzE1MDA0ODAy In this episode, Dr. Annie Lin and Haylie Pomroy discuss their personal journeys into nutrition, emphasizing the role of food as medicine in managing inflammation and chronic diseases. Nutrition plays a big role i…
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131 - Dr Wes Ely - What is Immuno-modulation & how could it help with Long Covid?
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Episode 131 of the Long Covid Podcast is a chat with the wonderful Dr Wes Ely, internist & pulmonologist, clinical triallist & also author & Long Covid advocate. We chat through some of his experiences with Long Covid patients as well as the clinical trial of baricitinib for Long Covid which is enrolling very soon. ICUdelirium.org Stat News - "Don'…
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Watch Dr. Theoharides’ exclusive talk on “Mast Cell Over-Activation And How It Affects Our Mind And Body Well-Being” https://youtu.be/xEX9PhdFh1g Is “brain fog” real? Dr. Theoharides Theoharides explains the truth. Joined by Haylie Pomroy. Dr. Theoharides discusses the link between brain fog and various medical conditions, such as myalgic encephalo…
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130 - Dr Marco Leitzke - Using Nicotine Patches for Long Covid
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Episode 130 of the Long Covid Podcast is a chat with Dr Marco Leitzke who has been exploring the use of Nicotine Patches to help with Long Covid. We discuss what Nicotine is, why it can help and how this could be something incredibly useful. Links to Dr Marco's work & social media etc: https://linktr.ee/marcoleitzke A blog written on "Health Rising…
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If you or a loved one is interested in joining a Gulf War Illness (GWI) study/trial, please complete the Recruitment Registry Form. https://redcap.nova.edu/redcap/surveys/?s=Y9YF8JJWJRK8HEKL%20&_gl=1*1plljqo*_gcl_aw*R0NMLjE3MDc5MTgwMzIuRUFJYUlRb2JDaE1JeWNyUXVfcXFoQU1WU1pCYUJSM3AyQWRBRUFBWUFTQUFFZ0s1NWZEX0J3RQ..*_gcl_au*MTg2NjgwMDQ4Ni4xNzA3MTQwNzgx …
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129 - Lily Spechler - The Long Covid Dietitian
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Episode 129 of the Long Covid Podcast is a chat with Lily Spechler, a registered dietitian who is working with people with Long Covid following her own experience with it. We chat through some of the trends she is seeing and some pointers for people to follow. Lily's Instagram: https://www.instagram.com/longcoviddietitian/ The Energy Expansion Proj…
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EP20: ME/CFS in Action: Transforming Chronic Illness Care
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Watch Jaime Seltzer and other experts share their expertise at the INIM Conference 2024 on May 10, 2024. Register here: https://www.nova.edu/nim/events.html In this episode, Haylie Pomroy and Jaime Seltzer discuss the challenges faced by patients with myalgic encephalomyelitis (ME/CFS) and Post-COVID Syndrome (or Long COVID) in obtaining proper dia…
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128 - Nigel McCracken & Sean Knight - Research into T-Cell Exhaustion
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Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid. We take a deep dive into T-Cells, immunology and the ques…
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In this week’s episode, host Haylie Pomroy is joined by Irina Rozenfeld, a board-certified nurse practitioner, to talk about Postural Orthostatic Tachycardia Syndrome (POTS), its effects on the body and working with clinicians to find the right treatment. The heart rate of individuals with POTS, when moving upright, elevates up to 30-40 beats per m…
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127 - Rachael's Long Covid Recovery Story
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Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement in a safe & supported way…
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EP18: Translational Research for Gulf War Illness Treatment
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Translational research is now a key player in advancing studies for Gulf War Illness. In this episode, Dr. Amanpreet Cheema, Program Director of Research Operations at the Institute for Neuro-Immune Medicine, discusses how the experts and researchers at the Institute effectively collaborate to translate scientific discoveries into real-world soluti…
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EP17: Virus Reactivation: Testing and Treatment
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In this episode, Haylie Pomroy delves deep into the perplexing world of viral reactivation with Dr. Nancy Klimas, Director of the Institute for Neuro-Immune Medicine. Dr. Klimas, with her wealth of expertise, sheds light on how dormant viruses can awaken and the different triggers in our environment. This alters lives and challenges our understandi…
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126 - Joshua Roman talks about Long Covid, Music, Vulnerability & Connection
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Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself. Links: Joshua Roman Website "Immunity" Project Your …
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In this episode, host Haylie Pomroy and Dr. Jacqueline Junco explore acupuncture’s healing capabilities in addressing chronic illness. Originating from Traditional Chinese Medicine, acupuncture has been a proven and time-honored practice that taps into the body's natural healing mechanisms, offering relief and balance for people experiencing stress…
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125 - Peter Burt - Man Stuck on Desert Island!
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Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask for help - and then rec…
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EP15: Neuroinflammation: The Link Between Nutrition and the Brain
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In this episode, host Haylie Pomroy sits down with Dr. Richard Deth, Director of the Brain Research and Integrated Nutrition Center at Nova Southeastern University, to discuss the intricacies of metabolic pathways and how oxidative stress can be managed through diet and environmental control. Dr. Deth and Haylie also illuminate the connection betwe…
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124 - Dr Elizabeth So - East Asian Medicine & Acupuncture
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Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one of the biggest takeaways…
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EP14: Computational Biology: Treating Neuroinflammation With Brain Simulations
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Join Haylie Pomroy, the Assistant Director of the Integrative Medicine Program, as she explores computational biology with our esteemed guest, Travis Craddock, Ph.D., an Associate Professor with expertise in Psychology, Neuroscience, Computer Science, and Clinical Immunology at Nova Southeastern University. Together, they talk about simulating brai…
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123 - Jackie's Reflections on 4 years since "The Beginning" & Long Covid Awareness Day
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Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest here Episode 94 - my recovery story Message the podcast! (I can't reply to these messages - if you'd like a…
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EP13: Autoimmunity and Inflammation: How Research Can Break The Chain
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In this episode, Haylie Pomroy and Dr. Annette Fornos explore the transformative power of functional and integrative medicine in managing stress and chronic conditions. Dr. Fornos, with her rich background in internal medicine, shares her journey toward functional medicine, emphasizing its holistic approach to patient care. Dr. Annette Fornos also …
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122 - Professor Louise Cummings - Research into Cognitive & Linguistic Difficulties in Long Covid
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Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information - I hope you enjoy it a…
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EP12: The Power of Nutrition : Using Food As Medicine with Dr. Stephanie Petrosky
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Are you getting enough nutrition in your food and supplements? In integrative medicine, nutrition plays a crucial role in one’s wellness and overall physical health. But our modern lifestyles and busy schedules have occupied our time that meal planning and cooking are no longer an option. In this episode, Haylie Pomroy engages in an insightful conv…
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121 - Pamela Rose - Difficult Conversations in Chronic Illness
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Episode 121 of the Long Covid Podcast is a chat with Fatigue Coach Pamela Rose about those difficult conversations that can come up time and time again. We chat through some of her experiences and how they have led her to be able to work with & help people. And we also dive into those difficult conversations - which ones tend to come up most often,…
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EP11: Validating Patients With ME/CFS with Dr. Alison Bested
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In this episode, Executive Director Nathalie Sloane speaks with Dr. Alison Bested, one of our leading physicians at the Institute for Neuro-Immune Medicine. They sit down and discuss the importance of validating patients' experiences, especially for those with chronic, debilitating illnesses like myalgic encephalomyelitis (ME/CFS), fibromyalgia, an…
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120 - Dr Mark Faghy - Research update & first Long Covid anti-viral trial in UK!
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Episode 120 of the Long Covid Podcast welcomes the wonderful Dr Mark Faghy back to the podcast for a long awaited catch-up on all the research he's been involved in at Derby Uni, but also info on the first anti-viral Long Covid clinical trial - in the UK, if not the world! https://www.derby.ac.uk/research/showcase/long-covid-research/ Episode #103 …
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EP10: Medical Research: Making The World Healthier
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If you are interested in joining a Gulf War Illness (GWI) trial, please complete the Recruitment Registry Form. https://redcap.nova.edu/redcap/surveys/?s=Y9YF8JJWJRK8HEKL%20&_gl=1*1fipp18*_gcl_aw*R0NMLjE3MDc5MTgwMzIuRUFJYUlRb2JDaE1JeWNyUXVfcXFoQU1WU1pCYUJSM3AyQWRBRUFBWUFTQUFFZ0s1NWZEX0J3RQ..*_gcl_au*MTg2NjgwMDQ4Ni4xNzA3MTQwNzgx Seeking a medical in…
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119 - Daniel Gomez & Ewa Beldzik - MRI imaging study
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Episode 119 of the Long Covid Podcast is a fascinating discussion with Ewa Beldzik and Daniel Gomez about the Long Covid study they are doing involving MRI and mapping the brain during tasks. We dive a load into the study and it's absolutely amazing! A link to enroll in the study And their email for any questions: MGHLCOVID@MGB.ORG Message the podc…
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EP09: Functional Medicine: A Holistic Approach to Chronic Illness Treatment
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Haylie Pomroy welcomes Denise Kruszynski, a seasoned family nurse practitioner and functional medicine expert, to discuss the transformative care provided at the Institute for Neuro-Immune Medicine. Denise Kruszynski brings her extensive background in critical care to the forefront of combating chronic conditions, such as fibromyalgia and post-COVI…
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118 - Dr Sarah Myhill shares her experience of treating ME/CFS & Long Covid
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Episode 118 of the Long Covid Podcast is a chat with Dr Sarah Myhill about her experiences of working with people with ME/CFS and now Long Covid. We chat through her treatment protocol and some ideas to help that are practical & cheap - an important factor! Dr Myhill's website Books: - chronic fatigue book - paleoketogenic diet - ecological medicen…
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EP08: Integrative Medicine: Holistic Treatment For Chronic Illness
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Join Haylie Pomroy as she sits down with Dr. Jacqueline Junco, one of talented physicians in the Institute with a Master's in Oriental medicine, bringing a unique perspective to the table. As each individuals’ condition is complex, exploring alternative treatments in addressing chronic illness can bring immense benefits. This engaging conversation …
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117 - Leela O'Brien - Navigating Long Covid & finding meaning in life
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Episode 117 of the Long Covid Podcast is a chat with the wonderful Leela O'Brien about her experiences with Long Covid and what she has learned about herself in the process. A big takeaway from this is the "what can we do" and that we don't need to wait to be healed before trying to find ways to enjoy life, even if they are not what we wanted or ex…
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EP07: Environmental Medicine: How External Factors Play Into Chronic Illness
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In this episode, Haylie is joined by Dr. Irma Rey, Assistant Professor at the College of Osteopathic Medicine at Nova Southeastern University and Director of Medical Education at the Institute for Neuro-Immune Medicine. With a deep expertise in internal medicine, viral medicine, and a focus on immune deficiencies such as myalgic encephalomyelitis (…
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116 - Dr Claire Taylor - GP & expert advisor in Long Covid
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Episode 116 of the Long Covid Podcast is a chat with the fabulous Dr Claire Taylor. We take a dive into her previous experience which led her to Long Covid, and also to some of the common trends & useful strategies she is seeing with her patients. Claire Taylor Twitter Claire Taylor Website Claire Taylor Instagram Message the podcast! (I can't repl…
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EP06: Therapeutic Relationships: How Personalized Medicine Works
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Host Haylie Pomroy joins Board-Certified Nurse Practitioner Irina Rozenfeld to delve into the heart of personalized medicine. They explore the importance of therapeutic relationships, the ins and outs of patient-centered care, and the significant impact for clinicians to provide personalized attention. The most skilled physicians and medical practi…
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EP05: Finding Hope And Help For Chronic Disease
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Struggling with a complex disease can feel like navigating a maze with no exit in sight. It’s a journey of misdiagnosis, confusion, and an intense search for answers. This is the sad reality most patients like you or your loved ones are facing – and we know it well. Our Executive Director Nathalie Sloane has worked tirelessly to carve a path of hel…
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115 - Lauren Stiles - a deep dive into Dysautonomia Research
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Episode 115 of the Long Covid Podcast welcomes back CEO of Dysautonomia International Lauren Stiles to chat about research into Dysautonomia, and how this is relevant to Long Covid. This is a fascinating discussion, which dives back into research pre-Covid that is (or should be) informing research happening now. We also take a look at trials and st…
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