Patient advocacy is a critical area in healthcare that is transforming the lives of patients across the country by helping them overcome barriers to access and care. Join Sanofi US Head of Public Affairs and Patient Advocacy, Eric Racine, and his co-hosts to meet some of the unsung heroes leading patient advocacy organizations. In each episode, we will discuss the challenges each group has faced and share actionable insights to address gaps and help make the U.S. healthcare system work bette ...
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Long-Term Impact: Aggregating Data to Accelerate Innovations for Patients
14:06
14:06
Play later
Play later
Lists
Like
Liked
14:06
To help make an impact for patients, it's important to have a comprehensive understanding of how a disease impacts their day-to-day lives. Michael Osso, Chief Executive Officer of the Crohn's & Colitis Foundation knows this well. He and his team created a comprehensive research ecosystem that harnesses data– from reported anecdotes to clinical data…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
An Advocate's Journey to Put Patients at the Forefront of Research
13:36
13:36
Play later
Play later
Lists
Like
Liked
13:36
Patient advocacy groups have become a powerful force engaging with clinical researchers. The National Bleeding Disorders Foundation (NBDF) has been one of the best at driving a research agenda that matters to patients, yet they still saw areas for improvement. Maria Santaella, Vice President of Research Strategy at NBDF, realized the importance of …
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Building a Leader: How to Grow with Your Patient Advocacy Group
21:29
21:29
Play later
Play later
Lists
Like
Liked
21:29
What does it take to grow a patient advocacy group from the ground up to become a driving force for patients in the US? Learn how Julie Block, President and CEO of the National Eczema Association (NEA), defined a bold long-term vision and learned to trust her team to stay true to the plan. Defining a five-year strategic blueprint, NEA took a broad …
…
continue reading
![Artwork](/static/images/128pixel.png)
1
The First Cancer Center on Native Land – From Promise to Reality
18:25
18:25
Play later
Play later
Lists
Like
Liked
18:25
What does it take to improve access to specialty care for vulnerable and underserved populations? What if the starting point is a complete lack of specialty care services? When Kim Thiboldeaux, CEO of the Northeast Business Group on Health, was told there was no cancer or specialty care on Native American reservations, her first reaction was shock,…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Many Voices, One Goal: The Power of Alliances
20:51
20:51
Play later
Play later
Lists
Like
Liked
20:51
Cancer can be an isolating condition, so Meredith Cowden has made it her mission to ensure other patients are not alone. Meredith, a cancer survivor living with chronic graft versus host disease (cGVHD), responded to adversity by forming the Meredith A. Cowden Foundation with her family to support and advocate for fellow transplant patients. The ke…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
Capturing Data to Evaluate and Communicate Impact
17:40
17:40
Play later
Play later
Lists
Like
Liked
17:40
Impact is a word we often use in patient advocacy. We know it’s important to the patients and communities being served, and that it also matters to the funders of advocacy programs. But how do you capture impact, when do you start, where does the information come from, and how should it be communicated? Sanofi host Eric Racine and co-host Elizabeth…
…
continue reading
![Artwork](/static/images/128pixel.png)
1
How to Create Partnerships That Build Trust and Deliver Outcomes
15:12
15:12
Play later
Play later
Lists
Like
Liked
15:12
Building trust and improving health in underserved communities can be a daunting challenge. Most would agree that “it takes a village,” but how do you create that village, and who are the right partners? In this premier episode of “Patient Advocacy Voices,” Sanofi host Eric Racine and his co-host Courtney Peters discuss this challenge with Dr. Laur…
…
continue reading
By Sanofi US Patient Advocacy
…
continue reading