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Welcome to Finding Your Range, the Podcast which uncovers the truth behind living with hypermobility, Ehlers-Danlos Syndrome and chronic pain. Your host is Jeannie Di Bon, a movement therapist who specialises in working with clients with these conditions. She is also the author of two books - Pilates Without Tears and Hypermobility Without Tears. She is an educator of teachers and therapists in the field of movement for hypermobile patients and speaks regularly for The EDS Society and the HM ...
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Talking Community Engagement with Karina Sturm | Finding Your Range Podcast S2:E12
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Please join me in welcoming Karina Sturm to Finding Your Range podcast. Karina is a multi-media journalist and filmmaker from Germany who lived in the US for seven years. She gained significant scientific knowledge through studying laboratory technology and working in research for several years. Due to a chronic illness and invisible disability, sh…
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EDS Patient Advocacy | Finding Your Range Podcast S2:E11
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We often find it hard to advocate for ourselves. I’m delighted to be joined this week by a leading expert of patient advocacy. Please join me in welcoming Maggie Buckley to Finding Your Range. Maggie Buckley, MBA, BCPA, has been a Health and Patient advocate for more than 25 years while living with the chronic pain condition Ehlers-Danlos Syndrome.…
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Talking Occupational Therapy for Hypermobility | Finding Your Range Podcast S2:E9
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I’m excited to speak with Jo Southall in this episode of Finding Your Range. Jo is an Independent Occupational Therapist and expert patient with many years of experience self-managing complex health conditions. She lives with Hypermobile EDS, Postural Tachycardia and Visual Stress. Her own lived experiences combined with OT theory form the basis fo…
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Talking Nutrition and Hypermobility with Lorna Ryan | Finding Your Range Podcast S2:E9
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This week I am joined by Lorna Ryan. Lorna Ryan is a registered Nutritionist/Nutritional Therapy and Lifestyle Medicine Practitioner specialising in supporting those with Hypermobility (hEDS/HSD). She has particular interest in gastrointestinal manifestations & autonomic involvement, an interest directed from her personal backstory of living with h…
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Living with Autism and EDS | Finding Your Range Podcast S2:E7
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In this episode of Finding Your Range, we talk to Jane Green. In June 2018 Jane founded SEDS to increase local specialised support and improve awareness, knowledge and understanding of EDS/HSD and co-occurring conditions plus advocate in key areas of health, social care, education and transport accessibility locally. Previously, she taught at St P…
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Talking Pregnancy and EDS | Finding Your Range Podcast S2:E6
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In this unique episode of Finding Your Range podcast we here from a panel of prenatal and postnatal members of the hypermobile community. We discuss what issues and experiences they have had with getting pregnant, being pregnant and moving into postnatal. We know that female hormones play a huge role in hypermobility symptoms and pain. We explore t…
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Talking How To Manage The Menopause, With Dinah Simon | Finding Your Range Podcast S2:E5
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In this episode of Finding Your Range podcast, we hear from Dinah Simon – a Pilates teacher with a specialist interest in the menopause. I chat to her about the impact the menopause can have on women and how this can relate to EDS symptoms. A fascinating listen – I learnt a lot. Here’s an intro from Dinah: Teaching movement has been my passion for …
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Talking Mast Cell Remission with Keeya Steel | Finding Your Range Podcast S2:E4
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In this episode, we hear the extraordinary story of remission from mast cell reactions which has totally transformed the life of Keeya Steel. Keeya was a guest on Season 1 of the Podcast where she described how difficult her life had become. You won’t recognise her this time around. After a lifetime of symptoms, Keeya Steel was diagnosed with mast …
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Talking Pain and Hypermobility with Dr Bluestein | Finding Your Range Podcast S2:E3
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In this episode we are joined by Dr Linda Bluestein. I’m delighted to talk to Dr Bluestein about her own EDS, her passion for dance and helping the hypermobile community of dancers and performing artists. Dr Linda Bluestein has been practicing medicine for over 20 years and has helped countless people restore function and improve their quality of l…
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Talking Scar Tissue with Ana Barretxeguren | Finding Your Range Podcast S2:E2
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Welcome to Episode Two. Today we are talking scar tissue – what is it and how does it impact our tissue. How is our movement with hypermobility impacted by scar tissue? We know that people with a connective tissue disorder are more prone to scar tissue complications. Here we discuss although this is not intended to be taken as medical advice.…
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Talking with Lara Bloom | Finding Your Range Podcast S2:E1
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Welcome back to Finding Your Range. We are kicking off Season 2 with an open and honest chat with Lara Bloom. Lara shares her experiences of living with EDS, the challenges she has faced and shares insights into her work at The Ehlers-Danlos Society. Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raisi…
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Season Finale | Finding Your Range Podcast Episode 16
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Huge thank you to all the guests who joined me on Season one of Finding Your Range. It’s been a pleasure to share your stories and expertise. We wanted to listen to the hoof beats and I think we definitely did that. Please take a quick listen to my season analysis.By Jeannie Di Bon
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The Truth About Exercise and EDS | Finding Your Range Podcast Episode 15
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Meet 3 people with EDS and hear our discussions on exercising when you have EDS and hypermobility. What works, what hasn’t worked, how important is exercise when you have hypermobility? These are just some of the questions we discuss in this episode. We are often told we need to exercise when we have hypermobility but many people have had poor expe…
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Dr Jessica Eccles Talks Fatigue, Anxiety and Trauma | Finding Your Range Podcast Episode 14
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I was so excited to interview our next guest. I think the podcast could have gone on 6 hours – it was so fascinating for the hypermobile community. This week I am joined by Dr Jessica Eccles. Jessica Eccles is a clinical academic psychiatrist at Brighton and Sussex Medical School. Her main areas of expertise are brain-body interactions, joint hyper…
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Athletes with EDS | Finding Your Range Podcast Episode 13
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Please meet two exceptional people who are using their passion for climbing to manage their EDS pain and symptoms – both physical and emotional. Welcome Yasmin and Anoushe. Yasmin is 26 years old and is from London. She is currently a Trainee Educational and Child Psychologist, which involves completing a 3 year doctorate. Yasmin was diagnosed with…
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Real Life Stories: Cognitive Behavioural Therapy Explored | Finding Your Range Podcast Episode 12
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Please welcome our guest Natalie Eyre, a Cognitive Behavioural Therapist from the UK. Natalie had various symptoms of EDS/HMS since the age of 2 but it took until 2011 to get her diagnosis (22 years old). She has struggled a lot with various symptoms throughout her life, but through a combination of Pilates, appropriate physio and psychological sup…
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Real Life Stories: A Teenager Navigating Her Life With HSD | Finding Your Range Podcast Episode 11
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If you think that HSD is a lesser diagnosis or causes less issues than hEDS, please listen to this latest interview with Rachel, a 17 year old who is beginning to navigate life with her new HSD condition. Rachel is a senior in high school with interests in piano, language learning, ballet, and pretty much anything related to the study of the body a…
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Real Life Stories: Tools to Manage Chronic Pain | Finding Your Range Podcast Episode 10
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Welcome to this episode of Finding Your Range. Today we are joined by a guest expert patient who has hypermobility spectrum disorder. Bethany is 37 and married with 3 children. She works full time as an RN transplant coordinator, caring for patients who have had a kidney transplant. Her symptoms started 13 years before her diagnosis after her first…
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Real Life Stories: Hypermobility Management Systems | Finding Your Range Podcast Episode 9
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On this episode of Finding Your Range, we have another Real Life Story. These stories are crucial to this podcast – it is time we heard from directly from people living with chronic illness. I’m delighted to welcome Laura to the podcast who shares her personal journey living with a connective tissue disorder. Laura is a mother living in Canada with…
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A Dietician with EDS Shares Her Story | Finding Your Range Podcast Episode 8
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This is such a popular topic – nutrition, EDS and hypermobility. I am delighted to be joined by Bonnie Nasar who is an EDS & POTS warrior. She is also a registered dietitian with a virtual private practice specializing in chronic pain conditions. She has researched evidence-based dietary practices to help people feel better without giving up the fo…
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Real Life Stories: Living with Mast Cell Activation Syndrome | Finding Your Range Podcast Episode 7
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Want to learn more about living with EDS and Mast Cell Activation Syndrome? Take a listen to this episode to hear a real life story. After a lifetime of symptoms, Keeya Steel was diagnosed with mast cell activation syndrome in 2015. Soon after, in effort to cope with the disease, Keeya created Hell's Bells and Mast Cells, a blog and collection of m…
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Fabulous Fascia | Finding Your Range Podcast Episode 6
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In this Episode of Finding Your Range, I had an amazing discussion with Julian Baker. Julian brings passion, energy and a unique way of explaining things. Julian Baker is the founder of Functional Anatomy and Functional Fascia. He has thousands of hours of dissection experience, as well as 30 years as a Bowen Therapist and is the principle instruct…
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Every Breath You Take | Finding Your Range Podcast Episode 5
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In this Episode of Finding Your Range, we talk breath. We delve deep into how breathing pattern disorders develop in the hypermobile body and how we can change our breathing patterns. Discover what influences your breath and enjoy a beautiful guided visualisation at the very end. Don’t miss it! Today we welcome Ana Barretxeguren. Ana Barretxeguren …
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Let's Hear It For The Boys | Finding Your Range Podcast Episode 4
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The content of this podcast is not intended to replace medical advice or act as medical advice. Simon is 41 years of age and lives in Devon in UK. His interests are bodyboarding, snorkelling and anything in the ocean! As a child he spent time in Great Ormand Street Hospital in London having tests and received his diagnosis in his early teens. He is…
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Real Life Stories: A 25 Year EDS Journey | Finding Your Range Podcast Episode 3
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Please note the information contained in this podcast episode is not designed to be medical advice or to replace any medical advice you may have received. Dana Carter is a 37-year-old female who lives in Tampa, FL USA. She's married with 2 children, ages 7 and 5. She works part time as a woman's health nurse practitioner, partly to help women of al…
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Why The Foot? | Finding Your Range Podcast Episode 2
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Welcome to Episode 2 of Finding Your Range. In this episode I am delighted to welcome our guest, Gary Ward. There is nothing about the foot that this man does not know and given hypermobility can cause many foot related problems and pain in other parts of the body, I was super keen to speak with him. Gary Ward is an author, educator and speaker on …
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Listening to the Hoof Beats | Finding Your Range Podcast Episode 1
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Welcome to my Podcast! Today I unveil the vision behind this podcast and discuss what’s behind the name. This podcast will feature expert guests and patient stories to uncover hypermobility and chronic pain. Thanks to my fellow Zebra Philip Quigley, a musician from Lancashire, who wrote the music for this podcast. The information provided is not de…
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