Best AVM Podcasts (2024)

1
Riding Lifes Waves - Brooke Colless and a rare AVM Spinal Injury effecting her eldest, Kai. 48:08

5h ago48:08

48:08

What do you do when your on an adventure of a life time overseas with your husband and 5 kids, when your eldest son becomes increasingly unwell, and after seeking out medical help, you hear the diagnosis - he has a rare AVM on his spinal cord? Brooke Colless has lived this incredible story. Its one of love, hope and faith. Show Links: Brooke Colles…

1
S3E4: Surviving AVM with MHP’s #1 Intern, Andrew Penarubia! 35:27

26d ago35:27

35:27

Did you know, 10% of people in the US under the age of 45 experience having a stroke? In this episode, Alison and Eryn interview of childhood survivor of AVM rupture, Andrew Penarubia. Andrew is the one and only intern for Making Headway Podcast. His claim to fame didn’t start there though. Since being left with only one fully functioning hand he h…

1
S3E8: Beyond a Headache with Gia Patel 53:10

9h ago53:10

53:10

The third in our brain aneurysm awareness month series does not disappoint! Gia Patel a teenage survivor of a brain aneurysm rupture comes on to talk about her experience and how she transformed it into an educational campaign supporting accurate diagnosis of childhood aneurysms. She also gives advice on storytelling, highlighting its importance fo…

1
S3E7: Brain Aneurysms and Women: Finding a Diagnosis and Symptom Relief 50:07

4d ago50:07

50:07

Summary In this conversation, Tawnie, an aneurysm survivor, shares her experience of misdiagnosis and delayed treatment. She discusses the symptoms she experienced leading up to her aneurysm rupture and the challenges she faced in getting proper medical attention. Tawnie emphasizes the importance of advocating for oneself and the need for better aw…

1
Trailer - Welcome 4:30

5d ago4:30

4:30

Hi and welcome to The Long Road. Hosted by Lisa McKelvey, a mother of 5 children ranging in age from 16 - 5 years old. She lives with her husband Steve in Goondiwindi, QLD. On boxing day 2021, Lisas second eldest son Beau, had a motorbike accident which resulted in a Spinal Cord Injury, at just 12 years old. Lisa has gained so much by speaking with…

1
S3E6: What Puts the Buzz in The Bee Foundation 35:55

11d ago35:55

35:55

Welcome to brain aneurysm awareness month! For the month of September, Making Headway Podcast and the The Bee Foundation have partnered to provide a month of episodes exploring resources for brain aneurysm survivors and caregivers. We will also be featuring more great survivor stories and advice. Today’s episode speaks with Erin Kreszel and Christi…

1
S3E5: Get Real Results! Supplementation and Craniosacral Therapy with Aaron Cloutier, DC and Anna Blash 57:27

19d ago57:27

57:27

Introduction This is the episode we have been searching for! We highly recommend it for anyone struggling to get the recovery results they hope for post brain injury. In today’s episode, Aaron Cloutier, Doctor of Chiropractics and Anna Blash an Upledger trained craniosacral therapist, massage therapist, and somatoemotional release expert guide us o…

1
S3E3: Find Your Tribe with TAAF 48:28

1M ago48:28

48:28

Feeling isolated after your diagnosis? Finding your tribe is life altering and tremendously helpful in facilitating your treatment and recovery from brain surgery and bleeds. TAAF is The Aneurysm and AVM Foundation, a foundation focused on supporting brain bleed survivors, grieving families, caregivers, and research. In this episode, Eryn interview…

1
S3E2: Updates from Eryn: Where She's Been and How She's Doing 51:41

1M ago51:41

51:41

Summary Did you know there are more than 5.3 million individuals in the U.S who are living with a permanent brain injury-related disability? That's 1 in every 60 people. In today's episode, Eryn updates everyone on where she has been and how she has been doing over the past few years. She shares with us her struggle with depression, the impact of C…

1
S3E1: Dear Jesus, Don’t Let my Son Grow up Without a Mom: Survivor Story with Host Alison House 56:02

2M ago56:02

56:02

Intro Welcome Back! Season Three is starting strong with a kick ass survivor and our new co-host Alison House. In today's episode, both Alison and Eryn go over their experiences as well as the many obstacles they face as stroke survivors. They share their experiences on how standing firm in their faith, showing gratitude, and spending time in natur…

1
Welcome to Season 3!! 12:25

2M ago12:25

12:25

Summary Season 3 of the Making Headway podcast is about to begin!! Fun things are in store as there is a new co-host joining Eryn. Welcome Alison House! Both Eryn and Alison are brain injury survivors and nurses, bringing a unique perspective to the show. They will continue to interview brain injury survivors who have achieved amazing things in the…

1
The Therapy Trifecta 21:54

6M ago21:54

21:54

Welcome to AVM Alliance, where we delve into the world of pediatric stroke and brain disorders with honest conversations and valuable insights for our community. In this episode, host Raylene Lewis shares her experiences from the International Pediatric Stroke Organization 2024 Congress and exciting updates from our AVM Alliance community events. J…

1
Creed's Story & What Will Never Be: Anticipatory Grief 20:32

8M ago20:32

20:32

Creed is missing the majority of his brain. He essentially only has his brain stem and all of his other brain is missing. Doctors deemed her child deemed incompatible with life, but Creed has defied the odds is now 9 years old. Melanie, Creed's mom, shares their story. What is anticipatory grief? It is the emotions associated with grief before the …

1
A Kid Again 17:41

8M ago17:41

17:41

I am excited to introduce our listeners to Ami Waggoner who has graciously come on today to tell us the story of her medically complex child Luke and Kathy Derr, founder and director of family engagement for the absolutely fabulous organization everyone should know about — A Kid Again created to provide kids with life-threatening conditions and the…

1
The Doctor is IN #3: Therapy for Kids 19:01

12M ago19:01

19:01

Happy October to all our listeners. October is Brain AVM Awareness Month. As a reminder, A brain AVM is a tangle of abnormal arteries and veins, that do not have the needed capillaries in between the connections. If you would like more information on Brain AVM’s: AVM Alliance, an official non-profit, now has its own website www.avmalliance.org. On …

1
The Doctor is IN #2: Medical Terms, Epilepsy & Pediatric Stroke 21:06

1y ago21:06

21:06

On this episode, we continue our interview with the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston as we go over questions parents submitted for our medical professional. Today’s episode continues the discussion, diving a bit into epilepsy, EEG’s and stroke in infants. Each episode for this season ends wit…

1
The Doctor is IN #1: Brain Vessels, MRI, & CTs Explained 17:03

1y ago17:03

17:03

We are beginning season two with a 3 part “The doctor is In” Series going over questions with Dr. Stuart Fraser, the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston. This month’s Part one episode focuses on medical terms parents read on radiology reports and goes into more detail about the different radiolo…

1
Against the Odds 21:17

1y ago21:17

21:17

Today is the end of season one, our 15th episode. We talk about why some parents of children who have suffered a stroke feel like they don't fit in and provide an analogy that hopefully will change that mindset. Our guests today are AVM Brain bleed survivors Kyler Lewis and Ashley Lindsey who talk about what it is like to deal with brain vessel dis…

1
The Kailee Mills Foundation 21:47

1+ y ago21:47

21:47

In Brain News, researchers have recently performed a successful surgery to repair a Vein of Galen Malformation, in a baby’s brain before birth. This month's interview is with Brianna McCulloch who runs the Kailee Mills Foundation-- a charity on a mission to save lives one seat belt click at a time. The podcast ends with a discussion of Chapter 11 o…

1
Appraisal Tools I Value 24:34

1+ y ago24:34

24:34

In this episode, I share some of the tools I use in the valuation services that I provide, that help me be more productive and professional.By Jamie Owen

1
Scars & Healing 18:26

1+ y ago18:26

18:26

A Pediatric ischemic stroke is a type of stroke that occurs when a blockage, such as a blood clot, reduces or completely stops blood flow to a part of the brain. This causes brain cells to be damaged or die, which can cause long-term disabilities. Our guest today, Mara Yale was introduced to the world of pediatric stroke when her 2nd child was diag…

1
It's Not All in My Head: An HHT Story 20:19

1+ y ago20:19

20:19

This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance of finding a doctor who takes the time to listen to …

1
Icing Smiles: Baking a Difference 19:50

1+ y ago19:50

19:50

This morning we are starting with a Brain News medical study. A study with the University of Cincinnati will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies to focus on this population. Our guest today is a spokesman from the sweetest non-profit I know, Icing Smiles, an organizatio…

1
Don't Dis My Ability 22:02

1+ y ago22:02

22:02

In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Jonathan Slifka who was born with spina bifida who discusses the importance of working together to make positive changes in what you want to see happen in life. We end with a discussion on redefining failure…

1
The Bright Side 23:59

1+ y ago23:59

23:59

In Brain News: Survivor, Malori Rodgers, just released her book “A Stroke a Heaven” which talks about her personal journey after a traumatic brain injury. Our guest today is Heather Golladay, who talks about the importance for looking at the bright side of things. Her husband suffered an ischemic stroke and she is the graphic arts designer for AVM …

1
Think TAAF 24:46

1+ y ago24:46

24:46

Today's episode includes a discussion on yesterday's MSN published article: “Doctors dismissed these 3 young people's symptoms as migraines or drug-related — but they were really having strokes.” We welcome guest Dina Chon with the Aneurysm and AVM Foundation and end with a short discussion on pain, perspective and PTSD as we finish chapter 4 of ou…

1
The Bare Minimum 20:04

1+ y ago20:04

20:04

This week, the short film Time Bomb was released to showcase the real life challenges of a rare disease diagnosis and was created with the help of The Aneurysm and AVM Foundation. With the holiday’s approaching, decadent treats and delicious food on the horizon it is no wonder heath and weight loss become added priorities on many a new year resolut…

1
Hope for Minds, Help for Dads 17:55

2y ago17:55

17:55

In today’s news we will talking about a new youth medial clinic that just opened this past November for children suffering from Cerebral Palsy, Traumatic Brain injury and stroke based on published journal findings on Hyperbaric medicine for brain injuries in children. We will be visiting with Tim Siegal who started Team Luke, Hope for Minds after h…

1
Aneurysms, Support & The JNF 19:19

2y ago19:19

19:19

Today we are talking about brain Aneurysms and will be visiting with Natalie Niekro who started the Joe Niekro Foundation after her father’s sudden passing from a ruptured aneurysm. And We will end with a short discussion finishing up Chapter 2 of our current focus book “Suffer Strong” by Katherine and Jay Wolf and, in particular, discuss hope as a…

1
A Decision Tree 20:05

2y ago20:05

20:05

Today we are going to be talking about the UCSF Pediatric Stroke Research Center and three of their current research projects headed by Dr. Heather Fullerton. We will visit with guest Jennifer Odell whose beautiful son Brayden gained his wings just days after his AVM rupture and learn what is important to families during this difficult time. We wil…

1
How Appraisers Value Non-Buildable Land 4:05

2y ago4:05

4:05

Do you have a little piece of land that you'd like to sell to your neighbor? How much is it worth? The answer to that question may not be as easy as you think. In this episode, I explain why and how appraisers value this type of land.By Jamie Owen

1
The AVM Research Foundation 21:33

2y ago21:33

21:33

Today we are going to be talking with guest Sherri Logan who started The AVM Research Foundation with her husband Mark and we will end with a short discussion on the second half of Chapter 1 of our current focus book “Suffer Strong" by Katherine and Jay Wolf. The AVM Research Foundation’s mission is to raise funds for AVM awareness, with their bigg…

1
Service Animals & Opportunity in Limitations 20:33

2y ago20:33

20:33

Today we are going to be talking about something many parents consider for their child who has a disability: service animals! We are going to go over the general ADA rules as well as the steps to take and things to consider when deciding if a service animal is the right addition for your family. Our guests are Terry and Nancy Cadel who own River’s …

1
A Mortgage Company Goes Rosie Robot 47:54

2y ago47:54

47:54

Have you heard of a mortgage company that uses Artificial Intelligence? How it is being used and how might it benefit potential borrowers? How might it help with fair housing? I sat down with Pavan Agarwal, CEO of Sun West Mortgage, to talk about their new AI. Click here for a to their website.By Jamie Owen

1
Awareness, Epilepsy & Struggles 20:00

2y ago20:00

20:00

Today we are going to get caught up on some Awareness Month information and statistics. Our guest on the show is Amy Danner, who is the mother of an AVM Survivor and Epilepsy warrior. We are going to end with a short discussion on the prologue and chapter 1 of our current focus book “Suffer Strong: How to Survive Anything by Redefining Everything" …

1
Is an AVM an Appraisal? 2:04

2y ago2:04

2:04

In this Quick Cast episode, I answer the question, is an AVM an Appraisal?By Jamie Owen

1
Don't Be a Mouse Jiggler 17:15

2y ago17:15

17:15

Have you ever heard of a mouse jiggler? Have you ever used one? What does a mouse jiggler have to do with real property appraising or any profession for that matter? One thing is for sure, being a mouse jiggler can hurt us and others. In this episode, I talk about what a mouse jiggler is and how that relates to other work.…

1
Be Efficient and Raise Your Property Value 35:50

2+ y ago35:50

35:50

Are you a building owner? Do you manage a condo association, coop, or HOA? Have you thought of raising your property value by making your building more efficient? Are you a homeowner or tenant looking to save a little money? In this episode, I sat down with Tina Larsson of the Folson Group to discuss saving money and raising property value by being…

1
S2 E60: The Mental Side of It All with Dr. Judy Gooch and Tyanne Crook, BrainStorm for Brain Injury 56:12

2+ y ago56:12

56:12

Our last episode of the podcast is definitely not the least! We’ve heard from so many of our listeners and have personally experienced just how much brain injuries can affect our mental health. From overstimulation to irritability; emotionality to anxiety; impulsiveness to depression; brain injuries really change how our minds work! In this episode…

1
S2 E59: Be All the You Can Be Post Injury! Heal the Brain with Jane Connely 45:12

2+ y ago45:12

45:12

Are you looking for community post brain injury? Are you trying to develop and become the new you? Do you need support? Look no further than Heal the Brain. Heal the Brain is a non profit offering active, virtual experiences that empower survivors with practical resources and social support. Through their workshops, Heal the Brain connects brain in…

1
S2 E58: Conquering Concussions with Melissa Biscardi from the Rehab Lab 52:56

2+ y ago52:56

52:56

Recovering from post concussion symptoms? Then we don’t need to tell you how challenging that can be. Melissa Biscardi, osteopath and registered nurse joins us from the Rehab Lab to talk about recovery. In her practice, she focuses on treating concussion through movement, vestibular training, nutrition, and mental health. Listen to learn about trea…

1
S2 E57: Medical PTSD with Emily Parks, founder of POP! Medical PTSD 47:47

2+ y ago47:47

47:47

After your brain injury, have you felt scarred by the medical community? Do you feel yourself pulling away from others, having intrusive thoughts, avoiding medical appointments, having increased anxiety about your health, or having trouble focusing on your appointments? You may be experiencing Medical PTSD. In today’s episode we have Emily Parks wh…

1
S2 E56: A Survivor’s Experience with CBD with Adrian Treadway 51:43

2+ y ago51:43

51:43

At Making Headway Podcast, we love to talk with people about different tools in their recovery toolbox. In today’s episode, we talk with TBI survivor Adrian Treadway. She shares her experience with using CBD as a recovery aide. Adrian has found CBD assists with pain, sleep, focus, and mental clarity. Learn tips from Adrian, the CBD connoisseur, on …

1
S2 E55: Craniosacral Therapy with Amy Mercury 58:41

2+ y ago58:41

58:41

Did you think you had heard of all the different types of therapy by now? We just discovered one more– craniosacral therapy! Craniosacral works with the body’s innate ability to self correct to homeostasis. It is a tool of consciousness helping you connect with your energy and your body’s ability to heal. Amy Mercury’s role as a craniosacral therap…

1
S2 E54: Tips for Recovery with Dr. Nidhi Shah DPT 52:07

2+ y ago52:07

52:07

Recovering from a brain injury is a physically and emotionally trying time. Addressing both your physical and mental health helps you get the most out of your therapy. Dr. Nidhi Shah, physical therapist fromYour Movement Specialist knows this all too well. In this week’s episode, Nidhi gives us tips to ground ourselves, strategies for better sleep,…

1
S2 E53: Limitless Life with Kyle Mengelkamp 1:14:42

2+ y ago1:14:42

1:14:42

Boom! You have a brain injury. Life as you knew it is forever changed. Your brain injury is a time of rebirth; a time to become something greater. Kyle Mengelkamp of Stroke of Genius joins us in this episode to talk about our potential. He introduces the concepts of resilience, mentorship, perseverance, vulnerability, and curiosity for all your lif…

1
S2 E52: Headaches Handled: Fasting for Relief with Susannah Juteau, Registered Dietician 58:01

2+ y ago58:01

58:01

Struggling with debilitating headaches? Have migraines taken over your life? There is hope beyond medications or elimination diets! Fasting has the potential to decrease brain fog, increase alertness, repair neurons, improve gut health, eliminate headaches and more. Today, Susannah Juteau MSc, CLT, RD talks with us about the benefits of therapeutic…

1
S2 E51: Regulators! Relearning Emotions Post Injury with Elle Gargano 1:06:14

2+ y ago1:06:14

1:06:14

Managing emotions can stump anybody. The ante is upped post injury since trouble regulating our emotions is a common side effect of brain injury. Elle Gargano and Eryn talk about their struggles and lessons learned through their experiences with emotional dysregulation. They get into it all; the anxiety, the ‘tantrums,’ trauma responses, and panic …

1
S2 E50: Survivor Story: Running Your Way Through Depression with Brooke Trotter 1:04:41

2+ y ago1:04:41

1:04:41

Depression is so real for many of us post injury. It robs us of feeling joy and part of life. It takes tremendous courage and strength to persevere and feel your sense of worth again. In today’s survivor story, Brooke talks about how he was able to reinvent himself post injury all while dealing with depression. He has used his experience to increas…

1
S2 E49: Hormones and the Brain with Michelle Rusk, MA, CCC-SLP 1:08:39

2+ y ago1:08:39

1:08:39

Struggling to feel energized and well post brain injury? Are you finding that you process and think differently? Michelle Rusk of Coastal Speech Therapy and Wellness addresses all of these things through providing speech therapy with a wellness coach’s touch. Not only can she address apraxia, aphasia, cognitive and executive function issues, but he…

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