Best Autoinflammatory Podcasts (2024)

1
Navigating Life with Lupus: Elizabeth's Story 24:55

3h ago24:55

24:55

What if you were diagnosed with a chronic illness at the age of five? In this heartfelt episode, we sit down with Elizabeth, who opens up about her lifelong battle with lupus. From the early signs of hair loss and severe fatigue to the relentless support of her mother and medical team, Elizabeth’s story is one of resilience and hope. She takes us t…

1
Navigating Healthcare with Patrick's Expertise 43:56

6h ago43:56

43:56

Ever wondered how small lifestyle changes can significantly impact chronic illness management? Join us for an enlightening conversation with Patrick, a dedicated Florida-based pharmacist who specializes in reducing medication burdens for those with chronic illnesses and autoimmune diseases. Patrick shares his holistic approach to healthcare, which …

1
Robbie's Chronic Empowerment Movement 34:10

5d ago34:10

34:10

Could your mindset be the key to overcoming chronic illness? This episode uncovers the transformative journey of Robbie, an autoimmune empowerment coach who turned his battle with Crohn's disease into a mission to uplift others. From a star gymnast to a certified personal trainer, Robbie has now dedicated his life to autoimmune-specific coaching. L…

1
A Transformative Journey through Multiple Myeloma with Sharon 39:14

7d ago39:14

39:14

What if the power to overcome a life-threatening illness lies within your mindset? Join us for an enlightening episode featuring mindset coach Sharon Banyas Hefetz, who bravely shares her journey of battling an aggressive form of multiple myeloma. Diagnosed at just 45, Sharon's story is not just one of medical treatments but of the incredible stren…

1
Kristine's Journey: Resilience, Rare Diagnoses, and Empowering Community 44:23

14d ago44:23

44:23

Can you imagine going from running marathons to fighting for a diagnosis that doctors initially dismissed as stress? Kristine has lived this journey, and she shares it with us in a gripping conversation about her struggle with chronic illness and rare diagnoses. From the first strange tweak in her foot to the emotional toll of being invalidated by …

1
Josie's Guide to Overcoming Autoimmune Challenges 46:09

28d ago46:09

46:09

Ever wondered if there's more to managing chronic illness than just medication? Discover the transformative journey of Josie, a fervent advocate for natural treatments for autoimmune diseases, as she shares her powerful story. From childhood ailments to grappling with rheumatoid arthritis and Hashimoto's, Josie's quest for healing led her to a holi…

1
Jessica's Recipe for Emotional and Physical Well-Being 55:02

1M ago55:02

55:02

When Jessica Mitchell, a health coach driven by a deeply personal narrative, steps into our podcast venue, the air fills with an undeniable energy of transformation and hope. Her sister's untimely passing ignited a fire in Jessica to champion the cause of lifestyle disease prevention, and she's here sharing her wisdom on how to forge a path towards…

1
Season 2: Episode 9 - Pediatric HS with Dr. Colleen Cotton 52:01

1M ago52:01

52:01

Join us as we talk about pediatric HS with Peds Derm Dr. Colleen Cotton! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcyddBy HS Connect

1
Being Each Other’s Lifeline 6:47

1M ago6:47

6:47

Do you ever feel like you're drowning in the midst of life's challenges? In this heartfelt mini-episode, I, Gracefully Jen, reflect on the importance of recognizing when our Spoonie Sisters are struggling and how vital it is to be that supportive lifeline for one another. We all wear masks to navigate our daily lives, but it's crucial to see beyond…

1
Season 2: Episode 8 - Product Suggestions for HS 40:44

2M ago40:44

40:44

New to HS or an experienced warrior? No matter where you are in your journey, we all need help with product suggestions! Tune in to learn what works for us! www.hsconnect.org/product-suggestions Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcydd…

1
Jen's Guide to Thriving with Arthritis: Five Strategies for a Fulfilling Life 6:41

2M ago6:41

6:41

Are you ready to transform how you navigate the daily hurdles of arthritis? Join me, Gracefully Jen, for practical advice that promises to enhance your daily living with arthritis. Overcoming the challenges of chronic illness is no small feat, but with our latest episode, you'll learn five key strategies to rework your routine for the better. We fo…

1
Season 2: Episode 7 - The Advocacy/Influencer Journey & Where to Start 24:06

2M ago24:06

24:06

Let's talk about beginning the Advocacy/Influencer journey...where and how does it start? If this is something you're interested in learning more about, be sure to tune in! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcydd…

1
Annie's Blueprint Your Health & Wellness Coach 46:44

2M ago46:44

46:44

Navigating life with an autoimmune condition can feel like a solo journey, but it doesn't have to be. I had the pleasure of bringing in Annie, my health and wellness coach, who's an expert in turning living with autoimmune diseases into thriving despite them. Together, we unpack the art of crafting wellness plans that are as unique as your fingerpr…

1
Season 2: Episode 6 - Dishing with Denise, HS Connect Co-Founder 52:36

2M ago52:36

52:36

Dishing with Denise, HS Connect's co-founder! Learn how this whole HS Connect thing got started, why community is so important, and how that played a role in starting this organization! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcydd…

1
Unraveling the Threads of Invisible Illnesses with Olivia 44:11

2M ago44:11

44:11

As your host, Jen, I've witnessed firsthand the transformative power of getting the right diagnosis - it's a journey that can be as tumultuous as it is enlightening. That's why I invited Olivia Dennis to the show, where she bravely recounts her quest through the tangled healthcare system, grappling with the often invisible web of IBS, anxiety, OCD,…

1
Season 2: Episode 5 - Nutrition Talk with Jillian, HS Warrior & Registered Dietitian 45:58

2M ago45:58

45:58

Let's talk about nutrition with Jillian Ondreyka, HS warrior, Registered Dietitian, and owner of Embrace Health Nutrition! www.embracehealthnutrition.com Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcyddBy HS Connect

1
Laughing Through the Layers of Chronic Illness with Jewel 42:34

2M ago42:34

42:34

When your world is turned upside down by chronic illness, finding humor and connection can be your lifeline. That's exactly what happened when Jewel, the effervescent @thelipedemacushie, joined me for a chat that'll make you laugh, and nod along with understanding. We dove into Jewel's experiences with Cushing's disease, her surgeries, and the dail…

1
Season 2: Episode 4 - Wound Care for HS 40:37

3M ago40:37

40:37

Join us as we talk about wound care with HS! Hear directly from us what works for our HS and options for you to try! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcyddBy HS Connect

1
Leila's Melodic Journey 30:14

3M ago30:14

30:14

Leila's voice crackles with emotion as she recounts the moment her life took an unexpected turn with the diagnosis of Lupus and Sjogren's disease. Her candid narrative details the trials and triumphs of living with these stealthy autoimmune diseases, from the early signs that something was amiss to the latest treatment that's been her saving grace.…

1
Season 2: Episode 3 - More HS Info with Dr. Resnik 48:29

3M ago48:29

48:29

Join us as we talk more about HS with Dr. Barry Resnik! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcyddBy HS Connect

1
Resilient AF a Chronicle of Courage with Delicia 50:59

3M ago50:59

50:59

Struggle and healing often go hand in hand, as Delicia's gripping tale of resilience unfolds in our latest conversation. Facing a health odyssey that begins with severe allergies and the emotional scars of childhood trauma, she takes us through her diagnosis and the powerful connection between emotional distress and physical health. Her story is a …

1
Charting a Courageous Path Over Lupus and Polymyositis 36:36

3M ago36:36

36:36

When Lisa Norris, a part-time paramedic and former clinical trials researcher, recounts her 20-year struggle with lupus and polymyositis, it's not just a story of illness but of extraordinary perseverance. Our latest episode invites you into Lisa's world, where she navigates the complexities of her autoimmune diseases with the same precision and fo…

1
Season 2: Episode 2 - Nutrition with Cristina Curp 56:29

3M ago56:29

56:29

Let's talk food and nutrition with Made Whole cookbook author Cristina Curp! Hear about her journey with HS and how food and nutrition helped her and became her passion and livelihood! Make sure you like and subscribe so you can continue laugh & cry with us about all things HS! @hsconnectorg @hsfightclub @socialcydd TikTok: @cristina_maria_curp IG:…

1
Suzanne's Tale of Triumph and Transformation Through Holistic Practices 46:29

3M ago46:29

46:29

There's nothing more humbling than hearing the story of someone who's faced the gauntlet of health challenges and emerged with wisdom to share. That's precisely what you'll get as Suzanne Casamento joins us to recount her battles with chronic Lyme disease, medical gaslighting, and a complexity of health issues that would test anyone's resolve. Her …

1
Season 2: Episode 1 - HS Surgery with Dr. Goldberg 1:14:52

4M ago1:14:52

1:14:52

Welcome to Season 2!! We're so excited to be back with more episodes! This episode we're talking all things HS surgery with Dr. Stephanie Goldberg. Dr. Goldberg is a wonderful surgeon who has focused her career on helping those with HS. Join us as we learn more about surgery options and even surgery for @SocialCydd's bum and what Dr. Goldberg would…

1
Journey to Sexual Fulfillment Amidst Medicinal Realities 42:12

4M ago42:12

42:12

Have you ever wondered why we carry certain beliefs about sexuality, or how those beliefs impact our intimate relationships? In a riveting discussion with Dr. Fanny the Baker, an acclaimed sex coach, we unravel the intricate web of sexuality myths and the profound influence of sex education on our perceptions. As we examine the delicate interplay b…

1
Episode 11 - Season Recap With Your Girls! 25:34

4M ago25:34

25:34

WOW! Hard to believe it's the end of Season 1, but there's more coming with Season 2!! In this recap we'll talk about our favorite episodes of Season 1 including HS 101 with Dr. Daveluy, better understanding of the mind/body connection with Dr. Barr, and clearing up misinformation about HS. If you've learned one thing from this first season, we hop…

1
Traversing the Terrain of Still's Disease with Carrie 49:16

4M ago49:16

49:16

When resilience meets wisdom, stories like that of Carrie Shepperson unfold. Her journey through the labyrinth of Still's disease, narrative rich with city savvy and mountain wisdom, is one I had the privilege to uncover. Carrie, hailing from Kentucky and a steadfast volunteer at AiArthritis, shares her personal odyssey from bewildering symptoms to…

1
Episode 10 - Let's Talk About Sex 40:14

4M ago40:14

40:14

YES, you read that right! We know talking about sex & intimacy can feel uncomfortable for those of us living with Hidradenitis Suppurativa. BUT, we are ready to dive in and talk about what it looks like for us.. How we talk to our partners about our scars/ wounds & how to navigate the conversation! This will be a good one you don’t want to miss! No…

1
The Heartfelt Journey Geri an Advocate & Writer 31:07

4M ago31:07

31:07

Have you ever found a friend in the most unexpected of places? On our latest episode, we're joined by Geri, a beacon of hope from the chronic illness community on Instagram, who opens up about her life with Lupus and Sjogren's syndrome. Her story is a testament to the strength and solace that virtual friendships can provide, especially when real-li…

1
Episode 9 - Mental Health with HS 34:30

5M ago34:30

34:30

As HS warriors, we know the physical pain Hidradenitis Suppurativa brings, but for a lot of us the battle doesn’t stop there. Mentally, HS can be draining and leave you feeling all alone, which couldn’t be further from the truth. As we dive into some topics that have helped us navigate the mental burden we hope you know you’re not alone and at leas…

1
Emmanuel's Crusade for Workers with Autoimmune Diseases 23:25

5M ago23:25

23:25

When Emmanuel's life was touched by the invisible struggles of autoimmune disease within his family, it ignited a fire within him to champion the rights of workers grappling with similar battles. As the founder of the Workers with Autoimmune Aliments Alliance, his story—shared on our latest podcast—encapsulates the drive behind a movement that's no…

1
Unbreakable Bonds of a Rare Mom 38:20

5M ago38:20

38:20

Imagine shouldering the weight of chronic illness while your partner is deployed, leaving you to single-handedly care for children who also navigate their own health complexities. Welcome back Kenzie, the Rare Mom, as we delve into her raw and hopeful narrative of managing mixed connective tissue disease and a blood coagulation defect. As she coura…

1
The Unseen Voyage of a Rare Mom 30:20

5M ago30:20

30:20

When Michelle first learned of her daughter Hailey's rare diagnosis, an ultra-rare genetic disorder called Jordan's Syndrome (ppp2r5d), the ground beneath her seemed to shift. Facing the labyrinth of healthcare during the COVID-19 pandemic, she became a beacon of resilience, her story a mosaic of love, adversity, and unwavering determination. Join …

1
Sailing the Spoonie Seas: Jess Hay's Journey Through Chronic Illness and Finding Joy 35:17

5M ago35:17

35:17

As the sun sets on another day of managing the delicate balance of chronic illness, I sat down with Jess Hay, a resilient "Spoonie Sister" who graciously opened up about her life woven with challenges and triumphs. Our intimate conversation traverses Jess's early health struggles to her current dance with multiple conditions, including celiac disea…

1
Gathering Strength with Every Spoon A Poetic Journey 4:03

5M ago4:03

4:03

Have you ever felt the weight of the day before it even begins, knowing that each task demands a piece of your already dwindling energy? Embrace the power of the girl with spoons as I, Gracefully Jen, recite a moving poem that captures the essence of living with chronic illness. Through spoken word, we explore the tender narrative of conserving ene…

1
Terry Tucker's Playbook for an Extraordinary Journey 39:35

6M ago39:35

39:35

Have you ever met someone whose sheer presence, both physical and metaphorical, can fill a room with inspiration? Terry Tucker, a former NCAA Division I basketball player turned SWAT hostage negotiator, embodies just that. Balancing on the towering height of six-foot-eight, Terry walks us through the valleys of his life, including his battle with a…

1
An Expert Perspective on Polygenic Autoinflammatory Diseases Sponsored By Novartis Pharmaceuticals Corporation 7:10

6M ago7:10

7:10

Drs. Liebowitz and Mehta discuss the clinical features, early recognition, complications, and management transitions from childhood to adulthood for patients with polygenic autoinflammatory diseases.By Dr. John Cush

1
The Voyage Through Epilepsy with Tiffany 30:55

6M ago30:55

30:55

When Tiffany Kairos was just 16, her life took an unexpected turn with the onset of epilepsy, a journey that taught her how to find humor in the face of adversity. Join us as Tiffany, founder of the Epilepsy Network, shares her transformative tale from confusion to advocacy, infusing each challenge with a dose of laughter. In our heartfelt conversa…

1
Girlfriend's Guide To Lupus 41:19

6M ago41:19

41:19

Discover the unmasked realities of lupus with Amanda Chay, the brave voice behind the Girlfriend's Guide to Lupus, in an episode that's as heartfelt as it is insightful. Amanda doesn't just share her story; she opens the door to a world where autoimmune challenges are the norm, not the exception. From her own two-decade struggle to a diagnosis and …

1
Embracing Self-Care and Pleasure: Dr. Fanny Le Boulanger's 40:03

6M ago40:03

40:03

What if you could transform your life's greatest struggles into sources of strength and self-love? This episode brings you an inspiring conversation with Dr. Fanny Le Boulanger, a French doctor and sex coach who did exactly that, following her epilepsy diagnosis at the age of 26. Dr. Fanny opens her heart about how she navigated the challenges of s…

1
Harnessing the Power of Mindset & Habits 25:27

6M ago25:27

25:27

Ever wondered how you can take control of your health while living with an autoimmune disease? Our special guest, Amy Behimer, is a Doctor of Pharmacy and Nationally Board-Certified Health and Wellness Coach who lives with multiple sclerosis. She uses her education, training, and first-hand experience navigating life with autoimmune disease to help…

1
Trekking the Rheumatoid Arthritis Jungle with Stefanie's Coaching 38:51

7M ago38:51

38:51

Navigating a chronic disease like rheumatoid arthritis can feel like trekking through a dense forest with no map. But what if we told you that there's a way to cut through the thickets, make sense of the path, and move forward with purpose and optimism? Join us for an enlightening conversation with Stefanie, a family nurse practitioner, and rheumat…

1
Managing Monogenic Autoinflammatory Diseases- What Rheumatologists Need to Know - Sponsored by Novartis Pharmaceuticals Corporation 11:41

7M ago11:41

11:41

Drs. Liebowitz and Mehta review the diagnostic concepts, risk factors, pathophysiology, and management of monogenic autoinflammatory diseases.By Dr. John Cush

1
StillsNow Podcast December 2023 - ACR23 Highlights 18:09

7M ago18:09

18:09

Dr. Jack Cush reviews selected AOSD & systemic JIA abstracts from the ACR 2023 Annual meeting held in San Diego, November 12th thru 16th.By Dr. John Cush

1
The Critical Role of Mental Well-being 6:32

7M ago6:32

6:32

Navigating the unpredictable world of invisible illnesses? Take heart. This episode of My Spoonie Sisters is a beacon of hope, promising an enlightening journey into the crux of mental health and its profound impact on our lives. Your host, Gracefully Jen, dives into the importance of mental well-being, its role in emotional resilience, coping mech…

1
Unveiling the Art of Anxiety Management: Insights from Brian's Journey 44:23

7M ago44:23

44:23

Ever felt your heart race, hands shake and a sense of shame wash over you during an anxiety attack? Our guest, Brian, bravely takes us through his personal journey, beginning with his first encounter with a panic attack on a date at 17. Brian's story underscores the importance of sharing personal experiences and having an open discourse about menta…

1
Finding Your Holiday Joy 5:42

7M ago5:42

5:42

Feeling the holiday pressure? Can't seem to find that festive joy amidst the chronic illness challenges? Hold on to your spoons, my wonderful warriors, because this Wow This Podcast episode is a heartfelt guide to finding joy in the holiday season irrespective of your physical constraints. I, Gracefully Jen, your ever-enthusiastic host, am here to …

1
Episode 8 - Triggers 24:23

7M ago24:23

24:23

Tune into episode 8 with the Hidradenitis SuppuraDIVAS where we talk TRIGGERS! Some of us have certain things that we know triggers our HS to flare up, others have no idea what their triggers are, and some are on a journey to find out...and ALL of these are OK! For some, triggers can be certain clothing, mechanical stress, sweat, friction, what you…

1
The Power of Authenticity in a Chronic Illness Journey 5:58

7M ago5:58

5:58

Wake up and smell the authenticity! Your host, Gracefully Jen, is getting personal and sharing her insights on why being true to oneself is essential, especially for those battling chronic illness. She's putting a spotlight on how chronic conditions can often blur our identities, and she's here to remind us of the power of authenticity - a tool tha…

Podcasts Worth a Listen

Autoinflammatory Podcasts

Podcasts Worth a Listen

Quick Reference Guide