The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a slight focus on pediatric stroke, Brain AVM / Aneurysm (brain vessel disease) and traumatic brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey. Thank you for joining us.
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Certified in Ayurveda and Functional Medicine, Nurse Practitioner Gillian Ehrlich, DNP, ARNP, IFMCP interviews guests who dive deeply into the nuances of medicine with the goal of inspiring you to persistently heal in the face of inevitable challenge across the lifespan. This is about ancient & cutting-edge understanding of disease processes and treatments just as much as it is about food, lifestyle, nature, culture, and politics.
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#80: DC Kim Bruno: Review of Neurologic Antibody Testing
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Chiropractor Kim Bruno furthered her training with theInstitute of Functional Medicine, ILADS, Horowitz Lyme Master Classes and holds a board-certification as a Certified Clinical Nutritionist. She owned a privatepractice for 17 years and was the functional medicine medical director for the largest immunology clinic in Colorado. She comes to us tod…
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#75 MD Todd Levine: Skin biopsies: getting information about the central nervous system through the skin
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Description: Dr Todd Levine, with 20 years of experience as a clinical neurologist with specialty in disorders of the peripheral nervous system, shares with us about the Syn-One skin biopsy run by his company, CND Life Sciences. Against a backdrop of clinical information about the divisions of the nervous system (central vs peripheral and sensory v…
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#79: MD Ferdinand Hui: Neurointerventional Surgery- exploring the diseases and treatments of the blood vessels of the brain
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Dr Ferdinand Hui is a rare gem of a surgeon- brilliant in his craft, able to communicate complicated concepts clearly, and caring and compassionate for the reality that disease can impart in the life of a person and their family. Here we get a chance to cruise around the blood vessels of the brain with a neurointerventional surgeon, who's focus is …
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#78 MD Gary Stobbe: Complex Basics of Autism
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Neurologist Gary Stobbe has been working with patients with autism since his residency in the early 1990's. Listen in to hear how this compassionate physician has been learning from his patients, their families and advocates. Dr Stobbe's perspective has evolved from the medical approach within which he was trained to now recognize the spectrum of s…
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#77 Whitney Mack: Women's Holistic Health, Hormones & Movement
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Description. This is a power-packed episode in which Whitney Mack walks us through what women should have been taught since birth about how our bodies work and how we can care for them lifelong. Turns out, we have an infradian (vs circadian) rhythm that drives our cellular communication/ hormones systems over time. This means that we are in constan…
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#76 Paul S. Malchesky, D.Eng., on Plasmapheresis: history, technology and potential benefit for deep disease & longevity
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Dr Paul Malchesky, with a Master’s degree in Chemistry and a Doctorate in Engineering, has been working with apheresis since the 1970’s. This is a blood filtration or ‘cleaning’ therapy we offer at Neuroveda Health as plasmapheresis (also called plasma exchange, PLEX and TPE (total or therapeutic plasma exchange)). There’s been a lot of recent exci…
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#74 ND Julianna Giles: Integrative Oncology (Cancer Care) soup to nuts
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Cancer is a tremendous topic. Dr Julianna Giles, ND, hasfocused her career on evidence-based approaches for this complex condition. Dr Giles now directs our Integrative Oncology program at Neuroveda Health in Seattle, Washington. In this podcast, she walks us through cancer, soup to nuts. This includes defining cancer, describing different types an…
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Welcome to AVM Alliance, where we delve into the world of pediatric stroke and brain disorders with honest conversations and valuable insights for our community. In this episode, host Raylene Lewis shares her experiences from the International Pediatric Stroke Organization 2024 Congress and exciting updates from our AVM Alliance community events. J…
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Creed's Story & What Will Never Be: Anticipatory Grief
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Creed is missing the majority of his brain. He essentially only has his brain stem and all of his other brain is missing. Doctors deemed her child deemed incompatible with life, but Creed has defied the odds is now 9 years old. Melanie, Creed's mom, shares their story. What is anticipatory grief? It is the emotions associated with grief before the …
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I am excited to introduce our listeners to Ami Waggoner who has graciously come on today to tell us the story of her medically complex child Luke and Kathy Derr, founder and director of family engagement for the absolutely fabulous organization everyone should know about — A Kid Again created to provide kids with life-threatening conditions and the…
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Happy October to all our listeners. October is Brain AVM Awareness Month. As a reminder, A brain AVM is a tangle of abnormal arteries and veins, that do not have the needed capillaries in between the connections. If you would like more information on Brain AVM’s: AVM Alliance, an official non-profit, now has its own website www.avmalliance.org. On …
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The Doctor is IN #2: Medical Terms, Epilepsy & Pediatric Stroke
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On this episode, we continue our interview with the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston as we go over questions parents submitted for our medical professional. Today’s episode continues the discussion, diving a bit into epilepsy, EEG’s and stroke in infants. Each episode for this season ends wit…
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The Doctor is IN #1: Brain Vessels, MRI, & CTs Explained
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We are beginning season two with a 3 part “The doctor is In” Series going over questions with Dr. Stuart Fraser, the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston. This month’s Part one episode focuses on medical terms parents read on radiology reports and goes into more detail about the different radiolo…
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Today is the end of season one, our 15th episode. We talk about why some parents of children who have suffered a stroke feel like they don't fit in and provide an analogy that hopefully will change that mindset. Our guests today are AVM Brain bleed survivors Kyler Lewis and Ashley Lindsey who talk about what it is like to deal with brain vessel dis…
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In Brain News, researchers have recently performed a successful surgery to repair a Vein of Galen Malformation, in a baby’s brain before birth. This month's interview is with Brianna McCulloch who runs the Kailee Mills Foundation-- a charity on a mission to save lives one seat belt click at a time. The podcast ends with a discussion of Chapter 11 o…
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A Pediatric ischemic stroke is a type of stroke that occurs when a blockage, such as a blood clot, reduces or completely stops blood flow to a part of the brain. This causes brain cells to be damaged or die, which can cause long-term disabilities. Our guest today, Mara Yale was introduced to the world of pediatric stroke when her 2nd child was diag…
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This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from and highlights the importance of finding a doctor who takes the time to listen to …
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This morning we are starting with a Brain News medical study. A study with the University of Cincinnati will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies to focus on this population. Our guest today is a spokesman from the sweetest non-profit I know, Icing Smiles, an organizatio…
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In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Jonathan Slifka who was born with spina bifida who discusses the importance of working together to make positive changes in what you want to see happen in life. We end with a discussion on redefining failure…
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In Brain News: Survivor, Malori Rodgers, just released her book “A Stroke a Heaven” which talks about her personal journey after a traumatic brain injury. Our guest today is Heather Golladay, who talks about the importance for looking at the bright side of things. Her husband suffered an ischemic stroke and she is the graphic arts designer for AVM …
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Today's episode includes a discussion on yesterday's MSN published article: “Doctors dismissed these 3 young people's symptoms as migraines or drug-related — but they were really having strokes.” We welcome guest Dina Chon with the Aneurysm and AVM Foundation and end with a short discussion on pain, perspective and PTSD as we finish chapter 4 of ou…
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This week, the short film Time Bomb was released to showcase the real life challenges of a rare disease diagnosis and was created with the help of The Aneurysm and AVM Foundation. With the holiday’s approaching, decadent treats and delicious food on the horizon it is no wonder heath and weight loss become added priorities on many a new year resolut…
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In today’s news we will talking about a new youth medial clinic that just opened this past November for children suffering from Cerebral Palsy, Traumatic Brain injury and stroke based on published journal findings on Hyperbaric medicine for brain injuries in children. We will be visiting with Tim Siegal who started Team Luke, Hope for Minds after h…
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Today we are talking about brain Aneurysms and will be visiting with Natalie Niekro who started the Joe Niekro Foundation after her father’s sudden passing from a ruptured aneurysm. And We will end with a short discussion finishing up Chapter 2 of our current focus book “Suffer Strong” by Katherine and Jay Wolf and, in particular, discuss hope as a…
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#73 John Moos, MD discusses his transition from trauma surgeon to psychedelic healer including research and current status of psychedelics for healing in the US
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Dr John Moos, MD discusses his transition from trauma surgeon to psychedelic healer- the unifying factor being proximity to trauma. He notes the trauma he initially treated with surgery most typically occurs within a container of many other traumas- social, political and economic violence, resource scarcity, fear, addiction, intergenerational traum…
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Today we are going to be talking about the UCSF Pediatric Stroke Research Center and three of their current research projects headed by Dr. Heather Fullerton. We will visit with guest Jennifer Odell whose beautiful son Brayden gained his wings just days after his AVM rupture and learn what is important to families during this difficult time. We wil…
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Today we are going to be talking with guest Sherri Logan who started The AVM Research Foundation with her husband Mark and we will end with a short discussion on the second half of Chapter 1 of our current focus book “Suffer Strong" by Katherine and Jay Wolf. The AVM Research Foundation’s mission is to raise funds for AVM awareness, with their bigg…
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#72 Jennifer Bahr, ND: All about Homeopathy and its use for children with PANS/PANDAS
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Dr Jennifer Bahr is a Naturopathic Physician with deep interest, experience and success in treating children using Classical Homeopathy for PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Acute-Onset Neuropsychiatric Disease Associated with Streptococcus). We start this show with the fascinating story of Homeopathy- his…
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Service Animals & Opportunity in Limitations
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Today we are going to be talking about something many parents consider for their child who has a disability: service animals! We are going to go over the general ADA rules as well as the steps to take and things to consider when deciding if a service animal is the right addition for your family. Our guests are Terry and Nancy Cadel who own River’s …
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Today we are going to get caught up on some Awareness Month information and statistics. Our guest on the show is Amy Danner, who is the mother of an AVM Survivor and Epilepsy warrior. We are going to end with a short discussion on the prologue and chapter 1 of our current focus book “Suffer Strong: How to Survive Anything by Redefining Everything" …
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#71: Arnold Eiser, MD: Intersections of Neuroscience & Public Health
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Dr Arnold Eiser, MD, MACP trained as a nephrologist over 40 years ago but has come to see that the kidneys, liver and other 'extracranial factors' (influences from outside the cranium, the skull holding the brain) hold some of the most impactful sway over the health of our brains. He's termed this relationship between organ dysfunction in the body …
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#70 Dr Tarun Singhal, MD on microglial activation as a common root of neuroinflammatoy conditions but also brain fog, fatigue and mood changes
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Microglial cells are responsible for sensing and driving the immune response in the central nervous system. Their activity, be it supportive or destructive, can be at the root of many different neuroinflammatory conditions including diseases like MS, ALS, Alzheimer’s, Parkinson’s, and TBI (Traumatic Brain Injury), but may also play a large role in …
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#69: ABORTION: SPECIAL EPISODE: Anuj Khattar, MD on the day Roe v Wade is overturned: Women's Realities of Reproductive Health in America
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Recorded on Friday, June 24, 2022, the day Roe v Wade was overturned by the United States Supreme Court, when safe full-scale reproductive health care responsibility was returned back to the states resulting in millions of women losing access to accurate information about safe reproductive care, this episode lays out the realities of abortion. We k…
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Coming July 8th from Partyfish Media! Oops, All Franchises is a new movie podcast ranking film franchises and sequels to find the best IP there ever was! What makes a good sequel? Does it have to be a good movie? Does it improve on the original? Does a good follow-up have to reward the fans for waiting on the edge of their seat, decade after decade…
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To Roar Like a Goddess is no joke and a responsibility not to be taken lightly. In this episode, Acharya Shunya rejoins us (see Podcast for Healing Neurology episode #42: Finding the Sovereign Self) for our first show together) to review some of the juicy bits of her new book, Roar Like a Goddess. We start with a definition of ‘goddess’ and how the…
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#67 Emily Gutierrez, DNP, CPNP, PMHS: Neuroinflammation in Kids including Autism, OCD, ADHD, PANDAS/PANS
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Autism, ADHD, OCD, and PANDAS/PANS are some of the challenging neuroinflammatory conditions in growing numbers of children these days. While the conventional treatment has typically been pharmaceuticals and behavioral therapies, we are truly in the midst of a paradigm shift aiming at root causes and asking 'why' and 'how' for both cause and treatme…
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Season 3 of Save The D8 drops this June 16th! All new characters with all new adventurers and... a brand new player, Shane Regan! People are getting abducted from their homelands and trapped in a prison with no name. Prisoners are kept under substandard conditions and either executed or forced to work for the prison when their time comes. Four of t…
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#66 Karyn Schwartz, community herbalist: Finding our relationship to plants
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Karyn Schwartz is a community herbalist what starts out with exactly what we need to know about herbalism, "If you are interacting with plants in any way, you are doing herbalism. If you are cooking with plants in your kitchen, you are doing herbalism. If you are making tea, you are doing herbalism. If you are sitting and listening to the grass, yo…
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Welcome to the World of Pokémon! Beyond The Ball is the premiere Pokémon research podcast! Join Professors Braden and Will each episode as they read all of the entries for a single Pokémon (selected at random) and try to reach a broader understanding of it and the wider world it inhabits, striving to make sense of the natural world of Pokémon, one …
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#65: Dr Howard Weiner, MD, Understanding the Neuroinflammatory diseases: MS, Alzheimer's, Parkinson's, ALS & Glioblastoma
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Dr Howard Weiner has been evaluating neuroinflammatory diseases for over forty years now. Multiple sclerosis (MS) is his main target, but in the show today, you’ll hear how comparing the causes and courses of Alzheimer’s, Parkinson’s, ALS (Amyotrophic lateral sclerosis), and glioblastoma can tremendously deepen our insight into all of these neuroin…
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#64 Aly Cohen, MD: All you need to know about WATER! Sources, Regulations, Contaminants and Chooseing Filters for your Drinking Water
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Dr Aly Cohen. MD and environmental health specialist (and very entertaining speaker), gives us the full low-down about our drinking water in the U.S.. She starts out describing how the 160,000 treatment plants in the US make up ~80% of our water sources and are bound only to the regulations, restrictions and testing from the Safe Water Drinking Act…
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#63: Anup Mulakaluri, ND: Heart & Spirit of Ayurvedic Neurology
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Despite being born into an Ayurvedic culture, Dr Anup Mulakaluri, ND, didn't seek out Ayurvedic training until his mom gained medical benefit this ancient science. As soon as he started his training, he knew he was at home and brings the cozy comfort of Ayurveda to each patient he sees and the teaching he does, like in our show today. He starts out…
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#62 Micki Maes: All about brain imaging; understanding x-ray, CT, MRI, PET scans especially for neurodegenerative conditions
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Marilyn (Micki) Maes, MS. RT, (R), (MR), (f), CRT, is a radiologic technologist, professional educator, researcher, 3D quantitative analyst, consultant, and manager with over 15 years of experience in performance and training regarding diagnostic imaging. Prior to her last 6 years at CorTech working with the Neuroquant, which is a specific type of …
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#61 Virtaj Singh, MD: Physiatry Treatments for the Hypermobile Body
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Dr Virtaj Singh, MD, gives us the physical medicine and rehabilitation perspective of the hypermobile body. We start out talking about how 'hypermobility' presents, starting with the various joints that can get hypermobile (spoiler alert: it's all of them). He explains how lax ligaments may trigger muscles to tighten in order to protect a vulnerabl…
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#60 Tami Hafzalla: Yoga & Ayurveda through Bhakti, a devotional life
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Tami Hafzalla hails originally from Cairo, Egypt, and found her spirit grounded & home-grown through her explorations of Yoga and Ayurveda. In this podcast, she brings us along on her journey originating in a curious & contemplative childhood, through psychology studies in college that triggered her introduction to Yoga, breath work, meditation and…
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#59 Alessandro Bitto, PhD: Biological Aging, Cellular Senescence, Mitochondria & the Gut
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Dr Alessandro Bitto is a researcher at the University of Washington who studies biological aging, mitochondrial function and metabolic disease. He walks us through the history, current thinking and some of the experimental data of cellular senescence, including the role of DNA damage and telomeres, some of the senolytic drugs (quercetin, Dasatinib …
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#58 Prisca Nwizubo, PMHNP: Non-Medication Mental Health with TMS: Transcranial Magnetic Stimulation
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Prisca Nwizubo is a Psychiatric Mental Health Nurse Practitioner who found herself most at home working with mental health and illness in innovative ways including especially with Transcranial Magnetic Stimulation and runs Eastside TMS Wellness in Washington State. She brings us through her journey that starts in a public area in Nigeria at age 6 y…
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REPOST: #42 Acharya Shunya: Finding the Sovereign Self
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How can we find authentic freedom, everlasting joy, and unshakable sovereignty? In this episode, Acharya Shunya shares the seven stages of falling through desire from consciousness to unconsciousness to discover our true nature and improve our health. Acharya Shunya is the first female leader in her 2,000 year Vedic lineage from India. Her insight …
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#57 Hiba Jameel: Iraqi nutritionist & artist on food, family, culture, food policy, blue zone eating, and the power of priorities and choices
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Ms Hiba Jameel grew up in Iraq during the Gulf War and transitioned from coming to the US as a refugee to studying Blue-Zone longevity & nutrition including the biomarkers regarding mTor & IGF1 during her Masters training at Tufts University. She paints us a gorgeous picture of sitting at her grandmother's table as a child with the fruits, nuts, ve…
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#56 Alissa Zingman, MD, Everything to know about EDS: Ehlers-Danlos Syndrome & Hypermobility Syndromes
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Dr Alissa Zingman is a physician board-certified in Occupational & Environmental Preventative Medicine. Prior to medical school, she was a professional dancer & pilates instructor. She also has a connective tissue disorder called Ehlers Danlos Syndrome Hypermobility Type, or hEDS, which makes her one of every 5000 people who may be functioning like…
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