Helping individuals with chronic illness can be very difficult because there are not always clear answers to their problems. That can be challenging, especially for doctors whose years of training have taught them to find problems and ultimately fix those problems. To overcome this, Eva stresses the importance of making a human connection with pati…

THE IMPACT OF ILLNESS ON FAMILY DYNAMICS: CLORINDA WALLEY “I don’t regret any of it. I probably would have done it differently. But I didn’t. You don’t get to choose what’s happened to you when it’s happening.” -Clorinda Walley About Clorinda: Clorinda Walley is the President of the Good Days charity, which funds medical expenses for those with chr…

Chronic Illness Trauma Treatment With Mindfulness: Veronique Mead “There are things like a mindfulness practice where you actually look at and work with and practice being with yourself as you are without judging and that's part of how I discovered my first triggers- by really paying attention and not thinking about my body is broken, but thinking …

Researcher & Patient Collaboration to Humanize Care: Ella Basala “ People really do accept and like us for who we are. It has taken a long time to understand that. As a younger person dealing with a chronic illness, that was definitely an inhibitor for me to make these close relationships and to just to be myself.“ – Ella Basala About Ella: Ella Ba…

Two Being Healthy and Social: Em & Kate Miller “ I feel like we all want this deep human connection and you're not going to have a deep connection without intimacy. “ – Emily Miller About Em and Kate: Eva was joined this week by Emily and Kate MIller. Emily and Kate are two sisters who have each been diagnosed with multiple chronic illnesses. They …

Doctor Dating Game: Joe Balewski “What you have to look for in a doctor is not somebody who gives you the diagnosis that you want. It’s finding the doctor who listens.” – Joe Balewski About Joe: Eva was joined this week by Joe Balewski. Joe is no stranger to the healthcare system - he has a lifetime of experience with Osteogenesis Imperfecta and, m…

Gender, Race, and Relationships (And Endometriosis): Lauren Kornegay “I never recommend advocacy for anybody who is not focused on themselves first. Because it is not an easy process. It is very overwhelming sometimes and you have to make sure that you are helping yourself because how are you going to help someone else if you aren’t helping yoursel…

Humancare Stories: An awareness and conflict resolution project. The Humancare Stories segment will be a collection of anonymously contributed stories from listeners like you, about negative interactions experienced within the context of healthcare – whether that be an interaction with a patient, provider, loved one, or stranger. For example, subit…

(Part 2) The Need to Humanize Healthcare: Stephanie Tait "Find ways to show up intentionally for your right now life, and don’t lose yourself to 'someday when.'" - Stephanie Tait Bio: Stephanie Tait is a disabled disability advocate with Lyme disease. In the fourteen years it took her to get a diagnosis, she struggled with miscarriages, medical ind…

The Need to Humanize Healthcare: Stephanie Tait “We can encourage the conversation” - Stephanie Tait Summary: Stephanie Tait is a disabled disability advocate with Lyme disease. In the fourteen years it took her to get a diagnosis, she struggled with miscarriages, medical indifference and sexism, and the birth of her two sons. Her book, The View fr…

WHEN YOU’VE TRIED EVERYTHING TO FEEL BETTER: DR. NICOLE RIVERA "Our biggest mission is to truly evolve how healthcare is being done by making sure we're figuring out the root cause....We want to look at the neurological system. We want to look at the mental, emotional. We want to look at the DNA. We want to look at all of those different avenues to…

Body Breakdowns and Self-Love Breakthroughs: Lisa Pachence "I want what's best for my clients and for the people that I serve, therefore I want to strive to be as excellent as I possibly can. So, I think that there's some good in survival mechanisms and there's also a way to shoot for the same goal, but from a place that is empowering, has a differ…

Allies and Advocacy: Spoonies Unite "Chelsea, especially with not having a chronic illness herself. Really did an amazing job of helping me believe that there are humans out there who don't have to experience what we're going through in order to have compassion and empathy and understanding.” – Cassandra Da’Luz Vieira Summary: Eva was joined this w…

Nurturing Relationships through Creative Resilience: Jenni Grover "There's opportunities to play and find joy and creativity, but we have to really look for them, and that goes for this tiny moment in world history of pandemic, it goes for living life with chronic illness - It just helps us feel like there's more to this life than what's right here…

Intuitive Eating, Body Image Resilience and Self-Trust: Holly Toronto "You are the number one authority on your body. That's what intuitive eating is about, it’s putting you back into the driver's seat.” – Holly Toronto Summary: Eva was joined this week by Holly Toronto, a certified Master Level Coach specializing in body image and intuitive eating…

"When people are empowered they often pay the favor forward by positively impacting other people's lives." – DR. PAYAL BHANDARI SUMMARY: Eva was joined this week by Dr. Payal Bhandari, M.D., a leading practitioner of integrative functional medicine and the founder of SF Advanced Health. She combines the best in Western and Eastern medicine to defin…

You Don't Know What You Don't Know: Tami Stackelhouse Finding your joy and purposefully adding joy into your life is what makes life worth living. It’s why we choose to say no to some things so we can say yes to other things. – Tami Stackelhouse Summary: Eva was joined this week by Tami Stackelhouse, a Fibromyalgia Coach, fellow podcast host & Auth…

“‘Something that is really heavy and big on my heart is just the fact that wherever you are, whatever you’re doing, wherever you’re at in life that you matter as a person. Whether you’re doing something super small or super big, if you’ve achieved your goals or you haven’t, or if you’re in bed all day or you’re not, you matter so much as a person’”…

HOW TO COPE DURING COVID-19: THE JOURNEY OF A PSYCHOTHERAPIST WITH PRIMARY IMMUNODEFICIENCY “GIVE YOURSELF PERMISSION TO COPE HOWEVER YOU WANT TO COPE…NO JUDGMENT NECESSARY” – JODI TAUB Jodi Taub is a psychotherapist with a private practice in NYC. She is a specialist in chronic illness and is a chronic illness warrior herself. Her first episode on…

“IT'S IMPORTANT THAT PEOPLE KNOW THAT IT IS GOING TO BE OK AND THAT THERE IS IS POSSIBILITY"' - Jodi Taub Jodi Taub, LCSW is a psychotherapist in NYC (currently providing telehealth only due to COVID-19). She has over 20 years of direct care experience with children, adolescents, and adults including individuals, couples, family, and group therapy.…

Know that most people have something going on in their life that is challenging, and they have their battles. For some it may be mental illness, the loss of a loved one, cancer, heart disease, financial stress / job loss. This isn’t to make you feel better about Fibromyalgia, but to make you feel better that you are not alone.- - Dr. Casey Sinclair…

"We’re all put on this earth for different reasons…when things get hard, don’t give up" - Hannah Olson SITE: https://www.wearecapable.org/ IG: @hanrosols @chronicallycapable TW: @hanrosols @chroniccapable FB: https://www.facebook.com/chronicallycapable/ Today my guest is Hannah Olson. She is the co-founder and CEO of Chronically Capable, a platform…

I’m Eva Minkoff - a chronic illness warrior, #Spoonie, person with a chronic illness – whatever you wanna call me, and I have fibromyalgia and hypermobility syndrome (possibly EDS, but still figuring that one out). I have been passionate about health since a young age and I have dabbled in the professional world of health for over a decade with deg…