Best Hypo Plastic Right Heart Syndrome Podcasts (2024)

1
Navigating the Emotional Landscape of Raising Children with Congenital Heart Defects 39:06

1h ago39:06

39:06

When your child's heartbeat is a symphony laced with irregularities, every moment becomes a measure of uncertainty. This is the world heart moms like myself, Anna Jaworski, and my guest Kelsi Rogers live in every day. Join us as we peel back the curtain on the mental marathon of raising children with congenital heart defects (CHD). Our raw conversa…

1
Heart Mom Kelsi Rogers on Jett's Electrical Problems with His Heart 49:25

22d ago49:25

49:25

This episode of "Heart to Heart with Anna" features a very special heart mom. Kelsi Rogers talks about the surprising circumstances around her son's heart condition. Born with an electrical problem in his heart, Jett has already faced life-and-death situations several times in his short life. Not even three years old yet, he has undergone an ablati…

1
An Author for CHD Adults with Learning Disabilities: Deanna Altomara 58:07

28d ago58:07

58:07

As an author myself, I understand the power of stories to heal and inspire. That's why I'm thrilled to introduce Deanna Altomara, who created "Chrysalis," a book to help people facing open-heart surgery. Born with a congenital heart defect herself, Deanna understands what it means to have had open-heart surgery. Deanna's tale is a testament to how …

1
Shattering Stereotypes in the World of Down Syndrome and Congenital Heart Defects 1:06:42

1M ago1:06:42

1:06:42

When Ellen Boyer's voice joins the conversation, the room lights up with an array of heartfelt stories and powerful messages. Together, we celebrate World Down Syndrome Day by shattering stereotypes and trumpeting the accomplishments of those with Down Syndrome. From the awe-inspiring feat of Chris Nikic, the first athlete with Down Syndrome to con…

1
Ellen Boyer and World Down Syndrome Day 2024 & Volume Two: Endurance! 1:02:02

1M ago1:02:02

1:02:02

When Ellen Boyer graced our show with her story of love and resilience, it was clear that her daughter Brett, who blessed the world with her presence despite Down syndrome and a congenital heart defect, has sparked a legacy that transcends every stereotype. Through the Brett Boyer Foundation, Ellen's dedication to challenging limitations and advoca…

1
Learning about Anesthesia During Ablations & Volume Two! 41:07

2M ago41:07

41:07

In this episode of Heart to Heart with Anna we welcome Frank Jaworski back to the program. Frank shares information about anesthesia when patients go to the electrophysiology lab (EP lab), especially when they need to undergo an ablation. Frank is a certified, registered nurse anesthetist (CRNA) and he has been delivering anesthesia for over 23 yea…

1
Embracing the Heartbeat of Motherhood: Meagan Houpt’s Adoption Journey 1:05:17

2M ago1:05:17

1:05:17

When Megan Houpt made the heart-wrenching decision to pursue adoption over pregnancy due to her heart condition, it struck a chord with me as a heart mom. Together, we unfold her narrative in this episode, navigating the complexities of adoption with a CHD. From the intricate dance of home studies to the emotional synergy with a birth mother, we jo…

1
Resilience in Motion: The Unseen Struggles of Adult Life with Congenital Heart Defects 59:33

2M ago59:33

59:33

Navigating life with congenital heart defects (CHD) is a journey of resilience and emotional fortitude. As I converse with my fellow heart mom, Rita Scoggins, we unearth the layers of complexity that come with raising adult children affected by CHD. This episode goes beyond the clinical; it’s an intimate foray into the emotional and logistical prep…

1
Threads of Resilience Sewn by Heart Moms and Their Children with CHDs 58:22

2M ago58:22

58:22

Navigating the torrent of emotions that come with being a heart mom to an adult child, Rita Scoggins and I, Anna Jaworski, unfold the layers of our unique journey. Our intimate conversation traverses the evolution of care, from the hands-on nurturing of our children's younger years to the complexities of supporting their maturity and independence. …

1
Heart Month News February 2024 and an Audiobook Surprise! 43:37

3M ago43:37

43:37

This episode of Heart to Heart with Anna involves news regarding Heart Month 2024. In this episode, you’ll learn about who our guest next week will be, how Congenital Heart Defect Awareness Day came to be and what it has evolved to. You’ll also learn about how Baby Hearts Press, a publishing company devoted to the CHD community, has a special sale …

1
Enriching Lives with CHD Support Networks and Healing Stories 47:54

3M ago47:54

47:54

Embark with us as we illuminate the enduring pulse of Hearts Unite the Globe, the non-profit championing an array of deeply impactful podcasts. From the heartfelt dialogues of Heart to Heart with Anna to the comforting echoes of Bereaved but Still Me, we're uniting voices across the congenital heart disease (CHD) community. Our mission extends beyo…

1
From Manuscript to Masterpiece: Tales of Tenacity and Triumph 47:27

3M ago47:27

47:27

Ever wonder about the emotional odyssey of creating a book that captures the essence of human resilience? My co-editor Megan Tones and I, Anna Jaworski, take you on the intimate trek behind "The Heart of a Heart Warrior," from the flicker of an idea to the jubilance of publication. Our conversation unwraps the passion and dedication needed to weave…

1
Embracing Healing: The Synergy of Functional Medicine, Aromatherapy, and Spirituality 56:14

4M ago56:14

56:14

Have you ever felt the tug of curiosity towards an approach to mental health that strays from the conventional path? Today, I'm thrilled to welcome Valerie Chavez MD and Ryan Hunter to share their insights on functional medicine's transformative role in mental health care, especially for those touched by congenital heart defects. Together, we unpac…

1
Uniting Hearts: A Decade of Hope, Support, and Volunteerism 21:10

4M ago21:10

21:10

As I sit back and reflect on Heart to Heart with Anna in the year 2023, I want you to celebrate with me, Anna Jaworski, as we mark a milestone of connection and growth within the congenital heart defect community. From the early days on Voice America to our move to Blog Talk Radio and beyond, we've weathered sponsorship storms and emerged stronger,…

1
Finding Hope Amidst Long Q-T Syndrome: Jackie Renfrow's Journey 33:57

5M ago33:57

33:57

Imagine living in a family where sudden deaths were a tragic norm. That's the reality heart mom Jackie Renford faced before the fateful identification of Long Q-T Syndrome, a genetic heart condition, in her family. Her misdiagnosis and the subsequent loss of her son and daughter have inspired her to become an advocate for early detection and treatm…

1
Battling Congenital Heart Defects: The Extraordinary Stories of Emily Falcon and Mabel's Friendship, Advocacy, and Resilience 32:37

6M ago32:37

32:37

How does a young child learn to fight, to survive, and even thrive when they're born battling a congenital heart defect? Join us as we journey through the inspiring life stories of Emily Falcon and Mabel, two extraordinary women who refused to let their heart conditions define them. Emily, born with the rare ALCAPA--Anomalous Origin of the Left Cor…

1
Exploring Functional Medicine: Harnessing the Power of Essential Oils and Holistic Health Approaches 53:53

7M ago53:53

53:53

Have you ever considered how your lifestyle choices could be affecting your health? Ever wondered about the benefits of essential oils or how to improve your gut health? Then you're in the right place. In a riveting discourse with renowned Valerie Chavez, MD, and Ryan Hunter, we delve into the heart of Functional Medicine. Together, we unravel the …

1
A-Kid-Again Family 47:47

8M ago47:47

47:47

Have you ever wondered about the strength that it takes to parent a heart warrior child? What does the journey of raising a child with a congenital heart defect look like? Meet Alison and Brian Blankenship, parents to two children, one of whom is a heart warrior named Ian. Ian was born with a critical congenital heart defect, and his parents are he…

1
An Unseen Threat: The Cody Watkins Story of Heart Failure and Recovery 52:46

9M ago52:46

52:46

Meet Cody Watkins, a beacon of resilience and health, who brushed against mortality when he discovered a congenital heart problem lurking beneath his ripped physique. Unaware of the ticking time bomb in his chest for 30 years, Cody offers a riveting recount of his journey within the world of bodybuilding, his shocking discovery, and how he's courag…

1
Navigating the Journey of Parenting Children with Autism and Congenital Heart Defects: A Heartfelt Conversation and Advocacy 40:32

10M ago40:32

40:32

As a heart mom myself, I know firsthand the unique challenges that come with raising a child with both a congenital heart defect and autism. That's why I invited Melanie Letzer and Kelly Blumenthal to join me for a candid conversation about their experiences navigating this complex journey. Together, we discuss the importance of trusting your insti…

1
Cardiac Chronicles and Community Connections: Leigh Kamping-Carder's Story 41:11

11M ago41:11

41:11

What if you could find a space to share your story, ask questions, and connect with others living with congenital heart conditions? Join me as I chat with Leigh Kamping-Carder, founder and writer of "The Heart Dialogues," a free newsletter that does just that. We discuss Leigh's own experience of living with tricuspid atresia, a single-ventricle de…

1
Heart Mom and Heart Daughter on Being a Mom 42:33

12M ago42:33

42:33

What was it like to give birth to a baby with hypoplastic left heart syndrome (HLHS) in the 1990s? How would it feel like to watch that miracle child grow up to become a mother herself? What is it like to then see your daughter's daughter for the first time? Answers to those questions and many more will be answered in this Mother's Day Special Hear…

1
Myocardial Bridging and Boots Knighton 39:24

1y ago39:24

39:24

What is myocardial bridging? Why might someone with myocardial bridging have a heart attack? What is The Heart Chamber? Boots Knighton is a 45-year-old myocardial bridging survivor from Victor, Idaho, and an avid mountain biker. She suffered a heart attack while biking when she was in her 40s. To correct the myocardial bridging, she underwent open-…

1
Mended Little Hearts Austin, Texas Coordinator: Dana Henning! 32:43

1y ago32:43

32:43

Dana Henning is mother to Evan Henning, who is a 12-year-old Heart Warrior born with a critical congenital heart defect. Evan has has multiple procedures and open-heart surgeries. His life is very full of therapy appointments, homeschool activities, and extra-curricular activities such as Special Olympics and track. Dana is musically gifted. She is…

1
Vicky Gooden: 2022 Baby Hearts Press People’s Choice Award Winner 33:24

1y ago33:24

33:24

Today's episode features Vicky Gooden, the author of My Wonder Line and the winner of the 2022 Baby Hearts Press People’s Choice Award. In this episode, we will hear about how Vicky came to write her book, what it meant to her to win the BHP People’s Choice Award, and what the future holds for this very special author and her book. Vicky Gooden is …

1
How Can You Do Heart Surgery Through a Hole in the Groin? 32:10

1y ago32:10

32:10

Welcome to the 4th and final Medical Monday mini-series episode of Heart to Heart with Anna for Heart Month, February 2023. How can you do heart surgery through a hole in the groin? It seems like magic, but is it? What is a Maze Procedure? Why might someone need a pacemaker, even if they've had an ablation? How can heart valves be replaced via cath…

1
A Heart Like Mine? 29:42

1y ago29:42

29:42

This is the final Heart Dad Sunday mini-series episode for Heart Month, February 2023. Frank Jaworski, Anna Jaworski's husband, and Heart Dad to a single ventricle heart warrior is back as the Guest Host. In this episode he interviews Dan Rodenbaugh. Dan is father to Caylee Rodenbaugh, who was born on June 26, 2009, at St. Luke’s hospital in Lee’s …

1
The Heart of a Heart Warrior Book Project 49:45

1y ago49:45

49:45

This is our final episode for our Saturday Success Stories mini-series for Heart Month, February 2023, and it's hard to imagine any greater success story than the 40 Heart Warriors who have come together to create an amazing anthology called The Heart of a Heart Warrior: Congenital Heart Defect Stories of Hope. This is the book that these Heart War…

1
CHDs in Society #4: The Movies 3:44

1y ago3:44

3:44

With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-series episode for Heart…

1
CHD Spotlight #4: Transposition of the Great Arteries 16:27

1y ago16:27

16:27

Welcome to the 4th CHD Spotlight episode for Heart Month 2023. Our Expert Guest is HUG MAB member, Chris Donald. Chris Donald is a pediatric cardiology nurse and she was born with a complex congenital heart defect. Chris Donald also serves on the Hearts Unite the Globe Medical Board. Today's CHD Spotlight is on a type of heart defect commonly refer…

1
Beauty Queen Author! 26:56

1y ago26:56

26:56

Here is another episode in our Wednesday Writer Chat series of “Heart to Heart with Anna.” This is a special mini-series produced for Heart Month, February 2023. Today’s show is Beauty Queen Author and our Guest is Faith Brackett. We’ll start today’s program by learning a bit about Faith and her health condition in Segment 1. In the second segment,…

1
Warrior Pets and More with Lilac Lumpkin! 30:30

1y ago30:30

30:30

How can one mom make a difference when it comes to children born with special needs? What kind of comfort and support is available to children living with a range of illnesses and disabilities? How can you get involved in helping our most vulnerable children feel supported? Lilac Lumpkin is a mom to angel Heart Warrior Jaxon, who was born with HLHS…

1
A Parent Heart-Lung Machine: The Ultimate Gift 28:40

1y ago28:40

28:40

This is the 3rd episode in our Medical Monday mini-series for Heart Month, February 2023. What pediatric cardiothoracic surgeon seemed "too Hollywood"? Why? What is cross circulation and what was this experimental technique the predecessor of? This Medical Monday episode deals with an amazing experimental surgical technique developed by Dr. C. Walt…

1
Carl Wolford: Heart Warrior, Dad, and Grandfather 32:48

1y ago32:48

32:48

Here is another Heart Dad Sunday episode for Heart Month, February 2023. Like the other two episodes, this episode also features Heart Dad Frank Jaworski as the Guest Host. Today's Guest is Carl Wolford. Carl Wolford was born with total anomalous pulmonary venous return or TAPVR and had surgery by Dr. Denton Cooley at 4 months of age in January 195…

1
2023 AHA Teen Impact Sisters 28:16

1y ago28:16

28:16

Why would a pair of teen sisters be interested in working with the American Heart Association? How can these sisters make a difference? How much money do these young ladies plan to raise and how can you get involved? This is the 2nd Saturday Success Story in our Heart Month 2023 mini-series! This features two sisters who have been impacted by conge…

1
CHDs in Society #3: The Musicians 7:04

1y ago7:04

7:04

With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-series episode for Heart…

1
CHD Spotlight #3: Tetralogy of Fallot 21:35

1y ago21:35

21:35

This is the 3rd episode in our CHD Spotlight mini-series and we'll be talking about Tetralogy of Fallot. Our expert Guest is Roslyn Rivera and she is a pediatric cardiology nurse who was also born with a congenital heart defect. In this episode, Roslyn shares with Anna what tetralogy of Fallot is, who coined the term for this complex congenital hea…

1
Heart Mom Author: Maggie Schmeider! 23:29

1y ago23:29

23:29

This is another episode in our Wednesday Writer Chat mini-series of Heart to Heart with Anna for Heart Month, February 2023. We’ll start today’s program by learning a bit about Maggie and her daughter’s health condition in Segment 1. In the second segment, we’ll talk about how Maggie came to write her book for the CHD community and in the final seg…

1
Healing Hearts and Minds in the CHD Community 29:20

1y ago29:20

29:20

What are some special considerations that need to be made for the mental health of someone born with a cardiac condition? Why should there be a book specifically for understanding the mental and emotional development of people born with critical congenital heart conditions requiring multiple open-heart surgeries? What makes counselors, born with co…

1
Medical Monday #2: Monkey Lungs! 9:40

1y ago9:40

9:40

This is the second episode in our Heart Month 2023 Medical Monday series. In last week's Wednesday Writer Chat, Anna talked to author Richard Schwindt about his life and he was born in the 1950s with a congenital heart condition. He informed Anna that monkey lungs helped to keep him alive through one of his surgeries. Curious about what procedure w…

1
Heart Dad Sunday #2: Tom Hansen: Heart Dad Podcaster and Author 29:10

1y ago29:10

29:10

Why would a heart dad decide to host a podcast? Why would he write a book for the congenital heart defect community? What has this dad learned from having a child with a heart defect? Tom and Kat Hansen are parents to Audrey and Harding. In 2014, Harding was diagnosed with multiple congenital heart defects in utero, for which he has undergone three…

1
HRHS Heart Warrior Mom 34:22

1y ago34:22

34:22

How safe is it for a woman born with hypoplastic right heart syndrome to get pregnant and carry a baby to term? What considerations need to be made when Heart Warriors with complex CHDs decide to get pregnant? What advice does a Heart Warrior Mom have for others considering having a baby? Katelynn Scoggins was born with a critical congenital heart …

1
CHDs in Society #2: The Athletes 7:27

1y ago7:27

7:27

With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-series episode for Heart…

1
CHD Spotlight #2: Holes in the Heart 37:56

1y ago37:56

37:56

In our second CHD Spotlight episode, we'll discuss holes in the heart—atrial septal defects (ASDs), ventricular septal defects (VSDs) and more! Today's CHD Spotlight is on the most common type of heart defect commonly referred to as "holes in the heart." This episode features Dr. William Novick—an internationally-known cardiothoracic surgeon and th…

1
Social Worker, Heart Warrior Author 33:55

1y ago33:55

33:55

Are congenital heart defects hereditary? How might someone born with a hole in his heart choose to live his life? Why might a social worker choose to write a book to help the congenital heart defect community? This is our 2nd Wednesday Writer Chat--a special mini-series during Heart Month, February 2023. Today’s show is "Social Worker, Heart Warrio…

1
HLHS Survivor and Mother 1:00:22

1y ago1:00:22

1:00:22

Is it possible to have a baby if you are a woman who was born with HLHS? What problems can occur when a person with a single ventricle heart becomes pregnant? What advice would a Heart Warrior offer others trying to have a baby? Meghan Roswick-Didier is 30 years old and was diagnosed with HLHS at 7 days of age. She had four open-heart surgeries at …

1
HeartWorks Update 2023 38:47

1y ago38:47

38:47

Is it possible there could actually be a cure for congenital heart defects? If so, what might that cure look like? Who would be responsible for creating such a cure? Welcome to our first Medical Monday mini-series for Heart Month 2023. In this episode, you'll revisit HeartWorks, a very special company that is changing the face of treatment for thos…

1
A Child's Role in Transplant Recovery for a Heart Dad 29:56

1y ago29:56

29:56

How can a child help her father recover from heart transplant surgery? How important is it for parents to allow their children to be part of the recovery process? What advice does a heart transplant recipient have for others facing being listed for transplant when they are the parents of a young child? This is the first Heart Dad Sunday episode for…

1
Finding and Creating Success in My Life 48:51

1y ago48:51

48:51

Annie Ulchak was born in Lima, Peru in 1979 with nomenclature HLHS, pulmonary stenosis, double inlet right atrium, and double outlet right ventricle. She was adopted and had the two-stage HLHS process: BT shunt at age 3 and classic Fontan at age 7 at Boston Children's Hospital. She was diagnosed with CHF and cardiac cirrhosis in 2010. In June 2014,…

1
CHDs in Society #1: The Entertainers 5:54

1y ago5:54

5:54

With congenital heart defects being the #1 birth defect around the globe, there are many people touched by this condition. At least 1% of the population is born with a heart defect. Many of them will be innocent murmurs that will close up on their own. But some people have more serious heart conditions. In this special mini-series episode for Heart…

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Hypo Plastic Right Heart Syndrome Podcasts

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