Best Hypoplastic Left Heart Syndrome Podcasts (2024)

1
Money, Money, Money! 14:33

4h ago14:33

14:33

Let's talk about preparing our motherhood financially today! One of the six preps, finances, can make or break you during a momsday moment. Keri gets personal recalling her journey to financial freedom and the understanding of the importance of financial preps. This episode contains talk about WIC, welfare, food stamps, broke as a joke, rags to ric…

1
Meet Margaret Webb; A story about autism, imperfections, getting stuck in the muck of suck, finding hope and purpose. 1:04:22

5h ago1:04:22

1:04:22

Meet Margaret Webb! Author of “A Hero’s Journey in Parenting; Parenting the Child You DIdn’t Expect While You Were Expecting” and certified life coach visits Keri in the Bunker! They discuss the pitfalls of being an ostrich with your head stuck in the sand, comparing yourself to fellow moms, and the perfect storm of judgment. Leaving the “no butts …

1
357 - IVF Pregnancy after Ectopic Losses and Journey to afford IVF with Britne Taylor 40:10

2d ago40:10

40:10

What does an IVF Pregnancy journey look like after losing your fallopian tubes? Today's guest experienced two ectopic pregnancies that resulted in blood loss but also for her to lose her fallopian tubes. Britne Taylor lost her fallopian tubes in her first year of marriage and saving for IVF seemed impossible as her job only offered $500 towards fer…

1
357 - IVF Pregnancy after Ectopic Losses and Journey to afford IVF with Britne Taylor 40:10

2h ago40:10

40:10

What does an IVF Pregnancy journey look like after losing your fallopian tubes? Today's guest experienced two ectopic pregnancies that resulted in blood loss but also for her to lose her fallopian tubes. Britne Taylor lost her fallopian tubes in her first year of marriage and saving for IVF seemed impossible as her job only offered $500 towards fer…

1
From Heart Block to Myotonic Dystrophy: A Survivor's Tale 33:58

10d ago33:58

33:58

Send us a Text Message. What if your heart's rhythm was out of sync from birth, yet you persevered to defy medical odds? Join us as Gwenyth Murphy, a resilient second-generation congenital heart defect survivor, shares her compelling journey of managing complete heart block and other heart conditions. From coping with an abnormally low heart rate a…

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356 - Cervical Insufficiency and Losing a baby at 17 weeks with Oneisha Perrotte-Lewis 1:03:58

8d ago1:03:58

1:03:58

Have you heard of the term cervical insufficiency? Cervical insufficiency is the inability of the cervix to retain the fetus, in the absence of uterine contractions or labor (painless cervical dilatation), owing to a functional or structural defect. It is cervical ripening that occurs far from the term. Today's guest experienced an insufficient cer…

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356 - Cervical Insufficiency and Losing a baby at 17 weeks with Oneisha Perrotte-Lewis 1:03:58

9d ago1:03:58

1:03:58

Have you heard of the term cervical insufficiency? Cervical insufficiency is the inability of the cervix to retain the fetus, in the absence of uterine contractions or labor (painless cervical dilatation), owing to a functional or structural defect. It is cervical ripening that occurs far from the term. Today's guest experienced an insufficient cer…

1
Last Memories before Mama Trauma! 13:52

6d ago13:52

13:52

Lasts! Let us talk about the last memories we have before a momsday moment rocks your world. What was the last good memory you have before the bomb in your motherhood went off? Mama Trauma, Motherhood, Momsday Moment, Momsday Bunker, Momsday Prepper, Trauma, Doomsday, Memories, Prepping, Prepper. If you like this episode and want to connect other M…

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Navigating Life with HLHS and Marfan Syndrome: Rachael's Powerful Story 32:12

6d ago32:12

32:12

Send us a Text Message. Discover the remarkable resilience of Rachael Gott, our extraordinary guest born with hypoplastic left heart syndrome (HLHS). Despite her condition remaining uncorrected, Rachel has navigated a complex medical journey, including ten cardiac ablations and two device implants, all while avoiding open-heart surgeries. Rachael a…

1
355 - Naming a Baby that was Electively Terminated with Raina Brown - REWIND 31:30

13d ago31:30

31:30

In the medical world miscarriages are called spontaneous abortions, and in this community we have to learn how to extend grace to individuals who electively terminate their pregnancies no matter their choice. Join us this month as we explore abortion stories and how healing, grief, and shame can keep all of us bound. After being diagnosed with Poly…

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355 - Naming a Baby that was Electively Terminated with Raina Brown - REWIND 31:30

13d ago31:30

31:30

In the medical world miscarriages are called spontaneous abortions, and in this community we have to learn how to extend grace to individuals who electively terminate their pregnancies no matter their choice. Join us this month as we explore abortion stories and how healing, grief, and shame can keep all of us bound. After being diagnosed with Poly…

1
Chapter 10: Life Lessons from Congenital Heart Defects: Stories of Hope and Resilience 35:54

24d ago35:54

35:54

Send us a Text Message. What happens when resilience meets a congenital heart defect? Join us as we uncover the extraordinary journeys of women who have turned their medical challenges into stories of hope and triumph. Begin with Emily Falcon's deeply moving "A Letter to my Younger Self," where she offers wisdom and reflections that will resonate w…

1
354 - Hypoplastic Left Heart Syndrome and Peace with Child Loss with Taysha Turman - REWIND 24:47

1M ago24:47

24:47

Imagine at your first doctors appointment being told your baby had fluid around their heart? After being advised to wait until the baby had grown to conduct a full anatomy screening, today’s guest was faced with devastating news. Taysha Turman found out at 16 weeks that her baby was diagnosed with hypo-plastic left heart syndrome and a diaphragmati…

1
354 - Hypoplastic Left Heart Syndrome and Peace with Child Loss with Taysha Turman - REWIND 24:47

20d ago24:47

24:47

Imagine at your first doctors appointment being told your baby had fluid around their heart? After being advised to wait until the baby had grown to conduct a full anatomy screening, today’s guest was faced with devastating news. Taysha Turman found out at 16 weeks that her baby was diagnosed with hypo-plastic left heart syndrome and a diaphragmati…

1
Chapter 9 of "The Heart of a Heart Warrior" Featuring Heart Warrior Authors 47:06

21d ago47:06

47:06

Send us a Text Message. How do heart warriors find incredible strength amidst life's most challenging moments? In this episode of "Heart to Heart with Anna," we bring you deeply touching and empowering stories from individuals who have triumphed over congenital heart defects (CHD). Join us as Megan Tones sets the stage with an introduction to Chapt…

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353 - Congenital Heart Disease and Healing from Child Loss with Chappy Morgan - REWIND 40:43

27d ago40:43

40:43

After being diagnosed at 18 years old with Polycystic Ovarian Syndrome (PCOS) today’s guest was told she was unable to have children. At 31, Chappy Morgan lost a significant amount of weight and was surprised when she found out she was expecting. During an ultrasound she found out her son was sick and was going to suffer from heart problems specifi…

1
353 - Congenital Heart Disease and Healing from Child Loss with Chappy Morgan - REWIND 40:43

1M ago40:43

40:43

After being diagnosed at 18 years old with Polycystic Ovarian Syndrome (PCOS) today’s guest was told she was unable to have children. At 31, Chappy Morgan lost a significant amount of weight and was surprised when she found out she was expecting. During an ultrasound she found out her son was sick and was going to suffer from heart problems specifi…

1
"The Heart of a Heart Warrior" Chapter 8 Featuring Megan Tones and Julie Kerr 42:01

28d ago42:01

42:01

Send us a Text Message. Ever wondered how a heartfelt community can transform lives through stories and shared experiences? Join me on this special episode of "Heart to Heart with Anna" as I express my gratitude for the overwhelming birthday wishes from the congenital heart defect community. You'll be introduced to the latest literary gem from Baby…

1
Heart Warrior Transformations: From Challenges to Creative Triumphs 28:11

1M ago28:11

28:11

Send us a Text Message. Have you ever wondered how living with a congenital heart defect can shape one's life journey? This week, we’re diving into the remarkable stories of heart warriors, those extraordinary individuals who navigate life with congenital heart defects. I'm Anna Jaworski, and in this episode, we explore the powerful metaphor of tra…

1
352 - Maternal Near Miss Survivor and H.E.L.L.P. Syndrome with Tomeka Isaac - REWIND 44:41

1M ago44:41

44:41

Imagine being told that your baby had no fetal heartbeat one month from their due date? Today’s guest Tomeka Isaac takes us back to that very moment where she and her husband were faced with the news no parent ever wants to hear that her son Jace was not going to make it. Then they were dealt another blow that she was diagnosed with H.E.L.L.P Syndr…

1
352 - Maternal Near Miss Survivor and H.E.L.L.P. Syndrome with Tomeka Isaac - REWIND 44:41

2M ago44:41

44:41

Imagine being told that your baby had no fetal heartbeat one month from their due date? Today’s guest Tomeka Isaac takes us back to that very moment where she and her husband were faced with the news no parent ever wants to hear that her son Jace was not going to make it. Then they were dealt another blow that she was diagnosed with H.E.L.L.P Syndr…

1
Meet Thao: A story about infertility, embryo adoption, postpartum depression, rhabdomyolysis and infidelity. 1:01:48

1M ago1:01:48

1:01:48

You should read her Yelp Review! Meet Thao! This funny lady is a walking ray of sunshine with her half-glass-full attitude. After learning she had advanced aging ovaries that would hinder her dream of motherhood, she opted to go the fertility treatment route. With multiple viable embryos, she chose to gift others and put them up for adoption. Throu…

1
Young and Dumb: A story about a girl gone wild! 11:02

2M ago11:02

11:02

She's as wild as a wild bronco! In this episode, Keri discussed the difference between "young and dumb" and "young and curious." Have you ever heard of a little reality show called 'Girls Gone Wild?' Listen to the hilarious story of when Keri found herself on 'Girls Gone Wild' while visiting her favorite city, New Orleans. Like the episode? Follow …

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351 - Overcoming Endometriosis After Losing Ovary & Fallopian Tube with Bria Burrell - REWIND 43:50

2M ago43:50

43:50

Have you ever suffered from painful periods? Today’s guest Bria Burrell has always had painful periods, and in 2015 she found out there was an cyst on her left ovarian. Her OB/GYN monitored the cyst for a couple of months, until it started to grow. In order to prevent the cyst from rupturing the OB/GYN performed a laparoscopic procedure in January …

1
351 - Overcoming Endometriosis After Losing Ovary & Fallopian Tube with Bria Burrell - REWIND 43:50

2M ago43:50

43:50

Have you ever suffered from painful periods? Today’s guest Bria Burrell has always had painful periods, and in 2015 she found out there was an cyst on her left ovarian. Her OB/GYN monitored the cyst for a couple of months, until it started to grow. In order to prevent the cyst from rupturing the OB/GYN performed a laparoscopic procedure in January …

1
Navigating Parenthood with a Congenital Heart Defect During Covid-19: Amelia Woods' Journey 30:52

2M ago30:52

30:52

Send us a Text Message. What happens when you're expecting a baby with a congenital heart defect during a global pandemic? Join me, Anna Jaworski, as I sit down with Amelia Woods, a courageous heart mom who faced this exact challenge. Amelia shares the emotional rollercoaster of managing her son Henderson's dextrotransposition of the great arteries…

1
Navigating Romantic Life with a Heart Condition: Insights from Dr. Corinne Smorra 38:41

2M ago38:41

38:41

Send us a Text Message. What happens when your heart condition becomes part of your dating narrative? Today on Heart to Heart with Anna, we welcome back Dr. Corinne Smorra, a psychotherapist and adult living with congenital heart defects (CHD). Dr. Smorra opens up about her personal journey with truncus arteriosus and sheds light on the myths and m…

1
Meet Story; Part Two: A journey through pedestrian versus vehicle fatality, severe brain injury, grief, organ donation and redemption. 20:58

2M ago20:58

20:58

Part two is all about the sweet Peace Lily of the family. After walking in the trenches of the judicial system, Story’s youngest daughter was hit by a car while walking with a group of friends near the neighborhood school. Now she is faced with yet another nightmare. Story talks about a black cloud hanging over her motherhood and it is so relatable…

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350 - Losing your Baby and Losing your Womb with Alexus Harris Oluyole - REWIND 37:55

2M ago37:55

37:55

Losing your baby and losing your womb and ability to have more children is what today’s guest had to face. Alexus Harris Oluyole lost her son Maverick at 21 weeks due to pregnancy complications and had to have a partial hysterectomy to save her life. Alexus Harris Oluyole was devastated as she had to navigate the grief of losing her son and losing …

1
350 - Losing your Baby and Losing your Womb with Alexus Harris Oluyole - REWIND 37:55

2M ago37:55

37:55

Losing your baby and losing your womb and ability to have more children is what today’s guest had to face. Alexus Harris Oluyole lost her son Maverick at 21 weeks due to pregnancy complications and had to have a partial hysterectomy to save her life. Alexus Harris Oluyole was devastated as she had to navigate the grief of losing her son and losing …

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349 - Overcoming Secondary Infertility with Jessica Hortman - REWIND 55:47

2M ago55:47

55:47

After experiencing three losses today’s guest felt ashamed and guilty of her grief as she experienced secondary infertility with already having two children. Jessica Hortman had a spontaneous miscarriage in 2015 at 6 weeks, a miscarriage due to a submucosal fibroid at 10 weeks in 2016, two years years of not getting pregnant, and then finding out s…

1
349 - Overcoming Secondary Infertility with Jessica Hortman - REWIND 55:47

2M ago55:47

55:47

After experiencing three losses today’s guest felt ashamed and guilty of her grief as she experienced secondary infertility with already having two children. Jessica Hortman had a spontaneous miscarriage in 2015 at 6 weeks, a miscarriage due to a submucosal fibroid at 10 weeks in 2016, two years years of not getting pregnant, and then finding out s…

1
Meet Story; Part One: A journey through the judicial system, gang violence, a broken public school system and becoming bigger than the bear! 45:01

2M ago45:01

45:01

A Rose, a Wildflower and a Peace Lily. Do you ever feel like a black cloud is following you on your motherhood journey? In part one, Story takes us through her journey with her first momsday moment. The first one involves her wildflower where they found themselves in the middle of gang violence. Abusive behavior from the police, a corrupt judicial …

1
James Robinson's Emotional Odyssey: Love and Loss in a Heart Family 44:11

2M ago44:11

44:11

Send us a Text Message. What happens when your entire world is defined by hospital walls and medical jargon? On "Heart to Heart with Anna," we share the poignant and raw journey of James Robinson, a father who walks us through the emotional highs and profound lows of raising his son Nadav, who was born with a congenital heart defect known as single…

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348 - What does Life After Baby Loss look like? Life after Lakhanya with Yonela Rasi - REWIND 35:36

2M ago35:36

35:36

What does Life After Baby Loss look like? Feel like? Appear to be for everyone like today’s guest. Yonela Resi is the mother of two angels. One baby she loss at 16 weeks and the other a stillbirth at 38 weeks. In this episode she takes us on that journey of becoming a mother at 24 in South Africa, the black community there and how baby loss is not …

1
348 - What does Life After Baby Loss look like? Life after Lakhanya with Yonela Rasi - REWIND 35:36

2M ago35:36

35:36

What does Life After Baby Loss look like? Feel like? Appear to be for everyone like today’s guest. Yonela Resi is the mother of two angels. One baby she loss at 16 weeks and the other a stillbirth at 38 weeks. In this episode she takes us on that journey of becoming a mother at 24 in South Africa, the black community there and how baby loss is not …

1
Humility vs. Pride: The cure for pride is a momsday moment! 16:13

3M ago16:13

16:13

No one can humble you more than your child! Remember moments when your precious baby said something truthful that made you stop in your tracks? Let’s talk about how the cure to a prideful heart is a momsday moment. Listen now, like, and share!By Keri Henson aka Momsday Prepper

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347 - Healing from Miscarriage and Birthing a Miracle Micropreemie at 26 weeks with Carrita Flle - REWIND 22:57

3M ago22:57

22:57

After two miscarriages today’s guest experienced preterm labor at 26 weeks. Carrita Flie would not have chosen this journey to motherhood. After her miscarriages, one in the first trimester and one in the second, she was labeled high risk and had to see a specialist weekly when she became pregnant with her rainbow baby. At 21 weeks she was told her…

1
347 - Healing from Miscarriage and Birthing a Miracle Micropreemie at 26 weeks with Carrita Flle - REWIND 22:57

3M ago22:57

22:57

After two miscarriages today’s guest experienced preterm labor at 26 weeks. Carrita Flie would not have chosen this journey to motherhood. After her miscarriages, one in the first trimester and one in the second, she was labeled high risk and had to see a specialist weekly when she became pregnant with her rainbow baby. At 21 weeks she was told her…

1
Meet the kids! A story about siblings, childhood cancer, pedestrian accident, triggers and trauma. 51:04

3M ago51:04

51:04

Giddy Up! Introducing Harry and Jay! Keri’s two oldest children join her in the studio to give a sibling's perspective during a momsday moment. They walked alongside their little brother, Super G, while he fought childhood cancer. After Hurricane Harvey, as a family, we rebuilt our home. They watched an eating disorder sweep through the family. The…

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346 - Feeling like you may never experience Motherhood after Miscarriages with Jasmine M. Mason - REWIND 18:42

3M ago18:42

18:42

Have you felt you may never experience motherhood? Today’s guest felt exactly that way after experiencing two miscarriages. Jasmine Moore experienced her first miscarriage in 2016 at 11 weeks cause was a blighted ovum. In 2018 she experienced her second miscarriage at 19 weeks due to natural causes. Jasmine takes us back on her journey to motherhoo…

1
346 - Feeling like you may never experience Motherhood after Miscarriages with Jasmine M. Mason - REWIND 18:42

3M ago18:42

18:42

Have you felt you may never experience motherhood? Today’s guest felt exactly that way after experiencing two miscarriages. Jasmine Moore experienced her first miscarriage in 2016 at 11 weeks cause was a blighted ovum. In 2018 she experienced her second miscarriage at 19 weeks due to natural causes. Jasmine takes us back on her journey to motherhoo…

1
Meet Aislinn; A story about Hypoplastic Left Heart Syndrome, fertility struggles, preemies, and the ever looming question; what’s next? 1:13:37

3M ago1:13:37

1:13:37

Quick out of the shoot! Meet Aislinn! Motherhood began in the NICU where Aislinn found her inner mama bear, advocating for her baby, and learning to stand powerful in motherhood. After spending 60 days in the NICU, Aislinn and her husband took their sweet angel home and quickly became pregnant with their son. Believing that the worst was behind the…

1
Heartfelt Battles to Artistic Revelations with Amy Milz 31:08

3M ago31:08

31:08

Send us a Text Message. Amy Milz opens her heart to us—quite literally—in a candid recount of her life as a congenital heart defect survivor. With grace and vulnerability, she takes us through the paces of her medical odyssey, from the relentless advocacy of her mother to her personal victories in the operating room. Each scar tells a story of resi…

1
Mother's Day Reflections: The Valor and Vitality of Heart Moms 26:56

3M ago26:56

26:56

Send us a Text Message. When Hope's first breaths were intertwined with the whispers of uncertainty, my world changed. As a heart mom, each Mother's Day is not just a celebration but a milestone, reflecting the grit and grace it takes to raise a child with a congenital heart defect. Join me, Anna Jaworski, in an episode where we explore the deep em…

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345 - Crystal Justice’s Healing from Miscarriage and Still Desiring to become a Mother - REWIND 33:20

3M ago33:20

33:20

Being raised in a Christian faith based home, and respecting the unspoken rule of not having children out of wedlock, today’s guest began her journey to motherhood at 38 years old. Crystal Justice found out she was pregnant on Aug 9, 2018. On Sept 7, 2018 she was told that the pregnancy was no longer viable. Despite my HCG levels and Progesterone l…

1
345 - Crystal Justice’s Healing from Miscarriage and Still Desiring to become a Mother - REWIND 33:20

3M ago33:20

33:20

Being raised in a Christian faith based home, and respecting the unspoken rule of not having children out of wedlock, today’s guest began her journey to motherhood at 38 years old. Crystal Justice found out she was pregnant on Aug 9, 2018. On Sept 7, 2018 she was told that the pregnancy was no longer viable. Despite my HCG levels and Progesterone l…

1
Keri talks about VALIDATION, EMPATHY and building a STRONG community! 14:38

3M ago14:38

14:38

Don’t eat supper before you say grace! Why are validations so important and do you have someone with the communication skills to sit with you through your momsday moment? If you don’t sit in it you won’t heal from it! As you build your community, place people beside you that are full of empathy, gentleness, and sincerity. Join me in a conversation …

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344 - Shawn Owen’s Uterine Fibroids Journey and Pregnancy After Miscarriage - REWIND 20:19

3M ago20:19

20:19

90% of African Americans women have fibroids and today’s guest shares her miscarriage story and rainbow pregnancy with fibroids. Shawn Owens found out she was expecting as she was preparing for an outpatient procedure. She and her husband were shocked by the news due to her diagnosis with uterine fibroids and her being 38 years old. Shawn wanted to…

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344 - Shawn Owen’s Uterine Fibroids Journey and Pregnancy After Miscarriage - REWIND 20:19

3M ago20:19

20:19

90% of African Americans women have fibroids and today’s guest shares her miscarriage story and rainbow pregnancy with fibroids. Shawn Owens found out she was expecting as she was preparing for an outpatient procedure. She and her husband were shocked by the news due to her diagnosis with uterine fibroids and her being 38 years old. Shawn wanted to…

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Hypoplastic Left Heart Syndrome Podcasts

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