Zac Brown Band's John Driskell Hopkins sips on cold beverages with guests and talks about music.
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Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage o ...
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Zac Brown Band's John Driskell Hopkins: An Update on ALS, Life and Music
1:01:17
1:01:17
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Grateful to catch up with John Driskell Hopkins (Hop) again to see how he’s doing with his ALS diagnosis. About 2.5 years after being told he had ALS, John continues to perform with the Zac Brown Band. Despite seeing some progression of the disease, Hop is living a full and joyful life. He's busy creating new music, being a family man and promoting…
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Goode and Faithful Servant: A Chat with Kerry Goode
31:26
31:26
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So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL. So he knew something was wrong when he couldn’t pick up a bo…
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Could it be ALS? - Bob Scannell on ALS Misdiagnosis
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43:05
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In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving an ALS diagnosis, Bob is now at the forefront of a campaign to educate both the healthcare industry and th…
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“Staying Loudly” - Sam’s Positive Mindset with ALS
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55:46
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In this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore her journey and outlook on life with grace and gratitude at the forefront. Sam's unwavering positivity and resilience shine throug…
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37-year-old Sara Bennett: Life, Death & Parenting with ALS
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In this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old, Sara was confronted with a devastating diagnosis: ALS. In a candid and deeply moving conversation, Sara opens up about her extraordinary journey, bravely navigating the intricate balance of life as a mother to two youn…
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In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of their nonprofit organization, dedicated to providing free emotional and spiritual support to individuals and families living with ALS. From patients battling th…
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20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting
1:11:43
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When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way. I answer your questions about life with ALS, my thoughts on the future and adv…
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Rebuilding Together After ALS Loss: Juliet Taylor & Tim Abeska
45:33
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In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers. Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there. Today they encourage each other to love & honor their late spouse, enjoy life and be…
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Community Building Amidst ALS: Karen (thekaregiver) & Tony Vick
52:53
52:53
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Here you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond. Despite facing the challenges of ALS, Tony and Karen lead a fulfilling life and share their journey on Karen's Instagram account, https:…
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In this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives. For me, It always fosters a sense of gratitude, reflection, and appreciation for the blessings and relationships in my life. This morning I woke …
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Amanda Stevens: Wife, Mom, Caregiver & Founder of AxeALS
49:56
49:56
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Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019. Amanda and Eric were married only one month when Eric was diagnosed with ALS at a young 29 years old. We fell in love with this young couple as they appeared on the Ellen show three tim…
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Teen Actor Lance Alexander: "From Junk to Hunk"
45:39
45:39
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In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.” Like many, during the Pandemic of 2020, he was isolated and fighting depression and decided to fight back. Lance had a public struggle of being …
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Radio Legend Jim Scott: Living Positively with ALS
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44:44
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Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio. He simply is one of the most giving & positive people I know. Although most of his life has been spent using his voice in his radio career, he is now battling a dise…
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Military Veteran Kate Peters Battling the Enemy: ALS
44:22
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Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom. Kate is a mother of two boys, three and five and was medically retired from the military after being diagnosed with ALS, a fatal disease that has no cure. She was diag…
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"Hope Fights Back" - Andrea Peet & Meredith Atwood
48:15
48:15
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Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet Meredith Atwood in this chat. Andrea and Meredith coauthor Andrea's new memoir titled, "Hope Fights Back." Andrea was thirty-th…
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"Ask Me Anything" - Host Q & A on Life, Outlook & My Terminal Illness
39:09
39:09
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This episode is just me answering YOUR questions. I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here. I'm so grateful for all the questions that came in, about life, perspective, my ALS longevity, family and advice. I love that my listeners feel comfortable asking me anyt…
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Tackling Tough Conversations About ALS (Part 2/2)
42:10
42:10
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Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives. When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this Part 2 episode, I continue chatting wit…
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Tackling Tough Conversations About ALS (Part 1/2)
50:35
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When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who are living with ALS to talk about their experiences with these tough conversations. Here, I’m talking to Amy Stiens, Jim Plews-…
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Power of Positivity with Child Abuse Survivor, Courtney Cirabisi
44:27
44:27
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In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California. She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9 months old, resulting with a spinal cord injury. I've been following her journey as she shows us that life doesn’t stop after yo…
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Q&A: Young Adults Living with ALS (Part 2/2)
46:21
46:21
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May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness. My guests, Ashley Rivera and Mira Hudson were diagno…
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Q&A: Young Adults Living with ALS (Part1/2)
56:00
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In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness. May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's lik…
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"The Wisdom of Morrie" with His Son Rob Schwartz
42:57
42:57
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On this episode of I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie. We chat about the newly released book, “The Wisdom of Morrie.” The book was written by Morrie Schwartz, recently edited and released by Rob. The number one bestseller Tuesdays with Morrie was written from conve…
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Zac Brown Band's John Driskell Hopkins & His Battle with ALS
1:02:10
1:02:10
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Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig’s Disease. John was diagnosed with ALS, a terminal illness with no cure in 2021. John, also known as Hop, decided to go public with his ALS hoping his reach could result in awareness, action and …
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Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease. Brooke was diagnosed with the terminal illness, ALS, at a young 33. With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media.. …
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Here I talk to someone who has ALS for over 25 years. I reconnect with a former colleague from Kraft Nabisco, John Carthum. It was a few decades ago when I heard John left the company for medical reasons. I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004. That’s whe…
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"Sometimes I Shake" - An Inspirational Tale on Living Fully
52:04
52:04
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Here I chat with award-winning director/producer, Jared Callahan. He shares the inspiration behind the film, SOMETIMES I SHAKE. The documentary film follows PLNU music professor and jazz conductor Dan Nelson as he navigates his life and profession around an ever-increasing shake caused by his Parkinson's disease. Then suddenly, Dan is devastated by…
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In this episode, it's just ME talking about LOVE :) Here I mix it up a little and talk about what's on my heart. This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love. I talk about the first few things that came to mind, Listen, Words, Time and Action. I thought to myself, these seem so simple but r…
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Brian Wallach & Sandra Abrevaya: Action Born from Hope
52:22
52:22
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Here I chat with Brian Wallach and his wife Sandra Abrevaya, co-founders of I AM ALS and Synapticure. At 37, Brian was diagnosed with ALS—on the same day he and he and Sandra brought their second daughter home from the hospital. In an instant, everything changed. They went from being a couple only a few years removed from both working at the White …
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Kylan Morris and Carrying on Her Mama's Legacy
44:00
44:00
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Here I talk to Kylan Morris, 25, who recently lost her mother to ALS about how she's already following her mama's marching orders to help those battling ALS. "Please take my baton & run faster & farther." That was Sandy Morris's last twitter message to her fellow advocates fighting for ALS cures with her. Sandy Morris passed away on August 28, 2022…
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INSPIRED REPLAY: "Words to Live By - a Chat with Jamie and Scott Smith"
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I knew I wanted to do an episode about HOPE, heading into the new year. On December 8th we lost our friend Scott Smith and quickly I knew his words were all I needed to share. This episode is an inspired replay. In memory of our dear friend Scott Smith, I added a new intro, a message from Jamie and then share my original chat with Scott and Jamie S…
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Michael Platt: Teen Baker Fights Hunger with "Sweets for a Cause"
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So happy to talk to 17 year old Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author. He inspires me with his giving spirit and passion to help others. Michael recently released his first cookbook to bring awareness to food and poverty. His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitc…
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Luka & the Lights: Introducing the First Robot with ALS
46:02
46:02
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In this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it all. I chat with the team that is bringing the first robot with ALS to the big screen. The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS. Sascha created the robo…
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How Cancer Changed Their Lives for the Better: Michael & Ashlee Cramer
42:58
42:58
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In this episode, hear 21 year old Michael Cramer who was given just eight months to live share his journey on beating a rare and aggressive blood cancer. At age 19, Michael had been an athletic, healthy teenager. He was a surfer and sailor, rarely sick and had never been hospitalized. A routine blood test led to a life-changing cancer diagnosis. Af…
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Behind the Lab Door: ALS TDI's Passion & Hope to End ALS
1:09:20
1:09:20
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Here I am on location in Boston to bring you a behind the scenes look and my weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS. I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research. I wrapped …
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20-year-old Emma & her 20-year ALS Warrior & Grandfather, "Grandy"
44:08
44:08
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In this episode, I talk to Emma Terry who is a an ALS caregiver and a participant in the Miss America organization with her platform being ALS. I catch up with this college student at the University of Alabama at Birmingham who is an ALS advocate, caregiver and granddaughter of ALS warrior, Stewart Simpson. Emma recently turned 20 and her grandfath…
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Lori Larson Heller: Moving Forward Instead of Moving On
52:40
52:40
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Hear my conversation with Lori Larson Heller as we talk about love, loss and moving forward instead of moving on. Lori is a writer, speaker, fierce ALS advocate, and a widow. She was in a season where life was going better than she could of planned. Lori had a husband who was her best friend and soul mate, the absolute love of her life. Then withou…
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Katrina Byrd on Love, Caregiving and Forgiveness
43:32
43:32
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Here I chat with ALS advocate and boa flouncer Katrina Byrd about her experience as a caregiver and what led her to write, "The Language of Forgiveness." Katrina is a writer, playwright and ALS advocate, of Jackson, Mississippi. She's an inspiration to many as she is a perfect example of courage, love, acceptance and forgiveness. Katrina is legally…
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INSPIRED REPLAY: "Tuesdays with Morrie" Author, Mitch Albom
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This month is the 25th anniversary of the American classic book, "Tuesdays with Morrie." Here I'm resharing my precious conversation with the author Mitch Albom. We talk about love, faith, living and dying and the life lessons from his professor, Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Mo…
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Listen in to my conversation with David Richman who rode his bike 5,000 miles to explore the emotional journey of cancer. After losing his sister to brain cancer, David was led to do something incredible that can inspire us all. In this chat we talk about his intense and unique fundraiser in his sister's memory which was writing a book, Cycle of Li…
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Sarah Nauser Fights ALS to Serve and Protect Others
44:28
44:28
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Listen in to my conversation with former Kansas City police officer, Sarah Nauser as we chat about life and love while living with a terminal illness. For eight years, Sarah earned high praise as a young, vibrant, rising star within the Kansas City Police Department. She was living her dream until she was told she had ALS at the young age of 29. Sa…
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"No You Won't Bully Me" - DJ Annie Red, Teen Activist
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37:12
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Here I chat with 13 year old Samirah Horton, aka DJ Annie Red who uses her music to spread an anti-bullying message. This award winning DJ is also a rapper, author, motivational speaker and anti-bullying activist from Brooklyn, New York. From the age of 6, Samirah was picked on by her peers for the things that made her different—her raspier voice, …
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Here I catch up with David & Scott Lloyd, the brothers who created Racing for ALS. Growing up, David and Scott loved racing and always talked about racing cars together. As life happened, that desire got put to the side, yet they kept putting off their dreams of auto racing. That all changed in 2017, when David was diagnosed with ALS. They realized…
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Giving Back His Father's Independence by Creating LifeDrive
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44:28
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In this episode, I chat with college student John Sexton, CEO and Founder of LifeDrive. What started as an idea to help his dad who has ALS, John now creates adaptive technology for people with disabilities in order to give them more independence. John is an upcoming senior at the University of Notre Dame and next drum major for the Notre Dame Band…
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What You Want to Know, But Were Afraid to Ask (Part 2/2)
55:40
55:40
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In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and…
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What You Want to Know, But Were Afraid to Ask (Part 1/2)
53:17
53:17
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In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and…
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The Miracle League with Kim Nuxhall: Giving Everyone a Chance to Play
38:18
38:18
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In this episode, I talk to Kim Nuxhall who created the Joe Nuxhall Miracle League so that everyone with any challenge can play the game of baseball. Kim is the Chairman of the Board of Directors for the Joe Nuxhall Miracle League. He joins the podcast to tell the powerful story and mission behind his father's legacy projects. Kim's dad, Joe Nuxhall…
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Finding Love After Loss with Alison Burell & David Stanley
43:52
43:52
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Here I chat with Alison Burell and David Stanley, who each lost the love of their life way too early. Alison's husband Cory Burell, passed away from ALS at the age of 35 after a valiant fight with familial ALS. David's wife Angela Stanley, died from ALS at a young 50 years old. Through the ALS community, Alison and David met after they each lost th…
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Mother & Daughter Cancer Warriors Bring Hope
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26:52
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In this episode, I talk to Tracy Croxen and her daughter, Jocelyn who are surviving cancer and helping others navigate their journeys. In September 2017, Tracy was diagnosed with ovarian cancer. Almost exactly to the day two years later, in 2019, her 7-year-old daughter Jocelyn was diagnosed with a rare form of cancer called T-Cell Acute Lymphoblas…
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Hope Loves Company - Supporting Children in ALS Families
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In this episode, I chat with three amazing women who are all involved with Hope Loves Company, a non-profit that provides support to children who have had or have a loved one battling ALS. Hope Loves Company is the result of raising three children who had to learn about ALS (or Lou Gehrig's Disease) as young children. Hope Loves Company's (HLC) fou…
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Host "Ask Me Anything" - Answering Your Questions
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28:01
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To wrap up Season 2, I asked my listeners for questions and here I answer each of them in this "Host Ask Me Anything" episode. This was created by YOU, the listener with questions from light to serious. So many listeners asked what they were curious about. I'm so grateful for all the questions that came in, some that really made me reflect and othe…
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