Best Jon Strum Podcasts (2024)

1
Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox 28:29

3d ago28:29

28:29

Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home. My guest this week is the Managing Director of the North American…

1
Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2 40:05

10d ago40:05

40:05

Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting. In this episode, we're sharing our conversations with some of the experts who were at the meeti…

1
Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger 35:42

17d ago35:42

35:42

Last week, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. Welcome to Part 1 of our coverage from that meeting. In this episode, I'm talking with Dr. Kathy Zackowski, Associate Vice-President for Research at …

1
Episode 352: World MS Day with Rachel Horne 28:23

24d ago28:23

28:23

May 30th is World MS Day, and we're taking this opportunity to look at some of the challenges faced by people with MS around the world. Global economics and the peculiarities of different healthcare systems make fundamental issues like access to quality healthcare and affordable MS medications difficult for many and impossible for some. U.K. journa…

1
Episode 351: Managing Stress When You're Living with MS with Dr. Grace Tworek 29:01

1M ago29:01

29:01

We've reached a moment in time when it seems impossible to avoid at least some level of stress in our lives. We also know that stress has been shown to make MS symptoms worse and even trigger relapses. We can't eliminate all the stress in our lives, so learning how to manage and minimize stress is an important part of living well with MS. This week…

1
Episode 350: Choosing Your MS Disease-Modifying Therapy with Dr. Barbara Giesser 34:45

1M ago34:45

34:45

There are more than 20 disease-modifying therapies available to treat MS today. Some are considered high-efficacy, some are considered moderately effective, and each has its own risk profile and side effects to consider. So, how do you choose? How much homework should someone living with MS do? Where should you look for reliable information? And wh…

1
Episode 349: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 2) 44:15

2M ago44:15

44:15

As we age, our bodies undergo biological changes. Our immune system changes. Our brain changes with age. Our cognitive abilities change, as do our physical abilities. These changes impact everyone. But these biological processes may impact people with MS differently. And MS may impact these biological processes differently. Just a couple of weeks a…

1
Episode 348: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 1) 29:34

2M ago29:34

29:34

As people age, their immune systems change. Their level of physical and cognitive reserve changes. They often develop additional health issues. They frequently experience changes in their mobility. And these are people who aren't living with MS. When you combine the health issues related to aging with the health issues that are related to MS, you e…

1
Episode 347: Vitamin D and MS with Dr. Ellen Mowry 33:38

2M ago33:38

33:38

Lower levels of Vitamin D have been associated with a higher risk of developing MS and an increase in MS disease activity. And, for years, scientists have worked to better understand the relationship between Vitamin D and MS. Joining me to talk about the role that Vitamin D plays in MS is Dr. Ellen Mowry. Dr. Mowry is a Professor of Neurology and E…

1
Episode 346: Why Members of Minority Communities May Face A More Severe MS Disease Course with Dr. Annette Langer-Gould 33:04

2M ago33:04

33:04

In past episodes of this podcast, we've discussed disparities in healthcare. We've looked at evidence that shows members of historically underserved communities who are living with MS can face a more severe disease course. We've looked at studies that have shown some members of these racial and ethnic minority groups don't do as well on disease-mod…

1
Episode 345: A Deep Dive into Women's Health and MS with Dr. Rhonda Voskuhl and Dr. Anna Shah 34:11

2M ago34:11

34:11

MS affects women almost 3 times more frequently than it affects men, which makes understanding how MS may impact other women's health issues a priority. Dr. Rhonda Voskuhl and Dr. Anna Shah join me as we take a deep dive into both the research and clinical side of how MS affects women's health and how those other health issues may affect MS. Dr. Sh…

1
Episode 344: Big Data Leads to Big Breakthroughs in MS with Professor Sergio Baranzini 33:42

3M ago33:42

33:42

If you're a regular listener, you've probably heard me say that the pace of scientific discovery is moving faster than ever before. Or you may have heard the National MS Society remind us that we've seen as many advances in MS research in the past 5 years as we have in the previous 70 years. Have you ever wondered why? A major driver of this accele…

1
Episode 343: Progressive MS Day with Kevin Reid 29:41

3M ago29:41

29:41

March 28th is Progressive MS Day, a day that offers an opportunity for people affected by MS, patient advocates, healthcare providers, governments, and industry to share stories online and show their support for people living with progressive forms of MS. My wife, Jeanne, lived with progressive MS for 23 years, so this day holds a special significa…

1
Episode 342: Behind the Scenes of an MS Research Study with Chiquita Shepard-Knight and Earl Sneed 28:50

3M ago28:50

28:50

We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study. Chiquita and Earl will discuss how they discovered the TEAAMS study, what moti…

1
Episode 341: How MS Can Impact Vision with Dr. Shiv Saidha 31:17

3M ago31:17

31:17

Vision impairment is a key symptom of multiple sclerosis. In fact, many people experience optic neuritis as the very first sign of MS. People living with MS may also experience other vision-related issues including internuclear ophthalmoplegia, diplopia, nystagmus, oscillopsia, and reading fatigue. Dr. Shiv Saidha joins me as we take a deep dive in…

1
Episode 340: This Is Not Your Father's MS Rehabilitation with Dr. Deborah Backus and Dr. Brad Willingham 31:18

4M ago31:18

31:18

When people living with MS think about rehabilitation, they often think of physical therapy. And, while physical therapy is an important part of MS rehabilitation, our conversation today goes far beyond physical therapy. Doctors Deborah Backus and Brad Willingham, from the Shepherd Center, join me as we take a deep dive into next-level potentially …

1
Episode 339: Understanding Progression Independent of Relapse Activity with Professor Alan Thompson 29:47

4M ago29:47

29:47

A couple of terms have found their way into the MS lexicon and they have left some people living with MS feeling confused and even frightened. If you've been diagnosed with relapsing-remitting MS and you've always assumed that disease progression only occurs at the time of a relapse, you may be wondering what progression independent of relapse acti…

1
Episode 338: Inside MS Advocacy and This Year's Public Policy Conference with Steffany Stern 33:21

4M ago33:21

33:21

You've probably heard me say more than once that the things people affected by MS want most -- access to quality healthcare, affordable prescription medications, and funding for MS research -- are, to a large extent, all functions of public policy. The people who decide whether we get these things are our elected officials. That's why advocacy is s…

1
Episode 337: Aging With MS with Dr. Aaron Boster 39:44

4M ago39:44

39:44

We're all living longer and that includes people living with MS. And as they age, people with MS are asking new questions. Is there a need to stay on disease-modifying therapy after the age of 60? How do we know whether a new symptom is a symptom of MS or a symptom of aging? Does an additional age-related health condition make treating MS more diff…

1
Episode 336: Applying for Social Security Disability Insurance with Jamie Hall, Esq. 39:32

5M ago39:32

39:32

When people living with MS find themselves unable to continue working due to disability, they turn to Social Security Disability Insurance (SSDI). And when they do, many are surprised to find the long, winding, sometimes confusing road that lies ahead. This week, disability law expert Jamie Hall joins me to demystify the process of applying for SSD…

1
Bonus Episode: MS21: Are We Meeting the Needs of Individuals at the Time of Their MS Diagnosis with Prof. Alice Laroni and Rachel Horne 24:51

5M ago24:51

24:51

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada. In this special episode of RealTalk MS, Professor Alice Laroni and Rachel Horne join me to explore what happens at the time someone receiv…

1
Episode 335: Know Your Employment Rights If You're Living With MS with Christina Forster 32:08

5M ago32:08

32:08

How, and to whom, should you disclose your MS at your job? And if you decide to disclose, is that information confidential? What does reasonable accommodation mean? If you need a day or two to bounce back after an infusion, is that part of your PTO? And what do you do when you no longer have days off available? If you're living with MS and you're e…

1
Episode 334: Managing Health Insurance When You're Living With MS with Carla Turechek 28:17

5M ago28:17

28:17

Living well with MS means learning to plan ahead. And, while planning ahead may not solve every issue that crosses your path, taking time to understand some of the details and making the right choices when it comes to your health insurance can make a huge difference in your MS care and treatment. MS Navigator and insurance resources specialist Carl…

1
Episode 333: Improving Communication Between You and Your Neurologist with Dr. Luis Manrique-Trujillo 35:53

5M ago35:53

35:53

You've just had your appointment with your neurologist or MS Specialist and you're on your way home, feeling like you weren't heard. Maybe there wasn't sufficient time. Or it might feel like your opinion simply isn't valued. Your frustration could even be the result of language issues and cultural barriers that make communication difficult. Whateve…

1
Episode 332: Managing the Cost of Generic, Biosimilar, and Other Prescription Medications with Robin LaRue 29:21

6M ago29:21

29:21

If you remember your Economics 101 class, the introduction of generic and biosimilar drugs should cause prices to drop. Yet, when it comes to MS disease-modifying therapies that isn't always the case. MS Navigator Robin LaRue joins me this week to discuss how to manage the sometimes crazy costs of MS prescription medications. We're also sharing res…

1
Episode 331: Becoming a Donor to the National MS Brain Bank with Dr. Claire Riley 30:14

6M ago30:14

30:14

This is the week that a lot of us make resolutions for the coming year. And I'm hoping that after you hear my conversation with Dr. Claire Riley, many of you will resolve to become donors to the National Multiple Sclerosis Brain Bank. Resolving to donate brain and tissue to the National MS Brain Bank is a new year's resolution that goes far beyond …

1
Episode 330: Revisiting How the Proposed Framework for Researching, Diagnosing, and Treating MS Will Affect You with Prof. Tanja Kuhlmann and Dr. Tim Coetzee 37:57

6M ago37:57

37:57

This week, I'm revisiting the proposal from the International Advisory Committee on Clinical Trials in MS that recommended adopting a new framework that leverages what scientists are continuing to learn about MS and redefines how we talk about MS, how we research MS, how we diagnose MS, and how we treat MS. This proposed framework holds the promise…

1
Episode 329: Revisiting the Pathways To Cures Global Summit 48:54

6M ago48:54

48:54

The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling,and important conversations that I've had over the past year. This week, I'm revisiting the conversations I had at the Pathways To Cures Global Summit that took place in N…

1
Bonus Episode -- MS21: Patient Empowerment: Invisible Symptoms of MS with Professor Klaus Schmierer and Jane Shanahan 34:03

6M ago34:03

34:03

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada. In this special episode of RealTalk MS, we're exploring what the invisible symptoms of MS are, and how to best empower people living with …

1
Episode 328: Cognitive Rehabilitation and MS with Dr. Nancy Chiaravalloti 33:19

7M ago33:19

33:19

Cognitive dysfunction is a common symptom of multiple sclerosis, affecting more than half of the people living with MS. While cognitive issues like changes in memory, difficulty maintaining attention, slower information processing speed and executive function may not be among the most disabling symptoms of MS, they may be among the most disconcerti…

1
Episode 327: Cannabis and MS with Dr. Michelle Cameron 25:35

7M ago25:35

25:35

A growing number of people living with MS are turning to cannabis for symptom management. But which MS symptoms have responded to being treated with cannabis? Where should someone buy medical cannabis? And is using medical cannabis even legal? Dr. Michelle Cameron returns to the podcast to discuss the risks and benefits of using cannabis for sympto…

1
Episode 326: A Happy Ending That Almost Wasn't with Chris Holland 29:55

7M ago29:55

29:55

Chris Holland had a successful career working as a paralegal when he was diagnosed with MS in 2004. And, while everyone reacts differently to being diagnosed with MS, no one could have predicted what happened next, as Chris lost everything battling demons he never imagined he would ever face. But it would be a mistake betting against Chris Holland'…

1
Episode 325: Making Your Home Safe and Accessible with Tracy Carrasco 28:57

7M ago28:57

28:57

According to the CDC, 36 million falls are reported each year, resulting in 3 million adults being transported to the Emergency Room and 32,000 adults dying from their falls. Studies have shown that, in any six-month period, more than 50% of the people living with MS fall at least once, and 30% fall multiple times. As falls at home are common, occu…

1
Episode 324: Avoiding the Risks of Misdiagnosing MS with Dr. Andrew Solomon 32:14

7M ago32:14

32:14

MS is misdiagnosed too often, which leaves some people who don't have MS receiving expensive disease-modifying therapy that they don't need, while leaving other people who do have MS still not receiving treatment with a disease-modifying therapy that will slow disability progression and preserve their quality of life longer. My guest, Dr. Andrew So…

1
Episode 323: Support for Veterans with MS with Izzy Abbass and a New Project for Jamie-Lynn Sigler 31:57

8M ago31:57

31:57

More than 70,000 U.S. veterans are living with MS. That's why the only federal funding specifically earmarked for MS research comes from the U.S. Department of Defense. It's why the U.S. Department of Veterans Affairs has established the Multiple Sclerosis Centers of Excellence. And it's why, in 2019, the National MS Society established a strategic…

1
Episode 322: Women's Research in MS with Rachel Horne and Dr. Rhonda Voskuhl 33:38

8M ago33:38

33:38

Rachel Horne is a journalist who was diagnosed with MS in 2009. Since then, Rachel has developed a first-hand understanding of the knowledge gaps that remain when it comes to understanding the impact of MS on women's health and the impact of women's health issues on MS. As Rachel reviewed MS research, she also observed that when it came to acknowle…

1
ECTRIMS EXTRA: Dr. Robert Motl 10:20

8M ago10:20

10:20

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS …

1
ECTRIMS EXTRA with Dr. Daniel Ontaneda 9:03

8M ago9:03

9:03

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS …

1
ECTRIMS EXTRA: Dr. Annette Langer-Gould 6:20

8M ago6:20

6:20

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS …

1
ECTRIMS EXTRA with Dr. Anthony Feinstein 8:43

8M ago8:43

8:43

With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS …

1
Episode 321: More from the 2023 Joint ECTRIMS-ACTRIMS Meeting with Dr. Helen Tremlett 22:59

8M ago22:59

22:59

This week, we're sharing more from the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Research in Multiple Sclerosis) annual meeting. What if we could identify MS before anyone experienced any of the typical clinical symptoms? Would treating that person with…

1
ECTRIMS EXTRA with Dr. Jiwon Oh 10:19

8M ago10:19

10:19

With about 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTR…

1
Episode 320: From ECTRIMS-ACTRIMS 2023 with Bonnie Higgins and Dr. Tim Coetzee 17:53

8M ago17:53

17:53

Last week, more than 9,000 MS research scientists and clinicians from more than 110 countries traveled to Milan to attend the largest MS research conference in the world, the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Research in Multiple Sclerosis) annu…

1
Episode 319: Global Survey Results Support a New Framework for Describing MS with Dr. Tim Coetzee 28:54

9M ago28:54

28:54

We've been using the same MS clinical course descriptors (relapsing-remitting, secondary progressive, and primary progressive) for almost three decades. As research has provided so much additional information and insight, is it time to update the way we describe, diagnose, and treat MS? The International Advisory Committee on Clinical Trials in Mul…

1
Episode 318: Understanding Shared-Decision Making with Dr. Lilyana Amezcua 36:05

9M ago36:05

36:05

In this episode of RealTalk MS, we're talking about what you should be talking about with your neurologist or MS Specialist. Shared decision-making is a key component of patient-centered health care. It's a process in which clinicians and patients work together to make evidence-based decisions on tests, treatments, and care plans that balance risks…

1
Episode 317: It's Our 6th Anniversary! These Are the Most Impactful Conversations We've Had Over the Past Six Years 19:20

9M ago19:20

19:20

RealTalk MS is now 6 years old! We've covered a lot of ground in more than 300 episodes over the past 6 years. And I'm marking our 6-year anniversary by highlighting the most impactful conversations we've had in each of the past 6 years. We have a lot to talk about! Are you ready for RealTalk MS??! SHARE THIS EPISODE OF REALTALK MS Just copy this l…

1
Episode 316: Sex and MS with Madelyn Esposito 31:00

9M ago31:00

31:00

It's not unusual to see sex and intimacy become unintended and unnecessary collateral damage in the day-to-day-challenges of living with MS. But it doesn't have to be that way. Madelyn Esposito, LPC, NCC, CST, joins me to discuss some of the common sexual problems faced by people living with MS, ways to maintain intimacy in your relationships, and …

1
Episode 315: Understanding Generic and Biosimilar Drugs for MS with Dr. Jiwon Oh 39:11

10M ago39:11

39:11

Just a couple of weeks ago, the FDA approved the first biosimilar medication for treating MS. As generics and now, biosimilars, become more available, it seems like the right time for us to get clear on the similarities and differences between generics, biosimilars, and the name-brand drugs that they mimic. Dr. Jiwon Oh joins me to explain everythi…

1
Episode 314: Pelvic Floor Health and MS with Jill Ehrmantraut 24:10

10M ago24:10

24:10

When you're living with MS, managing your pelvic floor health may not be among the first things you think about. But pelvic floor dysfunction, and the problems that arise from it, like bladder and bowel issues, can seriously impact your health, well-being, and quality of life. Jill Ehrmantraut, a physical therapist and women's health clinical speci…

1
Episode 313: Disaster Preparedness for People Affected by MS with Mary Casey-Lockyer 29:46

10M ago29:46

29:46

Fire, flood, record-setting heat, tropical storm, earthquake -- we've seen it all in the past several weeks! Natural disasters can present a whole series of unique challenges for people affected by MS. Last year, I had an opportunity to talk about disaster preparedness for people affected by MS with Mary Casey-Lockyer, the Senior Medical Advisor to…

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